We started baby foods this week, and my daughter (8 months) is doing really well with what we've tried so far! Sweet potato, green beans/corn, etc. I'm so proud and so happy for her!
In case anyone reading this might benefit, my daughter did FAR better (pushed way less food out with her tongue) using these spoons, than she did with a traditional style baby spoon. I'm not affiliated with Nuby in any way, just a big fan of these particular spoons.
https://www.amazon.com/dp/B08JRJQD7R/ref=cm_sw_r_cp_apa_i_JnG-FbJ7G573E
So I would recommend a swing inside. They have ones that hang from a support or ones that hang from a stand. It will give him sensory input that he needs. That might help him sleep better. It helped my daughter.
Try this book Gifts
I thought that reading all the different experiences was helpful.
Although risk increases with maternal age, since younger women have more babies in general, they have more babies with Down syndrome.
You’ll be amazed at what your baby can do and the rest will follow. Congrats on the birth and I hope the NICU stay is short!
I loved the little tykes garden set. I got one at a yard sale. https://www.amazon.com/Little-Tikes-623417M-Activity-Garden/dp/B0075CMYTQ/ref=mp_s_a_1_5?dchild=1&keywords=little+tikes+garden+activity+center&qid=1626473042&sprefix=little+tykes+garden&sr=8-5
Congratulations to them! My daughter Penny was diagnosed at birth with Down syndrome 13 years ago. I wrote a book about my experience as her mom in the first year of her life called A Good and Perfect Gift which you can find on Amazon. There are other resources and blog posts on my website as well. I'd also recommend they join facebook groups around Down syndrome and seek community and encouragement that way. Today Penny is a thriving, ballet dancing, book loving teenager!
You are not mad. You are wonderful parents.
I recommend the book:
https://www.amazon.com/Gross-Motor-Skills-Children-Syndrome/dp/0933149816
It’s a wonderful resource. I read it cover to cover when my daughter was little. I had the honor of meeting the author and she knows Down syndrome and her field better than anyone. The other woodbine house books offer good information but this one is great.
I’m sorry that you feel the pressures of society. Acceptance and belonging is very important.
That's awesome!! I am happy to answer any questions. :) I use this baby potty so I can plop him on at anytime. We mostly use it in our living room, but I'll bring it into the bathroom if I'm going, or he's about to bath. I even took it to grandma's and his aunt's house to use there for consistency.
I am going to buy a toilet seat reducer soon to help him get used to just sitting on the toilet. He's not ready to sit without me right in front of him, but it would be nice to skip the step of dumping his waste from the mini potty to the actual potty. I'm debating on getting the one with the steps so he can climb up on his own. eventually.
When we started, our son couldn't sit independently. He would still start to lean and we would have to catch him, haha. Sitting on the potty gave him another opportunity to practice, and we would just sit right in front of him and hold him up. He can now put his legs on the floor now which helps him stabilize. He doesn't fall off unless he sees a toy and goes for it, haha.
I totally encourage you just to start trying it out. I jumped in with sound associating first and then putting him on the potty after a week or two, and I was shocked when it worked. Just shocked. I had no idea what I was doing, but I used the methods and it worked. Her podcast is really great because it covers the specifics and you can just skip the ones that aren't applicable.
Those look great on him! As an adolescent and now adult my brother has struggled to find frames that don't slide down (the legs of the frames are always too long for where his ears are). I bought him these little ear grips to help him and they have been so wonderful that now everyone in my family uses them.
Amazon link: https://www.amazon.com/gp/product/B07R7JWMFP/ref=ppx_yo_dt_b_asin_title_o06_s00?ie=UTF8&psc=1
For simpler math and writing free apps check out this ones from AppStudios - https://play.google.com/store/apps/details?id=com.rvappstudios.math.kids.counting&hl=en_US I also like the fact that they have no ads...
I don’t have any personal experience but a lot of moms in my support groups recommend this book:Supporting Positive Behavior in Children and Teens with Down Syndrome: The Respond but Don't React Method
These sticker by number books are super cute and have been a big hit w/ students I’ve worked with: Brain Games - Sticker by Number: Animals (Geometric Stickers) https://www.amazon.com/dp/1680229001/ref=cm_sw_r_cp_api_i_UobqFb5NXFSQ1
I think that you should read about down syndrome and understand how to communicate with your brother, read some articles or maybe this book from amazon can help, I took it for my 6 months son and I can now understand much more. https://www.amazon.com/Babies-Down-Syndrome-Parenting-Guide/dp/B088N615G2/ref=tmm_pap_swatch_0?_encoding=UTF8&qid=&sr=
I took this book from amazon and it helped me to understand how to help my 6 months son, Iv'e learned a lot maybe it can help you too congratulations for your baby and good luck in this beautifuk journey.
Paul Daugherty wrote a book called "An Uncomplicated Life" (On Amazon here) about his daughter with DS. He quotes her and does a good job helping you "hear" her in the narratives. I own a copy, but I know you can get it at most libraries, especially if they have an ebook selection. I would check out that book for some help if need be.
An excellent book is Expecting Adam, it is about a couple who has a baby with DS.
http://www.amazon.com/Expecting-Adam-Story-Rebirth-Everyday/dp/0307719642
I met my friend with DS through Special Olympics. Perhaps you have a local chapter and could volunteer a few times a year? Helping find support, resources and community activities to do with other families can be very helpful.