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In public, I stand but bend my knees so my bag is closer to the bowl. I put a strip of toilet paper over the front of the toilet then empty at the waterline at the front of the toilet (where I put the toilet paper) so there is no splashing.
At home, I just sit on this and empty the same way: https://www.amazon.com/gp/product/B074N7L469/
Well if you are on painkillers that can really slow down output. My output was not much while I was in the hospital due to painkillers. As long as you are passing gas and not having classic signs of ileus I wouldn't worry much about that.
I would say what you drink is more important that how much. Make sure you are not just chugging plain water. Drip Drop or Pedialyte is good, as well as broths (for salt).
Drip Drop: https://smile.amazon.com/DripDrop-Dehydration-Electrolyte-Watermelon-Servings/dp/B07NR8FBMT/
When I was in the hospital recovering a friend got me a Slanket. I spent quite a bit of time on the couch recovering and that Slanket was great to rest under.
I still have it, and I still love it. 10 out of 10... would recommend a Slanket to anyone as get-well gift.
The stoma itself does not need to be cleaned.
The skin around the stoma can be cleaned with baby wipes as long is they do not contain moisturizers. Water Wipes are a good option: https://smile.amazon.com/WaterWipes-Nose-Unscented-Bathing-Wipes/dp/B0857WS9LG/
I wanted to try wearing my bag horizontal but was afraid to. I decided to give it a go when I was on holidays so that I could remove and put it back on vertically. I have never worn it vertically since.
Emptying it is a breeze. The bag just bends. Having it across my belly means I don't have to worry about it bunching up when I sit down. I used to have to hit the bathroom in retaraunts as it started to fill up. I don't do that anymore. When it's sideways you can let it fill up more.
As for the stealth belt - I have been using belly bands. It keeps it close to me and they don't cost much. I have been doing the horizontal/belly band thing for at least 5 years. This is a big part of your life, I encourage you to try wearing it horizontal at least once. I would never go back. I wear a 1 piece btw.
https://www.amazon.ca/gp/product/B08TC1D6WH/ref=ppx\_yo\_dt\_b\_asin\_title\_o02\_s00?ie=UTF8&psc=1
There is no such thing as Stomahesive glue. There is paste that should be used like caulking around the base of the stoma. If she is spreading it on the back of her wafer like glue, that could be why the bag doesn't stick.
Additionally, I'd buy her some of these for when she starts chemo. Chemo often makes the output very liquidy and these will make that more manageable and less "sloshy."
https://smile.amazon.com/Trio-Pearls-reducing-Gelling-sachets/dp/B079BZMDMT/
If aquacel isn't working you might try hydrofera blue. This soaks up the purulent discharge and can help prevent secondary infection. Many people also swear by MediHoney.
https://parthenoninc.com/hydrofera-blue-ostomy-ring-dressing-10-per-box/
https://www.amazon.com/Derma-Sciences-31022-Medihoney-Alginate/dp/B00RDINTHI/
Also, are you using adhesive remover spray liberally when removing the bag? That might help with the pulling.
Some WOCNs recommend putting something like the Coloplast Protective Sheet over the dressing material and then the appliance over that. Anecdotally, it seems like some patients prefer this and some don't so your mileage may vary. Coloplast will gladly send you free samples.
Lying flat will not cause a leak on its own. Leaks will only happen if something is wrong that causes appliance failure.
Put a waterproof mattress cover on your mattress and buy some cheap sheets you don't care about if it helps with peace of mind. (I believe every person should use a mattress protector anyway as it prolongs the life of your mattress by blocking skin oils, sweat, drool, etc from seeping into your mattress.)
Also, flange extenders may give you some peace of mind as they would contain a leak: https://products.coloplast.us/global/brava-elastic-barrier-strip-xl/
https://www.amazon.com/ALRS0210PK-Sure-Seal-Medium-Square/dp/B00JWSFT3Y
I was interested in that too so I looked it up and this is what I found? Not sure if it’s what OP has, but it seems to be what they described!
Don’t worry, you are the only one who notices the bulge. No one else does. I like to wear skinny jeans with a flat front, no button or zipper to irritate me. I feel like it hides my bag and I can wear any kind of top. And I’m pretty skinny too so they fit well and give me a little body. I wear a longer top to hide my flat butt.
You can find dressier style pants like this too. And yes, empire waist dresses!
Good luck!
I like these. https://www.amazon.com/gp/product/B081G5D78S/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1
Lots of info online: https://www.crohnsandcolitis.com.au/about-crohns-colitis/
https://www.webmd.com/ibd-crohns-disease/crohns-disease/digestive-diseases-crohns-disease
They are both traditionally thought of as autoimmune disorders of the gut, but new research is showing this is not so straightforward. At its most basic level Ulcerative Colitis affects just the inner lining of the large intestine (colon) in a typically contiguous fashion. Crohn's can affect anywhere from the mouth to the anus in random patches and tends to affect the full thickness of the gastrointestinal tract. Lots of other differences and variations however and everyone's diagnoses tends to be a little unique. For example, I was diagnosed with UC for 9 years but when they removed my colon and did the histopathology, it showed up as Indeterminate Colitis.
It sounds like pyoderma if they are considering prednisone. I'd see a dermatologist if I were you as GI is not qualified to treat something like this on their own without dermatology consulting.
Peristomal pyoderma is caused by inflammation secondary to inflammatory bowel disease and not by length of time or number of failed immunosuppressants (though not being on an effective treatment will increase your likelihood of getting pyoderma).
I'd look into Medihoney, which has been shown as being effective in pyoderma and pressure ulcers:
MediHoney paste: https://www.amazon.com/Integra-Lifescience-Medihoney-Dressing-Applicator/dp/B07QF2SN7D/
MediHoney dressing: https://www.amazon.com/Derma-Sciences-31022-Medihoney-Alginate/dp/B00RDINTHI/
Ostomy wafers are large fabric bandaids also. However, you might want to try using protective skin prep wipes instead. They help the ostomy wafer stick and protect the skin. skin prep on Amazon
Using stoma powder and barrier spray under your wafer helps with this. Also, using a heavy duty flange extender (like the ones linked below) will keep the bag from coming off.
https://www.amazon.com/ALRS0210PK-Sure-Seal-Medium-Square/dp/B00JWSFT3Y
I think the comments have really covered most things.
As far as mental state it’s sometimes better to look at it from another angle. Buy her this book and see what she thinks…
My Other Bag's a Prada: Quick and Dirty Tips for Surviving an Ileostomy (2) https://www.amazon.co.uk/dp/1775178730/ref=cm_sw_r_cp_api_glt_fabc_33BJ603ZBJ8A5W29GZC2
It might help her feel less alone with her situation and hopefully give her a chuckle.
Though I think Safe 'n Simple works a tiny bit better than M9. M9 changes the odor to a very mild, almost undetectable earthy scent (like grass), whereas Safe 'n Simple completely eliminates the odor even if my nose is right near my open bag.
https://smile.amazon.com/Safe-Simple-Ostomy-Pouch-Deodorant/dp/B00DUGURH2/
Ordinarily a CT would not tell you much about the rectal stump even if it was very inflamed. An ER would not be able to do anything for this anyway - you need to see a GI.
It is likely diversion proctitis. Standard treatment is fatty acid enema.
While I never suggest self-medicating with suggestions from random people on the internet, a "home remedy" option (until you can see your doctor) is Vitamin E suppositories. You can purchase them on Amazon and they are for vaginal or rectal use (older women use them for vaginal dryness). There have been some small studies showing they can be helpful for proctitis (again, because they contain fatty acids). I have used them sporadically throughout the years and they are pretty inert. I will link them below.
https://www.amazon.com/Carlson-Labs-Key-Suppositories-Count/dp/B071RN68MR/
The other stuff sounds like a tummy bug or gastroparesis flare. Either way, that probably does need to be treated with IV fluids / electrolytes. If you have GP it may be a good idea to just have your doc set you up with a standing order at an infusion center for as needed IV hydration so you can go whenever you need it.
I had 3 abdominal surgeries last year, so I was extremely worried about hernias as I knew my core muscles were probably nonexistent. I’ve been using this support belt that’s meant for ostomates to help compress those weak muscles. Hope this helps!
So first things first: buy these.
https://www.amazon.com/Coloplast-Inc-6295050-Ostomy-Scissors/dp/B01DEEMOK2
Sharp and simple.
Next we need to solve two problems.
1) what is different about the loop stoma and this one? Think location, curve, do you crease when you sit, what mm is the new one? Your appliance may be fine still, but maybe we need some paste, maybe we need a different ring ect.
2) This is a big one. In an ideal situation when is the best time for you to change your bag? My best time is 11am. First thing in the morning (marshmallow or not would drive me crazy). You find this out by religiously keeping a food log for a week. You need to write WHAT you eat and WHEN you empty. I was able to find out that between 11 and before lunch, I was zero output. 10 30, disaster... 11 totally good. Set yourself up for success with a comfortable time to change.
Ok I lied, 3 questions... what does the wafer tell you about the leak? Is it always stained in the same place? Is it always while you sleep?
Let's work this one out. You've got the skills and this forum has the product knowledge.
I've tried almost everything for odor and this works the best for me, but the cap is absolutely terrible. I pour mine into a large glass bottle that has an eye dropper. An 8 ounce bottle lasts me 3 months.
https://smile.amazon.com/Safe-Simple-Ostomy-Pouch-Deodorant/dp/B00DUGURH2/
Everyone else has pretty much covered the range of experiences I've had (bag will show up on scanner, TSA agents usually just pat down for 10 seconds then swab your hands all out in public unless you request privacy, bag doesn't normally inflate during flight, precut before you pack, etc). The only other thing I would add is to consider using M9 deodorizing drops (made by Hollister) if you tend to have potent output like I do haha. I can really blow up a bathroom (I know, I'm such a lady haha), so I drip about 8-12 drops of this stuff into my bag before boarding, and my output is ODORLESS! It's a miracle. Anyway, I order mine from Amazon and will link below if you don't already own it and are interested. It will be a breeze travelling, don't worry. Have a safe flight!
Damn, that's a shame that you had a bad reaction to the melatonin because I was going to say that I have had my ileostomy for 2 years and nothing has helped me better than melatonin.
I take 10mg every night, and I can most of the time get at least 3 hours or so before I wake up and usually go empty the pouch. 3 hours doesn't sound good but before taking the melatonin i would never get into the deep sleep phase.
Maybe try a different brand? Also maybe try taking it during the day so that you can get used to how it feels. The brand I use is https://www.amazon.com/dp/B0828K6LF4?ref=nb\_sb\_ss\_w\_as-reorder-t1\_ypp\_rep\_k0\_1\_9&amp=&crid=1I99FNKKWD5B1&sprefix=melatonin&th=1
I have this art supply case which I keep in a closet right next to the bathroom. It stocked with enough inventory for 4-5 full appliance changes (bagas, wafers, sprayers, wipes, powders, etc.) It doesn't take up much room in the closet, the insider has handy dividers,, and it easily fits on the bathroom counter. It's grab and go!
I've been using this one for 6 months and it's fantastic. It has a flexible head. I once cut my stoma with it and it was not a big deal at all. It even gets gunky barrier that's packed in, just wipe the blade and keep going. When I'm finished like to sanitize it before storing.
https://www.amazon.com/Panasonic-ES2113PC-Pivoting-Attachments-Battery-Operated/dp/B08WTG6RCJ/
I use a cover that I got on Amazon the flange gets a little damp but not much leakage. https://www.amazon.com/STEAWOCE-Ostomy-Waterproof-Adjustable-Colostomy-Supplies/dp/B0B5X7B63V/ref=mp_s_a_1_1_sspa?adgrpid=62892673584&gclid=Cj0KCQiAnNacBhDvARIsABnDa6-sSVmrnkBAELQ0ZMvOf1gj4c_sTX7YdKMbH3H6rOK-eEESvCxE0doaAhF2EALw_wcB&hvadid...
Jeesh I am surprised that the pouch actually still detached even without the click lock ring! NGL I have went for like half a day where I forgot to actually click the ring and the pouch didn't detach!. I love the SenSura Mio, to me it is the most secure design of any manufacturer I have ever tried.
Why not just keep some extra supplies somewhere at work? Or what I do is have one of these filled with extras ready to go, you could do that and keep it at work - https://www.amazon.com/gp/product/B07WYKJXXY/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1
Hey, I had my reversal 3 weeks ago. My poops are solid but tiny and skinny
My recommendation for you, absolutely stay away from sugar/fructose or anything similar. The body only absorbs a finite amount per day, the rest provokes has and constipation.
Scrambled eggs, toast on white bread, and pbj (with white bread) has been working for me so try that.
Get a bidet asap cuz the more you go the more you’ll wipe and you will eventually develop a terrible rash (like I did before I bought this: Arofa Handheld Bidet Sprayer for... https://www.amazon.com/dp/B086W1YZSH?ref=ppx_pop_mob_ap_share)
Warms baths also help slow down the bowels. Also look into taking some Imodium to stop the gas and diahrrea
I empty the bag whenever it gets about half full - it varies on my diet [if I am eating a lot of stodge, potatoes, bread, pasta, my poop is fairly thick and slow to arrive in the bag. If I eat more carniverous then my digestion runs a bit faster.] I can manage to keep the wafer in place for about 7 or 8 days unless it has been a real hot and sweaty time making the adhesive fail around the edges.
So if pushed, I would say I empty my bag at least once per day and change the whole thing out once a week. I am allowed Medicaid requirements which is something like a change of both every third day? I have the drainable bags, if I had a non-drainable bag I would be allowed one per day unless it is shown I need more than one bag a day.
[and for those who use the nondrain bad 2 part, there is a company out there that makes a cute little insert bag that you can take out and throw away so you are not blowing through so many bags. I have been able to use them when doing bowel prep, to make it easier on me so I don't need to haul myself out of bed and into my chair and roll over to the toilet or try to decide if it is a good enough body day to stump over on crutches - I whipped out the little bag and stashed them in zippy bags until either I felt like getting up or my husband tossed the zippy bag for me.]
I had rectal cancer as well. Rectum was removed this year in July, with the colon intact, and I had a colostomy since then up until 3 weeks ago when I had it reversed.
For starters, make sure you are healthy and active going into the reversal. I was biking 10-5 miles a day ish.
As for the recovery, as I said I’m starting week 3 and it has actually been hell. It feels like I’m shitting out spike balls out of my anus but that may be due to me having wiped so much. To it, I STRONGLY urge you to get a bidet (see link at bottom). Other than that, stick to a good diet that works for you and does not cause too much constipation/gas. Sugars will generate that so stay away from sugar. I’ve personally just been eating eggs, white bread toast and lots of white flour spaghetti. DM me if you need, happy to help.
GET A BIDET
Arofa Handheld Bidet Sprayer for... https://www.amazon.com/dp/B086W1YZSH?ref=ppx_pop_mob_ap_share
The proper placement of a seatbelt is low on the lap [like under a belly bulge, especially if one is pregnant] and I use an old ALICE clip to hold the chest portion further towards the door than if I left it alone so it doesn't cross my ostomy.
Honey, so sorry for the pain - get a plastic sitz bath insert for the toilet, and after pooping, warm water with baking soda to denature the digestive acids and sooth the area. I also use phytoplex goop, it coats the skin and makes a barrier that helps. Even though I don't have an asshole any longer, I will do a sitz bath because they feel so damned good - I have a theory it is because the vagus nerve is being soothed, so it relaxes me =)
ALRS0210PK - Sure Seal Ring,... https://www.amazon.com/dp/B00JWSFT3Y?ref=ppx_pop_mob_ap_share
So I had trouble all summer with leaks. I found these while looking for something to help me out while swimming. Used them for the pool, hot tub and now for days I know imma be active and sweaty. Not a single problem yet. Works best with two part system but I manage okay with a one piece too. God speed!!
If I need to shower between bag changes, I use that funky klingfilm that sticks, cut out a square that covers the wafer entirely, grab some medical tape and tape the edges just in case, and the wafer area doesn't get a wash.
If you use single use one piece and change it at least once a day, ignore me =)
If you want to go an entirely different waterproof way, one can buy tegaderm on rolls, and cut a piece to size, slap a piece of gauze over your stoma, slap on the tegaderm and knock yourself out - when or if we ever get a hot tub again, that is what I plan to do so I can enjoy soaking and not screw up by having my wafer cut loose in the water.
No problem =)
I have not put in a full year with the mattress, and I am in it constantly [pretty much bedridden but that is a different tale] so the only thing I might have as a concern is the bend crease area - it may be possible the foam would breakdown in that area. However, so far so good.
I have this as abed table, no longer available =( and our lights are at each end of the headboard.
Oh, I know. On the plus side, my husband and I got a split king*, and the slit between the mattresses is *just* wide enough that I can sleep on my left side/recovery left side and P'tit Joey is safely nestled between the mattresses =)
- I personally can recommend this base, and this mattress. Majorly comfortable and I wish we had been able to afford to buy them earlier by a few years.
Well, colorectal cancer will not be killing me =) Would I like to not have a stoma? Yes, but I won't be dying soon, my digestive tract is behaving much better, and processing food properly.
By brava seal, do you mean these half-moon strips? https://www.amazon.com/62120700BX-Brava-Elastic-Barrier-Strips/dp/B009QM9WSY/ref=asc_df_B009QM9WSY?tag=bngsmtphsnus-20&linkCode=df0&hvadid=80882941400104&hvnetw=s&hvqmt=e&hvbmt=be&hvdev=c&hvlocint=&hvlocphy=&hvtargid=pla-4584482468150965&psc=1
Are you suggesting putting them down around the stoma in place of the wax ring? I've heard someone else suggest this on another post.
I’m allergic to many of the skin barriers but I’ve found one that my body will tolerate called “safe n simple.” Here’s the link: https://www.amazon.com/Safe-Simple-RRSNS80775-Alcohol-Barrier/dp/B018IWSIFA/ref=asc_df_B018IWSIFA/?tag=hyprod-20&linkCode=df0&hvadid=344089820809&hvpos=&hvnetw=g&hvrand=9441035819907898639&hvpone=&hvptwo=&hvqmt=&...
We used to put my spouse's bags on when he was lying down. It leaked quickly every time.
Now he puts his own bag on while standing up and it lasts for nearly a week.. He has a shaving mirror that he sets on the counter and has no issue seeing with it. Can also search for vanity or makeup mirrors. His is very similar to this one. https://www.amazon.com/Adjustable-360%C2%B0Rotation-Folding-Portable-Cosmetic/dp/B09H5KQQ4K/ref=sr_1_8?crid=3CZPR7JF02GP&keywords=adjustable+mini+makeup+mirror&qid=1666834648&sprefix=adjustable+mini+makeup+mirro%2Caps%2C123&sr=8-8
I use 4x4 gauze. I buy it from Amazon. I’ve tried a couple different brands and some are more like a mesh and not comfortable. I use this specific item. It’s very comfortable and works well. https://www.amazon.com/dp/B07DFRJ417?_encoding=UTF8&psc=1&ref_=cm_sw_r_ud_dp_ZEKSZ979JGYGZ17M4E9D
I can't help with the blowouts, but my wound care nurse gave me a bottle of this stuff and it worked great! Cleared up the rash in a couple of days. I really suggest you make the time to visit the wound care center because they're a great resource for all things, and a wound care nurse is invaluable.
https://www.amazon.com/Remedy-Phytoplex-Antifungal-Powder-White/dp/B001EVX2L8
>u/AsexualLatte
>
>When I shower without my appliance on, I'll wash around the stoma with Head & Shoulders Classic. The Zinc helps prevent rashes. Just make sure it's not the 2-in-1. I also had a VERY itchy rash around my stoma and my wound care nurse gave me some anti fungal power which cleared it up in a few days. She also told me the hole in my wafer was too big and I needed to hug the stoma (I now hae about 1mm of skin showing).
>
>https://smile.amazon.com/Remedy-Phytoplex-Antifungal-Powder-White/dp/B001EVX2L8/ref=sr\_1\_5?crid=21VUMTOLAWI5P&keywords=anti+fungal+powder&qid=1666053373&qu=eyJxc2MiOiI0LjUyIiwicXNhIjoiMy45MSIsInFzcCI6IjMuODEifQ%3D%3D&sprefix=anti...
I'd add shelves and an odour absorbing bin to that.
I have a set of 4 narrow, freestanding shelves by my toilet that all my supplies sit on so they're convenient to reach while I'm bagless.
Things like half a dozen bags, my mirror, barrier cream, powder, seals, dry wipes, waste bags (the shelves also had hooks which I can out the bag on, very hands), the glue solvent, flange etenders, scissors, the steroids I use, orabase paste, gloves etc.
I prefer my station in the bathroom as there's a convenient sink to wash up in and I live alone, so no competition for it (I can be in there a while with a blowout). If he'd rather use his bedroom, then get him a box of disinfectant hand wipes too (I like the Clinell handwipes as they aren't drying but are hospital grade. I'm immune compromised so, I have to worry about germs).
He may need bigger shelves to hold longer term supplies (my bags tend to come in boxes of 10, so he may need 3 or more boxes a month, plus 30 barrier rings in boxes of 10, spare wipes, spare waste bags etc)
The bin is a peddle bin designed to contain bad smells. It can hold about 10 bags, I line it with small, scented bin liners, and the wide lip keeps any bad smells from escaping. I also pinned a charcoal air freshener to the inside of the lid.
I would also recommend something called a stoma goggle, which keeps your bag dry while you shower. You don't realise how much you miss just standing under the water, until you've got to keep a bag dry.
Nice one! as an aside, if you're looking for something to dig a cathole with,
https://www.amazon.com/gp/product/B00UTK5HJ0/
I have one of these in my outdoor backpack, along with antiseptic wipes and a travel size kleenex tissue package. Works really well when out for bike rides, and it packs at the bottom flap of my Osprey backpacks.
https://i.imgur.com/szq7aBI.jpeg
is pretty much the contents of my backpack when I go out for rides. Works out pretty well, and I've done similar when out camping in the backwoods.
I actually have gone minimal - wafer, bag and adhesive remover wipes =) Being female I didn't have a lot of hair to deal with - but one might consider electrolysis to get any really pesky heavy hair patches if you can find an aesthetician willing to work around a stoma.
I use the original old style Head and Shoulders around Joey - it removes any remaining oils from the skin and helps the adhesive stick [and of there is any fungus ... the zinc kills it!] I use it last in case whatever shampoo I use has conditioner snuck in =) Or body soap that might have moisturizer added.
I spread around about half a teaspoon of olive oil in my bag, helps stuff slide down, and if I think I am particularly stinky, I toss in a couple tictacs or altoids for that minty freshness =)
I had mine in January and here are some ideas: Lightweight, soft, throw blanket Reading pillow (the kind with back and arms): Waffle seat cushion (NOT a donut pillow which can tear the skin): https://www.amazon.com/Extra-Thick-Seat-Cushion-Pillow/dp/B09JNPJG6G?th=1 Decaf flavored teas and a nice mug or hot water kettle Cozy socks or slippers Sherpa hoodie Streaming subscription to a movie channel
I'm late to this conversation, but I store my inventory in the linen closet and then use this clear plastic case with movable dividers which holds a few weeks' worth of supplies. I store it in the bedroom closet and bring the whole thing into the bathroom with me when I need to do a bag change. I can easier store bags, wafers, barrier strips, poop bags, powders, sprays, wipes, etc.
I am so sorry for you.
I was given this really wide belt with a hole for the bag, like this one. I was told if it got uncomfortable for me, I could try wearing it.
There's this stuff called M9 from Hollister that does a good job killing odor. Add a few drops to an empty bag. Might be available through your supplies provider but I don't really know how the NHS works.
https://www.amazon.com/m9-Odor-Eliminator-Drops-Pack/dp/B000V8M9UA
I can explain the ass pain from sitting, if it is like me -
They basically field dressed me like a deer - cut around the anal ring, and into the body cavity, removing the end 20 cm of guts and my anus. This when stitched closed left my coccyx [tail bone] unsupported by the wodge of tissues normally found there, so when I sit for a period of time [starts around an hour, depending on posture] which stresses out my tailbone, and causes it to be painful.
I combat this by snipping a lidocaine patch into thirds, and using each third directly over the tailbone to dull out any general pain. For when I am in my car, I use one of theseat cushions that has the cut out for the coccyx.
https://www.amazon.com/LotFancy-Drainable-Pouches-Cut-Fit/dp/B01K1WJSCM/ref=sr_1_5?crid=3W1R6BO4NHG2Y&keywords=ostomy+pouch&qid=1660449564&sprefix=ostomy+pouch%2Caps%2C142&sr=8-5 these are a lifesaver when your looking to cut down on cost they are not great but they will definitely hold you down till you get your supplies hope it helps Stoma Nurse can also help get you supplies
Happy to: Nexcare Absolute Waterproof Tape,... https://www.amazon.ca/dp/B00CPLCDIO?ref=ppx_pop_mob_ap_share
I got confused and thought it was 3m, sorry.
It is very pliable and adheres well to skin (helps if no hair, applied to dry skin). It stays on forever, doesn't seem to degrade in the shower, but comes off really gently and easily when you need to change your appliance. I can't tolerate most adhesive because of my skin so it took a long time to find this and I buy several rolls at a time and stash them in bags I use and so on.
Yep it is an electric hair clipper, you can get one for around $50 off Amazon here is a link https://www.amazon.com/Wahl-Professional-Clipper-Trimmer-8655-200/dp/B0039VED5A?th=1
Many people are happy with a stoma because we lived in constant agonizing pain for years before the doctors finally agreed to remove part of our colon and create an ostomy.
Before my ostomy, I always had to be within range of a bathroom and the pain day to day was so unbareable at one point that getting out of bed was unthinkable.
To be frank, having an ostomy does not make you unattractive and if you want to hide it during sex just use a belly band - This one is for men but you get the idea https://www.amazon.ca/Waist-Trimmer-Belt-Men-Compression/dp/B07GJL2KG1/ref=asc_df_B07GJL2KG1/?tag=googleshopc0c-20&linkCode=df0&hvadid=578833130103&hvpos=&hvnetw=g&hvrand=4203199321070516122&hvpone=&hvptwo=&hvqmt=&hvdev=c&hvdvcmdl=&hvlocint=&hvlocphy=9000714&hvtargid=pla-890771379787&th=1.
Sex typically happens in the dark and no ones gazing at your belly button, if someone is turned off, try another position where they cannot see it.
They most likely gave you clear pouches in the hospital which are in fact disgusting to look at so of course its a turn off. They do come in an opaque version so you cannot see the contents inside. Look up Hollister pouches 18113.
Most micronutrients (vitamins) are absorbed in the jejunum which is the middle part of the small intestine.
Exceptions are niacin (stomach, duodenum), cholecalciferol (duodenum and ileum) and cobalamin (ileum). The ileum which is the last part of the small intestine also contributes to the absorption of Vit C, riboflavin (B2), tocopherol (E) and pyridoxine (B6).
After my ileostomy I have had great results with the Nature's Way Alive multivitamin - it's entirely food based and the absorption seems to be working great for me as my bloodwork keeps coming back exceptional.
https://www.amazon.com/Natures-Way-Multivitamin-Potency-Food-Based/dp/B003UEH7CC
apply appliance - heat appliance (once applied) with hair dryer until it gets so hot it hurts a little - take heat off and press on flange as it start to cool - will cool and adhere better. Repeat untii the flange is pretty secure. Next, use Hypafix - cut in to strips - and place over flange lip to ensure the flange stays down.
My lower flange would come up when I first got my ileostomy - using the above it never comes up. I ensure the entire flange it cover in strips of hypafix. Message me if you need further explanation.
I wrap my stoma in gauze while changing. The gauze catches any leaks and I just toss them in the trash and wrap a fresh one right away. It keeps the output off the skin. I use this particular gauze because is is smooth (not mesh-like) and absorbs well.
One other recommendation for you is to use gauze. It helps wipe away remaining adhesive along with the adhesive removers. I also use gauze in many other ways. It helps wash the skin and then I dry the skin with a new one. I also wrap it around the stoma during a change. That way it catches any output that might happen during the change and I just throw it in the trash bag and wrap it again with a fresh one. (I always have a trash bag tucked in my underwear/pants that catches any output and collects any gauze, wrappers, old bag, etc.)
If you decide to buy some gauze, do not buy the really cheap stuff. That stuff is more like a mesh and is very rough. I specifically use the gauze in this link. It is high quality and smooth. This 2 pack gives you 400 pieces and last for many months. Good luck! https://www.amazon.com/dp/B07DFRJ417?<u>encoding=UTF8&psc=1&ref</u>=cm_sw_r_ud_dp_MM9X4MQQY2ARA6AS8CMFCovidien9024CurityAllPurposeGauzeSponge,4Ply-4X4Inch,200Count(Packof2)
I’m travelling a bit for work from time to time (usually only one or two nights per trip) and I always carry my little ”stash” with me. I use a washbag like THIS one for several reasons. 1) Unlike many other washbags it’s very thin and therefore very handy to bring. 2) It got several small compartments to have easy and organized overview of yourr stuff. 3) It got a hanger, in case you’re stuck having to change bag in some filthy airplane, hotel or train toilet and don’t want to put anything down on the sink.
I normally fill it with: 1) 2-3 of my regular one piece bags. 2) One bag that’s drainable in case I should run out of regular bags and/or get some sort of stomach bug with higher putput. 3) 2-3 small plastic bags to dispose of all material after a bag change. 4) Two clothespins with a string between them to wear around the neck and keep my shirt up while shanging. 5) A bunch of adhesive remover wipes and skin barrier wipes as well as a small stack of non woven swabs to clean shit up - literally. Hahaha.
Yes, I’m organized. LOL
I don't have a pic, and it is the middle of the night and I don't want to wake up my husband right now =)
I normally wear a sling bag - I use a wheelchair and for exceedingly short times and distances crutches. It is surprisingly roomy [I normally leave off the bottle holder]
It has a capacious back zipper pocket, a middle zipper pocket and a front cell phone pocket that is open. Mine is purple like my crutches and wheelchair =)
I take one wafer, one bag, 1 barrier ring, 2 adhesive remover wipes, 2 of the 2 alcohol swab packets, 1 4 oz water pouch, a pair of gloves and a couple squares of paper towel. They all fit with some work into a large ziplok type sandwich bag. I actually preload several boxes of sandwich bags with a base assortment [no water, gloves, swabs or towels] as the 3 month supply shows up. Some I keep in the bedroom, some in the bathroom, some at the other house, and in both backpacks I keep for needing to go somewhere fast =) If I am at home, I can recycle the zippy bags because I don't use them to dispose of the biohazard, I have my own waste disposal set up at home.
And yes I have actually changed a setup lying in bed after a blowout that had *just* started seeping before going critical. I have changed in my momvan, sitting in the exam room at my oncologists office, in various bathrooms =) Since I normally am toothpaste consistency, I can do this - if I were really liquid, I would be more hesitant to change stuff unless I were very certain I could whip everything off, wipe down and slap on a new setup before P'tit Joey decided to make a contribution to the effort.
Thank you for responding! So you do NOT use skin-prep wipes or the powder?
Check out the Philips one blade. It has a very small head that makes it easy to shave close to your stoma. It has a replaceable head when it wears out.
Ninjad =) I also use the convatec 2 parter, my diameter is larger but I know the have smaller out there. I have a box of them that is 13mm - 22 mm that was misdelivered if you want I could send you one to try out?
Obviously get an appt with a WOCN or your surgeon when you can and get their advice for the acute stage, but I really like this for wounds under my wafer:
https://www.amazon.com/Integra-Lifescience-Medihoney-Dressing-Applicator/dp/B07QF2SN7D/
I came out of surgery in December with an ileostomy and mucous fistula.
Reach out to each manuf (Hollister, coloplast, convatec) and get their samples. Even if you don't need them, it's good to have a stash of extra supplies.
Be sure to get adhesive remover. And M9 deodorizer drops.
Pack a go-bag with supplies for 1 or 2 changes. I keep mine in my purse at all times.
Read on Reddit for all the tips on getting the wafer to stick better and to help the skin stay healthy. My fave tip: spray Flonase on the skin before applying a barrier prep.
Mucous fistula -- mine was in the front of my pelvis. I put a menstrual pad there and it helped when it was draining a lot. Since then, it has mostly closed and has minimal discharge.
I like to wear clothes that give some support around the belly. These are great... They're super stretchy, so no pressure on the belly, but they sit snug so feel secure. https://www.amazon.com/dp/B08429LK3W?ref=ppx_pop_mob_ap_share
First do not put a time limit on recovery, if you do and your body is not ready your return to work will not end will. Again do not push your body, you have a lot to learn and depends on the surgery, if they have to cut your abdomen during surgery the recovery will be even longer. That being said. Contact manufacturers like Hollister,coloplaste, convatec etc and get free samples, you will be ahead of the game knowing what products you might want to use. As for the hospital get this
https://www.amazon.com/MUSICOZY-Headphones-Bluetooth-Everything-Christmas/dp/B07TPLZY74
Bluetooth headset and sleep mask. Rooms always seem to have to much light when trying to sleep and noisy ( loud room mate) Music to drown out the noise. Good luck
If you're hiking that much, you're likely carrying a backpack with you.
I'm a mountain biker, and use an osprey raptor backpack, which has a tool roll compartment at the bottom of the pack. I put a lightweight camping trowel in there, along with a couple kleenex travel tissue packets, and a pack of antiseptic wipes to wipe my hands after.
I haven't found dumping the pouch to be an issue. I just dig a hole, kneel down, empty into the hole, put all tissues and wipes in after, and then cover it up. Quick and easy.
My stoma nurse told me to use Domeboro and it works super fast.
Domeboro Medicated Soak Rash Relief (Burow’s Solution), 12 Count (Pack of 1) - Packaging May Vary https://www.amazon.com/dp/B000GCKCCS/ref=cm_sw_r_cp_api_i_H1APKBNCRAK8Y3N7X2B7
You can still find it online but not from a supplier,so you probably will need to spend your own money to get it. I have added Amazon link to one place that has it. There are more.
Silicone Scar Sheets, Strips,... https://www.amazon.com/dp/B08P25CZS3?ref=ppx_pop_mob_ap_share
^For the scars
As for covers, I use these 4Pcs Stretchy Colostomy Bag Cover... https://www.amazon.com/dp/B08PZ16L52?ref=ppx_pop_mob_ap_share
They’re machine washable and fit over the bag nicely. You can find better fitting ones but these do the job nicely.
Get the scar tissue tape asap. Helps out so much with preventing deep permanent scars
I don't know if these are available in Mexico or not, but if you can order from Amazon, these are the ones I use.
nah at least thats not what im using im using a knock off of the stealth belt I got on Etsy amazon has some too just extra support this is one i used early on and it helped a ton cause im on the bigger side and did not like my belly hanging out this gave me extra support https://www.amazon.com/anyother-Colostomy-Patients-Abdominal-Parastomal/dp/B074V69G16/ref=sr\_1\_10?crid=2LQQ5922ZQ6BQ&keywords=ostomy%2Bbelt&qid=1650940071&sprefix=ostomy%2Bbelt%2Caps%2C136&sr=8-10&th=1
So I wanted to try it sideways for years before I decided to try it. I used to wear it vertically but when it started to fill up and I was sitting, it would bend and feel like I needed to empty it even though it was not very full. So, I went for it - I put it on so it his horizontal. It sits on top of my belly button. Some people complain it's too hard to empty that way but I kneel in from the of the toilet to empty so it's no big deal. In public rest rooms, I stand in front of the toilet and crouch - I don't even touch the seat. Requires a layer of TP in toilet to prevent splash ups.
Anyway, by having it sideways, it can fill up more and I don't have to worry about the bending. The problem is, it hangs down - to deal with it, I hold it in place with a belly band. (something like - https://www.amazon.ca/WomenS-Maternity-Seamless-Layering-Extension/dp/B07MGRTM8H/ref=sr_1_3?crid=ABKWKGSDU8DE&keywords=Ingrid+%26+Isabel+Bella+Band&qid=1650672315&sprefix=ingrid+%26+isabel+bella+band+%2Caps%2C86&sr=8-3). The belly band prevents it from sagging and allows you to hold more. It also keeps it in place while sleeping and when you and your significant other want to have some fun.
Good luck.
I had super bad nausea drinking the sugary pre-surgery drink on an empty stomach. (Not sure what’s giving you yours) Are you in a condition where you can get IM zofran? (Metaphorical and literally shot in the arm.) better than the pills, though in the hospital even that didn’t work for me and Phenergan did.
If you’re home, I would get nausea medicine called in by your doctor. It’s the surgeon’s job to care for you before, during, and after surgery, so don’t be shy about asking for an Rx. This is a time when you can get just about anything you want :)
As for home remedies, do you know Tummy Drop? Natural Peppermint Tummydrops (Resealable Bag with at Least 30 Individually Wrapped Drops) https://www.amazon.com/dp/B004BH503U/ref=cm_sw_r_cp_api_i_TP4V9MDAY8HGGCHW28XA?_encoding=UTF8&psc=1 They’re excellent. All the flavors I’ve tried have worked.
Hey! I hear you, my body has changed a lot since surgery too so I needed pretty much a whole new wardrobe. I used to wear a lot of tight clothes and I just don’t really feel comfortable with it now, plus if something is too tight it may cause a leak. I opt for jeans that have stretch to them, I’m not sure where you live but I love Garage brand mom jeans. They fit really nicely and have good stretch for my stoma.
I bought a Stoma Dome a few months ago and that has reeeeally eased my anxiety around clothing too. It allows me to wear pants over my stoma (even if they’re tight) and drastically helps to prevent leaking.
Have you tried something like this? Finishing Touch Flawless Women's Painless Hair Remover , White/Rose Gold https://www.amazon.com/dp/B071KW9GTT/ref=cm_sw_r_cp_api_i_SH0W6FV634RQV45C0RSV They’re meant for women in a cosmetics context. I have had horribly excoriated skin and these just don’t hurt. Could be worth a try
I have no advice, only sympathy. I have special scissors that are curved but also have a rounded tip that I use to deal with this issue. And yeah, the itching sucks. So much.
They are basically these: Coloplast - Ostomy Scissor https://www.amazon.ca/dp/B01DEEMOK2/ref=cm_sw_r_cp_apan_i_N5VWQW4AAEKDCP995B0R
Using a mirror, I'll fold a little piece of shop towel (like heavy paper towel) and tease the hair out so I can get it (stretch it out) then clip with the scissors. It's hard to explain and reading that makes it sound impossible but the mirror is a standing mirror sitting in the bathroom counter. Hope that makes sense.
Whatever I can't get I make sure it's free of debris like from the stoma ring that I use (goes around base of stoma between skin and bag to prevent leaks).
Good luck. I have no idea re the size issue. Sounds like doctor time. :(
We find Clever Crow Family bags on Amazon are just as good as Diaper Genie. here’s the link
Are you eating solid food and taking narcotics? Because that will do it.
The "ideal" ileostomy output, per the medical community, is described as "porridge."
Get yourself some lubricating deodorant :)
https://www.amazon.com/Lubricating-Deodorant-Ostomy-Pouches-12061/dp/B01D50SRF6/
I have a standard pair of medical scissors that has never been an issue getting through carry-on: https://www.amazon.com/Medical-Nursing-Lister-Bandage-Scissors/dp/B00AVQ0J2C/ref=sr\_1\_3?keywords=medical+scissors&qid=1648065361&sr=8-3
My other half has the exact same problem. These have been a GAME CHANGER when used in conjunction with medical adhesive.
Coloplast Corp Brava Elastic Barrier Strips, Coi120700, 1 Pound https://www.amazon.com/dp/B07HGH8DKQ/ref=cm_sw_r_apan_i_Q1ZM2F9TJEPGJGBD8ZG5?_encoding=UTF8&psc=1
I use the Sensura Mio 2 piece, and after 6 years (ish, I don't remember) I don't change my routine too much for the hot weather. A few things I have picked up on though are:
bags don't do great in direct sunlight. I've read about keeping them out of direct sunlight (eg sunbathing) but I've yet to test it myself. I've noticed my bags don't last as long in the summer due to sweat/humidity (I assume), but I don't mind that too much (I normally get 5-7 days out of one bag!)
sometimes my skin gets aggy under the bag due to sweat from hiking/humidity. I got an ostomy wrap which means my bag isn't on my skin/under my clothes, which reduced the redness and the added bonus of now you have your bag OVER your jeans/shorts! I find it more comfortable in general for warmer months, and you don't get shorts/jeans cutting your bag in half.
following on from the last point, there are some cool bikini bottoms that have an ostomy support built in, but there's also some neoprene type belts that work with water and swimming nicely. It's worth enquiring about flange extenders, as it keeps water off of your stoma bag seal, ruining it. Extends the life of your bag too.
Hope this helps! And I hope you get your reversal in time to spend your recovery time in the sunshine. My inbox is always open too. :)
I don't have experience with that in particular... but I swear by Sure Seal Rings. It greatly extends appliance lifespan.
The guard velcros onto the bag. It protects the stoma from being hit, smooshed, or in my case, a cat that jumps on me with claws. I also use it to keep it away from the direct heat of a heating pad.
Here it is on Amazon so you can see what it is: StomaDome
Hope this helps! Ask if you still have questions!
After surgery I used pillow seatbelt cover that I got off Amazon and it helped since the seatbelt would rub my stoma.
Hysterectomy Seatbelt Pillow with Pocket for Cervical Cancer Uterine fibroids Abdominal Surgery Abdomen Healing Protector Organ Transplants C-Section Recovery Car Seat Belt Pad (Sunflower) https://www.amazon.com/dp/B07YW4ZTC6/ref=cm_sw_r_cp_api_glt_i_BZHFZRYYRJ697ZBYX3H1?_encoding=UTF8&psc=1
Also, I read a lot of books/magazines while in the hospital as well as after being home since I was bored. And video games (tho those are expensive).
And candy you can suck on. They help get the bowels moving and my hospital recommended me bringing some with me, plus I ate them at home.
There’s also underwear with pouches from ostomy secrets.
You sound like a great friend! Just being an ear to listen to is a great thing.
This price is a little high but this the adhesive i use when i pull a change. normally have no problems until its time to change anyway!
Sorry: Torbot
TR410EA - Skin Bonding Cement with Brush 4 oz. Can https://www.amazon.com/dp/B00JWSDRNI/ref=cm_sw_r_cp_api_glt_i_JESTMXVYG0YTH5736DST
I put the torbot on first, it’s a thin layer (like when you let glue dry on your palm) Then the barrier extender right under the stoma Then the barrier
OK, I got a hold of the surgeon and he told me that he uses this exact kit: https://www.amazon.com/SurgicalOnline-Dilator-Sounds-Single-Instrument/dp/B07H2LKBKK/ref=sr_1_3?crid=24MLEQ5R8A7F7&keywords=hegar+dilators&qid=1643072317&s=instant-video&sprefix=hegar+dilators%2Cinstant-video%2C225&sr=1-3
​
I ordered the same set and he told me to call him when they come in later this week and he'll walk me through how to use them. If anyone wants to know I can update.
Thanks for all the help, though.
Ugh! I’m so sorry to hear more issues.
I don’t know what to do about making it stick better but when my skin gets weepy and bleeding around the stoma I use domeboro. You soak a towel in the mix and put around the stoma and after 15 minutes or so it makes the skin soooooooo much better.
Domeboro Medicated Soak Rash Relief (Burow’s Solution) 12 Powder Packets https://www.amazon.com/dp/B000GCKCCS/ref=cm_sw_r_cp_api_glt_i_NCQ1YYA0A77QVCH55PFT?_encoding=UTF8&psc=1
I found a couple types of waterproof tape, as well as these large waterproof Band-Aids. I tried the band aid first and it's holding well. Fingers crossed.
Band-Aid Brand Water Block Flex Large Adhesive Pads, 100% Waterproof Bandage Pads for First-Aid Wound Care of Minor Cuts, Scrapes & Wounds, Ultra-Flexible Design, Sterile, Large, 6 ct https://www.amazon.com/dp/B08R5FV7C4/ref=cm_sw_r_cp_api_glt_i_5JZEKJ4SRH6HBK9QPHD3
I have this problem, especially at night. Someone suggested these. I’ve not tried them yet.
The vents on the bags stop working as soon as they get output on them, so more of a gimmick I feel (unless you stand bolt upright for 24 hours a day)
Your mom is definitely overdoing it. I would never put something inside the stoma. I use 4x4 gauze to clean my stoma. I use a mug of warm water and wet some of the gauze and use some dry. A package of 200 lasts me many months. Here is what I use. https://www.amazon.com/gp/product/B07DFRJ417/ref=ppx_yo_dt_b_asin_title_o04_s00?ie=UTF8&psc=1 The whole process takes about 10 minutes.
I also highly recommend that you arrange for an Ostomy Nurse to visit your mom. If you talk to their insurance they should be able tell you a company that will send an Ostomy Nurse to your mom’s apartment and go through a change with her. They are experts and will give your mom the best advise about what she is doing right and wrong. Hopefully your mom will listen to a medical expert. Good luck.
I've had my Ostomy for 3 weeks and haven't had one filter work yet. I feel ya. I too am ballooned every time I wake up. I bought these vents for the bags that I use after making a mess of venting from the bottom in bed once. I love these things. Just hate that I have to buy them though... I too wish the bag vents worked.
Osto-EZ-Vent https://www.amazon.com/dp/B005PFNUK2/ref=cm_sw_r_apan_glt_i_JMJJ10JBB206CEB03F01?_encoding=UTF8&psc=1
Thank you so much! I’m a Type A kind of person and I stress out a lot so I tried to prepare as much as possible ahead of time. I really appreciate the reassurance. I think the flights are like 4 hours and 40 minutes there and 5 hours and 40 minutes back which isn’t too bad!
And I found the stoma dome on Amazon! Let me link it here - Stoma Dome
It comes with one dome with the rough velcro on it and then it has 50 soft velcro things you attach to your bag so you can take the dome on and off as needed. I go like 3-4 days between bag changes so that’s like 150 days of roller coaster fun right there lol.
It’s basically an athletic cup but for your stoma which is cool! Makes me feel much better about lap bars and stuff.
Thank you again for your kind words and well wishes! It’s been a hell of a year (got my ostomy in June, Barbie Butt surgery in November) so I’m feeling very fortunate and blessed to have the chance to go on a trip :)
More like this: Sensura Mio Flip Maxi 1-Piece Convex Drainable Pouch Transparent Full-Circle Filter Cut-to-Fit (Box of 10) https://www.amazon.com/dp/B07RDF6WR7/ref=cm_sw_r_cp_api_glt_fabc_E0808QPXKXPQV0AV6XV1
The convex flip has a different design that IMO makes it adhere better and deal with rounder stomachs / abdomens. Bag choice may depend on stoma placement too - mine is rather high comparatively - but if your dad’s stoma is in a place that is more rounded the convex flip can help tremendously.
A conventional convex may help if the stomach is relatively flat around the stoma but there’s some rounding around the stoma (ie herniation).
Also not sure if he’s used to a one- or two-piece but either way something is wrong if you’re changing frequently ( multiple times a day). The exception of course would be two piecers that remove and toss closed bags multiple times a day. Still the wafer should stay intact for 3-4 days at a minimum I’d hope.
I can usually make it at least 3 days and usually changes are driven more by what I’d call “odor creep” - the bag getting dirty / stinky - vs an outright leak (ie seal breakage or separation).
In any case I would work on ideal bag / wafer choice for him as frequent bag / wafer changes can certainly be the most maddening and frustrating part of having an ostomy. The more regular and normal our daily lives can be while understanding either draining or bag tossing will of course be our norm the happier we’ll be long term.