(21F) Same i have been dealing with mine for a year and a half, when i eat well i get better, no pain. Then i become careless and have cheat meals and it appears again. I wish they would teach kids about eating better and that this could happen and maybe i wouldn't have got it in the first place.
Calmoseptine worked very well for me. A proctologist recommended it to me. I still keep a tube around and use it occasionally if I have some irritation or anything.
You can get it on Amazon, or probably in a drug store. A tip if you do use it, you only need to use a very small amount at a time.
Hey I am not a doctor, but I can tell you that some people find relief taking liquid anti-histamine’s because it gets in the bloodstream faster than a tablet or capsule or even a gel Capsule They do make liquid Claritin and liquid loratadine which is the same exact thing as Claritin it’s just the cheaper version.
Worse comes to absolute worst ask your doctor if you can take Benadryl… Unfortunately you would have to get the Benadryl with the active ingredient known as diphenhydramine because that is the ingredient that takes away the itching! It also makes people very tired and might not be so good if you have heart problems or on medications please always check with your doctor
But if your doctor gives it the OK I suggest you look at the liquid Benadryl tried the children’s liquid Benadryl also if they don’t have you just want to read the label back make sure active ingredients is diphenhydramine. but be prepared for it to knock you out. And it might also cause constipation because it dries your body up so make sure you’re drinking fluids.
Seems like you’re doing everything you can if this turns into something that’s unbearable call your doctor and see if they can give you a Benadryl injection or a Hydrocortisone injection. If they do end up giving you a injection of that you would have to have someone go with you so they can drive you back home because this stuff will knock you out specially in the form of injection, it’s even more powerful than the liquid over the counters version. But in case is worried severe it might be very beneficial!
If you have any other symptoms such as diarrhea constipation nausea hot flashes swelling or brain fog extreme fatigue don’t feel quite yourself this could be an indication of anaphylaxis… Anaphylaxis does not mean your throat closes and you croak it can manifest in multiple ways. If your condition has gotten worse tell your doctor.
As far as with the patches of itching you might want to try this https://www.amazon.com/Calmoseptine-Ointment-Tube-4-Ounce/dp/B0064FFP96
I’ve use this on my butt when I had acidic diarrhea I’ve also use the same ointment on flea bites on my legs and arms I find it to be Pleasant because it has a very slight cooling effect that takes about 15 -20 minutes for it to kick in and it is not super powerful like Vicks vapor rub.
I've been using this for the past 2 weeks and it helps a lot https://www.amazon.com/Calmoseptine-Ointment-Tube-4-Ounce/dp/B0064FFP96?ref_=d6k_applink_bb_marketplace
I have Crohn's and have had 2 setons in place for 6 months while I wait for Remicade to hopefully shrink my fistulas. I can't comment on the constipation issue as I didn't have that problem but I'll share this...
Setons are challenging to your peace of mind, hygiene, and health. You have digestive acids and fecal particles slowly draining onto your skin and that can lead to skin irritation. Additionally, the seton material can cause friction pain in your butt cheeks if you walk vigorously or walk a lot. I find that talking wide strides or stretching my legs in any way causes the setons to pull on the skin that it goes through which also causes pain. Lastly, and perhaps most significantly, the setons make it very difficult to wipe effectively after a bowel movement because they can interfere with wiping motion while using toilet paper.
Given all that here are some recommendations:
1) Buy a bidet. Having fecal matter stuck in your butt because you couldn't wipe well smells terrible, feels gross, and can lead to infection. I've put some links at the bottom of this message for affordable bidets you can install on your toilet or a portable bidet to use on the go. The stream of water will clean you very well after a bowel movement and then just use TP to pat yourself dry. If you have a removable shower head you can use that to wash yourself after a bowel movement if you don't want to install a bidet. I highly recommend the portable bidet. I take mine with me whenever I'm away from home and can carry it discretely in a small tote bag. If I need to move my bowels I can still clean myself properly.
2) Take long baths daily. Your doctor probably recommended a sitz bath a few times per day for 15 minutes but I found that minimally helpful. I found true relief in soaking in a hot tub morning and night each day for as long as my schedule would allow. While in the tub palpate and press gently on any remaining abcesses to help them drain. I'd read in the tub, browse Reddit, watch Netflix, etc. often spending 90 minutes in a hot/warm bath because it felt so good.
3) Carry protective pads. Some people like large gauze pads. I found it easier to use panty liners. Your drainage will smell and stain your clothes off you don't protect them. I through 2-3 pads per day now but was definitely more when my drainage was heavier. I keep a few in the portable bidet tote bag in case I need a fresh pad while I'm away from home.
4) Be careful about the ibuprofen use - and get a colonoscopy. When I came down with abcesses and they found my fistulas my colorectal surgeon didn't think I had Crohn's because I didn't have a lot of common symptoms. It wasn't until we did a colonoscopy a few months after the seton placement that I learned that I actually do have Crohn's. NSAID's aggravate Crohn's so it might be prudent to switch to Tylenol until Crohn's is ruled out in your case.
5) Calmoseptine Ointment. It's such a great barrier in protecting your skin from moisture irritation. It's like diaper cream with super powers. But if you find yourself without Calmoseptine diaper cream is better than nothing.
6) You may need to choose different exercises for now. As I wrote above, the setons limit my range of motion and cause friction between my butt cheeks so running is an absolute no no. I've even had to modify my walking gait whereby I have shortened my student considerably and walk at a slower pace.
I'm sorry to dump all this on you. It's an overwhelming time and throwing all this info at you may just make you feel more overwhelmed. But I hope that you'll come to find this information helpful and that it helps you maintain your dignity and sanity as you wait for the fistulas to heal.
Bidet links: I own #2 and #3
1 - Base $35 model, cold water only https://www.amazon.com/dp/B00A0RHSJO
2 - Deluxe $60 model, hot and cold water. Note that you'll need a hot water line close enough to the bidet to be able to run a line from the hot water source to the bidet. Check your bathroom before buying. https://www.amazon.com/dp/B00A0RX2UI
3 - Travel Bidet:
Not as effective as the built in models but I'm oh so glad to have it when I have to move my bowels if I'm not at home. https://www.amazon.com/dp/B008CSDKSQ
I've been in your shoes and while there's yeast creams OTC that technically fit the bill, none are safe/gentle, let's just leave it at right to do the job.
Call your pedi/nurse again (whoever is there to talk on call is usually more helpful when dealing with something you aren't planning/can't to go in for versus a triage) and say you the ER sent you home but didn't rule out yeast infection so you'd like to try an antifungal cream. There's no reason they can't send over prescription for one to your pharmacy (Nystatin usually.) There's no harm in trying it since you'll be using it for a couple changes daily and it's not like antibiotics so worst case it doesn't resolve it. You'll want to use it for a few days before judging if it's working but sometimes diaper rashes just fucking suck.
I've had terrible luck with my daughter's skin being hypersensitive periodically and rashes that won't quit. Nystatin has been the magic ingredient a half dozen times and after the 1st visit to our pedi, he renews the prescription without even a call from us anymore since the pharmacy offers to. It's honestly stupid it's not available OTC and I'm confident results of the phama brand owning the patent/formula.
Some other tips I can offer from being close to the end of diapers and finally under control of it:
the single most helpful thing I've learned to do is whenever possible, ditch the wipes completely and use a handheld shower or faucet to clean them off with water only.
You don't need soap unless you're actually bathing them which should be limited on sensitive skin. I also switched from regular baby soap to the eczema line by Aveeno (I'm sure any brand is good) not knocking on baby soap but it's mostly sls and leaves the skin too clean causing dryness
you can also use a wet wash cloth with lukewarm water to do this out of a tub. I much prefer doing a quick hose off to diaper changes now but it is definitely more difficult when they're smaller.
*after they're cleaned, make sure you go back and use something dry to gentle pat to be sure you're not leaving any moisture before cream. It is the enemy of rashes lol tissue works but a clean cloth can last a few days since it's on clean skin.
" one OTC product I can recommend if you have Amazon available to you is this Calmoseptine Barrier Ointment It started as a diaper cream for babies but medical professionals use it for bed bound patients as well. I stumbled on it one bad rash where yeast wasn't the culprit and it works amazing. It's essentially a barrier cream for open sores and diaper rashes are exactly that. It definitely worked better than traditional diaper cream for me but unfortunately not sold in stores where I live.
Try to find some Calmoseptine. It will help with the "rawness". It has menthol in it, so a little goes a long way.
I am not a doctor but I think you should call your doctor to be seen, bleeding can indicate a lot of things some of which could be serious like cancer. If you’re bleeding is it dark red it means there’s bleeding higher up in the intestinal track but if it’s a bright red it’s closer towards your butt hole… Sorry for being blunt but I don’t know a proper word because your body has multiple sphincters .
definitely call your doctor before going in because it COVID-19 let them know what’s happening they might want to check your ferritin levels as well as iron to see if the bleeding has led to anemia. The cause of the bleeding.
If you do go see your doctor remember to wear a face mask or cloth covering!
I’m not sure if you’r in pain but if you are I highly suggest this ointment . https://www.amazon.com/Calmoseptine-Ointment-Tube-4-Ounce/dp/B0064FFP96 This can be applied to your butt hole to any other parts of your body on eras that have any wound drainage, or things such as cuts scrapes burns itching..
I originally got it for my butt because of recurrent acidic of diarrhea making my skin feel like it was on fire . This ointment has a mild cooling effect Unlike The menthol in Vicks vapor rub, which I find to be uncomfortable and too strong.
The downside of calmoseptine Ointment its very thick, so if you don’t have a lot of strength it can be tricky because you have to need it out of the tube and requires a bit of work putting it on the skin which can be A bit of work if you don’t have a lot of strength.
I use it because it’s the only thing that has worked and it can be used as a protectant for the skin If you’re interested in it just take a look around Amazon you might have to search for it but occasionally you can find a 4 oz ounce tube for around seven dollars with free shipping in the USA
https://www.amazon.com/Calmoseptine-Ointment-Tube-4-Ounce/dp/B0064FFP96
Please call your doctor and while it might be awkward it might be helpful to show your doctor The photos of the blood,