What are
/r/Hemophilia's
favorite Products & Services?
From 3.5 billion Reddit comments
The most popular Products mentioned in /r/Hemophilia:
The most popular Services mentioned in /r/Hemophilia:
Healthcare.gov
Codecademy
Seeking Alpha
The most popular reviews in /r/Hemophilia:
These bad boys right here have been a God send for me! I think I've had 6 pair of them over the last 10-15 years and they're wonderful! I cannot walk for long without them. The speed laces make it nice and supportive where I need it, then the Velcro straps add extra stability and help prevent ur ankle from rolling. My ankles are SO shot from so many bleeds through the years. These braces help me so much! The only downside is they're a bit bulky! I have very wide feet, and then adding the bulk of the braces makes it very hard for me to find high top shoes/boots to fit them in. But it's worth it to be able to walk! I hope this helps! Oh also, they last about 6-8 months wearing them daily. The Velcro stats to degrade and doesn't hold as well, and the plastic starts to break. You know when it's time to replace them! Hope this helps! PM me for any questions u have!
Ossur Formfit Ankle (Figure 8, X-Large) https://www.amazon.com/dp/B000TVIHGO/ref=cm_sw_r_apan_i_EQ49NR3Y1XMTDDAWHEV3?_encoding=UTF8&psc=1
ASO or the ankle supporting orthotic. This is the best thing available without going to a custom orthotic. I've been wearing one a long time now. I'm actually having a custom orthotic made now, just waiting for it to be finished.
I have large bone spurs fusing my ankles, tons of arthritis, bone fragments floating in the fluid built up in the joint, and a bunch of bone graft. I'm waiting to get an ankle replacement soon.
https://www.amazon.com/dp/B00TZTO0QC/ref=cm_sw_r_apan_i_KGC0Z6MFCHFXPNSX4RXK
I guess I didn't google it much, since I aren't really affected by it nowadays. First hit in Google when I typed in some key words.
https://www.amazon.com/Siang-Pure-Original-Formula-25ml/dp/B01FVVBEXO
Amazon really seems to have become the everything store. If you do get it, make sure that the shirt you are wearing is ok with being stained yellow. Also if you apply too much too often, the skin starts to feel raw. You can see others saying the same thing in the Amazon review.
Here's an article from an investor blog/website that has a fairly negative take on this study. The site wants you to register or sign-in with Google+ to see the full article. PM me if you have problems getting to it.
> Hope OP reads this: > > Lighting is very good advice. There are special lamps that will light up your veins so you can see them. > > https://www.amazon.com/Illumivein-Portable-Flashlight-Transilluminator-Registered/dp/B014X9IJGU > > Once you find them, they are always in the same position, so that lamp is only useful in settings like a HTC where different patients come in all the time and different nurses need to find the formers' veins easily. > > Feeling the vein is essential as due to parallax errors or whatever, sometimes what you see is not where the vein is due to shadows or whatnot. Use finger tip to touch the spongey vein. > > Stretching the skin really helps as it prevents rolling. Using analogy of landing a plane, but this time on an aircraft carrier, imagine if the carrier was constantly swaying during a storm, plane might not land on the carrier but plunge into the sea. Stretching makes sure the vein stays at the same place.
Hope OP reads this:
Lighting is very good advice. There are special lamps that will light up your veins so you can see them.
https://www.amazon.com/Illumivein-Portable-Flashlight-Transilluminator-Registered/dp/B014X9IJGU
Once you find them, they are always in the same position, so that lamp is only useful in settings like a HTC where different patients come in all the time and different nurses need to find the formers' veins easily.
Feeling the vein is essential as due to parallax errors or whatever, sometimes what you see is not where the vein is due to shadows or whatnot. Use finger tip to touch the spongey vein.
Stretching the skin really helps as it prevents rolling. Using analogy of landing a plane, but this time on an aircraft carrier, imagine if the carrier was constantly swaying during a storm, plane might not land on the carrier but plunge into the sea. Stretching makes sure the vein stays at the same place.
Drinking water, eating, doing 10 pushups, hanging your arm down while putting the tourniquet on, trying the veins in the back of your hand.
Also, as a long term helpful measure, working out is great for your veins.
You can also try to use one of the squeezy pump thingys:
- Use a 27 gauge butterfly
- Drink plenty of fluids. Drink a cup of hot tea or coffee while you're getting ready to infuse. Hold the hot mug in both hands to warm yourself up.
- Use a heat pack to help your veins really pop
- Get a one-handed tourniquet
Glucosamine w/ chondroitin worked for me for quite a while. Some say it has no proven effect but if I stopped taking it (ran out and forgot to buy more) I would start hurting again and realize "oh ya, forgot to buy more and it's been a week since I last had it.
As far as ankle wraps and splints go, compression sleeves would probably work well for you. I also bought a velcro on on Amazon for 10$ that believe it or I saw in some random internet ad (usually I avoid those like the plague). https://www.amazon.com/dp/B01LXAGV0H/ref=cm_sw_r_cp_apa_i_xUddFbF4AEFHF
Same idea here, factor in fridge and supplies in a rolling cart that is kept in a closet. Similar to this with an organizer tray in the top for butterflies (27g x .5”) alcohol wipes, gauze, coban etc.
I had a bad ankle for a few years in my early 20s until my HTC recommended a Swede-O. It's a pain to lace up but it worked really well. I was able to run, pivot, participate in active athletics with no issues.
I had really bad bloody gums all of my life.
Then I discovered Plackers. After 2 weeks, if your gums still bleed... well... you can slap my ass and call me shirley, if you like.
https://www.amazon.com/Plackers-Dental-Flossers-Micro-Mint/dp/B000GGHRYK
I'm not sure if you like reading or not, but the Elder Scrolls has a couple of books that are supposedly really good! Here's a link to the first! http://www.amazon.com/The-Elder-Scrolls-Infernal-City/dp/0345508017
Also, Hearthstone is awesome! Its sort of like Magic the Gathering only free :)
Good luck and hopefully you can stay busy!