Oh my gosh! Read this book! The first 20 or so pages goes on about a girl who got diagnosed at a young age (like your daughter) with LS.
https://www.amazon.com/Lichen-Sclerosis-Beating-Disease-Chandoha/dp/153741464X
Best of luck! Btw, here's a link to how I dealt with my LS after reading Ginny's book -
I’m so sorry to hear your story. I also have had a hard time with tearing, I feel your pain. Here’s a few things you can try that I see you have not yet tried:
PRP injections
Read the book “Lichen Sclerosus, Beating The Disease” Lichen Sclerosis Beating the Disease”this book has been a GAME CHANGER for me. I’ll link it here:
https://www.amazon.ca/dp/153741464X/ref=cm_sw_r_cp_api_glt_i_43M0N79ATR5AEEDBFSFW
Mind Over Medicine - REVISED EDITION: Scientific Proof That You Can Heal Yourself https://www.amazon.ca/dp/1401959881/ref=cm_sw_r_cp_api_glt_i_FDN21EK92FGVNA4KC94X
https://www.ifm.org/find-a-practitioner/
If you would like more info about things you can do that you have not yet tried and most people don’t know about, feel free to message me. I have 4 chronic illnesses and I’ve been studying health and nutrition for the passed 2 years because o got tired of being passed from doctor to doctor and never getting any better....just having them try to layer more and more pills on to me, which wasn’t helping at all either. I chose to take my health into my own hands, and to become truly knowledgeable in the fields of new science that could truly help me. Functional medicine and the study of epigenetics have really shown me there is hope, for everyone. You can do this, you just have to be willing to read like a mad woman and transform the way you think about health. You got this 💗.
I screwed up the title lol here's a link
https://www.amazon.com/dp/153741464X/ref=cm_sw_r_cp_apa_fabc_8Zp9Fb525NRR0