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Oh please, check yourself into somewhere until you get a handle on this. If you feel this out of control, you really need professional help.
If you refuse, then please look into Dr Bernstein’s book. He’s lived with Type 1 for a long time and is now in his 80’s. His expertise has helped millions. Here’s a link: Dr. Bernstein's Diabetes Solution: The Complete Guide to Achieving Normal Blood Sugars https://www.amazon.com/dp/0316182699/ref=cm_sw_r_cp_api_i_mZUaDb8ZJ850G
Neuropathy really sucks. You're in a really rough place because getting really good control over her disease is really something she has to want to do for herself (kind of like quitting smoking, or heroin, or drinking, or deciding to get in really good shape...) It's not something that someone can do for someone else no matter how hard they try.
I'm a big fan of Dr Bernstein's Diabetes Solution (a book, and the guy has a bunch of free youtube videos). He's a 86 year old doctor who has had T1D since he was a kid. Often times neuropathy is reversible if you get really good control over your blood sugar. (Or if your girlfriend gets really good control over her blood sugar.) If you think she's up for doing a low-carb diet and reading a book, I suppose you could get her the book. But from how you describe it she's not really in the mood for it.
I'm pretty confident that if she focused on keeping her blood sugar under really perfect control, with intensive insulin therapy, and a really restrictive diet, she would probably feel a whole lot better by the end of the year. But again, she'd have to decide that she wants to do that. Nobody can really guarantee that it would work for her, but certainly if her diabetes is at all out-of-control (and it sounds like it might be) getting it under really good control is going to be a whole lot better for her.
There's not a whole lot you can do in your situation.
Edit: Link -- The book's less than $20, it's a good read.
https://www.amazon.com/Dr-Bernsteins-Diabetes-Solution-Achieving/dp/0316182699
I'm sorry you weren't initially properly taught how to manage type 1 diabetes. It almost sounds like you have type 2, because I have never heard of "pre-diabetes" in relation to type 1.
Since you just moved, don't rely on an ordinary primary care physician. You need an actual endocrinologist and you should tell them you need diabetes education asap.
I'm glad you are reaching out to learn but it's just more than someone can type in an online post. The best boom I've read so far is "Think like a Pancreas" by Gary Scheiner
https://www.amazon.com/dp/0738215147/ref=cm_sw_r_cp_apa_glt_fabc_KHG4R9XCMTCPYW1N3HQF
I wrote a children's chapter book that would be perfect for her to read. In the book the main character is diagnosed with type one. Through a magical adventure and support she come to terms with her illness. It will be a series. We also send out letters with swag, stickers, a note of support and bookmarks. Please send us an email at [email protected] with her name and address so we can send your sister a little surprise and a note from the real life Lainey.
Like fruit snacks gummy packs:
Welch's Fruit Snacks, Mixed Fruit, Gluten Free, Bulk Pack, 0.9 oz Individual Single Serve Bags (Pack of 40) https://smile.amazon.com/dp/B00HFC2E82/ref=cm_sw_r_cp_api_glt_fabc_WA51NP6N0SMF9YZWFZN3?_encoding=UTF8&psc=1
I keep my pump in a jogging belt, it's skin tight and sits safely under my shirt. I'd imagine that a rollercoaster wouldn't be much of an issue with it.
Only the basal & unless you’re going for hours (kudos) it shouldn’t be an issue. You can take a mini bolus in advance, although I tend to drop with all the movement so just depends. I take pretty quick showers so I don’t usually suspend at all, but yes if you go that route it will beep at you. I find just disconnecting and leaving it on the nightstand is easiest.
Here’s the highly recommended spibelt.
Do you read at all? I have a few good book recommendations for new type 1’s that helped me a lot.
“Bright Spots and Landmines” this book is an awesome lifestyle guide that talks about the benefits of certain habits that lead to tighter management
The second is, “The Complete Guide to Carb Counting”, this one is a simple and comprehensive manual that teaches the basics of carb counting and dosing for a new diabetic
Tight control is possible through diligence and literal blood, sweat, and tears (okay maybe the crying was just me) jokes aside though it is possible to live a full, rich, relatively “normal” life free of complications.
A pump and CGM combo definitely helps keep better control for a lot of folks myself included and honestly I feel it allows a lot more freedom vs the prick and poke method.
Last thing I want to mention is while maintaining control is possible diabetes burnout is still a very real and normal experience. It’s worth reading up on diabetic burnout, it’s too easy to get caught up in trying to be a “perfect diabetic” but at the end of the day shit happens and we shouldn’t beat ourselves up if we have highs or lows occasionally.
I was really frustrated by the clip as well. I ended up removing the case and attaching a $10 clip I got off of Amazon, it works a lot better and the pump isn't as bulky.
https://www.amazon.com/gp/product/B007CBSBM4/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1
For those of you who want to REALLY think about this, here’s a novel for you: https://www.amazon.com/Sugar-Scars-Travis-Norwood/dp/198825633X
“Living after the apocalypse really isn’t that hard for most of the survivors. The virus killed all but 1 in 10,000. The few remaining people are left in a world of virtually unlimited resources. Grocery stores overflowing with food and drink. Thousands of empty houses to pick from.
But one survivor, a nineteen-year-old girl, requires more than simple food, water and shelter. As a type 1 diabetic her body desperately needs insulin to stay alive. With civilization gone, no one manufactures it anymore. She hoards all the insulin she can find, but every day marches toward the end of her stash of vials. She has a choice. Accept her fate and death, or tackle the almost insurmountable task of extracting and refining the insulin herself. Brilliant scientists struggled to make the first insulin. What hope does a high school dropout have?”
i love my dexcom g6 it’s the best thing to ever happen to me and my diabetes. personally find that my upper thigh area is the least painful place on my body although some might disagree but i would recommend it. also a good tip is to look into some pads to make it stay on nice. here is the one i always get SIMPATCH
In that case, don't tell your parents, but take charge of your situation. You can do that by being proactive, weigh all your food, calculate the carbohydrates that require insulin (Total Carbs - Fibre - fructose). Learn your insulin to carb ratios, if you're too low, you need to ease off, as an example, if you use 1:15 and get too low, reduce it to 1:18 and see what happens. If you get too high and are using 1:15, lower it to 1:12. It sounds a lot at first, but it's not that hard once you've done it a few times. I use cronometer.com, it's super quick to use, you can log your insulin dosages, make notes about your insulin to carb ratios, has time stamp features, can be used online or on app etc. Plenty of other similar websites out there.
I recommend you look into Dr John McDougall, I follow his protocols for promoting insulin sensitivity and it works! You'll also lower your risk factors various other diseases such as breast cancer, bowel cancer, heart disease, Alzheimer's. You'll feel great and if you're overweight at all (I don't know if you are), you'll drop your body weight too.
Mindful Diabetic Robby on YouTube is a great resource for you too: https://www.youtube.com/user/mindfuldiabeticrobby
My blood sugars can spike in the morning too. I'm thinking it might be a combination of a few things, perhaps 1) the circadian rhythm triggering a release of sugar into the blood stream 2) a build up intramyocellular lipids from when you've been fasting while sleeping which might cause insulin resistance 3) a lack of insulin in the system since you last injected.
What insulin to carb ratios are you using? It's best to have specific ratios depending upon the time of day based on my experience. So as an example, it might look something like this:
Breakfast: 1:10
Lunch: 1:20
Dinner: 1:30
The only way to know though is to weigh all your food, log it on something like Cronometer.com, total carbs - fibre - fructose = net-net carbs, divide by your insulin units to create the ratio. If you do 1:15, and your sugars are still high, then try a ratio of 1:12 and adjust downwards until you get it right.
Doing a bit of light exercise in the morning can also help in my experience, even if just a simple walk outside.
Fingers crossed you can get on top of it :)
My approach is:
1) Weigh all the ingredients in your food in grams;
2) Log it on something like Cronometer.com;
3) Total carbs - fibre - fructose = net-net carbs (the name I use for the calculation);
4) Divide your net-net carbs by how many units you're going to inject to create an insulin to carb ratio;
5) Monitor your blood sugars to see if the insulin to carb ratio was too high or too low & then adjust from there until you find an insulin to carb ratio which works for that meal time. For me personally, I am relatively more insulin resistant in the morning and become relatively more insulin sensitive throughout the day so my insulin to carb ratios my might as an example look like: 1:15 for morning meal; 1:30 for afternoon meal; 1:50 for evening meal.
This one Kulhydrat
It's in Danish though - and the foods features are probably more rye-bread aligned :)
I'm sure there are similar ones in other languages.
The reading level is 7 to 12. It is available at Amazon and Barnes and Noble and most digital services. Please drop us your 8 year old information and we will send out bookmarks and stickers to go along with the book :) [email protected]
I use Skintac to prep the skin before inserting the G6, but the adhesive nearly always fails around day 6-7. So, I’ve been using simpatch link once the adhesive starts peeling away
I would definitely recommend Think Like a Pancreas by Gary Scheiner
Implements a lot of humor and also incorporates a lot of his own personal experiences with T1D which are very relatable. Super educational and funny. He has a few sections that go over exercise and how to combat lows and highs before, during and after exercise. He also has a chart that roughly provides how many grams of carbs you should have during certain physical activities.
I have my nursing degree, T1D, and I still learned some stuff. If you're really familiar with everything there is about T1D, it will mostly be a humorous read with some educational refreshments.
If you have never used a pump before I would recommend waiting until you talk with your doctor/endo before starting on it. They take a little bit of tweaking before they start working well. At the very least, grab yourself a copy of Pumping Insulin and read it before you do anything. It does a great job of teaching you how to use a pump.
Not sure where you are but try googling “leather diabetes supplies case”. I’m in Australia and there’s this one:
https://www.amazon.com.au/Dropp-Kitt-Diabetic-Supplies-Organizer/dp/B07K5YTCHZ
Can’t speak to quality or anything though. With the previous one (Diabetes Exy ones) we’ve use them so know they’re good
Keto-Mojo is the meter I have been using for a while now. I found it online though. The strips are sold in packs of glucose and ketone. Comes out pretty cheap compared to other brands.
Hope this helps.
I'm a pretty skinny guy, but I put it on the back of my arm and have had no problem since ive gotten it (1 year). I really recommend getting a cover for them like this one in the link. This'll make sure it never falls off! One package should last you around 4-5 months.
https://www.amazon.com/dp/B07VGRBLLC/ref=cm_sw_r_cp_apa_i_R3suFb3MANNXP
I am a huge fan of Dr Bernstein's Diabetes Solution, it's less than $20 on amazon.
https://www.amazon.com/Dr-Bernsteins-Diabetes-Solution-Achieving/dp/0316182699
​
He has a whole bunch of free educational youtube videos on his channel too.
You’d have to buy them, but I’ve found better overpatches on amazon. The ones Dexcom gives you aren’t bad, but the ones I purchase are even better- and they aren’t much money. In case you’re interested:
Fixic – Adhesive Patches G6 – 25 Pack Transparent Premium Waterproof Adhesive Patches - Pre Cut Back Paper – Adhesive Patch G6 - Best Long Fixation for Your Sensor! https://www.amazon.com/dp/B07Z7R8RY3/ref=cm_sw_r_cp_api_i_127eFbM17PJKF
Find them cheaper at your grocery store but these taste no different to me than regular lemonade and they're pretty sweet so i'm sure a younger kid would love em.
I've gotten this one a lot. They have a bunch of different sizes and varieties. Some have full size bags and drinks
Welcome to the club that no one wants to join! Seriously, it’s a fairly large learning curve with all of the math and carb counting and insulin dosing, but you will get the hang of it! Let me suggest a great book: https://www.amazon.com/Worlds-Worst-Diabetes-Mom-Real-Life-ebook/dp/B07ZTQBK9C/ref=nodl_?dplnkId=ee4e43f1-929e-43b0-8010-fcef54cb5ce5 Stacey, the author, also has a podcast called Diabetes Connections. Her son was diagnosed when he was two. Pro tip: you will mess up. You will definitely not do everything right. Don’t beat yourself up about it. Read as much as you can but stay away from most of the Facebook groups for parents with type 1 kids. They are mostly doom and gloom. One Facebook group I do recommend is called Learning to Thrive: 1.0. The Juicebox Podcast is also a good resource as well. Big hugs. You will get through this!
Are you, yourself Type 1? Find resources and materials. If you want to make a Type 1 care package, look up low carb snacks and a good food scale. Sugar free gum/Gatorade Zero drinks in different flavors for them to try. Measuring cups/spoons. This is a perfect scale.
If they have a Dexcom or Libre you can look up fun stickers Type One Style
These guys are a lifesaver! Not expensive at all, especially for the peace of mind.
this is what i use! but there’s tons of different types & price points
Diabetes educator, like someone else said....I was diagnosed at 12/13 and my worst years were the teens until I hit about 22. You're still going through lots of hormone changes, but not as badly as girls do.
The progress you've made is great so far and it's really good that you want to continue it. Research, research, research. And on the bad days, look at the data - it's just numbers!!!! - and try to figure out what happened and make note of it.
This book has been helpful to me when I first went on a pump - get the latest edition. There are plenty of other books out there, too...
After being diagnosed at 12/13 and going through some bad times, I'm still here at 56 with no other side effect than mild retinopathy that hasn't worsened in about 30 years.
I am so sorry you are going through this, both of you. Endocrinologists have been unhelpful at best in my experience, unfortunately. It seems like they may have even caused issues with food/self care for your boyfriend. If you have not yet please buy and read Think like a Pancreas, by Gary Scheiner. In the meantime, please understand that not eating means not taking insulin. Taking insulin regularly is very important. On top of base insulin (basal on pump, Lantus etc.) eating a meal or snack with some carbs at least every 3-6 hours means he can take insulin as well. DRINK WATER AND DOSE INSULIN REGULARLY TO AVOID DKA. You can both do this. He is NOT BAD at this. This is really fucking hard. Source: taken care of my t1 teenager since '15.
i have always used an overpatchs bought from amazon (https://www.amazon.com/Adhesive-Patches-Waterproof-Water-Resistant-Transparent/dp/B08D6LY4C2/ref=sr_1_1_sspa?crid=31M063AF79X4D&keywords=G6+Adhesive+Patches+Waterproof&qid=1658431286&s=hpc&sprefix=g6+adhesive+patches+waterproof%2Chpc%2C106&sr=1-1-spons&psc=1&spLa=ZW5jcnlwdGVkUXVhbGlmaWVyPUEyRFc4VEZCVkRYOVVNJmVuY3J5cHRlZElkPUEwNTg4Njg3MlhJWURJTTQzN1gyWSZlbmNyeXB0ZWRBZElkPUEwMTExOTc2MzVKNVdHREROTEFKVSZ3aWRnZXROYW1lPXNwX2F0ZiZhY3Rpb249Y2xpY2tSZWRpcmVjdCZkb05vdExvZ0NsaWNrPXRydWU=) on both G5 and G6 and have never had a dexcom ripped off
I use these - they are really nothing fancy/you might be able to find others that are better, but I find it works fine. Basically a 3D printed plastic ring which fits over the sensor, with some sports tape patches to hold it in place. I sometimes cut my own sports tape as it's cheaper, but obviously more hassle than just buying a refill.
If I'm only going away for a few hours, I don't bother. If I'm going anywhere overnight, I bring an extra change of pump stuff. If I'm going away for a few nights, I bring a lot more redundancies - extra pump stuff, extra dexcom sensors, back up insulin pens and supplies, back up test trips. I would also consider getting an adhesive patch to reinforce your infusion sticker (I use this one). I had issues once in a while with them, but since I began using the adhesives, I never have to worry.
If you want to be able to see the numbers remotely, he will need a phone. I use the 1st gen iPhone SE and it's very small, unobtrusive, and fits into a belt holster. And I've added an Apple Watch so I can see my blood glucose just as easily as checking time. I still use my original iPhone SE. I replace the battery at my local authorized Apple repair shop for $50.
Amazon has them refurbished, unlocked, and only need a SIM card.
Hi,
https://www.amazon.com/Uni-Tandem-Clipnstow-Black/dp/B07HLV1ZP2
https://www.amazon.com/gp/aw/d/B07G3GRNCK?psc=1&ref=ppx_pop_mob_b_asin_title
There are also quite a few other items to explore for and consider.
I am sorry to hear you are struggling. I've had some psoriasis, persistent heat rashes etc. I have been using Defense Soap and it has helped a lot of my issues.
Defense Soap 4 Oz Bar - 100% Natural Tea Tree and Eucalyptus Oil https://www.amazon.com/dp/B00112JBLU/ref=cm_sw_r_apan_i_RABKM5E366JHHY0KRZNB?_encoding=UTF8&psc=1
I am in the gym alot and this seems to help prevent issues. It does dry you out a bit, but it has reduced the amount of irritation/skin ailments that I experience. To be abundantly clear, antibiotics are still going to be necessary if you have a skin infection, but I feel this soap can help prevent issues. Hope you feel better soon!
Possibly these. I’m looking at these so I don’t have to diy patches from the plastic film type. https://www.amazon.com/Adhesive-Bandage-Patches-Compatible-30-Pack/dp/B07SF6JR4Q/ref=mp_s_a_1_12?keywords=dexcom+g6+adhesive+patches&qid=1654456454&sr=8-12
I use these big waterproof patches they stay on really well and are pretty easy to replace. If you find that the patches are peeling off the G6's sticky stuff you can use Now Just A Patch which are smaller and more expensive but they have a protective area where the sensor sits so the patch doesn't stick to it.
I use this one:
https://www.amazon.com/Uni-Tandem-Clipnstow-Black/dp/B07HLV1ZP2
I've been very happy with it because you can thread it onto your belt or clip it to something. You can also program the pump without having to take it out of the case.
I looked at that one, but went with this one instead.
After pouring over reviews I picked this one because there was T1D mom who posted about it being great for her daughters insulin during a cross country move.
Also, it has a temperature control that seems to be really solid so I can be SURE it's cold enough, without freezing it over. https://www.amazon.com/dp/B073WYS3TR/ref=cm_sw_r_awdo_YR0AJQKD6VDA37HAEH5W
I just read about this line of lemonades and iced teas the other day and have been meaning to order some. They were created by a T1 who wanted more low carb drink options!
Maybe not what you had in mind (they're not marketed as kids' drinks etc), but they came to mind as soon as I saw this post so I figured maybe they were worth mentioning?
I use skin safe Goo Gone and these exfoliating rounds. It works really well, and if I have some that's hard to remove I flip the pad over and use the rough side.
Not all heroes wear capes.
This scale I got off amazon
https://www.amazon.com/dp/B07QDV9SGM/ref=cm_sw_r_apan_i_FJHASJSAADYAW4SS7G7H
It comes with a list of codes and all I would have to do is weigh it and put in the code for cake and it'll tell me all the nutrition info including how many carbs. It worked well last time my t1d son had birthday cake. I used the code 687 for cupcake with frosting for cake.
I use a jogging belt it keeps my pump secure beneath my shirt and has lots of pocket space to manage my tubing so it doesn't get caught on doors. It also makes it really easy to change clothes since I don't have to worry about detaching it from a belt.
After putting your site on apply skin tac and a simpatch .8 hole. I literally clean myself 90% in a bath steaming hot. I have a command hook on the tub wall and use a dog tag style chain to hang the pump.
Be aware dex can get...a bit off on the high side during hot baths/showers. You sorta need to feel out how your body is reacting. If you're also new to dex then test your BG before doing a rage bolus or wolfing candy.
Lavender scented candles are also reccomended. Nothing to do with diabetes. Just makes baths more epic.
Links to the above -
Skintac-
Simpatch -
Thursday Plantation Tea Tree Antiseptic and Antibacterial Cream, 3.5 Ounces https://www.amazon.com/dp/B0059HMZ84/ref=cm_sw_r_cp_api_i_GKPEB7AJ3FKBN325TKQZ?_encoding=UTF8&psc=1
Here’s a link to the one I get!
A brisk walk can solve many highs.
Soak the fabric Dexcom patch on your body in adhesive remover (I use a cotton ball filled with Goo Gone Bandage & Adhesive Remover - it’s blue liquid - and push it onto the patch on my arm) for 5 minutes before attempting to remove it.
Use a rubber band and an air tag holder to add an Air Tag to your insulin pen.
Keep glucose gel packs everywhere (I use these: Transcend Glucose Gel Packs -... https://www.amazon.com/dp/B09167LD3C)
A pizza slice about the size of my outstretched hand is about 30 carbs (deep-dish is x2).
Let me see if I can think of more…
Use this.. Uni-Solve
Removing pods/cgm's after using a skin barrier/prep can be very difficult. My son is T1D and we only use the skin prep on the cgm. The omnipod usually has no trouble staying on for 2-3 days. When it's time to remove it i rip the corner off the uni-solve package and drip a few drops around the device, onto the Adhesive material. Wait a few minutes and it will come off very easily. I then finish opening the uni-solve and use the pad to clean the rest of the Adhesive off the skin. I follow with a rubbing alcohol soaked cotton pad(we use make-up Remover pads from costco).
You can have your doctor change the script for the pods to a 2 day cycle instead of 3. (We told them the pod is often unreliable on the third day) This might help by moving the site more often.
Get the uni-solve, it also comes in a bottle instead of pads. We use both.
I use these for my pump site, but as a sweaty person, I’ve never had one come off from sweat.
SIMPATCH Adhesive Patch (30-Pack) – Waterproof Adhesive, CGM Tape – Multiple Color Options https://www.amazon.com/dp/B078H3CWZ9/ref=cm_sw_r_cp_api_i_YSCV018P7G5RPSG1G4ZY
Also, prepping your skin is important for optimal adhesion. IV prep and skin tac help a lot.
My 11 year old uses: Luxja Diabetic Supplies Travel Case, Storage Bag for Glucose Meter and Other Diabetic Supplies (Bag Only), Black https://www.amazon.com/dp/B07H81KD1H/ref=cm_sw_r_apan_i_0A2N5ECMAVT34H4Q268X?psc=1
Inside of a mini vans bag...
Most of my alarms are set to vibrate except the extreme lows. Insertion and removal doesn't really hurt that much. One thing I do is use is Skin-Tac to help insure the CGM adheres to my skin for the full 10(20) days.
I bought mine on Amazon. Just to have a back up. Here’s the link or u can search tslim charging cable.
USB Cable (6ft) https://www.amazon.com/dp/B00R57G2IK/ref=cm_sw_r_cp_api_i_8C0BVFD27DCBFRKFMCRV?_encoding=UTF8&psc=1
VIVIPEN. VIVI CAP1 Insulin Cooler Case - Reusable Diabetes Pen Carrying Case - Only for KwikPen Models - Use Daily for Years Without Maintenance, Ice Packs or Battery Charging -FDA Registered https://www.amazon.com/dp/B0772SPP8J/ref=cm_sw_r_cp_api_i_KHEJA314T8Z3Y8ZS2RJE?_encoding=UTF8&psc=1
You can order a Frigo bag
FRIO Large Insulin Cooling Carrying Case/Wallet - Blue - Evaporative Cooler - Keeps Insulin Cool Without Ever Needing ice Packs or Refrigeration! Accept NO Imitation!-Low Shipping Rates- https://www.amazon.com/dp/B0002262DA/ref=cm_sw_r_cp_api_i_JJ0YK9J6FDE0JA131S3E
Sounds pretty on par with my experience as well. (9yo Dx 8 months ago)
You will grow more confident in your guessing carbs. I still weigh things out where I can but if i make aomwthing from scratch, i guess. I bought a scale that has really helped take a bunch of guesswork out. Aside from his pump and cgm, It was the most helpful purchase I've made pertaining to diabetes.
Mackie Food Scale, Digital... https://www.amazon.com/dp/B07QH32MTV?ref=ppx_pop_mob_ap_share
You're doing great!!!! I don't know if it gets easier or you grow more confident and knowledgeable but either way, things will settle.
I personally use THESE. I’ve been taking them for about 7 months now and my blood work has came back with positive feedback. So I recommend them!
Wow. That’s wild. Stay safe out there. FWIW I’ve found these emergency glucose packets to be exceptional at restoring blood sugar and at being packaged well enough to both be super convenient and not likely to break open (no affiliation, just something I now keep literally everywhere): https://www.amazon.com/dp/B06W2M85SP/
Normal to gain what you lost back. Don't worry about that. I'll try to keep this short - Start off by roughly calculating your Daily Maintenance Calories. There's dozens of sites like this one that you can use. From there, subtract about ~250 calories from your daily maintenance to expect to lose a little bit of weight each week, roughly 1/2 lb a week. You can go more if you feel comfortable, but I always recommend starting off low and then work up to roughly a ~400 calorie deficit to get closer to 1 lb a week. Second - download MyFitnessPal and start tracking everything you eat/drink. Yes, even small snacks to correct lows. Don't go based off serving sizes, only go by weight. Which brings us to Third - buy a food scale. I use one like this off Amazon. Cheap, gets the job done. Lots of other stuff I won't go into crazy detail like: pre-make low-calorie snacks that you can quickly grab, eat some of the same meals consistently, etc. Lastly, if you want a cookie or something, just go for it and enjoy it. Just always make sure to log it and account for it when you do. There are some great low calorie alternatives if you have a sweet tooth like Halo Top ice cream for example. Super tasty, not too bad in the carb department and pretty low calorie, even for the entire pint (somewhere around like 300 calories or something). If there's specific things you want recommended let me know, other than that, good luck on your journey!
That's not that far, I agree with everyone else, sounds defective! I find the Lantus bottles thinner glass than my Humalog.
So I use these ... Little "beer coozies" for insulin bottles. Just another alternative to what other people have posted here.
Vial Protection by Securitee Blanket https://smile.amazon.com/dp/B008AXH55C/ref=cm_sw_r_apan_glt_i_87GG5HED54Z4QXR2VG22
You should definitely have something on hand to treat these kinds of things. Glucagon is usually administered by someone else when you are unconscious or unable to help yourself. There are apparently Glucagon pens that can be self administered (I saw it on Instagram though so take with a grain of salt). My insurance didn't like paying for something I've never needed that also expires, so I have a Basquimi (may not be spelling it correctly) prescription which is something you inhale.
Much of the time I use glucose gel. You don't need a prescription for it and it works fast and can be administered to you by others if you're unconscious.
I also use juice if I'm able to not be in panic eating mode. The little juice boxes you put in a kids lunchbox are typically around 15-20 grams of carbs, and will hit you fast. Fruit will be slower, but faster than most candy. I've used lifesavers or other hard candy in a pinch if I don't have juice or glucose tabs.
SPI belt, or one of the many knockoffs. https://www.amazon.com/SPIbelt-Dual-Pocket-Sport-Fabric-Zipper/dp/B0091HAL6Q
Here's the one I have, waterproof and cheap: https://www.amazon.com/gp/product/B019BQNTL0/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1
I love the Flipbelt. It's like a tube sock around your waist. Never had issues with anything falling out of it either.
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Weigh & record all your food on something like cronometer.com or myfitnesspal. You need to learn what your normal insulin to carb ratios are without exercise and then develop a pre-workout insulin to carb ratio.
As an example, say if your normal insulin to carb ratio is 1:20, and that you start getting low during workouts, start lowering your insulin before workouts, so your ratio might be 1:25. Say if you still get low on a 1:25, lower it again to say a ratio of 1:30, if you don't go low, then you know that ratio works best for you if you're going to workout.
As a backup, I use Kendall Mint Cake, it's basically 100% pure sugar. It isn't healthy of course, but it's the best thing to stop lows and there is no fat to cause insulin resistance compared to say, a Snickers bar, as an example.
Inject your long acting insulin in the morning if you're not already doing so. Are you weighing and recording all your food in something like Cronometer.com and calculating your insulin to carbohydrate ratios?
These are the ones I use they come in bottles of 50 and you get 6 of them so they last a while. They also come in tubes of 10 so I always keep one of those on me and just refill it from the bottle when I have to use it.
Hey, i (17) was in same situation 2 years ago.
For the needles it doesnt hurt (it can a little bit sometimes), find a way that is comfortable for you. I ussally pinch about 1cm of the skin hard and gently let the needle slide in with minimal pressure, you dont have to rush at all. (Also recommend changing needles very often, if you can, its best to do it after every shot)
For the finger pricking: cgm = game changer If you dont want cgm this will help, i own one and its great Genteel it was worth every penny. Considering its just little bigger but you can take your blood from nearly anywhere on your body, and you really wont feel a thing- (my favorite spot is forearms).
My Endo recommended this book. Its very thorough and helped a lot.
Jogging belts work really well. They're skin tight so the pump will stay safe even if you're charging clothes and they have plenty of space to tuck the tubing away so you don't catch it on door knobs. The belt can be shifted easily so the pump is never in an uncomfortable place.
Lifeable Glucose Gummies – Great Tasting Natural Flavor Gummy – Gluten Free GMO-Free Chewable – for Low Blood Sugar Level – for Adults and Kids – 90 Gummies https://www.amazon.com/dp/B095RVGYL8/ref=cm_sw_r_apan_glt_fabc_KAQXBKQQGVE82PEQFYBA
Or maybe one of these. There are certain similar products that connect to phones for deaf people. There’s even one you put under your mattress that shakes the bed
Couple thoughts. First, no, this is not your fault or a discipline problem. If depression is a constant in your life, that’s something you deserve some help tackling. But it sounds like there are multiple potential vectors, so isolating may be problematic.
One thing that’s helped a lot has been the InPen. I’m MDI (prefer it that way) and it’s been instrumental in helping me understand the lifecycle of insulin. It helps me with understanding how much insulin I have still in my system, so I can foresee coming lows or highs potentially. Plus it helps calculate dosing, which helps a lot too.
Finally, I’d recommend something like Transcend Glucose Gel Packs - https://www.amazon.com/dp/B09167T835/
These for instance are 15 carbs exactly, single serving, easily concealable and won’t rip easily, in not very much liquid at all, and while ostensibly for an emergency low, would be able to help you pad out carb intake you’ve already dosed for. So if you dose for 20 carbs and end up not being able to get down more than 1/4 your meal, one of these could help, maybe?
My biggest change was getting something for those damn testing strips. I was leaving them everywhere.
I have one of those on my couch, and on my desk. I honestly need another one by the side of my bed.
YES. It is such a huge quality of life improvement. It takes care of dawn syndrome, random stress highs, exercise lows, all without you needing to provide any input. If you're driving and notice you're trending upwards you can give yourself a bolus with a couple of taps, no fumbling with needles in your passenger seat. You don't have to detach the pump if you don't want to. It's water resistant so it does fine in the shower. I just use an arm band and have it sit on my bicep. The tube management is really easy if you use a jogging belt, the pu p sits close to your stomach and doesn't move around, the tubing is tucked into the belt pocket so it's safely out of the way. I forget it's there most of the time. Give it a try, the benefit is really worth the tiny inconvenience.
I always have a tube of glucose tablets in my pocket. They're easy to carry around, and work quickly. Most importantly, they don't cause me to skyrocket into high blood sugar like juices and soda tend to do. Anything with sugar should work but these tend to have the fewest drawbacks for me.
SpiBelt Dual Pocket Pro works really good for me-
SPIbelt Adult - Dual Pocket Pro Running Belt, 1.5" Elastic Band, Buckle Closure https://www.amazon.com/dp/B0827ZJ6S4/ref=cm_sw_r_cp_api_glt_fabc_YNZMSP0VVDPEMXCGKAF2
I use skin grip tape I order off Amazon. They work pretty well and I take some long showers sometimes. I also keep my sensor in my arm which helps when I take baths. Hope it helps 🙂
Skin Grip CGM Patches for Medtronic Guardian (20-Pack), Waterproof & Sweatproof for 10-14 Days, Pre-Cut Adhesive Tape, Continuous Glucose Monitor Protection (Multi-Colored) https://www.amazon.com/dp/B08F9ZZLL7/ref=cm_sw_r_apan_glt_fabc_B4ZTH157DDVY06DFYZKY?psc=1
Amazon sells all kinds of over patches, and diabetics are creative. Not vouching for this, it's just an example: SIMPATCH – Universal Adhesive Patch, 0.8-Inch Hole (30-Pack) – Waterproof Adhesive, CGM Tape – Multiple Color Options https://www.amazon.com/dp/B07CB1MSLY/ref=cm_sw_r_apan_glt_fabc_M4J52YRMYCB1VTYXKHCC
Amazon sells a Tandem case/clip that allows rotation of the pump 360 degrees. There case Tandem gives you forced you to unclip, depending where you clip it.
So, the 5 hour thing is their estimate of how long your insulin is active in your body, it isn't that it is giving insulin over a 5 hour time period. You can give insulin any time you want.
I agree that you should see another educator, if your previous person didn't answer your questions well. Also, I'd highly recommend the book "Pumping Insulin."
Transcend Glucose Gel Packs - Strawberry Flavor - 15 Pack (1.1oz Each) - Blood Sugar Support Glucose Gel Packs for Diabetics - Fast Acting, Gluten Free, Precise 15g Dose - Made in The USA https://smile.amazon.com/dp/B09167T835/ref=cm_sw_r_apan_glt_fabc_0KCWN4TCFHCWKJE53K8F
I’m not sure about Gatorade, when I tried it it was too acidic which can made my blood sugar higher because it made my blood more more acidic. I mean vitamins and minerals like potassium, magnesium, and sodium. I use these and mix them into a glass of water and chug them. It usually works pretty well https://www.amazon.com/dp/B0191Y20CG/ref=cm_sw_r_cp_awdb_imm_J6VQHHCXRHMDE727R978
I lkve in a swampy city and love these overpatches! They last 7 or 8 days so usually I'll wait a couple days to put them on. The way they make the adhesive makes it easy to pull off from the inside and replace the overpatch without taking off the whole sensor.
I went to a water park this summer and my omnipod malfunctioned after the first slide. But for my Libre it will stay on with one or two adhesive patches like these: Skin Grip Freestyle Libre Adhesive Patches 20-Pack | Pre-Cut CGM Patch | Premium Continuous Glucose Monitor Protection | Waterproof Tape (Multi-Color) https://www.amazon.com/dp/B08V58N9QS/ref=cm_sw_r_cp_api_glt_fabc_TR7NTKDK134HHN6BNY84
Probably not the answer you want, but don’t take those mass gainers. Waste of money and are filled with so much crap ugh don’t even get me started. I’m a hard gainer too, but you can totally get more calories from just food. If you really struggle, make a shake with Whey Protein powder, This is what I generally use some Oats and then 1-2 servings of peanut butter. I get some vanilla ice cream and just put like a small scoop in there as well with some almond milk and boom there you go. If you REALLY need more calories, toss in some avocado oil. This has helped me a ton hit my daily caloric intake goals. Generally like ~50-70g of carbs but it’s so much better and I don’t get any crazy spikes or crashes. Fat from the peanut butter and oil help to slow the digestion as well. Hope this helps!
Hopefully it was a typo--you don't want your carb/corrections to deliver lower amounts of insulin if you're trending high. I would suggest the book Pumping Insulin. https://www.amazon.com/Pumping-Insulin-Everything-Success-Pump/dp/1884804888/ref=sr\_1\_1?dchild=1&keywords=pumping+insulin&qid=1628728266&s=books&sr=1-1
Not sure if this will work for you but I've been using a jogging band to carry my pump. It keeps the pump away from my belt and it covers my site. I'm able to tuck the tubing into the band so only about a quarter inch is exposed. I've been using it for about 8 months and haven't had a single tubing snag or dropped pump. Also, using patches to cover the site helps for when you have to take off the band. I've dropped my pump a couple of times while changing clothes and the patch has kept my site from ripping out.
I do blue collar type work and these are the best.
They stay on until I take them off.
Rubbing alcohol, wait 5 minutes, apply CGM site, ensure tape is pressed with fingers by tracing the site several times, proceed with normal process.
There is a product called “IV PREP”, which makes skin tacky and makes CGM and pump sites hard to get off. Might be worth giving it a try, I think it’s covered by some insurance and also available online (OTC). That’s the brand and size I used to use, $12 per 50 pads and you only need one per site.
IV prep is applied after the alcohol swab and before site application, so it would go:
Alcohol swap
Wait 5
IV PREP
Wait 5
Proceed as normal
I put skintac down before I put the sensor on. I'm a big hairy guy who works outside and sweats alot (sorry if that's TMI) and mine always stay on. Didn't even have a problem with July heat at the beach in Alabama. I always leave a little circle without it for the filament.
I love these guys! They're flexible and stick really well and if you pull from the inside you can change out the patch without changing the whole sensor. Also they're pink https://www.amazon.com/dp/B07PRCC6QD/ref=cm_sw_r_cp_apap_KIUx6W5xeIMaN
I just picked up some fruit leather. Best decision ever. Thin and small and they don’t get all broken up in your bag like granola bars. Stretch Island Fruit Leather Snacks Variety Pack, 0.5 Ounce, Pack of 48 https://www.amazon.com/dp/B001CTO0YA/ref=cm_sw_r_cp_api_glt_fabc_40Q6Q7XPH3QX345GYH7M?_encoding=UTF8&psc=1
No its not rude! Those details are important. 😜For reference, if I stick my finger into the backside of my hip (yes in the same latitude as the kidneys, but farther out from the spine), my flesh would give/squish about an inch. Because that area doesn't have very tight skin/big muscles underneath, my dexcom doesn't get pulled loose. Does that make sense? 😂
I don't wear weight belts, but I do tend to wear lots of elastic waist bands/shorts/jeans, and I either place sensors above or below where those typically sit on my middle, and haven't had too many problems. As far as arms and thighs, I try to place sensors again, in the fleshy part of my arm, and if they pull off bc pushups/presses, etc, the next time, I shift them to where I can tell the site isn't too close to the muscle..
Couple more tips: 1. Skin Prep swabs. They look just like alcohol swabs but prep your skin so tape/wound dressings will adhere to your skin better. Boxes on amazon are pretty affordable: Smith & Nephew Skin-Prep® Protective Barrier Wipes https://smile.amazon.com/dp/B002ZUHLW8/ref=cm_sw_r_cp_api_glt_fabc_EJZGAPBBMXVWJED4B83J
Request the overpatches for free from Dexcom. They're transparent and do a good job of keeping the adhesive intact. Bonus points if you apply Skin Prep first!
Lastly, IDK if you know this, but if a sensor comes loose/falls off before the 10 days, you can call Dexcom tech support and request a replacement sensor. They "guarantee" that the sensors should stick for 10 days, so they're pretty generous about sending replacements at no cost!
This might be a good resource for you in addition to speaking with your doctor Think Like a Pancreas: A Practical Guide to Managing Diabetes with Insulin https://www.amazon.com/dp/0738246689/ref=cm_sw_r_cp_api_glt_fabc_QN2E1ECYFCGV8DH86WVH
Cheese sticks, beef sticks, jerky, nuts, my favorite is flavored nuts like wasabi, and my other fave Love Good fats bars https://www.amazon.com/dp/B07W6RL88N/ref=cm_sw_r_cp_apa_glt_fabc_44HJ785Z0SMPX7BJAM32