Hi Op -
I totally get what you are saying. When I was first diagnosed I was terrified too and resource starved. I found this book helpful.
Please try to eat something. Try eating 6-8 snack size meals. Every small calorie counts. The digestive system finds it easiest to process fruit and vegetables.
Ensure Clear is essentially Ensure but in clear form. Tropical Punch is my favorite!
Honestly? 3 years in now and I still get terrified now and then. There are so many stages to go through and I jump right along. I still have to have things explained more than once.
I guess the bottom line is we get it. Totally get it. Welcome to the family! Post as much or as little as you like. We all drift back and forth.
If you aren’t already, you could try wearing compression socks during the day when you’re not elevating your feet. They sell them at sporting goods stores, drug stores, Amazon, Walmart. Like this for example: https://www.amazon.com/Compression-Stockings-Athletic-Medical-Pregnancy/dp/B07SPSB1GS
Nothing worked for me. Sleep was almost impossible. The only thing that did anything was this that I found and ordered during one of my night episodes
https://www.amazon.com/dp/B087Z37PLN/ref=cm_sw_r_api_i_CE81EJ2Q7VECF0DH852H_1?psc=1
Naturally once I finally found it, got it and found it it helped my itching, my itching went away on its own not long after…
I've been looking up sleep problems for my hubby who has cirrhosis and came across this : https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6220431/
Like N_cherryblossom said, there's a connection to HE. The study mentions "covert" HE, which doesn't come with the normal symptoms usually associated with HE, and I guess is just a way lower level of toxins floating around in the bloodstream. Anyway, somehow that might still create sleep issues according to this article. What you describe is EXACTLY how my hubby's sleep pattern is. His bloodwork doesn't even look that bad lately so it's been confusing and frustrating for us.
I just ordered this for him https://www.amazon.com/gp/product/B08DCK9W2D/ref=ppx\_yo\_dt\_b\_asin\_title\_o00\_s00?ie=UTF8&psc=1 since the components, L-Ornithine and L-Aspartate, are mentioned in the study as potentially helpful and he won't take Lactulose (which is the standard I guess). Figured I'd share in case it might lead you down a helpful path or give you something to ask your doc about.
I am so sorry to heart that, it will get easier, you have done the hard thing with kicking the booze.
This book is quite good - I know it says fatty liver but it has the essentials like low salt, kicking the certain meat... Once you get used to the basics you will be making your own recipes in no time :)
https://www.amazon.com/Fatty-Liver-Cookbook-Diet-Guide-ebook/dp/B0140Z7SE6
This is the only cookbook with 5 stars but I have no idea how complex or unusual the recipes might be. I know if it has a lot of hard to find (or pronounce lol) ingredients or multiple steps, I probably won't do it. It has to be somewhat realistic for me honestly.
Cirrhosis Cookbook: The Liver Healing Diet Meal Recipes to Reverse Fatty Liver Disease, Heal Immune System & Eliminate Toxins to Promote Overall Health https://www.amazon.com/dp/B08C8Z8QDF/ref=cm_sw_r_u_apa_i_XbcNFbGXTW7P6
I just ordered this book last week but it hasn't arrived yet. I'll certainly give my feedback when I've started reading it.
The First Year: Cirrhosis: An Essential Guide for the Newly Diagnosed https://www.amazon.com/dp/1569242836/ref=cm_sw_r_u_apa_i_ylaNFbB987TY7?_encoding=UTF8&psc=1
I looked at the cookbooks available at Amazon, but unfortunately there have been no reviews on any of them.