The best
Disabled People Demographic Studies books:
Reddit reviews
From 3.5 billion Reddit comments
The best of Disabled People Demographic Studies books by number of unique Reddit comments:
Top Reddit reviews mentioning Disabled People Demographic Studies books:
I am a marriage and family therapist and I am also a person who uses a motorized wheelchair.
This book was recommended to me by a friend and it really is a great resource for people trying to figure out the ins and outs (haha) of sex and disability, especially if it's something a person has not encountered before.
The Ultimate Guide to Sex and Disability: For All of Us Who Live with Disabilities, Chronic Pain, and Illness https://www.amazon.com/dp/1573443042/ref=cm_sw_r_cp_apa_i_9v7QDbH49SAQ0
I started using a wheelchair as a fairly young child, so I was already intimately familiar with my disability by the time I was outwardly expressing my sexual identity, and I was fortunate enough to have open minded partners to explore ability and preference with.
To OP, disability does not necessarily have to mean the end of your plans and dreams for and with one another, especially if you love her as much as you seem to. Find a couples therapist or a therapist with experience with disabilities, and make it a point to go together. It may really help you two figure out if and how you can make your relationship work under these unexpected circumstances.
There's nothing wrong with being afraid of a situation you never foresaw for yourself, but be honest with your partner and yourself, and keep communicating honestly with eachother about your thoughts, fears, and needs through this. If you can turn toward one another instead of away, you may find that you are able to grow and change in truly wonderful and fulfilling ways.
If not, it's sad, but then it is best to let it go. It's unfair for both of you if you choose to stay out of a sense of pity or obligation and not because you truly love her and want to stay despite this change in expectations.
Not exactly specific to genetic counseling but I liked these two and read them before going to school:
1) Far From the Tree - each chapter explores the experiences of living with or having a child with a certain identity or condition
2) Genetic Rounds - a narrative by a geneticist (MD) and each chapter tells a story about a different child or family he's met impacted by a genetic coundtion (I'm not sure why it's so expensive on Amazon, I'm sure you'd be able to find it cheaper elsewhere!)
These books are both more about families' experiences than GCs, but I think they offer a good introduction into what we can encounter in our work.
There are tons of incredibly successful, amazing people who have autism. Authors, actors, scientists, musicians, and the list goes on. I recently read a book called "Neurotribes" that explained autism very well. I'd highly recommend it.
I haven’t read it… but I know that Texas is trying to ban this book and it does cover trans children that conservative parents don’t accept…
Sorry your sibling is going through this… isn’t not easy being non-conservative as a minor in conservative households….. been there
I'm incredibly sorry that your fiance was gaslit by the medical community like that for so long. I would recommend the book The Ultimate Guide to Sex and Disability. so understand what's possible after a big diagnosis.
It's a very inclusive book, written by a medical doctor, a sex educator, and a disability activist.
No applied experience in IO/HR, sadly!
But, a useful popular press introduction to the topic: https://www.amazon.com/Neurotribes-Legacy-Autism-Future-Neurodiversity/dp/0399185615
I am not a fan of Musk.
NeuroTribes talks about how the DSM was written by a bunch of white Protestant dudes who were describing people left in their care. So it is not surprising that it does not have much culture context.
Hi, You linked NeuroTribes: The Legacy of Autism and the Future of Neurodiversity, but there's also NeuroTribes: The Legacy of Autism and How to Think Smarter About People Who Think Differently, with an equivalent description but different price (and different title, of course).
Neurotribes by Steve Silberman
I am a parent but this book is one that you may be interested in https://www.amazon.ca/dp/0399185615/ref=cm_sw_r_apan_glt_i_RAN89GB8BK0SNH0JFR65?_encoding=UTF8&psc=1
I can recommend two good books on this very topic.
For yourself
https://www.amazon.com/Neurotribes-Legacy-Autism-Future-Neurodiversity/dp/0399185615/
For your family
https://www.amazon.com/Reason-Jump-Inner-Thirteen-Year-Old-Autism/dp/081298515X/
Long road ahead for you. I think you'll be fine though.
Read Tom Satterly's book. Retired CSM who spent close to 20 years in Delta. Even in top top echelon special forces units, there's still a lot of toxicity and a culture that you're always one misstep away from being hammerfucked by the giant green weenie.
​
https://www.amazon.com/All-Secure-Operators-Battlefield-Homefront-ebook/dp/B07H2D6B4K
I sometimes wonder what toys he used on her. Null said that he had been spending a lot of money on sex toys before his arrest, also he bought this book. Wouldn't be surprised if he was toying her with a dragon dildo and pretending that they were having a threesome with Mewtwo. Food for thought.
There's a really good book called "Everybody here spoke sign" https://www.amazon.com/Everyone-Here-Spoke-Sign-Language/dp/067427041X
It was a need in that community as hereditary deafness was common.
To get back to your question - Why doesn't everyone have to learn Spanish? And French? And Mandarin? To try to teach the basics of ASL and BSL universally would be a huge undertaking and I don't know that everyone would even benefit from it. Some people go an entire lifetime without knowing someone who signs.
Seseame Street tried to mainstream it. I started learning to fingerspell as a kid from PBS shows. I don't know anyone else who knew how to fingerspell as a kid... or cared to learn.
My biggest advantage of knowing ASL was being able to have a private conversation in a public place.
Since the answers could possibly be read by future people, and you are obviously trying to approach this in a respectful way, I'm happy to leave this up unless someone has an issue.
As for resources, I recommend this book, for both of you: https://www.amazon.com/Ultimate-Guide-Sex-Disability-Disabilities/dp/1573443042
You might also benefit from reading subs that focus on disability, as those users may have more hands on experience, like r/stroke has a lot of great posts, and several users who have posted their journey, as well as caregivers dealing with what you are experiencing.
Hopefully, if our members have experienced this, they can share their thoughts with you on what might help. You can also consider individual therapy to learn better coping mechanisms and strategies for avoiding caregiver burnout.
Andrew Soloman's Far from the Tree: Parents, Children, and the Search for Identity
Although I haven't finished it yet, I think it would be a good addition to the list. In the book, Soloman examines how individuals and their families forge an identity out of what is labeled an illness from birth. The chapters in the book are Son, Deaf, Dwarf, Down Syndrome, Autism, Schizophrenia, Disability, Prodigies, Rape, Crime, Transgender, and Father. Using his own experience as a homosexual who was also born dyslexic, he seeks to understand how families are impacted by divergences from the presupposed identity off their offspring. Describing the aspects of our identity that are passed down from our progenitors as "vertical identities", and those that are not as "horizontal identities", Soloman very eloquently conveys the struggle as well as the opportunity for transformation that are inherent in any individual's uniqueness.
Far From the Tree by Andrew Solomon. A book about marginalized communities (deaf, blind, felon, LGBT, etc), and about life as a member of those communities within our larger society.
It implies to Deaf (remember different culture, different norms) that they are impaired and that hearing is super integral. To Deaf, deafness is a very, very, very positive trait to the point that Deaf aim to have deaf children. To them, deafness is not a disability. Much like how in Martha's Vineyard generations ago (read: Everyone Here Spoke Sign Language), deafness was a simple trait that was forgotten about like handedness
I mean, to them, it is their defining trait that does not make their experience of the world better or worse. It just is their experience. The reason deafness is a "disability" is because society is set up for hearing, but that does not need to be the case. Read this.
Manual languages = oral languages in their abilities, they are just different. Can you communicate with your friends from the outside of a glass building and them up on the 7th floor? Can you communicate with your friends underwater? Can you communicate with your friends when you are on a bus and they are on the sidewalk? It is just differences, but our society is built by and for hearing, so it is obvious not being able to hear would be a massive disability, but many societies are built by and for deaf&hearing like Ka'apor in Brazil or Adamarode in Ghana or Martha's Vineyard in the States. :)
You're welcome! It's not my YouTube but both speakers deal with these topics very well and both are real things that will factor in to his life. If you have any other questions I'm here.
Oh, it's very far off of course- but theirs not much on sex and disability. This book really helped once I got a copy at 17. Even as a nondisabled person this book may help you to know just because he has a disability; he doesn't have to be single forever.
Neurotribes by Steve Silberman. The author goes through the history of autism and discusses not only how history impacted autism research but also talks about the controversial idea of neurodiversity and the idea that maybe autism is less of a 'thing to be fixed' but maybe more of a different way of thinking and analyzing the world. Fascinating read.
https://www.amazon.com/NeuroTribes-Legacy-Autism-Future-Neurodiversity-ebook/dp/B00L9AY254
Have you read this book and if so do you have opinions on it you'd like to share? It's been on my list to buy for ages and I'm finally getting it soon! (I'm also young-ish [25] and disabled)
u/Backforward24 - As yet another autistic person in this thread, I really appreciate that that you've recognized this as an unwise assumption.
Like others above, I would not trade who I am in order to be neurotypical.
I enthusiastically recommend NeuroTribes by Steve Silberman if you'd like to learn more and get a better picture of what Autism is...and isn't.
https://www.amazon.com/NeuroTribes-Legacy-Autism-Future-Neurodiversity/dp/158333467X
Far From the Tree by Andrew Soloman is a wonderful book!
>Solomon’s startling proposition in Far from the Tree is that being exceptional is at the core of the human condition—that difference is what unites us. He writes about families coping with deafness, dwarfism, Down syndrome, autism, schizophrenia, or multiple severe disabilities; with children who are prodigies, who are conceived in rape, who become criminals, who are transgender. While each of these characteristics is potentially isolating, the experience of difference within families is universal, and Solomon documents triumphs of love over prejudice in every chapter.
It's on amazon
Hang in there, girl. This is hard for parents too, even the best-intentioned ones can have a hard time absorbing it all and coming around to seeing you for who you truly are. You might see if they'd read the chapter in Andrew Solomon's book Far From the Tree, on how parents of transgender kids navigate their own transition process. It's such a good book...you might appreciate that chapter as well!
I have not read this, but it was recommended by a very reputable publication and maybe it will be of interest to you: Far From the Tree: Parents, Children and the Search for Identity https://www.amazon.com/dp/0743236726/ref=cm_sw_r_awd_2wUSub00J1X0E
Awesome. Good luck. Looking forward to the update. Feel free to post pictures, you know, for educational purposes ;-)
I also recommend this book: http://www.amazon.com/Ultimate-Guide-Sex-Disability-Disabilities/dp/1573441767