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These are awesome and super easy to use to make good looking buns. I used to use these for ballet class.
I'm female with similar issues. The absolute best shoes I have found are Vionics. They have a huge variety for women, but not so much for men's. But I recommend you check them out for sneakers, etc. They have built-in orthotics.
Another option is to buy custom orthotics from a podiatrist, and insert them into regular shoes. Sometimes insurance pays for them, but mine didn't. And my feet still hurt when I wear them, but not as much. Honestly, the Vionics are better than the custom orthotics.
Finally, there are tons of over-the-counter inserts that you can put in your shoes. I have really been liking these inserts lately, because they go on the arches (where I actually have the biggest problem) rather than on the heels or balls of the foot. Vive Arch Support Brace
These really help too: Tull's Heavy Duty Heel Cups
With the arch support braces and the heel cups, theoretically I can wear any shoes.
I have the same problem. I wear these form fitting, spandex/nylon tank tops I got on amazon. They are technically nursing bras, which is convenient in my current life stage, but I was wearing them before as well. They have the cups built in. I can’t wear tanks with shelf bras but these are perfect and don’t cause any extra pain.
I’ve tried to link them here but I’m new to commenting so I’m not sure I’ve done it right.
I mainly use the self adherent tape. It only sticks to itself. I usually wrap my ankle and heel with it. This image is of a different kind of ankle wrap, but it illustrates pretty well how I layer the tape linked above
The KT tape sticks to your skin and works differently, but as the other commenter replied already, there is pictures/diagrams online that show how to best apply the tape for different joints. I would recommend trying both types of tape to see what works best for you.
I can relate to so much of this. While you’re waiting for a diagnosis, maybe this might help? I was working with an amazing physical therapist before Covid, and she recommended this book by Kevin Muldowney that’s basically all exercises.
I just asked about this. Unsure if it was said, I'm on time crunch before I get my butt moving and have a hot shower (executive disfuntioning).
I was told by my pain team that botox only provides brief relief but not much more. Yes maybe for migranes. However, this doc didn't know I also have tmj.
I'm currently in a trial where I get lidocaine injections. It sounds like you may live in a place without access to affordable insurance so I don't know if this would be an option for you.
I also use a Amazon bought mouth guard. I'm sure your dentist one is much better. Mine it does give very specific instructions of how to set the mould yourself. I just checked Amazon, this one has 7000 reviews and average of 4.5/5 stars.
link for Amazon mouthguard - customizable , $24
Best of luck! It sucks :( hope you get some helpful responses !!!
I currently use this brace. It was given to me by a occupational health doctor at work. I’ve read that using braces too much can lead to muscle atrophy so I try to only use it when I really need it.
Hi there, do you want to try our elbow brace for free to try if it helps you? We need some testimonial video or picture. If you are interested in, PM us or reply the message
https://www.amazon.com/dp/B01GY7AIRW?ref\_=cm\_sw\_r\_cp\_ud\_dp\_4VX0QMENTQ5CYFSY1N2N
Changed my mind, here's the links anyway.
"Posture corrector" Omples Posture Corrector for Women and Men Back Brace Straightener Shoulder Upright Support Trainer for Body Correction and Neck Pain Relief, Medium (Waist 34-38 inch), Patent Pending https://www.amazon.com/dp/B08961NQ81/ref=cm_sw_r_apan_i_8KZ9FAE2DF9EYS2CBXP3
Double shoulder brace Kuangmi Double Shoulder Support Brace Strap Wrap Neoprene Protector (Large) https://www.amazon.com/dp/B019DXEGOU/ref=cm_sw_r_apan_i_H08G48Q3VAXCBNBWXGSV?_encoding=UTF8&psc=1
Glute exercises (clamshell, side lying raise) cat-cow, and the bird-dog exercise helps for me but definitely get it checked out by a physio as the effectiveness of the exercise will depend on how aligned your hips are as well as the amount of inflammation. I would advise to start with bodyweight then progress to resistance band, and avoid doing prolonged static stretches - see if the physio can give you dynamic versions of the stretches. Core work would help too, I can't recommend any specific exercise as I really struggle with it myself unfortunately but physio would be my first recommendation. Some people find relief with pelvis braces to stabilise as well (example). I bought one of these pillows as well which has helped reduce my hip stiffness when sleeping. Wishing you the best!
For me, yes as my myofascial pain and trigger points developed as i lost stability and my ligaments loosened more - using a ball like this helps to reduce the trigger points and stiffness as well as having what I feel is my joints being 'in the right place' - so for example I have a trigger point in my right upper trapezius that I have managed to stop triggering at my desk by switching to a narrower keyboard without the number pad as I realised my right arm being rotated out was causing it to flare. Also I have find strengthening and stability exercises automatically calm some of the muscles stiffness. Can take a bit of trial and error but hope you are able to find relief.
The one I got is out of stock, but this is it. The most helpful thing about it is that it’s wider and grippier than the wheel, I think! The memory foam is nice too. I don’t get much hand pain at all unless I’m driving for a while, in which case I pair it with the gloves and I’m fine.
Look into Sacro Ileac Belts if it's low back pain, in hypermobility we often have issues with the SI shifting.
For knees, compression with a patella ring would be my first attempt. If it's constant painful hyperextension you may need something with a locking joint to prevent that, for which I would talk to a physiotherapist or a bracing specialist as opposed to privately buying as there can be issues with over use.
I have one of those and I find it really helpful, it's USB rechargeable and it's just a button press, lights all my candles 😊
My partner had a lot of problems with lighters. We kept trying them until we found this one. The slide action was really minimal to get it going and it’s large so getting a grip on it is really easy. link
I found it on Libgen
https://libgen.is/search.php?req=Living+Life+to+the+Fullest+with+Ehlers-Danlos+Syndrome&lg_topic=libgen&open=0&view=simple&res=25&phrase=1&column=def
Unfortunately on PDF, but it works!
Ideally you should see a physiotherapist with experience with hypermobility syndrome. They can help you develop a personalised routine that won't hurt you.
If that's not a possibility for you, then here are a few exercises my physio recommended for my shoulders. image. He recommended the two exercises in the middle row and the left one in the bottom row specifically. They can be done with a cable machine at the gym, or by tying a theraband to something sturdy at home. Start with 10 of each on each side, work your way up to 30 before increasing the resistance.
I've always had a body pillow. Try to take the long body pillow and put it under your knees while you lay on your back. So it elevates your pelvis and gives more rest for your back. Something like this: ELNIDO QUEEN Body Pillow with Pillowcase-Soft Long Bed Pillow for Adults-Breathable Full Body Pillow Insert for Sleeping,20x54inches-Navy Blue https://www.amazon.com/dp/B08ZHBD26L/ref=cm_sw_r_awdo_navT_g_CC3VKQ39448P0PYW2BDJ
Or this only for your knees:
Contour Legacy Leg & Knee Foam Support Pillow - Soothing Pain Relief for Sciatica, Back, Hips, Knees, Joints - As Seen on TV https://www.amazon.com/dp/B07MFN8FRT/ref=cm_sw_r_awdo_navT_g_SN7K6M2RNB79FJHS5Q55
I think you would need to see what the rules are for the park you are interested in. It might be better for your doctor to frame it as an injury rather than a disability as sometimes disability can be very narrowly defined in rules and regulations.
However if you're not able to get a pass, you could look into getting a portable folding stool which is specifically designed for travelers who need to queue for a long time. I don't know exactly what they are called, but I saw people using different versions at various tourist sites in Europe which had long queues.
Something like this? https://www.amazon.com/Portable-Folding-Telescopic-Fishing-Camping/dp/B085NQ177C
If you are still shopping around for Copper Compression Sleeves these come in a pair per pack and are lined with copper woven material.
Ive tried many things. I finally got "punctual plugs" from an eye doctor after they did tons of tests and discovered I don't make natural tears/oils. I use a little humidifier by my head at night. And I swear by eyelid wipes. They've gotten me off eyedrops somehow and it's wayyy easier. Ive tried many but have come to like best these ones: https://www.amazon.com/Premium-Eyelid-Wipes-Tree-Coconut/dp/B06X92BQC4?pd_rd_w=Qv7yC&pf_rd_p=4eebd874-436f-4f05-a794-09646834b2dd&pf_rd_r=Z5DD9554MBM3004MX0RV&pd_rd_r=d03cd4b9-be35-4fd5-9c3c-32cb05cef007&pd_rd_wg=Oi2rr&pd_rd_i=...
They sometimes burn briefly but fades quick and immediate relief. For OTC drops, Refresh Plus have been the best I've ever found. Many of the others are totally trash.
I love my tens unit. It's very close to this one. I love that it's portable and I can move about while getting relief. Hope it helps!
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Here is a link to the tape I buy on amazon. I usually buy the ones labeled “vet wrap”. The tape marketed for people is generally more expensive, even though the tape is the same. https://www.amazon.com/dp/B00UEHE082/ref=cm_sw_r_cp_api_i_iE-eFb3KKMAF3
My big toes have been such an issue lately too! I hope this can bring you a bit of relief.
It’s called stenosis of the spin and you can correct it with exercise/PT and making sure you get and maintain good posture. Also I got these bc I read a lot and it actually helps ��
vinmax Bed Prism Spectacles Horizontal Lazy Glasses for Reading and Watching TV Unisex https://www.amazon.com/dp/B01MXF4QXP/ref=cm_sw_r_cp_api_i_oHB1Db28QZK1D
Pilates instructor here, not sure I can offer any serious advice without seeing you in-person. From what you've said, I wouldn't be surprised to see a kyphosis and a slight scoliosis and getting you pain-free would involve focusing more on your hips/core and breathing technique to get permanent pain-free results. Consider a lesson at a Clinical/Classical Pilates studio (avoid the cheaper mat classes offered in gyms and the like).
This book might interest you, it's by a Pilates teacher with hypermobility : Hypermobility Without Tears: Moving Pain-Free with Hypermobility and EDS by Jeannie Di Bon
When you feel stressed, try practicing lateral (Pilates) breathing. Long, gentle exhales will relax the Parasympathetic nervous system, taking your mind out of Fight or Flight mode and lessening pain sensations. Here's a link to a Pilates breathing Playlist, you might like to practice some of the other Pilates exercises on her channel.