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I'm sorry to hear about your situation. I am in the US so I don't know much about DLA. I'm assuming we're talking about financial assistance (as opposed to something like an in-home helper or nurse). I read some information about DLA and I feel like you should qualify. What is the process to determine your eligibility? I think you should get another opinion if possible. Are you able to work at all for a living? I am lucky that I am able to. Some idea to make money from your home are websites like Amazon Mechanical Turk, and elance.com.
In terms of what you should do, if you aren't able to make a living I think your government is obligated to give you assistance, or how else will you survive. You might have to push harder for it. For example, if you have to complete some sort of survey to get assistance then put down the answers that will get you what you need. Sometimes bureaucracy fails people - maybe you answer all the questions accurately - "yes I can sometimes walk more than 200m" and "yes I can technically make myself a meal" and so you don't get what you need. So change your answers. What do you think? I wish I could be more help.
So I am assuming you don’t wear braces, correct? First I would start with inserts with the highest arches you can find. I found some plastic 3/4 length on Amazon and I put a Spenco on top of it. - Natural Foot Orthotics Original... https://www.amazon.com/dp/B00SX6FD78?ref=ppx_pop_mob_ap_share
Then start experimenting with shoes. Zappos gives free returns - look for shoes with a wide sole and toe box. Experiment with sole thickness. I had good luck with Xeroshoes for a while (with insoles) but now am back to new balance again.
My girlfriend has a huge fear of falling in the shower due to her cmt and how little she cab feel her feet, so recently I bought a two set of suction cup shower handles that can hold up to 450 lbs if I remember correctly, and they were only $18 on amazon. She's said they've helped her a lot, and I'm planning on buying another set for her other shower as well soon.
Hopefully that link works, if not, pm me and I'll send you the link for it.
Given most people seem to have fixed designs now, it's hard to see how it could be modified without completely ruining the function, and a shoe obviously can't be modified to accommodate a rigid 90* whilst also being a heel. There are already soft designs out there that might work, but I'd imagine people who can get by with those would just a soon go without if they wanted nice shoes. There would also be options like this support if the only real need is foot drop. I get the impression most people are also looking for some lateral support (which makes heels unappealing in general).
Not trying to poopoo the idea. I think most would welcome such a thing, but trying to think how it would actually work out.
I use this one currently https://www.amazon.de/MFT-Balance-Board-Disc-7003/dp/B001V9KLZ8 But it is also possible to build one by yourself (my father did it) I stand on it with two or one leg, do squads and lunge on it. My physiotherapist showed me a lot of exercises and it helped a lot
I know this doesn't have to do with feet but this has been a REALLY helpful tool to have in our kitchen. I just couldn't open cans anymore without it being a struggle.
I am getting my Mom this for Christmas (she also has CMT) this year after showing her how it works and she was pretty excited about seeing how easy it was to use!
https://www.amazon.com/Kitchen-Mama-Automatic-Electric-Opener/dp/B07FVQLBL3?th=1
Adult training wheels: Bike USA Heavy-Duty Stabilizer Wheels for Adult Bicycles, The Original Training Aid for Full Size Bikes with a 24" to 27" Inch Wheel, Supports Over 250 LBS, Patented Design, Black, 16-Inch (1000) https://www.amazon.com/dp/B001BRE0G6/ref=cm_sw_r_apan_glt_fabc_FTMCK66295073HD3YKTV?_encoding=UTF8&psc=1
I think she buys them from her local pharmacy, but you can find similar versions on Amazon if you search "gel toe spacers". She uses the ones that look like this:
Green spencos -not heavy duty like this - https://www.amazon.com/Spenco-Cushion-Comfort-Support-Insoles/dp/B0010LJV62/ref=mp_s_a_1_5?dchild=1&keywords=Spenco+Insoles+green&qid=1608247750&s=hpc&sr=1-5
I’ve had good luck with these as well ...
It’s a mat that would lay on the floor and you’d stand on it. Something like this.
Just might help with standing for long periods of time :)
I used to have an orthopedic technician who'd built me one from scratch but I have to say that nothing compares to that one cheap thing I got from amazon. (Since I'm located in Germany, its not the exact same one, but its pretty close)
Sry am on mobile and cant hyperlink:
It sounds like you are doing an amazing job with using a variety of things to help you. Is it hemp CBD or marijuana CBD?
Regarding the B12 comment from someone else, I will share that I use this: https://www.amazon.com/Solgar-Sublingual-Liquid-B-12-B-Complex/dp/B0032MEMNY
I am taking it primarily to supplement b12 I am not getting due to reduced meat consumption. It sometimes gives me more energy, sometimes not. Based on the experience of another redditor I am taking lions mane. They were combining this with increased niacin, and the bcomplex happens to have niacin.
So I'm not 100% sure if you mean the double layered socks or the compression socks (Both can be used for diabetic patients.) However there is a wide range of them available on Amazon
I have CMT 2A and my grip has always been weak. I get really frustrated about opening bottles and even cans still. I have managed to figure out to open cans with pull tabs by using spoons, pens, and even hair bands. As for bottles, my first tip is to keep in mind how easy a bottle is to open when you buy it, especially if it's a huge case of water with a million bottles with uncooperative caps. My other tips are: use the side of your mouth to open the bottle if you are desperate (please do not wreck your teeth!), invest in some bottle openers like this http://www.amazon.com/The-Pampered-Chef-Opener-Various/dp/B0011DV3ZQ (you need bigger ones for large caps like with gatorade), and lastly there are silicone jar openers you can use to open bottles. All of my suggested products can be purchased at Wal-mart for cheap.