I believe this is almost directly correlated with dry eyes for me.
There's several contributing factors here:
I just use big-ass monitor and default black on white scheme. You might like to use Anonymous Pro font( http://www.marksimonson.com/fonts/view/anonymous-pro ), designed for programming. Also consider using F.lux ( https://justgetflux.com/ ) to change display colour temperature. For reading fiction and magazines i use e-ink reader (Kindle) with easily adjustable font size.
DMV Scleral Cup Large Contact... https://www.amazon.com/dp/B00S5LQAUU?ref=ppx_pop_mob_ap_share
I got these for travel. They’re great because are affordable and also double as insertion and removal tools.
Don’t need to replace them. just clean with warm soapy water.
My optometrist also gave me some for free. Doesn’t hurt to ask.
Here's a couple links to purchase the items on amazon for pretty good prices. Best of luck!
Purilens is great. It wouldn't hurt to try a drop or 2 of the Celluvisc to see if it increases your comfort. It's preservative-free as well so safe to use in the lens. You can get it at most drugstores, or on Amazon. One container lasts me 2 days, so a box lasts me 60 days. Chat with your doc to see if they have more ideas though.
Here's what my doctor recommended, I've been able to fit these in my pocket on the go - https://www.amazon.com/ADDIPAK-Unit-Dose-Solutions-3ml/dp/B00XCQXPMY/ref=sr_1_3?crid=2RV29710OS9MP&keywords=addipak+unit+dose+solutions+-+5ml+100+ea+box&qid=1647548993&sprefix=addipack%2Caps%2C136&sr=8-3
I use RGPs and I use Menicon regularly. I use boston advance to increase the time before I need to use menicon as it's more expensive.
The one I got didn’t have a hole on the bottom but my optometrist told me a lot of people will cut the bottom off to be able to see through. This is the kind that I was given. Good luck, you’ll get there! DMV Scleral Cup Large Contact... https://www.amazon.com/dp/B00S5LQAUU?ref=ppx_pop_mob_ap_share
I personally use F.lux to add a whole screen filter that reduces eye strain. Its an absolute game changer for anyone who works long hours on a computer whether they have an eye condition or not. https://justgetflux.com/
This isn't lighting, but can help with the eye strain - https://justgetflux.com/
Free software that adjusts the light emitted from your screen. I've used it for years and find it helpful.
Link to device almost 300$ https://www.amazon.com/Augmented-Vision-Labs-MiniTM-Scleral/dp/B07Z5WFVH3/
But it should be easy to create similar product easily.
I would get a nice sleep mask to wear for the first while to keep light out as the sensitivity is honestly the worst part. This one is the one I have, it's great.
For painkillers I took hydrocodone that they prescribed me and it was essential, in the brief period between taking it I had a pretty bad headache.
And get some audiobooks or podcasts so that you don't go crazy while blinded :)
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If you are in the US you can use your HSA card to pay for them for tax deduction reasons
I use PuriLens Plus, preservative free . I found it easier and economical to use then the individual vials saline solution. Getting 12 Pack is the best deal. https://www.amazon.com/dp/B000X98XS4/ref=cm_sw_r_apa_i_AZ95896NZ9VBQMKKT6P0_1
This is the link I bought from:
https://www.amazon.com/dp/B002YRY3HI?psc=1&ref=ppx_yo2ov_dt_b_product_details
be careful using amazon.
Has anyone used this brand? It's AMSINO Amsure. I've never heard of it.
I think Samsung 4K monitors are a great buy. You can get a Samsung 32-inch 4K monitor for around $300 at most retailers. [Amazon Link]
Larger monitors can help reduce the need to squint, which I often end up doing to resolve details on a small laptop screen. Keep in mind that your eyes will always be the limiting factor – no monitor is going to look "sharp" if you don't do anything to correct your vision overall.
PuriLens Plus Preservative Free Saline 4 Fl Oz bottles, Pack of 12 https://www.amazon.com/dp/B000X98XS4/ref=cm_sw_r_cp_api_i_M1ZGDHE5CMR8QH4SDHFY?_encoding=UTF8&psc=1
That’s where I get my PuriLens. I asked my dr about the individual packs and he told me they’re the same product, marketed as convenient single dose vials that cost around 2-3 times what getting PuriLens costs. He also said I can buy cheaper than that link from his office, but I had already purchased them when he told me. It’s a good product. I plan to mix in the Celluvisc at some point, but haven’t done so yet.
I use Purilens. It my eyes are sensitive to the preservative in other solutions.
I'm guessing you're talking about a very large bottle of saline that is not sterile. So, no. (Feel free to post a link of what you mean for more clarification) You do not want preservatives in the bowl of your lens because they sit against your cornea all day and are toxic. Look up Addipak on amazon (you can also get it at medical stores online like vitalitymed if you don't want Amazon). I can get a 100 pack for $15, that lasts me 100 days. They are single-use vials. They are not pH buffered like nutrifill, so for some people with more sensitive eyes, they are not comfortable, but I've been using them for 4 years without problems. Here's a link to amazon. The price definitely fluctuates. There are also different vinyl sizes, this is the 3ml which is enough for me but I know the 5 ml is more common, and there are also 10 ml ADDIPAK Unit Dose Solutions - 3ml (100 ea/Box) https://www.amazon.com/dp/B00XCQXPMY/ref=cm_sw_r_apan_i_FKAFDHAVW58RHZ2DFGJZ
Meowoo Clear Cosmetic Bag, 4 Pcs Waterproof PVC Zippered Toiletry Carry Pouch Portable Makeup Bag Organizer Bag Set for Travel, Bathroom and Organizing (transparent) https://www.amazon.com/dp/B07TYYG2X1/ref=cm_sw_r_cp_api_i_PVB5G2Y09P6H2F0TTFEQ?_encoding=UTF8&psc=1
I use Progent roughly every 3 weeks - 4 weeks is ok but some heavy protein depositora might be better to use it every 2 weeks... and daily they're soaked overnight in the hydrogen peroxide based cleaner/disinfection Aosept/clearcare.
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If you haven't been doing a DEEP clean with Progent or getting your optometrist to do a deep clean for you.... then for sure the depsits will build up and decrease comfort and make protein deposition even easier to the lens.
So for sure, you'd need to regularly do a deep clean and disinfection - can't comment on Miraflow, but the Progent should ONLY be soaked for 30mins max. Best to get the right size basket for it too
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For eye drops, make sure you're only using the preservative free varieties - and try different ones as they have differing main ingredients - Carboxymethylcellulose seems a common one, but another is a sodium hyaluronate based which is very good... but what works best for you will need trials.
So the biggest piece of advice you’ll find on this subject regarding fogging is working with your optometrist to get a better fit with the scleral. Additionally there are some solutions that you can use to clean them. I had a long struggle with fogging of my lenses similar to you and it ended up being a mix of cleaning and fit. There is a solution you can use to clean it occasionally that worked for me called Miraflow. It’s an alcohol based cleaner similar to Lobob’s Optimum ESC (which was effectively discontinued). There is also a STRONG cleaner to use once of month (less is better for the contact probably) called Progent. It says as much as every 14 days but I’ve seen multiple optometrists on this sub say to use it sparingly.
4PCS Contact Lens Case, Colorful Contact Lens Box Holder Container, Outdoor Mini Contact Lens Soak Storage Kit With Mirror For Travel&Home (Yellow, Pink, Blue Purple ) https://www.amazon.com/dp/B08LDFSN9L/ref=cm_sw_r_cp_api_glt_i_3EC21BR4PXX4BA3XZVQF
I buy these. Switch them out with my plungers and leave them at friends houses, just in case too! With a bottle of purilense.
Believe it or not, Amazon has a good selection for a decent price. I’ll link the ones I buy.
Leaead Blue Light Blocking Glasses BluErase Lens Cat Eye Anti Eyestrain Anti-UV Computer/Gaming/TV/Phones Glasses for Women https://www.amazon.com/dp/B08DCNZN28/ref=cm_sw_r_cp_api_glt_i_4SMC95XHTYARK27C4Q3Z?psc=1
I’ve been using this stuff for years. As prescribed by my eye doctor. My regular optometrist had me use it. Also, Dr. Boxer Wachler, the doctor who performed my cross linking and Intacs surgeries also has these vials on hand. Apparently, it also helps with respiratory sal problems. However, it definitely is a good saline solution. 😊Saline Solution Amazon
my son is a very light sleeper.
he got a super dooper eye mask
I'd recommend these: https://www.amazon.com/gp/product/B07KC5DWCC/
They don't put any pressure on your corneas, instead all pressure stays on the bone line around your eyes.
I use Retaine before I put my contacts in and after I take them out. It is the best for dry eye! You can just use one packet for both applications in a day so a box will last about a month. Ocusoft Retaine MGD Ophthalmic Emulsion, Milky White Solution, 30 count Single Use Containers, 0.01 Fluid Ounce https://smile.amazon.com/dp/B00J56MMPQ/ref=cm_sw_r_apan_glt_i_F3NECRVFV772GGVTY905
I just use preservative free saline packets. Cheap and works great. Modudose Saline Solution for Inhalation - 100/box(5257-5mL Unit Dose) https://smile.amazon.com/dp/B002YRY3HI/ref=cm_sw_r_apan_glt_i_QZ5VDAJVB2W9PWR0C17M?_encoding=UTF8&psc=1
Get a plunger, makes life so much easier.
Like this one:
Soft Contact Lens Green Inserter Remover 3pc for Monthly and Daily Contact Lenses Suction Holder by Sports World Vision https://www.amazon.co.uk/dp/B00TOIGJSG/ref=cm_sw_r_cp_api_glt_i_H7SQ387FDQB7MG42T5PM
I have to agree with others, backlit keyboards are a godsend. I have this one: AZIO backlit keyboard
The 3 colors are good and the large print is super helpful. Plus you can turn the backlight off with a switch on the keyboard.
And I highly recommend movable monitor arms. (was diagnosed with KC in 1994, at the age of 26)
I don't have a ton of advice, only what has worked for me in helping reduce the pain I get from using a computer all the time. There's a program called f.lux that let's me basically seppia filter what I see and it's done wonders to for eye strain and pain for me. It can autobalance throughout the day, but I personally prefer a single level.
To add, I use Purilens Plus Saline:
That's where I got mine. Do NOT use anything besides slerafil, especially generic stuff from Walmart try to conserve or better yet, call your doctors office and get more before they leave for the holidays
You can get an eyeshield to tape on your eye when you sleep! Helped me tons. You can see an example here, ignore how ugly it looks, but just tape it onto your eye and sleep is much easier. Care Of India Eye Care Eye Shield with Holes No Cloth Cover 18 Holes ( Peck Of 10 ) https://www.amazon.in/dp/B09LQS46GQ/ref=cm_sw_r_apan_glt_fabc_SW9W5DVAGYBJ514SRDWT
I'm sorry, I didn't see the reply notification! I use Addipak: https://www.amazon.com/ADDIPAK-Unit-Dose-Solutions-3ml/dp/B00XCQXPMY
The ones I get are in the skinny pink plastic, but don't be dismayed by the amount in the vial - the 5ml is "full" and the 3ml is "half full" (like the skinny green one). People in the comments who don't read how much they are getting or what the vials are marked as complain that they get 'ripped off' when the vials aren't full.
I have a bunch of the 5ml, but I end up only using about a quarter of it at a time. I pinch a piece of washi tape over the tip and leave it on my desk to use the next day. You can't re-seal them after you twist the end off, but if you don't squeeze them, they really won't leak.
Hope that helps!
Here's a link, hope this helps. eye shield
Hello. Yes, in the single use vials. Here's a link: Refresh Celluvisc Lubricant Eye Gel Drops, Single-Use Containers, 30 Count (Pack of 1) https://www.amazon.com/dp/B000KPPQAY/ref=cm_sw_r_cp_api_glt_fabc_BZ3SN9HF5A9FB49T1X0F?_encoding=UTF8&psc=1
yeah definitely\ ask about it and listen to your doctor! I did try addipacks and I found them similar to eye drops I think I like Purilens because it's buffered saline solution (that's the only difference between addipak and Purilens). Buffered solutions help if you have sensitive eyes or dry eyes
i've swam with sclerals. but then i showered, went home and took them out because i was going to bed. so i didn't have them in much longer after i went swimming.
the best, no leak googles i've had, were very low profile. they were something LIKE this
it wasn't these exactly. i have no idea what king they were. i just got them from my brothers when they did swim team in highschool.
they were very simple, had no padding around the eye cups, and the most effective i've ever had.
I use dry eye drops as well, I also used eye gel before sleeping when I used to have really bad dry eye (before I realised I was allergic to the preservatives in my multipurpose solution) which helped massively.
And this eyeliner:
There was a different one I liked slightly more but it was discontinued.
When I say "gel" eyeliner I mean the one that's like a pen/marker so it's easier to put on than liquid. This is what I have been using lately for mascara:
L'Oreal Paris Age Perfect Lash Magnifying Mascara, WATERPROOF Black, 0.28 Ounces
Usually the pressure of the shower takes it off without needing additional makeup remover.
I went through this a couple of months ago, when I first started with the big lenses.
My first couple of days had me seriously doubting I could do it.
I found that leaning down over a counter, with my left elbow planted and thumb and forefinger prying open the target eye, with my right using the Large tool to insert. I always over-fill the lens with solution, so that it is convex with solution. I find looking directly into the center of the lens while I am inserting is the easiest way for me to do it. I tried mirrors, but found that distracting.
While I am still having issues with my lenses, I am FAR more proficient in removing and inserting them.
Be patient with yourself, walk away if you are have a few bad attempts. trying to insert into an irritated eye is just doing it on hard mode.
Noobs don't start on hard mode.
You got this. be patient with yourself and remember that this is a hard goddamn thing to do.
I use a pair of single lens swim goggles for swimming. They don't put pressure on my eyes/contacts like the individual eye cup goggles. They're also smaller than a full swim mask, and can easily hang around your neck when not in use.
Honestly, supplements are sketch. A lot of the times, taking a multivitamin won’t support you as it’s better to take vitamins on their own and not “mixed” together. Except in food, obvs. BUT, taking an isolated vitamin can chelate another, so I’d thread with caution.
Vitamin A is not the only one for eye health—you also need vitamin: E, C, the Bs, etc. The best food you can eat for all of them is liver. You don’t even gotta eat a lot of it, since it’s so nutrient dense, 4oz/week is more than enough. I don’t always find organic, grass-fed liver, so I take these pills: https://www.amazon.com/Perfect-Desiccated-Undefatted-Argentine-Supplements/dp/B00J47LEMS
Also, reducing physical, emotional, and mental stress goes a long way to support your whole system, which includes your eyes.
What solution do you all use to put into the sclerals to get them on? My Dr. has me using this
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I would consider getting 5ml vials of saline so you don’t need to save the vials:5ml saline vials
Got a plunger like this
Soft Contact Lens Green Inserter Remover 3pc for Monthly and Daily Contact Lenses Suction Holder by Sports World Vision https://www.amazon.co.uk/dp/B00TOIGJSG/ref=cm_sw_r_cp_api_glt_fabc_QJSKJSGJ1RDDGPEG3TE5?_encoding=UTF8&psc=1
I mean, it seems like getting dust in your eyes is not great regardless of any procedure you have on your eye. Even with a perfectly healthy set of eyes I would think anyone would want to wear some type of dust protection goggle while working in that environment. https://www.amazon.com/DEWALT-DPG82-11-DPG82-11CTR-Concealer-Anti-Fog/dp/B01A12J3GI
Have you used a solution to remove any protein deposits? You might want to try that. ClearCare makes a solution for that - you MUST FOLLOW THE DIRECTIONS CAREFULLY. It comes with a special lens holder that you put the lens and solution in for 6 hours (no less!!) that removes the deposits. I use mine every 2 weeks.
You HAVE to put the lenses into your normal solution after that for 4 hours. I use Unique pH for everyday, Addipak saline for filling and this ClearCare for the buildups. My routine is to have a day without my sclerals and run the ClearCare for the 6 hours, then the Unique pH overnight. Next day they are nice and clear.
My lens guy told me that with care, lenses can last for up to 3 years, but 1-2 is normal after fitting is complete.
I get afternoon/evening fogginess, but that's because I have allergies and I get a bit of mucus in there. Removing them and refilling with fresh saline gets rid of that.
I'm not an expert. No crosslinking or anything, and I'm just at 3 months with mine, but maybe this will help.
You can get plenty of visual information on Youtube, just search for put sclerals in.
I'd recommend you though, get a couple suction cups for your lenses, it'll make it so much easier to put in and take out.
These are the ones I use, if it helps. Good luck!
https://www.amazon.com/dp/B07MFR4W7M/ref=cm_sw_r_cp_apa_glt_fabc_97GDD0Z6ENV2MQV61NFR
Stay positive it’s probs just a matter of time but hey real important tip tho. I’ve been wearing reps for about 5-6 years and just about a year ago I found out that there’s these little things called DMVs they’re like little plungers . trusssssst me invest in some ! I’ve gotten my contacts stuck a lot and these things are life savers ! DMV Ultra Hard Contact Lens Remover (Green, 3 Pack) https://www.amazon.com/dp/B07WGJ792J/ref=cm_sw_r_cp_api_glt_fabc_GPSHTTD1QCAS1FWW3J05?_encoding=UTF8&psc=1
Clearcare (hydrogen peroxide) is the best i.e. most effective disinfection system for lenses, and is especially recommneded for RGP/Scleral lens wearers as we use the same lenses for many, many months and you really, really don't want any fungus/bacterial growth issues and eye infections.
Every month or two weeks give them a deep clean and disinfection with Menicon Progent - soak for the 30mins as it advises
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As Jim3KC says - you should be using Menicon's Progent once a month, or every two weeks if you deposit lots of protein...
Most of the packs of Progent do NOT come with the appropriate basket for your lenses.
This is the to have for it
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Add the two solutions, A & B, and let them really, really deep clean and sterilise your lenses - and do NOT leave for more than 30 minutes. Rinse a lot after use, and I usually do it in the evening so the lenses go in for an overnight Clear Care soak as well.
If you just want good protection and you don't care about fashion, consider Uvex glasses with a gray or brown tint. https://www.amazon.com/gp/product/B016IHF85A/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1
I’m a programmer. My eye doc recommended 1x anti-glare readers. Not because I have KC, but because that’s what he recommends to all his programmer patients. These are my favorite: PROSPEK Reading Computer Glasses... https://www.amazon.com/dp/B07N55D6X8?ref=ppx_pop_mob_ap_share
I use a pair of half moon readers off amazon in 1.25. Being older, my eyes can't do what they used to.
https://www.amazon.com/gp/product/B08PZDF233
I can play video games and many other things without them. But up close I find them very useful. Note, if you are younger you probably don't need these. I didn't use progressive lenses 'til 35. When I went to sclerals, I went to using readers most of the time, which is why I use half moons, I really liked the smarterspecs, but they don't make them in designs I like at 1.5, so that won't work. The half moons do. :)
I use a pair of half moon readers off amazon in 1.25. Being older, my eyes can't do what they used to.
https://www.amazon.com/gp/product/B08PZDF233
I can play video games and many other things without them. But up close I find them very useful. Note, if you are younger you probably don't need these. I didn't use progressive lenses 'til 35. When I went to sclerals, I went to using readers most of the time, which is why I use half moons.
Hiya! Funnily enough, I was just dropping some Oasis Tears preservative free into my eyes right before I opened up your post.
I keep one of the single use vials in my pocket at all times. If you're in the US, read on for where I get mine and how I save a little bit extra off the price.
I buy them, usually in two-packs from Amazon.com. I've also got it setup with Subscribe and Save, where Amazon sends them to me at a fixed interval. I can skip those deliveries when I haven't used enough, but most of the time the timing has worked out.
I always get preservative free & sterile ones! I use the Refresh brand. :)
Refresh Plus Lubricant Eye Drops, 50 Single-Use Containers, 0.01 Fl Oz (0.4mL) Each Sterile https://www.amazon.com/dp/B000052XFC/ref=cm_sw_r_cp_api_fabc_CuDUFb3Z45ANX?psc=1
How much saline are you using? I just checked my Amazon order history and I've ordered 5 of these 12 packs of Saline since April of 2017.
I've never been advised a bottle should only last 2-3 days and there are plenty of reviewers saying they use it for sclerals as well, but I get if you really want to follow your Dr's instructions.
So far as generic advice, if your job offers an FSA, you can use that towards supplies so at least you're getting a bit of a tax break.
I bought a bunch of cheap Chinese versions of this thing without all the fancy crap inside. I got them on Amazon I just can't find them again. I use the small individual saline bottles(pink). I have one in my car,room,desk,backpack and other spots with the scleral lense case,plungers and 1 or 2 bottles of the saline.
Huishang for iWatch Charging Stand, Protective Holder Dock Portable Carrying Travel Charger Cases Accessory for Apple Watch Series 1 2 3 4 38mm 40mm 42mm 44mm Edition https://www.amazon.com/dp/B0798V4GMK/ref=cm_sw_r_cp_apa_i_SjOrCb05TXYTV
I have struggled with this too. I'm surprised this doesn't come up more often, but maybe it's mostly guys/people that don't wear eye makeup that get KC (don't want to be gender normative). Someone on this board recommended the marker/gel eyeliner. I bought this brand from Amazon:
It's relatively waterproof, and you don't have to pull your lid too hard to apply it, so it doesn't disrupt the lens. And then sometimes I wear waterproof "tube" mascara (I like Blinc).
The reality is I am seldom in "full" eye makeup anymore, because if you have to remove and reinsert a scleral lens it's game over. Maybe others on this board have more ideas though.
I use PuriKens with my sclerals. I’m happy with it and it’s preservative free. PuriLens on Amazon
Yes, been using for years, I like the 15ML ones better, I reuse and haven’t had an issue ever. I get them on amazon too and always get prime shipping. These are the ones I get.
ADDIPAK Unit Dose Solutions - 15ml (48 ea / Box) https://www.amazon.com/dp/B00XCQY3IY/ref=cm_sw_r_cp_api_i_lQ4PDbJHMEGXG
I like this mascara off Amazon
Try one of these:
https://play.google.com/store/apps/details?id=com.vvse.sunalarm&hl=en
https://play.google.com/store/apps/details?id=com.alokmandavgane.sunrisesunset&hl=en_US
You didn't specify android/iphone so that's for android.
Either way i don't use any.
Not sure if it's related to the saline solution you use, but you can try a buffered saline solution instead. Buffered solution is less acidic making it for comfortable for the eyes. You can try Purilens or ScleralFil.
Really, there's 2 big branches in the tree: Buffered or unbuffered.
Buffered: Pure Lens, scleral fill etc. These are PH balanced.
Unbuffered: Addipack, and LarcPure.
There's also exotic stuff like celluvic etc.
Day to day I personally use unbuffered solutions. I found they work better for me. Most people find the opposite from what I gather, or don't care. I even went back to PureLens recently for a few days... and man, it wasn't for me.
I'll also admit, I like having a new vial each day at a reasonable price.
As far as cocktails go: If I wanted a 1/2 celluvic fill, there's a drop that does that... Celluvic for me takes a long time to settle... instead of the normal ~15-20m.. it is more like 1-2h. It's a nice feel but there's no real objective benefit, once I'm 3+ hours in for me.
I heard there is something called mini sclerals? Has your doctor or lens fitter mentioned them?
Also, my nephew has dry eyes and keratoconus and these drops have been very helpful:
https://www.amazon.com/gp/product/B00UAPNEQC/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1
https://www.amazon.co.uk/dp/B000FQTK00?ref=ppx_pop_mob_ap_share
https://www.amazon.co.uk/dp/B00ZCLYQXE?ref=ppx_pop_mob_ap_share
This is quite good but removed the handling tint off of one of my lenses, it's basically some kind of bleach I think
For the cleaning I use: https://www.amazon.com/Clear-Care-Hydrogen-peroxide-Cleaning/dp/B0076P12W2/ref=zg_bs_4080861_17?_encoding=UTF8&psc=1&refRID=BPSYEZC26JY8VEKPTWHX
For filling I use: https://www.amazon.com/Teleflex-Addipak-Unit-Solutions-Count/dp/B01DZ0DYOA/ref=mp_s_a_1_5?dchild=1&keywords=scleralfil&qid=1595055590&sprefix=scler&sr=8-5
For dryness I honestly just keep a few of the fill solution at my desk and just open a tube for the day when my eyes are dry and use that same tube to squirt in my eyes.
For inserting, start learning the tripod method. Using the hand opposite of the eye you are inserting into. Use Three fingers together, contact in the fingers, then just insert.
When removing I also just use two fingers and kind of treat my eyes like a see saw. I push up gently on the bottom half of my contact to loosen, then I push down on my contact to pop off. It took me a month to get down. But not I take out my contact in less than 2 seconds.
Hey there!
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I'm a new user as well, been using Scleral Lenses since early June.
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I would recommend switching to Addipak until you get the hang of putting them in, the reason for this is you can get a ton of them for like 15ish bucks on Amazon. There is waaay more solution than you would need for a full day. These seem to be the bread & butter for every day use for me.
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My eyes got to get really cloudy half way through the day. My Optometrist told me this may get better with time and recommended I use a box of These to see if it helps. After a week of use I would say they greatly helped increase my vision quality. For days when I really need my vision to be great I just use 2-3 drops of that, then fill the rest with my Addipak.
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As far as re-using addipaks, I think the professional answer should always be, "Discard immediately after use" But I've personally retained the same pack to do a mid-day cleaning on occasion and I've been fine. I don't recommend doing this though, as I would hate to see my personal ignorance get someone sick. Ha!
I usually keep a spare set of plunger at home and in my backpack at all times. You can look up contact lens travel cases on Amazon. I have limited extreme outdoor activities,better to be cautious than lose $3000 sclerals.
https://www.amazon.com/Complete-Blink-N-Clean-Drops-Fluid-Ounce/dp/B00027441C/
This is what I use. Give it a shot, it usually helps with fogging for me, but then again I confirmed with my doctor that I'm gunking up the outside of my lens, not the inside.
Looking at the Amazon answers it looks like the purple one, the one that I use, is the only one that would help with fogging.
here is what i use to fill mine. price is reasonable, and i use them throughout the day as lubricating drops specially when in front of the computer. reiterating what kc_is_a_pain said. i use clear care, and have no issues with fogging.
Possibly better than nice sunglasses are safety glasses by Uvex with Dark Gray lenses, such as these:
Uvex glasses are economical and their lenses are designed to filter out light as needed to meet safety standards. With fashion sunglasses you are never quite sure what they filter out. Uvex Dark Gray lenses filter out close to 90% of visible light until you get down into the orange and red range. About 70% of the deep red end of the spectrum is filtered out and it drops down to about filtering out about 50% of infrared.
I don't know if infrared contributes to discomfort after CXL. If it does, Uvex Shade 3.0 filters out more than 95% of infrared and 90% of visible light except around green where it filters out about 80%. But these are meant for welding protection and you will barely be able to see with them.
So I've been making sure my hands are super, super dry. I wash them, dry them with a towel and then dry them further with some tissue paper. After that I rub my fingers together to try and make sure they're super dry. I then try to grab around the bottom part of the skirt, below the hard lens, around 5 & 7 o'clock. Yet when I do this, its like my fingers slide and never really get traction on the soft skirt. Am I doing something wrong?
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For removing them I've been using this small RGP lens remover that I have from my RGP days and getting it about half way on the hard lens and half on the skirt. If I slightly wiggle it the lens will pop off. One of the techs in the office I went said I could do this, but I don't want to risk damaging the lens/rip the hard lens out while leaving the soft skirt on my eye. Or is this an ok way to remove these hybrid lenses?
Thanks for the reply and I think I get what you're saying. Are you using a small or larger tool to remove/put them in. For putting them in I use the larger plunger (THIS ) and then to remove them I've been using this Smaller One. So are you using the edge of one of these to help break the suction of the skirt?
If you are in the US you can buy the Systane Ultra in any drugstore as long as they are labeled as the preservative free vials.
Try this
https://www.amazon.com/Systane-Ultra-Lubricant-Drops-0-7-mL/dp/B014PEZR1S/?th=1
The addipaks are the ones listed here all of the time and I've bought the lacri-pure from my eye doctor, apparently they've been hard to come by recently.
Hi, and thank you very much for your reply. It all does make a lot of sense. Sadly I already did the CXL treatment in January 2018 and developed scarring from it. If I only I was dealing with this whole topic as intense as I'm doing it now, I could've prevented huge damage, hopefully it's saveable without a transplant or maybe I'll just wait for stem cell treatment or the promising cornea reshaping eye drops from the university of auckland.
Anyway, my right eye still has almost no sign of Keratoconus and I want to prevent it at all cost.
Do you think a hard pillow is just in general better than a soft pillow? I can't really sleep on my back. And what about a regular sleeping mask like this one https://www.amazon.co.uk/Jasmine-Silk-Filled-Sleeping-Sleep/dp/B001UL3BS6?th=1 , would this already help?
Like everyone said, it's protein build up or dry eyes. My optometrist has suggested adding a drop of artificial tears when putting in the contacts to prevent dry eyes. They also suggested using a contact cleaner every two weeks.
Edit: My source: I have been using a sclera contact for about 7 years. Had no issues with it till I moved to the Northwest. used to just use the boston solution. After following these instructions, I haven't had a single problem. When I went in to get it checked out, my eye was itchy, irritated and light sensitive. In looking at the ey, my Dr. said it almost looked like a chemical burn. That's when I found I had been doing it wrong for years.
PuriLens works great for me for filling my scleral lenses for insertion. Amazon has a year's supply for $40 - https://www.amazon.com/PuriLens-Preservative-Saline-Twelve-Bottles/dp/B000X98XS4
I'm sorry that your eye doctors aren't working with you until your scleral lenses fit comfortably. I've worn scleral lenses for 4 years now and have loved them - they never hurt my eyes like RGP lenses could. My vision doesn't get noticeably worse as the days goes on like they did with RGPs.
Ask your eye doctors if they can check the fit. There are no nerve endings in your sclera so the lenses should not be hurting your eyes.
Full, but, with the insertion tool, it's super easy.
https://www.amazon.com/DMV-Scleral-Large-Contact-Handler/dp/B00S5LQAUU
those are the tools i'm talking about.. it holds the lens securely, allowing you to fill it, then lean your head to insert it vertically.
I highly recommend these. https://www.amazon.com/DMV-Classic-Vented-Contact-Handler/dp/B00S5I08BK/ref=sr_1_15_s_it?s=hpc&ie=UTF8&qid=1508360343&sr=1-15&keywords=dmv+contact+lens+remover Great for removing and inserting so you don't have to worry about dirty hands touching the contacts. I bought a handful of these and have them stashed all over. I stow them in my various bags, car console, dob kits home office desk and work desk with a few modulose 5ml saline bottles. You never know when you'll want to do a refresh of the lenses and having this stuff around in common places is really handy.
Oh yeah definitely still use the plunger! Makes it so much easier, but you want to make sure you loosen up the contacts after they've been on all day, because they stick a lot more than RGPs do. You can also buy some extras on Amazon for a few bucks. I just have one at work home and the car just in case I need to get them out at some point
Are you in the states? After Alcon discontinued Unique PH, the licensing and formula was bought by Menicon and is now sold as Menicon's Unique PH on Amazon (Prime shipping, and competitively priced). If you're in Europe, I think Alcon's Unique PH is now sold under Menicon's MeniCare Plus brand name.
I use:
I actually prefer it to Unisol, the bottles are much better.
seconding everything this guy says, though i use optive preservative free instead of the modudose. and i never leave home without the contact lens inserters, makes it so much easier and hygenic to refresh your lenses with new fluid.
I have no experience with the purilens system, so I can't really speak to that. But I've been in my lenses for about a year now and have just been using the unisol to fill my lenses as my doctor suggested.
Also, make sure you get something to clean your lenses, nightly is preferable. I use this: http://www.amazon.com/Clear-Care-Hydrogen-peroxide-Cleaning/dp/B0076P12W2
This is important for your comfort, the lenses can get kinda gunky and possibly lead to infections if you don't keep them clean, so this is what my doctor suggested as well!
Good luck, hit me up ANY TIME!
I'm ordering some Sensitive Eyes Plus Saline Solution http://www.amazon.com/gp/product/B00EALX660 -Use for rinsing after daily cleaning and before insertion I assume before insertion means 'filling' for insertion. Comments on amazon don't outright state they use for insertion, but several keratoconus posts say they 'use' it, so that buffered my assumption. I've been trying to unisol for weeks now locally, finally remembered to google it and found it's discontinued. Used the stuff for years now.
Go to your pharmacist and get 0.9% inhalation saline that comes in tubes. That's your best bet for a decent price.
They even sell them on amazon: http://www.amazon.com/Modudose-Saline-Solution-Inhalation-5257/dp/B002YRY3HI/ref=sr_1_1?ie=UTF8&qid=1448187055&sr=8-1&keywords=0.9+inhalation+saline
No problem.
Here's a couple of links to the products I use: Boston Advance Cleaner and Boston Advance Conditioner