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I just had the surgery last week, so I'm not sure if it worked yet. I've had vulvodynia my entire life, have never been able to have penetrative sex, and have been in treatment over 4 years. I think I've just become used to it and have been to two therapists to try and tackle my feelings about it.
I can understand having anxiety about it. I was especially hyper-fixated on it after my diagnosis, when I started treatment. Your doctors are just wrong. There is a very well-established, research-proven connection between birth control that contains estrogen and vulvodynia! Most doctors know nothing useful about vulvodynia. The good news is that your pain is gone, at least for now!
You may find the book When Sex Hurts helpful.
I am not sure this will help, but I think it might so I’m throwing it out there!
I got two of these types of things (from somewhere else online - can’t find the exact ones) to help me lift face masks from lying directly on my mouth and nose (I have TMJ and clench like crazy when wearing a mask and was trying to figure out ways to stop doing that and causing myself pain).
Anyway, I am wondering if you could insert one of these in pants and it would keep fabric off of the vulva but not be super noticeable as they aren’t very large. I would try it and report back, but the way my vulvodynia affects me, that is not one of the problems I have.
I think it can be really hard to say because everything is connected. Sometimes, nerve pain can be actually caused by muscular tightness. The muscles can constrict blood flow to the region and cause a buildup of lactic acid, which causes pain. Also, sometimes the nerve pain can be desensitized by PT.
I think it's worth a shot, at least for a short period of time. The PT should be able to give recommendations. After I made some initial improvement in my muscle tightness, my PT knew I was slowing down with any improvements and referred me to a specialty gynecologist/surgeon, who helped me eventually determine that I should get a vestibulectomy.
I would recommend the books When Sex Hurts and Healing Painful Sex!
https://www.amazon.com/Passion-Lubes-Natural-Water-Based-Lubricant/dp/B006JR1N72/ref=sr_1_2?dchild=1&keywords=passion+lube&qid=1608083445&s=hpc&sr=1-2 this is the only lube i dont have a reaction too
I recommend this pillow.
The vestibulectomy seems to be most successful for people who only have provoked pain (pain only upon penetration), and especially for people with primary pain (have always had it). I fit the profile of "congenital neuroproliferative vestibulodynia," and some doctors consider vestibulectomy to be an appropriate first-line treatment for that profile. This pain algorithm from Dr. Andrew Goldstein and the book When Sex Hurts can provide some insight.
I tried the following things and had no improvement in my pain, so my doctor agreed to the surgery: went to pelvic floor physical therapy for several months at 2 different times, did dilators daily, did daily diaphragmatic breathing and yoga, saw a sex therapist for a few months, tried gabapentin for several months, tried vaginal Valium for several months, estrogen/lidocaine cream daily for several months, and went off the pill. I could try vaginal Botox, other types of injections, nortriptyline, or Cymbalta, but I just decided to go for surgery.
Hope this helps!
No, surgery is only appropriate if you have neuroproliferative vestibulodynia. LOTS of people have huge success with PT! Or other treatments.
I highly recommend the book When Sex Hurts. Explains everything very well!
Hey I'm in the UK too! Hello!
I got one of these for sitting at my desk https://www.amazon.co.uk/gp/product/B01EM8P456/
I wear massive white cotton M&S briefs when I need to but I don't wear any if I can help it.
I stopped using loo roll as I felt it was irritating me so I use a peri wash bottle to rinse with cool water and dab gently to dry with a soft cotton cloth.
When my pain flares up I get a lot of burning so I keep a cool pack in the fridge to put on my vulva for a bit of relief.
Sitz bathing with Aveeno oatmeal bath is so soothing and relieves that vulvar skin burning and soreness for me.
You insert these (vitamin E suppositories) but they're so amazing and soothing. Can pop them in the fridge beforehand for even more relief!! https://www.amazon.com/Carlson-Key-Suppositories-Vitamin-Lubricates/dp/B001LF39IS
You can get ‘hose’ style bidets like this that attach to the pipe. Or you can use a pretty mug or peri-bottle. I prefer the latter ones to choose warmer water temp :)
I saw Dr. Andrew Goldstein comment on a Facebook group that vestibulectomies also work well for folks with unprovoked vestibulodynia. That doesn't answer your full question and I don't have any personal experience to share, but I found that tidbit pretty interesting! They have a new version of the book "When Sex Hurts" coming out and I'm hoping they'll talk about it there.
This is the one I have:
https://www.amazon.com/OPTP-Aligned-Life-Body-Sphere/dp/B07LFNTLP6/
And this is the video I followed:
https://www.youtube.com/watch?v=nwwSMzMHa7g
I can't remember on top of my head what's included in the instructions so make sure you read the inflating instructions to not over fill it! The ball should not be fully inflated in order to allow some softness to work with your body.
Me too! They have them on Amazon for about £50. It's really not a big request.
I also have one of these for my desk chair but I bought it myself. If anyone asks I just say it's for my back. It's not total relief but it does help take the pressure off my poor vulva so it's more bearable https://www.amazon.co.uk/gp/product/B01EM8P456/ref=ppx\_yo\_dt\_b\_search\_asin\_title?ie=UTF8&psc=1
Oh no :( im so sorry to hear this. Steroids always give me a flare too! They dont work at all for me! Maybe lidocaine cream can make life easier for you and relieve pain?
Ebanel 5% Lidocaine Topical... https://www.amazon.com/dp/B019D7MQMK?ref=ppx_pop_mob_ap_share
My physical therapist recommends this one and I’ve used it. I got it from amazon prime overnight. It stings when it goes on but 5 minutes later you’re numb!
I tried the CMT Medical Dilator linked above by throwaway112505 which has a 43mm / 1.69 in diameter (which is a 5.3 in circumference) and I didn't like the shape of it (the tip was not gradual enough for me)
But now I'm looking at this set and the largest size 7 has a diameter of 1.625" which is a circumference of 5.1". I bet you could start there and then get a dildo of a similar size of 1.75" diameter to go up one size from this largest size and make the transition from there.
Ah okay I see! I just take one supplement a day I can send you a link of which one I use! It really helps dryness!
Check out this algorithm, it might be helpful!
http://vulvodynia.com/assets/files/19-Figure-1-ALGORITHM.pdf
Also the book When Sex Hurts.
Boundaries are super hard to establish and enforce, but it's for your benefit (obviously) and their benefit, since you won't be able to maintain a good relationship with them if they are being offensive to you.
Book recommendation: Boundaries
If you do want to maintain a relationship with these family members, you can try establishing a boundary like this: "It is really upsetting to me when you pester me about being single. Right now, I am single by choice, because I am focused on improving my overall wellness (or health problems). Please don't bother me about this again." And if they do bother you about it again, say something like "I already asked you to stop bothering me about being single. If you can't respect that, I won't be able to be around you. It's really important/upsetting to me."
I use simple shower gel, the clear one which contains no soap, parfum and is pH balanced, in the hopes it doesn’t affect me if it runs down. My doctor also prescribed me a soap substitute which I use if I feel like it under the brand name Ovelle, which she actually prescribed as a vulva moisturiser so it doesn’t matter if some runs down, but it’s actually good at not running because it’s a cream. I’ve also found not washing my tummy with anything bar water helps reduce the risk of soap/shower gel running down, same with the top of the thighs. :)
I have chronic UTIs, and One With Nature's fragrance-free Feminine Cleansing Bar -- sold as a three-pack on Amazon -- cleans my vulva thoroughly but gently, without causing further irritation. (This product is also sold by the bar at Whole Foods and on Amazon as the Down There Intimate Cleansing Bar.)
I've used these in the past and they were good, but I'm pretty sure there are lots of other options on Amazon that might be good too. The ones I linked to are slightly pricey (I think it's ~$12 for 36 of them) so definitely shop around.
For what it's worth, though- there's no harm in trying 100% cotton pads, but I used all different mainstream brands of pads without it having any noticeable impact on my pain (better or worse). It'll only make a difference if there's something in the pad that your skin is reacting to- which could definitely be the case, but isn't the case for everyone.
Good luck! I hope you find relief!
L’Oreal Paris 1.5% Pure Hyaluronic Acid Serum for Face with Vitamin C from Revitalift Derm Intensives for Dewy Looking Skin, Hydrate, Moisturize, Plump Skin, Reduce Wrinkles, Anti Aging Serum, 1 Oz https://www.amazon.com/dp/B07GVCVYB9/ref=cm_sw_r_apan_i_EDPT6TDW5D7CFMFF8SSF
L’Oreal Paris 1.5% Pure Hyaluronic Acid Serum for Face with Vitamin C from Revitalift Derm Intensives for Dewy Looking Skin, Hydrate, Moisturize, Plump Skin, Reduce Wrinkles, Anti Aging Serum, 1 Oz https://www.amazon.com/dp/B07GVCVYB9/ref=cm_sw_r_apan_i_EDPT6TDW5D7CFMFF8SSF
The dilators worked for me, my primary care refused to refer me. My gynecologist said to try dilating first and if that didn’t help then he would’ve referred me
Yes, birth control pills that contain estrogen, especially low-dose estrogen, are known to cause hormonally mediated vestibulodynia in some people.
Combination birth control contains synthetic hormones similar to estrogen and progesterone. When you take it, your body assumes it's getting enough of both hormones, so it signals your ovaries to suppress their own production of each. Since you're not producing your own natural hormones, the hormone receptors in the vaginal/vulvar area also shut down. The end result is less estrogen available to cells. If you take low-dose estrogen birth control, that amount is even smaller.
In addition, combination birth control cause the liver to increase production of sex hormone binding globulin (SHBG). This protein attaches itself to testosterone in the blood, rendering the testosterone inactive. This lowers your amount of "free" testosterone. Normal levels of free testosterone are required for a healthy vestibule; low levels can make the mucosa thin and painful.
The best treatment is to go off the birth control and use 0.03% estradiol / 0.01% testosterone cream daily for 6 months. Lots of people see improvement with this treatment. It can take to 2-6 months to see improvement.
Sources: When Sex Hurts, Chapter 6 (https://www.amazon.com/When-Sex-Hurts-Womans-Banishing/dp/0738213985/)
The Treatment of Vestibulodynia with Topical Estradiol and Testosterone (http://vulvodynia.com/assets/files/treatment_of_vestibulodynia_with_estradiol_and_testosterone.pdf)
I was going to say sounds like IC. I added d-mannose once a day every day and then one scoop after sex and it seems to really help me. No more vulvodynia symptoms from it either in terms of sex.
Hi, I’m so sorry you’re dealing with this! The most renowned Pelvic Floor physical therapist has a book with stretches and photographs of how to do the poses, along with breathing techniques and whatnot to help relax the pelvic floor. It’s technically a book about r/interstitialcystitis but the stretches sound like what you’re looking for! You could also get a pelvic wand which you could use yourself and helps unlock the internal points where the muscles are pinching; my PT says that it’s a good way for me to ease back into the idea of penetrative sex, slowly slowly slowly!
The Interstitial Cystitis Solution: A Holistic Plan for Healing Painful Symptoms, Resolving Bladder and Pelvic Floor Dysfunction, and Taking Back Your Life https://www.amazon.com/dp/1592337376/ref=cm_sw_r_cp_api_glt_i_NWHW1HFSQD2FJFCYGMY6
Hi, I'm so sorry you are going through this. I also have adeno and have always had pain with penetration, since first tampon use at 13. if you have always had pain (prior to taking any birth control), then it sounds like you may have congenital neuroproliferative vestibulodynia. That's what I have. Vestibulectomy is considered first-line treatment for this situation, but an experienced vulvodynia specialist will be able to confirm this or provide other options. If you aren't sure if your pain came before or after birth control, then you may need to explore hormonally mediated vestibulodynia treatment first.
I had a partial vestibulectomy last year with a local vulvodynia specialist. It was partially helpful, but really I need a full vestibulectomy. I had my full vestibulectomy with a different surgeon nine days ago. All appointments with these doctors and both surgeries were covered by insurance with no issue. The surgeries cost less than $1000 each. Dr. Irwin Goldstein and Dr. Andrew Goldstein are some of the most well-known doctors who do vestibulectomies, but there are plenty of others who do take insurance and may be closer to you. I did have to travel 4 hours to my second surgeon but feel that it was worth it. Feel free to share (feel free to DM me if you want) where you are located, and I can let you know the doctors I know in your area.
The vestibulodynia / vestibulectomy Facebook group has been my biggest resource!
Highly recommend the book When Sex Hurts.
Happy to answer questions and chat more!
Haha yeah! I'll even mail them the pictures of the pathology showing that I have more nerves than the average woman! I'm on a vendetta... but for other people not to go through the same experience! The first doctor I ever saw was at this University Health clinic at age 19 and they told me that I was in pain because I was a virgin lol. So dumb. Also it completely blew my mind at how simple the test was to test for neuroproliferative vestibulodynia was with nerve numbing cream and if more places did it, they could at least diagnose it and then send that patient to someone who could help them!
Here's the book on Amazon you can get a little sneak peak. It has a ton of info on several different conditions and how to test and treat them.
<3 Yes you totally can! I'm going to try to post some updates on /r/vestibulodynia as well. Good luck with your journey and please reach out if I can help you at all!
I love the Calvin Klein microfiber undies. They're a little pricey to me so I buy them on sale at my local department store. But I know moderately priced means different things to different people.
While this could be vulvodynia to me it also sounds like it could be an allergy. Is it possible there’s something on him that’s not on you? Perhaps a different laundry soap or fabric softener, or a lotion or something? If not that you could always test if it’s him by trying a dildo that’s the same size. If you don’t have any pain or swelling or anything after trying out the dildo then my next guess would be a semen allergy. Unfortunately I don’t know a whole lot about it, so if you’ve narrowed it down to that you should probably speak with an allergy doctor. A Google search found this article that might help you out: https://www.webmd.com/allergies/news/20061113/semen-allergies-helped-by-frequent-sex
Haven't tried them myself, but there are some different models of bike seats that look like you put more of the pressure on your butt instead of your crotch!
Have you tried a pelvic wand? If your issue is nerve pain or tight muscles, this can help.
Intimate Rose Pelvic Wand Trigger Point & Tender Point Release for Pelvic Floor Muscles - Men & Women - Pelvic Physical Therapy Use https://www.amazon.com/dp/B07HR3GL6V/ref=cm_sw_r_cp_api_glt_fabc_KG1728GKGT54ZAH5EGPS
Your symptoms sound so much like mine :( I’m really going to stress that you consider pelvic floor therapy since our origin stories are so similar. I know it’s an uncomfortable topic but like I mentioned before, the more you share the more likely you will find and get the help you need. Masturbation can feel a bit taboo to talk about but it’s a natural activity plenty of people partake in and there’s no shame in it! MONISTAT Care Maximum Strength... https://www.amazon.com/dp/B076SJCTV8?ref=ppx_pop_mob_ap_share The item I attached helped numb my clitoris before I got help and made my days more manageable. I hope something I shared with you has been helpful! You are not alone and you can message me if you ever want to talk!
Hello! I don't have personal experience with this (I have a different cause of my vestibulodynia), but here's what the research says, courtesy of When Sex Hurts, Chapter 6 (https://www.amazon.com/When-Sex-Hurts-Womans-Banishing/dp/0738213985/):
"Doctors sometimes think that applying hormonal creams to the vulvar area will solve the problem, but they won't if you're still taking the medications. Remember: Your body has shut down estrogen and testosterone receptors in those areas [due to the combination birth control pill]. The hormones from the cream simply can't get into the cells to do their work."
The book also says that it "typically takes four to six months to recover completely. We recommend... [being] treated for hormonally mediated vestibulodynia for at least three months before considering other treatments."
I can totally understand your concern. I went off the pill for 6 months and used hormone creams, and my periods were horrendous. If you do end up having hormonally mediated vestibulodynia, progestin-only birth control (progestin-only pills, hormonal IUDs, Nexplanon) and acne medications are your friends.
Are you certain you didn't have vestibulodynia before you started the pill before age 16? Is it possible that you have congenital vestibulodynia? That's what I have.
Another helpful resource: The Treatment of Vestibulodynia with Topical Estradiol and Testosterone (http://vulvodynia.com/assets/files/treatment_of_vestibulodynia_with_estradiol_and_testosterone.pdf)
Combination birth control can cause hormonally associated vestibulodynia in some people. The pills (or other birth control with estrogen) contains synthetic hormones similar to estrogen and progesterone. When you take the pill, your body assumes it's getting enough of both hormones, so it signals your ovaries to suppress their own production of each. Since you're not producing your own natural hormones, the hormone receptors in the vaginal/vulvar area also shut down. The end result is less estrogen available to cells. If you take low-dose estrogen pills, that amount is even smaller.
In addition, combination birth control cause the liver to increase production of sex hormone binding globulin (SHBG). This protein attaches itself to testosterone in the blood, rendering the testosterone inactive. This lowers your amount of "free" testosterone. Normal levels of free testosterone are required for a healthy vestibule; low levels can make the mucosa thin and painful.
The best treatment is to go off the pill and use 0.03% estradiol / 0.01% testosterone cream daily for 6 months. Lots of people see improvement with this treatment. It can take to 2-6 months to see improvement. I would stop having sex for now, if it's painful, and let the area heal.
Sources: When Sex Hurts, Chapter 6 (https://www.amazon.com/When-Sex-Hurts-Womans-Banishing/dp/0738213985/)
The Treatment of Vestibulodynia with Topical Estradiol and Testosterone (http://vulvodynia.com/assets/files/treatment_of_vestibulodynia_with_estradiol_and_testosterone.pdf)
Combination birth control can cause hormonally associated vestibulodynia in some people. The pills (or other birth control with estrogen) contains synthetic hormones similar to estrogen and progesterone. When you take the pill, your body assumes it's getting enough of both hormones, so it signals your ovaries to suppress their own production of each. Since you're not producing your own natural hormones, the hormone receptors in the vaginal/vulvar area also shut down. The end result is less estrogen available to cells. If you take low-dose estrogen pills, that amount is even smaller.
In addition, combination birth control cause the liver to increase production of sex hormone binding globulin (SHBG). This protein attaches itself to testosterone in the blood, rendering the testosterone inactive. This lowers your amount of "free" testosterone. Normal levels of free testosterone are required for a healthy vestibule; low levels can make the mucosa thin and painful.
The best treatment is to go off the pill and use 0.03% estradiol / 0.01% testosterone cream daily for 6 months. It can take to 2-6 months to see improvement.
Sources: When Sex Hurts, Chapter 6 (https://www.amazon.com/When-Sex-Hurts-Womans-Banishing/dp/0738213985/)
The Treatment of Vestibulodynia with Topical Estradiol and Testosterone (http://vulvodynia.com/assets/files/treatment_of_vestibulodynia_with_estradiol_and_testosterone.pdf)
A urologist or urogynecologist should be able to help you with getting tested. I also tried to get tested at my gynecologist’s office and they had no idea what I was talking about. Something that helps kick my itch to the curb is Monistat Maximum Strength Instant Itch Relief Spray. It does slightly burn for a few seconds after you spray it but it goes away. It’s not a cure but will give you some relief! https://www.amazon.com/dp/B076SJCTV8?ref=ppx_pop_mob_ap_share
This reaction is common for lidocaine/estrogen creams, but it's usually due to the inactive ingredients in the cream. I would get a compounded cream with lidocaine and estrogen in a very simple base. Based on current research, the proper treatment for hormonally associated vestibulodynia caused by low dose birth control is to use an estrogen/testosterone cream daily for 6 months. It also is not effective unless you get off the birth control method (progestin-only methods are typically "safe" for vulvodynia). Here is the full explanation:
Combination birth control can cause hormonally associated vestibulodynia in some people. The pills (or other birth control with estrogen) contains synthetic hormones similar to estrogen and progesterone. When you take the pill, your body assumes it's getting enough of both hormones, so it signals your ovaries to suppress their own production of each. Since you're not producing your own natural hormones, the hormone receptors in the vaginal/vulvar area also shut down. The end result is less estrogen available to cells. If you take low-dose estrogen pills, that amount is even smaller.
In addition, combination birth control cause the liver to increase production of sex hormone binding globulin (SHBG). This protein attaches itself to testosterone in the blood, rendering the testosterone inactive. This lowers your amount of "free" testosterone. Normal levels of free testosterone are required for a healthy vestibule; low levels can make the mucosa thin and painful.
The best treatment is to go off the pill and use 0.03% estradiol / 0.01% testosterone cream daily for 6 months. It can take to 2-6 months to see improvement.
Sources: When Sex Hurts, Chapter 6 (https://www.amazon.com/When-Sex-Hurts-Womans-Banishing/dp/0738213985/)
The Treatment of Vestibulodynia with Topical Estradiol and Testosterone (http://vulvodynia.com/assets/files/treatment_of_vestibulodynia_with_estradiol_and_testosterone.pdf
It sounds like you have hormonally associated vestibulodynia. Yes, the pill can make that much of a difference!
Combination birth control can cause hormonally associated vestibulodynia in some people. The pills (or other birth control with estrogen) contains synthetic hormones similar to estrogen and progesterone. When you take the pill, your body assumes it's getting enough of both hormones, so it signals your ovaries to suppress their own production of each. Since you're not producing your own natural hormones, the hormone receptors in the vaginal/vulvar area also shut down. The end result is less estrogen available to cells. If you take low-dose estrogen pills, that amount is even smaller.
In addition, combination birth control cause the liver to increase production of sex hormone binding globulin (SHBG). This protein attaches itself to testosterone in the blood, rendering the testosterone inactive. This lowers your amount of "free" testosterone. Normal levels of free testosterone are required for a healthy vestibule; low levels can make the mucosa thin and painful.
The best treatment is to go off the pill and use 0.03% estradiol / 0.01% testosterone cream daily for 6 months. It can take to 2-6 months to see improvement.
Sources: When Sex Hurts, Chapter 6 (https://www.amazon.com/When-Sex-Hurts-Womans-Banishing/dp/0738213985/)
The Treatment of Vestibulodynia with Topical Estradiol and Testosterone (http://vulvodynia.com/assets/files/treatment_of_vestibulodynia_with_estradiol_and_testosterone.pdf)
Hi, I can relate to how you feel.
Someone else on Reddit recommended this book and it has really helped me. https://www.amazon.com/Heal-Pelvic-Pain-Strengthening-Incontinence/dp/0071546561
I am not completely painfree but have made huge improvements in the past two months.
What kind of birth control are you on? If it contains estrogen, then that could definitely be hindering your ability to heal.
Here is the full explanation: Combination birth control can cause hormonally associated vestibulodynia in some people. The pills (or other birth control with estrogen) contains synthetic hormones similar to estrogen and progesterone. When you take the pill, your body assumes it's getting enough of both hormones, so it signals your ovaries ot suppress their own production of each. Since you're not producing your own natural hormones, the hormone receptors in the vaginal/vulvar area also shut down. The end result is less estrogen available to cells. If you take low-dose estrogen pills, that amount is even smaller.
In addition, combination birth control cause the liver to increase production of sex hormone binding globulin (SHBG). This protein attaches itself to testosterone in the blood, rendering the testosterone inactive. This lowers your amount of "free" testosterone. Normal levels of free testosterone are required for a healthy vestibule; low levels can make the mucosa thin and painful.
The best treatment is to go off the pill and use 0.03% estradiol / 0.01% testosterone cream daily for 6 months. It can take to 2-6 months to see improvement. It won't help if your vestibulodynia is not hormonally associated.
Sources: When Sex Hurts, Chapter 6 (https://www.amazon.com/When-Sex-Hurts-Womans-Banishing/dp/0738213985/)
The Treatment of Vestibulodynia with Topical Estradiol and Testosterone (http://vulvodynia.com/assets/files/treatment_of_vestibulodynia_with_estradiol_and_testosterone.pdf)
I have congenital neuroproliferative vestibulodynia and had a partial vestibulectomy because nothing else I tried helped. Before surgery, PT helped a tiny bit but not enough to make a difference. PT has been more helpful after surgery. The partial vestibulectomy was not fly successful; I need to go back for a full vestibulectomy.
This book also helped me w natural remedies for it as well it does discuss Lyme disease but also has chapters on ureaplasma
https://www.amazon.ca/Healing-Lyme-Disease-Coinfections-Complementary/dp/1620550083
I had plastic dilators and to be honest, I didn't get very far with them. I bought these: https://www.amazon.co.uk/Inspire-Silicone-Dilator-Graduated-Strength/dp/B01CYQCNUW
I'm a bit fan of them, they're silicone and so soft, and the tapering makes them easy to insert and get used to. I'm in the UK so that's a UK Amazon link, but maybe they sell them where you are? I'm on the biggest size now, which I never really thought I'd manage.
So. I didn’t like the plastic dilators; but also didn’t want to invest in IR right away. I got these ones fromAmazon: CalExotics Inspire Silicone Dilator Kit, Pink https://www.amazon.ca/dp/B01CYQCNUW/ref=cm_sw_r_cp_apip_Tamko3eU8FQoY
And I’ve really liked them. I also have a therawand I really enjoy.
You can get probiotics that specifically help maintain the flora of the vagina. The science on it isn't totally proven, but it can't hurt! I take them throughout the summer to help prevent yeast infections, because I'm sensitive to being in damp clothes/bathing suits.
I use this one
I use PhD vaginal suppositories! You can find them at your local drug store but if they’re out, here’s the Amazon link.
Link: pH-D Feminine Health - 600 mg Boric Acid Suppositories - Woman Owned - for Vaginal Odor Use - 36 Count https://www.amazon.com/dp/B08W6D8PVW/ref=cm_sw_r_cp_api_glt_fabc_QJ2Z5EGE9C4X7KPG1G5Y
I love a pair of under armour shorts I have. No built in liner and not bunchy around the crotch! I have an older version but here's the new version.
Hormonal IUDs are thought to be safe for vulvodynia, as it is the synthetic estrogen in birth control that is thought to cause hormonally mediated vulvodynia. My vulvodynia specialist recommended the Mirena to me for this reason. Here is a research article about hormonally mediated vestibulodynia, which may provide some helpful info. The book Whe Sex Hurts also discusses it. Anecdotally, I have heard some folks on here say that hormonal IUDs triggered their symptoms, but I haven't found research that shows a correlation between IUD/progestin and vestibulodynia.
I think it's definitely possible that the long period and the adjustment phase could cause some temporary pain. IUDs can cause some overall wackiness for a couple months, unfortunately. I would ask your doctor about estrogen/lidocaine cream to help calm things down and definitely reassess having the IUD if things aren't better 6 months post insertion.
Luna Rechargeable Personal Wand Massager - Quiet & Waterproof - 20 Patterns & 8 Speeds - Travel Bag Included - Men & Women - Perfect for Tension Relief, Muscle, Back, Soreness, Recovery - Hot Pink https://www.amazon.com/dp/B07YVQC4DR/ref=cm_sw_r_cp_api_glt_fabc_6YW38PZAKPG6MTJQCHS7 I have the older version of this one and it is amazing!
Are you using testosterone as well? Apparently just coming off birth control is not enough and you need to use the topical hormones too (https://www.amazon.co.uk/When-Sex-Hurts-Womans-Banishing/dp/0738213985)
Basically that same process that triggers vestibulodynia happened to me during pregnancy almost 3 years ago, but I've only seen an improvement since using the topical creams (started the course a month ago). For some reason your free testosterone levels don't go back to normal on their own.
Thanks for the thoughts. I use Slippery Stuff (water-based, glycerin-free) and have used dilators for years prior to surgery without this discharge. But maybe it could still be related 🤷♀️
https://www.amazon.com/dp/B07RGCSNWN/ref=cm_sw_r_cp_apa_glt_fabc_QAPRWVFKZ8X1S2GPHVVB
I've been wearing these for the past few months and they irritate me much less than any other underwear I've tried. I liked them so much that I ordered a 2nd set!
It's lidocaine gel, specifically "Topicaine."
You might try this book: https://www.amazon.com/Heal-Pelvic-Pain-Strengthening-Incontinence/dp/0071546561, I worked on those stretches when I was living abroad and it helped me some.
Amazing Formulas Hyaluronic Acid 100 mg Capsules (Non-GMO,Gluten Free) - Support Healthy Connective Tissue and Joints - Promote Youthful Healthy Skin (120 Count (Pack of 2)) https://www.amazon.com/dp/B073V3JHM9/ref=cm_sw_r_cp_api_glc_fabc_NdkcGb97XMD4A
Consistency is key!! Seriously, do your pt at home!! Doing stretches as if preparing to do a split have also really helped, because stretching out hips and particularly diagonal muscles that lie on top of the pelvis can really help with pain. Your pt will actually rub and massage these by rubbing on your belly usually at start of session, and if they dont i would just ask them to and see if it helps. As other people said, breathing/meditation is a big part of this because you will have to continue consciously relaxing those muscles throughout the day and esp if having intercourse. Just search “pelvic floor relax guided meditation” and you’ll find some good exercises
You’re going to start with dilators if you have vaginismus, and light internal work with the pt. Aka finger lightly inserted, stretching first your external area and eventually internal area. I would search in this sub to look at recs for affordable options. Later on, I suggest buying a therawand (another one is by Intimate Rose also available on amazon and is cheaper, and it is smaller in circumference so may be more ideal for you. I have both and graduated to the one I linked.)
I totally second the bamboo underwear. I got mine on Amazon; https://www.amazon.com/gp/product/B01N306TTD/ref=ppx_yo_dt_b_asin_title_o07_s00?ie=UTF8&psc=1
Hi, I'm so glad your vestibulectomy has been successful!! I'm having one in January and am very nervous. My pain is not so severe that I haven't been able to use tampons, but they are uncomfortable and I usually avoid them.
First, make sure you can use the first dilator first without pain, since that is usually smaller than a tampon. You should start with the smallest tampon possible that has a plastic applicator. Maybe these would be worth a shot! But I would see if you can find a smaller pack in case it doesn't work well for you, haha that Amazon item is a pack of 72. Try lubricating the tip and take some nice deep breaths on the toilet and drop your pelvic floor.
If it does hurt during insertion, my recommendation would be to either (1) immediately stop trying to insert it and try again another day, or (2) try to get past the pain of insertion and fully insert it all the way. What you want to avoid is a tampon that is like halfway inserted haha because that can hurt worse. And then afterwards, I would avoid removing a dry tampon unless it really hurts, because removing a dry tampon can be painful too.
Hope this helps! You got this! :)
I use Uber Numb from Amazon https://www.amazon.com/Lidocaine-Ointment-Numbing-Cream-Child-Resistant/dp/B07DMP62H1.
I apply it to the opening and just inside my vagina about 20min before sex. It's expensive but it has been a total game changer. It totally takes the edge off the initial pain of entry and allows me to relax and enjoy sex. My skin sometimes still hurts later when I pee after it wears off, but much less so than when I don't use the lidocaine. I was also prescribed a lidocaine gel by my doctor but the stuff from Amazon works so much better for me.
Amazon sells plastic ones with caps that you could order, but it looks like a lot of them come in packs of 50. Here's one that's a pack of 12 for $10. Your local big box store might also sell them? As long as it's plastic, has a rounded bottom and a cap it should be fine.
Also, get good lube. My partner and I don't use condoms; if you don't either, I 100% recommend oil-based rather than silicone- or water-based. I highly recommend this (made by a black, gay small-business owner!): https://getthebutters.com/thebuttersprods/thebutterslube. I also recommend these for starting out (though you still will need to start with fingering before using the smallest one): https://www.amazon.com/gp/product/B01608PSOI/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1.
Boric Acid Vaginal Suppositories pHresh - Promotes Healthy Vaginal pH Balance, Supports Vaginal Health 600mg, Bottle of 30 Natural Boric Acid Suppositories Non-GMO, Third-Party Tested - Made in USA https://www.amazon.com/dp/B07HFHNZWW/ref=cm_sw_r_cp_api_i_jMRKFb8CWW0TS?_encoding=UTF8&psc=1
DenSan C16 Coccyx Orthopedic... https://www.amazon.ca/dp/B07DNWSWKV?ref=ppx_pop_mob_ap_share I use this! Lifesaver for my desk job. Have you tried an estradiol/testosterone compounded cream? That helped me a ton with unprovoked burning.
Yay! The post-soak vaseline sounds very nice and gentle.
This is the sitz bath model I ordered: Soothic Sitz Bath for Toilet Seat
Hi! Any form of birth control that doesn't contain estrogen is considered vulvodynia-friendly. My vulvar pain specialist doctor recommended the Mirena IUD, but any IUD would be fine. Progestin-only pills and Nexplanon would also be fine. The combination pill makes my pain worse, but the Mirena IUD did not!
Honestly it's not like the shaving products go inside your vagina, so personally I don't worry about the pH issue. I would stick with unscented stuff though. I use this Aveeno shaving cream for sensitive skin.
I maybe had got something else in it??
I don't know. I just use Porrige oats you eat but I put them in a tights or stocking foot about three big handfuls it does depend on what brand use. In England I find Tesco brand rubbish no oats milk comes out. Other stores ok or I order big sacks online now easier. But it's natural and we can eat it so I don't have any other suggestions than that. It's all I use. Maybe could try that rather than aveeno brand stuff?
I'm not sure really what the clay is I googled but couldn't find anything, and I did see colloidal oats that say 100% oats but it don't make sense to me buy that little sachets when can just buy big sack of Porrige oats and use...
if it was one like this u used it still has chemicals in it scroll down to ingredients list...so it's not natural at all aveeno
Also when I had terrible thrush they kept telling me I didn't..I burned and inside so bad I was so dry but no discharge. They insisted not thrush but I took a few oral tablets in conjunction with canesten 10% internal cream pessary and external cream at least twice five days apart and that got rid of that.
This time too I've had this flare up I've had to use several canesten treatments to get it gone. First high up inside stopped burning but the vestibule and entrance still was so I didnt put it up so far third time and it seems to have calmed right down now. I read someone saying other day that's type 2 thrush.
I don't think it's a good idea to put any oatmeal washes or clays or even just oats inside the vagina though. I clean external area with my oats bag and rinse well with luke warm water. Nothing inside. I don't smell.
I also dry off after with hairdryer on coolest low setting
It probably is your birth control! I would not see that doctor again. Try to find a new doctor who specializes in vulvodynia (check out the National Vulvodynia Association provider list). There is definitely a known link between birth control that contains estrogen and vulvodynia. You should find a doctor who supports your decision to go off the pill and can prescribe an estrogen or estrogen/testosterone cream. Bonus points if the cream also contains lidocaine.
Here is a paraphrased explanation from the book When Sex Hurts: Oral contraceptive pills contain synthetic hormones similar to estrogen. When taking them, your body assumes that it's getting enough estrogen, so it tells your ovaries to suppress their own production. Since you're not producing natural hormones, hormone receptors in the vaginal and vulvar area also shut down. The end result is that less estrogen is available to cells than if you weren't taking the pill. Also, hormonal contraceptives cause the liver to increase production of a protein called sex hormone binding globulin (SHBG). This protein attaches itself to testosterone in the blood, rendering it inactive. So, you have a lower amount of active/"free" testosterone. Normal levels of free testosterone are required for a healthy vestibule; low levels make the mucosa thin and painful. The condition can include dryness, reduced libido, tenderness, burning, and dry/thin vestibule tissue.
I highly recommend Botox, though it is expensive and the injections themselves are quite painful (but hey, temporary pain for a big benefit!).
What has helped me is to not research too much. When I did that I’d end up crying in my bed at 2am feeling like I’d never get better. I’m still not totally optimistic but focusing on my progress and forcing myself to do something else when going down the panic rabbit-hole has helped me.
Don’t “poo poo” the effect of pain on the brain. Once I sort of worked past that I really saw quicker improvement. Just because you feel pain doesn’t mean there’s something totally wrong. I know that sounds weird, but when you still have pain even after all that PT work, a portion of it could be exacerbated by stress/fear of pain/tensing up/etc. But certainly not “all in your head.”
I actually really benefitted from reading “Why Pelvic Pain Hurts.” It helped me be a little less hard on myself and understand that I was not in fact just being a wimp (my thoughts can be brutal sometimes lol). https://www.amazon.com/Pelvic-Pain-Hurts-Adriaan-Louw/dp/0985718684
Hang in there!
Hey, the one I bought is from amazon. It was a 5 piece for ~$45. I’ll get you a link in a bit. idk if it is cheap per se, but it is on the cheaper side of quality dilators with rings, which my PT highly recommended because it gives you a better grip.
Edit: Dilator I bought.
I love laser cut microfiber thongs. I buy them cheap, Iris & Lilly Women's No Show... https://www.amazon.com/dp/B07FKQ9Y96?ref=ppx_pop_mob_ap_share
They irritate me the least. I spent so much money trying different kinds and these were the only ones that worked. So I found a pack of five for $18.99.
I have a bullet vibe as well but I have been seriously looking at the soft velvet vibes since I already have a sleak golden metallic one. I'll link it. Don't go by the stars. Seriously look at the reviews too. The vibes that pop up that other people buy with this one also have me leaning their way as well. https://www.amazon.com/Leaf-Plus-Vitality-Vibrator-Purple/dp/B00EOXFFLI
If you’re going to do dilators by yourself - this is a great book to guide you on how to do it: https://www.amazon.com/Sex-Without-Pain-Self-Treatment-Deserve-ebook/dp/B00K7IH67U
It’s written by a great PT and it is comprehensive. However, working with an actual good physical therapist is still better so your stretching program is tailored to your issues.