I can't speak very well to the numbers but a lot oh people with hypo have nodules and vitamin d deficiency. When I was first trying to figure out what was going on with my own issues I found the following book really helpful to lay out the basics Why Do I Still Have Thyroid Symptoms? when My Lab Tests Are Normal: a Revolutionary Breakthrough in Understanding Hashimoto's Disease and Hypothyroidism https://www.amazon.com/dp/0985690402/ref=cm_sw_r_apa_pI21xbPJQNZWT
In my case my TSH was close to where your was and my doctor kept insisting I was fine because it was in range. It made me pretty miserable though until I got medication. It took a long time to figure out I had Hashimotos disease which is an autoimmune diseases that is very common with hypothyroidism. My tests wouldn't show positive but my doctor was pretty sure I had it due to family history and physical symptoms I was having. Understanding that really helped me adjust my diet away from gluten/dairy which really helped me.
I'm bringing these up as food for thought. Everyone really has very different experiences with hypothyroidism. Really suggest the book though just as a starter to get some basics down.
This book really helped me figure out what i needed to ask. It's very common to have issues getting through to a general practitioner. Why Do I Still Have Thyroid Symptoms when My Lab Tests Are Normal?
I can't help you in the way you decribe, but this is basicly what every Hashimoto person wants. I'm 10 years in with this illness and am doing ok. But by the look of it I won't be able to work fulltime, ever. So, that sucks. Fairly recently I did research and found that a lot of people with hashi are doing much better on a gluten free diet. This prevents inflammation of the thyroid apparently. Did you read 'Why Do I Still Have Thyroid Symptoms?' It clarifies a lot!
https://www.amazon.com/Still-Thyroid-Symptoms-Tests-Normal/dp/0985690402
Personally I gave up hope to ever finding a doctor who is willing to experiment a bit. Actually I don't think I'll ever find a doctor who is willing to admit there's more to it then taking these meds.. I don't mean to make you feel bad, but I think taking matters into your own hands can help a lot.
Next to going gluten free, I'm exercising. To have a very regulated sleep pattern helps too, but I can't get used to it.
PS Pm me if you want to talk. btw: I don't have any children.
My wife read this book when she was still having problems.
It talks alot about diet. It is likely there are things in your diet that are triggering inflammatory responses and keeping the levels mentioned by /u/squeaksthepunkmouse out of optimal range. Gluten a pretty obvious culprit but others include Tomatoes & bell peppers (any plant in the nightshade family), Soy, and dairy. But you have to experiment and find out what triggers your responses.
I came to second /r/mstater . I wouldn't rule out Hashimotos Disease on a single test. There are actually a few of ways your Hashimotos test can come back negative and you can still have it. Why do i still have thyroid symptoms when my lab tests are normal actually goes through several of the ways this can happen. It happened to me. We cannot get a test to come back positive but my doctor went ahead based on family history and hashimotos symptoms. Once I started looking into it I made several dietary changes and it has made a HUGE difference.
Not in your head. But there is no guarantee that meds (levothyroxin) will ever make your symptoms better. There is even a book about thyroid called "Why do I still have thyroid symptoms when my lab tests are normal: https://www.amazon.de/Still-Thyroid-Symptoms-Tests-Normal/dp/0985690402
True. You gotta be your own doctor with this. Check out https://www.amazon.com/Still-Thyroid-Symptoms-Tests-Normal/dp/0985690402 if you haven't already.
Or watch this video if you suspect you have Hashimotos (you were talking about antibodies): https://www.youtube.com/watch?v=REgrJOzw2ug
Hey! Sure thing!
So the best resource I have found for Hashimoto's Disease on things you can do to improve your quality of life are from this book Why do i still have thyroid symptoms when my lab tests are normal. Its great because there are actually a lot of ways your blood tests can come back negative but the book goes over what different readings for different tests might indicate so you can ask better questions with your doctor.
One of the first dietary issues you will hear about with Hashimotos is that you should remove gluten from your diet. This is pretty standard. For me one of the biggest things that helped me was going through an elimination diet. Short version is no gluten, dairy, soy, peanuts, corn, eggs, caffeine, and sugar for three weeks then reintroduce one at a time and watch for reactions. I didn't do the exact one in the book because I found a whole health doctor and she gave this one with the weekly planning guide. I found out that milk, gluten, soy, and eggs cause problems for me, specifically in my case I get joint pain, headaches, and I get just a little depressed. I have a coworker who did an elimination diet years ago when she first found out she had Hashimotos and she cannot do gluten and eggs. It's different for everyone.
The ELI5 version is that your gut is letting in proteins that are setting off your immune system and because you also have Hashimotos your immune system attacks your thyroid because it gets confused between the gluten in your blood stream and the hormones your thyroid is putting out. Other items getting in through your gut are typically proteins your body is struggling to break down and they are getting into your blood stream through your lower intestine and setting off your immune system... which again sees your thyroid hormones and thinking they are gluten attacks your thyroid.
It sounds hard at first but once you do through it you may actually have a lot more energy and for me my moods and emotions got way more stable and I feel way better. I also lost a little bit of weight without changing anything else which was for me pretty great because I had been stuck at a weight for about 6 months and couldn't get it to budge.
Its all going to be a lot at first but as you can read as much as you can about Hashimotos. This is really going to help you deal with and get good doctors. I found out long after I was diagnosed that by adjusting your diet some people can actually heal their gut/immune system, reduce their thyroid medicine, and feel way better. I am too this day astounded that none of the doctors recommended diet changes but standard practice is to just read your labs and adjust medication which is better than not being treated.
Sorry for the wall of text. I hope that is helpful.
Why Do I Still Have Thyroid Symptoms? when My Lab Tests Are Normal: a Revolutionary Breakthrough in Understanding Hashimoto's Disease and Hypothyroidism https://www.amazon.com/dp/0985690402/ref=cm_sw_r_other_awd_5x0twb66X5K39
I think you are referring to Why Do I Still Have Thyroid Symptoms? when My Lab Tests Are Normal: a Revolutionary Breakthrough in Understanding Hashimoto's Disease and Hypothyroidism https://www.amazon.com/dp/0985690402/ref=cm_sw_r_apa_OJhDxb6FFSJTD . Dr. Datis Kharrazian makes the argument that your brain can deteriorate over time due to inflammation aka brain fog. Follow up book is Why Isn't My Brain Working?: A Revolutionary Understanding of Brain Decline and Effective Strategies to Recover Your Brain's Health https://www.amazon.com/dp/0985690437/ref=cm_sw_r_apa_qMhDxbSVSP35S . It's very interesting stuff. Has a lot to do with diet, getting the right nutrition, and mental exercise.