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TRIORAL Rehydration Electrolyte Powder - WHO Hydration Supplement Salts Formula - Combat Dehydration from Workouts, Food Poisoning, Hangovers, and More - 100 Drink Mix Packets?
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I suggest you to try Trioral, I’m the same boat as you with pots stuff, it help me a lot! (Taste like salty water but it’s really good for pots like symptoms)
Oral Rehydration Salts ORS (100, One Liter Packets/Box) World Health Organization (WHO) New Formula for Food Poisoning, Hangovers, Diarrhea, Electrolyte Replacement https://www.amazon.com/dp/B00OG8G9UM/ref=cm_sw_r_cp_api_glt_fabc_4QE66B27ADB4FX58HTCK
Great post! As an endurance athlete ive used these for yrs. i do think proper nutrition is key to us feeing better..
FYI - Careful if you have cardiac issues, drinking it too concentrated, or too quickly can spike your blood pressure (if ya have cardiac issues take it slow).
Cheers!
Oral Rehydration Salts ORS (100, One Liter Packets/Box) World Health O... https://www.amazon.com/dp/B00OG8G9UM/ref=cm_sw_r_sms_api_glt_fabc_QRZ84SZZZW4A228XD9R8
I have never tried salt stick but I use the Oral Rehydration Solution from the WHO daily in a bottle of water and sometimes with a bit of pineapple coconut water for my salt and electrolyte intake. I never feel nauseous from it though it certainly tastes better mixed with more than water. I usually have at least one packet but often have at least 2 a day and 3 when active or on my period. Highly recommend.
Oral Rehydration Salts ORS (100,... https://www.amazon.com/dp/B00OG8G9UM?ref=ppx_pop_mob_ap_share
TRIORAL is my top recommendation! It's about $40 for 100 packets, WHO-formulated, and the highest concentration of both sodium and potassium I've found in any supplement. It tastes like chalk, so I mix it with Gatorade powder and it tastes nice and fruity.
Liquid IV is NOT the same thing as WHO rehydration salts, it will make the dizziness worse. You can also overdose on one of those b vitamins if you use multiple a day. WHO rehydration salts is a specific formula to fix dehydration. Here is a link:
https://www.amazon.com/Rehydration-Organization-Poisoning-Electrolyte-Replacement/dp/B00OG8G9UM/
They don't taste good.
If you search for “WHO rehydration” you should find something.
Here’s an example:
Oral Rehydration Salts ORS (100, One Liter Packets/Box) World Health Organization (WHO) New Formula for Food Poisoning, Hangovers, Diarrhea, Electrolyte Replacement https://smile.amazon.com/dp/B00OG8G9UM/ref=cm_sw_r_cp_api_glt_i_2N0DA8VZ2AXN476933NG?_encoding=UTF8&psc=1
Trioral, it has a lot more salt than most products and works great.
Oral Rehydration Salts ORS (100, One Liter Packets/Box) World Health Organization (WHO) New Formula for Food Poisoning, Hangovers, Diarrhea, Electrolyte Replacement https://www.amazon.com/dp/B00OG8G9UM/ref=cm_sw_r_cp_api_glt_fabc_6XYBZDPAXXW84KYFKR2A?psc=1
Trioral, I’ve found this to be the best. The top reviews on Amazon for this item are from POTS patients. It has way more salt than most other options you will find and it makes the difference.
Oral Rehydration Salts ORS (100, One Liter Packets/Box) World Health Organization (WHO) New Formula for Food Poisoning, Hangovers, Diarrhea, Electrolyte Replacement https://www.amazon.com/dp/B00OG8G9UM/ref=cm_sw_r_cp_api_glt_fabc_6XYBZDPAXXW84KYFKR2A?psc=1
I am a big guy. In the desert one is supposed to drink enough to pee normally. Not too yellow, not too much/clear. I supplement salts via Trioral ORS. Some experiences:
- I drink about 4l a day hiking the Death Valley over Xmas (cool but dry).
- I can drink 10-12l a day max. I have done 13l but that was painful and it was many years ago and I was not experienced. I try to stay under 10l.
- I can lose 2l an hour going uphill in the hot sun. So I avoid this and have a siesta in the shade. Walk very early morning. Walk at night.
- When I budget water and don't drink enough I can easily get very thirsty in the evening. Recently it took me 3l in the evening to pee normally.
People that are very fit or skinny or have good sun technique use less water.
Liquid IV is based on the WHO's recipe for Oral Rehydration Solution. If you want the same effect for a lot less money, and also want to add your own sweeteners to improve the taste, you can order Trioral Packets. https://amazon.com/gp/product/B00OG8G9UM/ref=ox_sc_act_title_1?smid=A57J80H4P5HE0&psc=1
These packets make 1 Liter of rehydration fluid, while Liquid IV only makes 1/2 Liter, both at equal solute concentrations, so Trioral gives you twice as much benefit per packet, at roughly half the cost.
Trioral does not have the same flavorings added, so you can add your own to make it taste better.
I improve the taste by mixing them with ice cold lime flavored sparkling water, and Monin sugar-free raspberry syrup. It really helps to neutralize the saltiness.
Ppl always talk abour "drink pickle juice" or "eat pickles" but instead of getting an uncontrolled amt of sodium and having unbalanced electrolyte levels I think it's good to consider a something like this as a supplement: https://www.amazon.com/dp/B00OG8G9UM/ref=cm_sw_r_cp_apa_fabc_80WGRZYPSHBZK6S4EAWY
If you're not interested in breaking out the milligram scale and whipping some of your own, there are various ORS packet suppliers out there, who sell packets of electrolytes and glucose consistent with the WHO recommendations for oral rehydration. This is a cheaper one available from amazon.
I can't vouch for the quality of this product. You may be able to find cheaper bulk products if you search hard enough.
I'm so sorry you're going through this: I have POTS/MCAS and am in the fifth year of a PhD program, so I identify very strongly with what you're saying. I also live ~ a mile from school, and get unusually sweaty walking in. Having a chronic, invisible illness while young, when everyone supposes you to be perfectly healthy, can be incredibly socially isolating and depressing. I've been lucky, and was able to see a great POTS doctor since high school who's helped me immeasurably.
You mentioned you were drinking fluids: have you tried salt supplements? Many people with POTS find these very helpful. In my experience, packets that contain glucose work better than just straight salt (glucose aids intestinal absorption of salt). I take one of these each morning, and they help me with pre-syncope, energy, and brain fog:
It's great that you're still exercising, but keep in mind that exertion can be a trigger for POTS. Mild exercise is good: just be careful to avoid the vicious cycle of exercise -> symptoms -> frustration with symptoms -> harder exercise to try and 'get healthy' -> worse symptoms.
If you have any questions or just need someone to talk to, feel free to pm me. Also, I don't know what field you're in, but if you have any questions about applying for PhD programs, I'd be happy to help with that too!
Trioral works best for me and is cheaper than the other brands! It's $40 for 100 packets, each packet makes 1 liter of oral rehydration solution. https://www.amazon.com/Rehydration-Organization-Poisoning-Electrolyte-Replacement/dp/B00OG8G9UM
I got mine off amazon USA with next day shipping... 100 pack for $0.40 per pack.
https://www.amazon.com/gp/product/B00OG8G9UM/ref=ppx_yo_dt_b_asin_title_o02_s00?ie=UTF8&psc=1
Anyone else use TRIORAL? Tastes like chalk but it's cheap as heck and damn if it doesn't bring the goods.
Couple of thoughts if you're really trying to minimize the size of your packs (if you're happy with it, go for it):
That's a lot of different bandages/gauzes, you could probably trim that down a bit.
The burn dressings sound like an a great idea, but IMO, nothing that gauze and vaseline couldn't adequately replicate. Burns (and wounds, honestly) are "clean, dry and occlusive dressing". To add to that, soap and water is crucial for any wound, maybe consider that (think Dawn soap).
Quick Clot or something similar seems like a decent idea somewhere, also potentially something like dermabond (or the vet equivalent Vetbond).
Ibuprofen and Naproxen are redundant, they do the same things. That goes for Advil Cold and Sinus, which is ibuprofen and pseudoephedrine. Just carry the pseudoephedrine separately, but honestly that component is not life-saving in any capacity.
Same goes for Alka-Seltzer cold: It's aspirin (same as ibuprofen and naproxen except for heart attack) plus an antihistamine (you have diphenhydramine) plus phenylephrine (a really shitty version of pseudophedrine). Ditch it, IMO.
Salt Sticks and Gatorade Chews: It's better to stick with a WHO oral rehydration formula. My personal favorite is these: https://www.amazon.com/Rehydration-Organization-Poisoning-Electrolyte-Replacement/dp/B00OG8G9UM/ref=sr_1_5?crid=3GGUV27NY5HX1&keywords=Trioral&qid=1642040813&sprefix=trioral%2Caps%2C72&sr=8-5
Much better formulation of electrolytes you actually need, feel free to compare.
Antibiotic cream is totally unnecessary and vaseline is just as good, feel free to Google it. (again, soap/water, clean/dry dressing, and an occlusive)
Gold Bond dry skin is a nicety, but nothing that Vaseline couldn't fill the role for.
Gold Bond and Tiger patches could be replicated by a tube of equivalent cream and save a lot of space. Maybe think about something like Diclofenac cream in it's place though, which does more than just numb the area temporarily.
Clorox disinfecting wipes don't do anything that soap and water won't do (see previous recommendation for Dawn soap), but Wet Ones can be a more compact version, if needed.
All in all, fun to read!
My doctor did also say intermittent fasting can be good too, especially if you are already used to the one meal! I mostly adjusted to multiple snacks because of taking supplements and a beta blocker earlier than I usually would want to eat
I like trioral packets for electrolytes cause they don't have sugar and are relatively cheap among electrolyte supplements and thermotab salt pills have been a game changer for me too
You may not take enough electrolytes. Buy 2l of Pedialyte classic when you are in town. Drink until you don't want more. If that helps, get the powder or Oral Rehydration Salts on Amazon. If that isn't enough try to add magnesium, for instance 1-2 tablets of Nuun Rest per day.
Otherwise you are already doing everything right. Maybe take a rest day or two.
Find a route in the neighborhood. Walk every day 1-2h to build strength and endurance. Do this for at least one year. Do long calf stretches to prevent plantar fasciitis. Use Brooks Beast or Hoka One One Bondi 6 shoes with insoles (probably green) to protect your legs from the asphalt. Learn to use hiking poles so you don't twist your ankles. The carbon fiber Cascade Mountain Tech from Costco should work.
Learn to deal with the SoCal heat. This is particularly problematic for folks with extra insulation. I saw lots of overweight people near Campo this year. I did not see that many further north. I assume many dropped out due to lack of stamina, slow progress, water carries, injuries. You live in LA. You can train in the weather, you can train on the trail. You can get fitter, stronger and more experienced before you start. Learn about thin, bright, long clothing/hoodies, shade/umbrellas, electrolytes (I like Trioral ORS). I am pretty heavy myself. My weight fluctuates some. But I have learned to deal with a lot of issues coming from it. I saw one other big guy who called himself a "desert rat" who seemed to have experience. Met him at 14 miles the first day and he was going strong, had fun, plenty of water and an umbrella attached to his pack.
You can try TriOral oral rehydration solution, unflavored version. It does contain Trisodium Citrate, so not sure if that's a problem for you, might need to check with your Dr. Hopefully it works out, I personally think TriOral is the absolute best for management of POTS bc it's so much higher in sodium and electrolytes than any other mix.
Otherwise, my favorite unconventional way to get a boatload of sodium and potassium is these Edward and Sons Miso Soup Packs. They have 710mg of sodium and 100mg of potassium in just half of a packet.
Many doctors don't understand POTS or the severity of it. I called my insurance and asked for an autonomic specialist in my area. My cardiologist was familiar with POTS but didn't offer much in terms of treatment/support. For me, Gatorade is like bringing a squirt gun to a flame thrower party. I use a packet of TriOral in a liter of water first thing in the morning before I even try to move from my bed (I make it the night before and leave it on my nightstand). I do a packet of Liquid IV in the afternoon. Discount code POTS30 for 30% off. I drink about 3+ liters of liquid a day, between the electrolyte drinks, plain water, caffeine free tea. Including the electrolyte packets, extra salt in my food, and supplementary sodium, I do about 7,000 mg sodium a day, but that's a lot, so I'd check with your doctor first and maybe just start with the electrolyte mixes and water. Don't just do plain water only though, bc it'll go straight through you and the last thing you want is to be getting up for bathroom breaks all the time when you feel like hell.
I know it's overwhelming and terrifying, but you won't always feel this bad, once you get on the right track as far as diagnosis, treatment, and symptom management. Oh, and the exercise programs I mentioned are lying down exercise for the first few months, before you ever try to go vertical. I did mine with the help of a Physical Therapist.
Fluids seem to be often neglected by many preppers, probably due to being less sexy than needle decompression of a pneumothorax, suturing wounds, or even stockpiling fish antibiotics. But fluids are a relatively low risk and easily stored/obtained medication that can be an important early intervention in a variety of scenarios.
In controlled settings, fluids (saline, D5W, lactated ringers, etc.) are typically administered via IV for better control of titration of amounts, among other reasons. Starting an IV should not be attempted without prior training. In austere settings, oral administration is likely your only option. Oral fluids options include (clean!!) water or electrolyte replacement solutions like Gatorade. Consider water filtration systems as an alternative to stockpiling/carrying extra water. HydroBlu, Lifestraw, and Katadyn all have portable filtration options. Berkey is a common choice for home water filters.
Heat cramps/exhaustion/heatstroke or burns – 1L of diluted (30-50%) Gatorade is preferred for electrolyte balance and faster absorption due to carbs. Cooler fluids are absorbed more easily. Repeat as needed
Diarrhea – Option 1: WHO ORS packets. Option 2: 1tsp salt, 3tbsp sugar/honey, 1L water. Option 3: 1tsp salt, 8oz orange/apple juice, 3 cups clean water. Option 4: Gatorade diluted to 50% with water.
Fever – Water, Pedialyte, or 50% diluted Gatorade as much as tolerated. Small amounts for extended periods of time preferred to large amounts quickly.
As a side note, blood products > IV fluids for bleeding. Fluids have a place in trauma, but oral fluids aren’t going to cut it so unless you’re prepped with the training and supplies to administer fluids intravenously, probably not worth considering.
For the 1/3 of you not from Salida:
For iPhones - the app ViewRanger lets you download very detailed contour maps of an area. You have to download the app and maps w/cell signal or wifi, but your phone will track your location even without signal. You have to subscribe to download the best maps but it's not very expensive. With the app following your route (read instructions in app) you can trace your route and mark locations, take photos in the app, and have it mark where you took it, etc. I'm not sure if it's on Android. It can eat battery life though so be careful. It sounds like you'll have really good guidance from pros, but the app and its maps might be useful to you.
A couple of things I have not seen mentioned:
- In the area, some places you will not have a signal at all. But then in some places - especially as you leave the valley floor and go up, you'll have enough signal to at least text.
- Hiking poles are something that I always carry on alpine hikes and they can be lifesavers off trail. They don't have to be fancy collapsible hiking ones - heck, for a day or two ski poles would even work great.
- A few light layers are better than overdressing and overpacking. You'll notice the excess weight for sure. The weather should be really nice - 40s at night - 70s during day - little precip. A lightweight waterproof jacket is always a good idea though.
- For hydration - these are amazing. Have just a few in your pack - enough electrolytes for even heavy sweaters. 1 pack per liter of H2O. Tastes like tears. You don't need to drink one of these in every liter of water, though. https://www.amazon.com/Rehydration-Organization-Poisoning-Electrolyte-Replacement/dp/B00OG8G9UM
- Don't forget some TP and a ziploc baggie. Pack it in, pack it out.
Trioral Oral Rehydration Salts are without flavors, only very slightly sweet, based on the WHO recipe. At 40 cents a liter they are reasonably cheap (I don't drink more than 2 a day).
https://www.who.int/maternal_child_adolescent/documents/fch_cah_06_1/en/
Hey there! So I think it is definitely time to start having your doctor run some tests to rule out other things before landing on ME/CFS. However your symptoms are pretty classic to this condition.
Nothing really takes that "hungover" feeling away for me but some things reduce it. When I wake up at try to hydrate with electrolytes/salt ASAP. I use these [ https://www.amazon.com/dp/B00OG8G9UM/ref=cm_sw_r_cp_apa_i_1ABoFbSTPF0Y1 ] hydration salts mixed in water and a small bit of lemonade. I like these because they're cheaper per serving than most, have no added flavor so you can mix them with what you want, and they're pretty balanced. This will help your body get hydrated and feel better. If you find that drinking plain water still leaves you feeling dry mouthed and you just pee a lot, this is because the water isn't staying in your system long enough to actually hydrate you. That's why you need salt to help retain water in your body and actually get hydrated. Additionally, many people with ME/CFS have orthostatic intolerance of some kind, meaning their blood pressure can drop dramatically upon sitting up or standing. Hydrating with salt water increases blood volume and can help lessen this effect.
Personally I have been diagnosed so I'm also quite medicated. One thing that helps with the "hungover" feeling as a small pick-me-up is a small dose of Bupropion (Wellbutrin, common anti-depressant). Your mileage may vary but it just gives enough of a boost to help a bit without greatly affecting my heart rate like Adderall did. If I'm in a crash it doesn't touch it but if I'm at my baseline it helps get me going.
Additionally as others have mentioned, you will want to start learning about pacing. It is really helpful to monitor your heart rate and try to stay under your anaerobic threshold as much as possible. For healthy people their anaerobic threshold is usually at about 85% of their max heart rate, but for people with ME/CFS it is usually between 50-60% of our max heart rate. This difference is significant and monitoring and staying below it as much as possible can really go a long way to prevent crashing.
Good luck!
I don't have experience with Crohns disease and the challenges. But hydration keeps being mentioned and I have experimented with that a lot hiking in California. Most electrolyte drinks like Gatorade are way too sweet and don't work well. Can you investigate if Oral Rehydration Solution is appropriate for you? It is very salty with some sugars with concentrations designed to force fluid into your body to prevent dehydration. I have experience with the TRIORAL from the Amazon link below. When I forget to drink for too long I down a 1l bottle with 1 package and within 15 minutes it is absorbed and I am back fully energized (without it would be more than 40 minutes). But it contains a lot of salts, so please ask your doctor if in doubt before trying. It is used widely across the world, especially with small children.
https://en.wikipedia.org/wiki/Oral_rehydration_therapy
https://www.verywellhealth.com/how-to-manage-dehydration-when-you-have-ibd-1942677
https://www.cdc.gov/cholera/treatment/rehydration-therapy.html
https://www.who.int/maternal_child_adolescent/documents/fch_cah_06_1/en/
I buy Trioral on amazon (https://www.amazon.com/dp/B00OG8G9UM?ref=ppx_pop_mob_ap_share). I shoot for 4 of them a day, which gets me 10g of salt.
I bought a 100 pack of these. $0.40/piece, compared to $2/piece for Pedialyte.
https://www.amazon.com/gp/product/B00OG8G9UM/ref=oh_aui_detailpage_o04_s00?ie=UTF8&psc=1
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