If you're willing to put some serious effort into finding out if you react to any specific foods, you should consider a proper elimination diet.
> [Double-blind placebo-controlled trials] have confirmed the success of > elimination diets in treating irritable bowel syndrome > ...
<em>Diet and arthritis p 44</em>
> You must have close medical supervision [during the elimination diet].
Same book.
It will take a couple of months.
(I don't know anything about you, so I can of course not recommend that you do this)
That sucks. It seems you're handling it pretty well, which is good. I have arthritis in my hips and SI joints, but nothing as bad as you.
Since you're on Orencia, have you tried anti-TNF-α therapy without success?
Do you find that exercise makes things better? Every therapist I've been to says exercise is supposed to be helpful, but it always makes my joints worse.
Have you gotten tested for leaky gut/dysbiosis? It can be caused by steroids and NSAIDS, and some people with arthritis feel better when these conditions are treated.
Have been you tested for food intolerance, or tried an elimination diet? Apparently about 1 in 3 people with regular RA can see significant improvements if they avoid certain foods, but "food rarely seems to play a part in juvenile chronic arthritis", both according to Diet and Arthritis.
Have you considered any on the non-mainstream treatment protocols for RA/autoimmune disease, like the Road Back protocol or the Marshall protocol?
Not online, but this book describes an elimination diet protocol used in an English hospital to discover food intolerance in arthritis.