Just curious to ask your opinion. My son recommended I read "Being Mortal" by Atul Gawked we like to suggest books to each other to read.
I found the book very comforting for the fact that he was advocating for a focus on quality of life versus merely prolonging it.
Do you find that this is the reality today? Can patients ask questions like "What would you do in this situation?" and expect to get meaningful answers? There is such a disparity in knowledge about a certain medical condition between a doctor and patient that asking them to make life and death decisions seems almost negligent.
My first experience I had with this was when it was determined I needed to have my gallbladder removed. I asked the doctor who they would have do the procedure if it was them. Thankfully I got a very direct answer with the following information "He's not a warm guy, don't expect to like him. But he's a machine and does hundreds of these on a regular basis, he's technically the best."
Most recently my step-dad was diagnosed with amyloidosis after a long period of time of not feeling well (he had Epstein-Barr) getting to the amyloidosis diagnosis was an exercise in frustration with 6 different specialists doctors giving us pieces of data and no one working to synthesize the information. However once the diagnosis was made and he started to experience multi-organ failure the staff in the ICU was very comforting and very open about the options to help ease his suffering and allowing him to succumb peacefully.
It was a complete study in contrasts.
The link below is a book that I found to be very enlightening on the to end of life topic Being Mortal: Medicine and What Matters in the End https://www.amazon.com/dp/1250076226/ref=cm_sw_r_apan_glt_fabc_6ZN2ZX48YYWTWGDC2DBJ.