What is Reddit's opinion of Living Well With Mitochondrial Disease: A Handbook for Patients, Parents, and Families?

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Hi there, welcome to r/mito! Sounds like you’re going through what many parents go through at the beginning. For many families, the uncertainty is the hardest part to reckon with (I still struggle with it myself).

In regards to the fever spiking, I’d agree with your suspicion about the connection. I know that how I feel is strongly linked to what I eat and how often. I am purely speculating here, but it could be due to the energy increase he gets after eating. His body has more support from the nutrition, and can thus fight the fever more for a short time. In any case, frequent hydration and eating will help aid in his recovery.

I did find a short article on fevers in mito patients here.

If you’re looking for more info on Mito in general, MitoAction and the UMDF are great resources. I personally really enjoy this book as well. It taught me a lot about my condition that I didn’t know, and really helped me improve how I manage my mito.

Feel free to post any other questions/discussions/concerns you’d like. I’m also always happy to answer private messages.

Best,

Mighty