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I have the SAME PROBLEM!! Squalene also caused me itching and breakouts !! I recommend sticking to a gel instead of a lotion (or something without all the oils)
Ultra Moisturizing Hydrating Gel, XL 2 oz. Bottle - Natural Face Moisturizer with Hyaluronic Acid, Aloe Vera, and Plant Stem Cells Hydrates, Smooths, Firms, and Plumps All Skin Types by Eva Naturals ingredients- Aqua (Deionized Water), Aloe Barbadensis Leaf Juice (Organic Aloe), Glycerin (Kosher, Vegetable), Xanthan Gum, Panthenol (Vitamin B5), Dimethyl Sulfone (Msm), Globularia Cordifolia Callus Culture Extract (Plant Stem Cells), Sclerotium Gum, Hydrolyzed Caesalpinia Spinosa Gum (Tara), Caesalpinia Spinosa Gum (Tara), Caprylic/Capric Triglyceride, Sodium Benzoate (Preservative), Potassium Sorbate (Preservative), FD&C Blue No. 1
Ingredients bad for Acne according to my google research lol (that I have also noticed are in a lot of PD products ugh) •dimethicone, lanolin, Almond Oil, Shea Butter, Lauric Acid, Stearic Acid
It works well! I started with using absolutely nothing but water for a month, then added this and plain squalene oil from the ordinary as moisturizer. https://www.amazon.com/dp/B00MWB0ZGE/ref=cm_sw_r_cp_api_i_JEEHEVY930BN2BTCZKKR?_encoding=UTF8&psc=1
I'm a newbie to PD but what I quickly found works very well for me is Dermacalm [SOS Therapy] by Amélie Monnier! It immediately soothes (will burn if your PD is already burning but will eventually soothe), flakes almost disappear, and it really helps to clear the breakouts - plus it's a 5oz bottle! I really pack in on like a mask every night to keep everything at bay, tap it on in the morning and reapply in the afternoon. Just know that when you put a thick layer on and it dries, it looks like white dry skin but that's just the product, everything underneath smooths out! Hope it works for more folks :)
I would say it's pretty common! It has a fragrance in it (basalm) which can be very irritating. It also has petroleum which is oil based and can really irritate PD (PD doesn't like oils.)
I had a lot of luck with this. It has fragrance but it's much less irritating.
I'll sometimes just put it on around my nose in the morning with a little powder overtop as it does make your skin rather white. I find it helps flare ups in general
This is what I've been using. :)
Probably not exactly what you're looking for but this has been a game changer for me. It's 21% zinc so it's very calming and it's oil free and good for sensitive skin. I wear it like a mask to sleep and apply it a few times throughout the day. My skin is actually starting to clear up. When I feel it starting to itch and flush I put this on and it calms it right down. It's the only lotion my skin will tolerate right now.
I have not used that treatment plan. But I have fought off several bouts of PD with the following:
Completely striped down skincare routine- gentle face wash No topicals other than Rx Azelaic Acid and Sebamed Clear aloe for moisturizer
Other products that have worked: aloe gel with colloidal silver (antimicrobial properties) and this moisturizer
La Roche-Posay Toleriane Sensitive Fluide Protective Moisturizer, Lightweight Oil-Free Face Moisturizer, For Sensitive Skin https://www.amazon.com/dp/B07JL7DTZ4/ref=cm_sw_r_cp_api_glt_i_G5997YR4NNCFNCD1PBYZ?_encoding=UTF8&psc=1
Sebamed Clear
Aloe with Colloidal Silver
La Roche-Posay Toleriane Sensitive Fluide Protective Moisturizer, Lightweight Oil-Free Face Moisturizer, For Sensitive Skin https://www.amazon.com/dp/B07JL7DTZ4/ref=cm_sw_r_cp_api_glt_i_G5997YR4NNCFNCD1PBYZ?_encoding=UTF8&psc=1
Nothing else seems to work
I highly recommend a hypochlorous acid spray such as this one
The most gentle moisturizer ive found that works ok with PD is the Cerave Baby Moisturizing Lotion. Not the cerave baby cream, but specifically the baby lotion.
https://www.amazon.com/CeraVe-Essential-Ceramides-Protecting-Maintaining/dp/B00JF3RYPM
here is the ingredients
"Active Ingredient: DIMETHICONE 1% (SKIN PROTECTANT)
Inactive Ingredients: WATER, CETEARYL ALCOHOL, CAPRYLIC/CAPRIC TRIGLYCERIDE, CETYL ALCOHOL, PHENOXYETHANOL, NIACINAMIDE, ALLANTOIN, POTASSIUM PHOSPHATE, CERAMIDE NP, CERAMIDE AP, CERAMIDE EOP, CARBOMER, ZINC CITRATE, BEHENTRIMONIUM METHOSULFATE, SODIUM LAUROYL LACTYLATE, SODIUM PCA, ARGININE PCA, SODIUM HYALURONATE, CHOLESTEROL, DIPOTASSIUM PHOSPHATE, DISODIUM EDTA, TOCOPHERYL ACETATE, TOCOPHEROL, LAURIC ACID, PHYTOSPHINGOSINE, XANTHUM GUM, POLYGLYCERYL-3 DIISOSTEARATE, POLYSORBATE 60, ETHYLHEXYLGLYCERIN"
You can order some off of Amazon! Noble Formula Soap
Let it sit on your skin for a minute before rinsing. I’m using once a day and have seen a huuuge improvement in my skin. Good luck!
Hypochlorus acid spray has made a big difference for me. Here's one
I'm Indo-Caribbean and darker skinned and the only sunscreen that my skin has been able to tolerate is the Roche-Posay Toleriane Double Repair Moisturizer with SPF. It is the only sunscreen that hasn't stung or irritated my skin. My PD was steroid-induced so I also haven't had a flare up since stopping my steroid cream but my skin is very sensitive now and the only things that seem to work is Cetephil and the Toleriane line (a few items, mainly the moisturizers).
Yes! I’ve been trying out silk masks and I’ve really liked them, I’ve also been using a mask cage to keep it up & off my skin as much as possible. I’ve been using this one because it seems to have to least contact, compared to the silicone ones: https://www.amazon.com/4ocean-Support-Frame-Large-4-Pack/dp/B08Z5VH87N?ref_=ast_sto_dp
So sorry I didn’t see your comment! Spectro Jel Facial Cleanser for Blemish Prone Skin, Fragrance Free - 20.4 Fl Oz - 3 Pack x 200 mL / 6.8 FL Oz Each https://www.amazon.com/dp/B07QFYHN8D/ref=cm_sw_r_cp_api_glt_fabc_0JZB3DPPVMKW9CZW2EFE It’s the one for blemish prone skin. It doesn’t lather and it’s super gentle!
No it’s the one specifically for dermatitis. This is the link for it but I believe it’s sold in the ur only unfortunately I think.. I’m not sure though! E45 Dermatitis Cream for Inflammation and Redness – 50ml https://www.amazon.co.uk/dp/B07X1QJ4XJ/ref=cm_sw_r_cp_api_fabc_TZ84PQY3KWV47RN1X04W
I live in Canada. Is this the same cream you used?
And device is here Spa Sciences CLARO Clinically Proven Blue & Red LED Acne Treatment Light Therapy System-FDA Cleared-Rechargeable- Professional Home Acne Healing/Clearing Treatment | 100% UV/Chem Free-Safe | Painless https://www.amazon.com/dp/B07MTQQ7Z1/ref=cm_sw_r_cp_api_fabc_kSCXFb51GBHTA?_encoding=UTF8&psc=1
Sure thing. Spray is here BRIOTECH Topical Skin Spray - All Natural Pure HOCl Hypochlorous Solution - Soothing Saline Mist - Piercing Aftercare, After Sun, Post Procedure Relief - 4 oz. Size https://www.amazon.com/dp/B00YZDHMWW/ref=cm_sw_r_cp_api_fabc_FRCXFb6F3G3XH?_encoding=UTF8&psc=1
I’ve been using a neutrogena zinc face sunscreen which is very gentle and doesn’t burn my eyes. I haven’t had a flare up with it. One complaint ppl have about it is that it’s very thick and white (common for zinc sunscreen) but I have very light skin so it rubs in just fine. Make sure to dab it around face THEN rub which helps it from being too white and goopy.
Neutrogena Sheer Zinc Oxide Dry-Touch Mineral Face Sunscreen Lotion with Broad Spectrum SPF 50, Oil-Free, Non-Comedogenic & Non-Greasy Zinc Oxide Facial Sunscreen, Hypoallergenic, 2 fl. oz https://www.amazon.com/dp/B01MDOA0V4/ref=cm_sw_r_cp_api_i_-HSmFb3T81DJ1
This one on the cold side- Frizzlife Under Sink Water Filter... https://www.amazon.com/dp/B07Y1D6YFQ?ref=ppx_pop_mob_ap_share This one on the hot side- AquaHomeGroup 15 Stage Shower... https://www.amazon.com/dp/B01M62IRCV?ref=ppx_pop_mob_ap_share
This is a German link and I don't know if it's available everywhere. I think any other good sulfur soap will work too
The name of what I'm using: the English soap company - 10% sulfur soap
Aquaphor Healing Ointment! I have like 50 mini-tubs of it around my house in each room, in my purse, in my car, etc. I'm obsessed.
Got the little mini tubs at the drug store and I refill them from this big jar.
I know it might be tough given the quarantine but have you tried contacting a dermatologist?
In the meantime, I saw on this sub someone post that to try Exederm. It helps me when I start having flair ups but mine isn’t as severe as yours.
I’m not sure if it will work for you but hopefully it can provide some relief!
Here’s a link to it on amazon:
My lips looked VERY similar to yours for about 3 years though not nearly as bad. Both corners of my mouth looked like they were perpetually recovering from cold sores. My lips were chronically chapped. NOTHING would soothe them, and I tried it ALL. Vegan chapstick helped with the discomfort but did nothing towards healing. I've been following this sub for months and FINALLY found my cure!
It's a cream called Demodex, and you can buy a small jar for $50 on Amazon. Expensive but soooo worth it. Demodex, the cream I'm referring to, are also the name for a type of skin mite. The Demodex cream is meant to be a treatment for the mites.
Are mites and PD related? Does one cause the other? I have no clue. I feel 100% confident that I had/have PD (as confirmed by my Derm for other symptoms I have not mentioned), but none of my PD treatment helped my lips.
I'm no dermatologist, and I don't know if this will work for you... But I feel your pain, and $50 is a lot to spend on a cream especially after what you've probably already spent. I just know that my lips looked very similar, and I hate to see what you're going through. I hope you find something that helps. Best of luck.
Hi! Where do you purchase the Lyonsleaf cream? I can’t find it on amazon but I’m wondering if this is similar enough?
Boiron Calendula, 2.5 Ounce, Topical First Aid Cream https://www.amazon.com/dp/B000WRZOW0/ref=cm_sw_r_cp_api_i_mgUFEbEDZZMB3
Very interesting. I'm doing my own research now, and from the jump, it looks like Ovante Demodex Cream is the ticket- just as you suggested. I just ordered the "plus" cream from Amazon for $50. I'm normally a little leery of ordering skincare from random online vendors, but this is sold by Ovante, the maker. Walmart has it cheaper, but their skincare is sketch- too many untrustworthy, shady vendors. I'm interested in the shampoo, too, but I'll wait and see how the cream does.
The alternative to the Ovante Demodex Cream appears to be prescription 1% ivermectin cream that some say is super expensive--one said it was $100 for a 1 month supply AFTER insurance.
Here is a link to the cream I purchased off Amazon if anyone is curious.
https://www.amazon.com/dp/B00RDD0VOC/ref=cm_sw_r_sms_apa_i_5ykwEbRSFQY8W