https://www.amazon.com/Annies-Macaroni-Cheese-Gluten-Cheddar/dp/B017XKOQ5Y
Best I've found, not bad.
What others have said - you have a bunch of lemons, time to learn to make lemonade. I was a real foodie, got diagnosed in my mid-thirties. Used to love going out to eat, had to change that. I bought some cooking books, watched a lot of Alton Brown and youtube, and am now a semi-pro level chef. Instead of going out to eat, I invite people over, and it's awesome.
Celiac sucks, but not as much as you're feeling right now. Omelets, meats, rice-based dishes like Thai and Indian food - they're all naturally GF. You will have to give up fast food and easy carbs like donuts and muffins from shops, but you can totally cook them yourself at home. My daughter (also Celiac, 11yo) has become an amazing baker. She makes banana muffins, brownies... they're all terrific.
Good luck, it's hard at first, but if you let go of the resentment, you'll find that your diet is still amazing. Better than most people in the world!
Kikkoman has a great gluten free soy sauce. In the blue label, Tamari is naturally gluten free. Plenty alternatives. I like the Kikkoman because I can’t tell the difference. I cook with it a lot. Asian, Filipino recipes.
Don't worry too much unless your kid is actually showing signs of malnutrition.
My advice is explore quick-breads as opposed to yeast breads. Quick-breads tolerate a lot of substitutions in terms of the grain since the eggs are doing the heavy lifting https://www.reddit.com/r/Celiac/comments/t3am1n/brown_bread/hys8xoy/
Keep trying with rice... different varieties appeal to different people.
Many kids love sushi rice and rice balls and Hawaiian musubi. True Japanese rice must be soaked thirty minutes to sweeten but a calrose hybrid such as Nishiki or Kokuho Rose doesn't even require rinsing. https://www.amazon.com/Onigiri-Musubi-Maker-Press-Makers/dp/B0B6W46C6Z
Yeah, commercial gluten-free substitute foods can be trash but most kids love tacos, pupusas, enchiladas, quesadillas, empanadas, and pizza sopes.
There are some new imported Italian pastas on Amazon that are indistinguishable from wheat pasta... Rummo and La Molisana. Le Veneziane and Felicetti are not bad either.
There are over 200 symptoms for celiac, including no symptoms. Except for the Gerd, it looks like your list is included in those symptoms. You should check out Dr. Peter Green's book.
I'm so sorry you've been sick. Unfortunately, if we're talking food poisoning, it can take days after eating something to get sick from it. So it might not have been your dinner last night, hence your wife's good health. Here's some info on how long it can take: https://www.mayoclinic.org/diseases-conditions/food-poisoning/symptoms-causes/syc-20356230
It could have also been a short stomach bug (virus).
I know the struggle of wracking your brains for what you might have eaten that possibly had gluten in it. You sound super careful, so I'm betting something other than gluten.
Yes I was doing the same thing freaking out about it because it’s not common in young patients such as you and I ! We cannot fix it, we must do everything in our power to eradicate gluten from our system and never have it come near us. This way our white matter changes won’t worsen. I am also on a paleo lifestyle as well.
Synthetic dyes such as red dye 40 are banned in other first world countries because they cause or worsen hyperactivity disorders in children and also accumulate in our bodily tissues weakening our immune systems. Researchers fed a diet containing some synthetic dyes to dogs and mice after the study, they sadly sacrificed the animals and performed autopsies.
As well as this, vegetable and Canola and soybean oils inflame the body amongst so many other things.
There are so many additives used that cause harm to our health because they are cheaper to use than natural ingredients. In European countries where red dye is banned, McDonald’s and Kellogg’s use strawberries and other natural ingredients to color the food there.
Here is the link to a study detailing the chemical makeup of synthetic dyes and the study with the dogs and mice I discussed earlier (if there is a paywall Dm me and I’ll give you the PDF for free)
This says vomiting past 2 days. And you made no indication it's getting better, so time to go. Note this may not be related to Celiac. https://www.mayoclinic.org/symptoms/nausea/basics/when-to-see-doctor/sym-20050736
Some GF Flours are... but you have to look for them.
In Canada, many of the baking mixes from Duinkerken foods are fortified.
Ilyapa 100 Biodegradable Disposable Dinner Plates - 10 Inch Square Compostable & Microwavable Wheat Straw, Tree Free Plates, Bulk Set https://www.amazon.com/dp/B081NVW1B9/ref=cm_sw_r_cp_api_glt_fabc_CG7MRRW8P4HZR0H01GXB
It can take up to 2 years for your damaged small intestine to be healed after eating gluten for however many years prior to your diagnoses. Be patient. Also I use rosemary oil mixed with olive oil on my hair 2 times a week. Leave it in overnight or for a couple of hours or however long you can, then wash out well.
https://www.healthline.com/health/rosemary-oil-for-hair#bottom-line I got mine on Amazon here :
Cliganic Organic Rosemary Essential Oil, 100% Pure Natural Undiluted, for Aromatherapy | Non-GMO Verified https://www.amazon.com/dp/B07YRRZGXC/ref=cm_sw_r_cp_api_glt_fabc_AH6CJNP1XEC198VSBZE4?_encoding=UTF8&psc=1
Also use rice water. Maybe once a week shown to have good benefits as well. So many YouTube videos in regard to rice water and hair growth.
Zojirushi is awesome! perfect bread everytime. I use the recipes from https://smile.amazon.com/gp/product/1558327967/ and instead of the flour mix they call for I just use a 1 for 1 gf flour and everything's turned out just fine.
It doesn't 'fix' a gluten-ing for me, but it does alleviate the symptoms. When glutened, I get migraines w/nausea, vomiting, etc. and marijuana is the best treatment I've found. Helps with the emotional symptoms, too.
Came across this article about cannabinoid receptors being different in people with celiac, so could be something to it!
I've seen this question before. I'm not aware of any GF round pasta, dry or in a can.
Orgran (an Australian brand) used to sell canned GF spaghetti in tomato sauce in the US. It was pretty horrible, but perhaps your child wouldn't mind. But I can't find it for sale any longer. An old link is here in case it's any help: https://www.amazon.com/Orgran-Canned-Spaghetti-Sauce-Gluten/dp/B00IV6GDS8
Someone posted on here about 45 days ago that they used this mix to make soft pretzels.
Edit: I tried to find the post and I couldn’t find it. Maybe it was posted on the gluten free thread.
When it comes to eating out, the most helpful resource I've found is find me gluten free. It contains reviews of restaurants from both celiacs and non-celiacs.
So I am subscribed to learn for myself as I have a friend who was recently diagnosed but me and my bf both use the gluten free scanner app when we are shopping for her and it definitely makes things easier. That's about all I've got for you though I hope it helps
I have this inexpensive Morphy Richards model.
Definitely worth it for me as I can get flour on prescription where I live in England. I use the recipe from Juvela along with their white or fibre mix.
Two thoughts about this. Basically a lot of celiacs have weak, vaguely unhappy tummies that need a bit of extra care, beyond GF.
Some people don't do well eating raw vegetables. Whether you realize it or not, raw vegetables are not consumed regularly in most of the world. They are full of fermentable carbs that can make you crampy. Many do better eating cooked (not overcooked) or fermented vegetables. I'm one of these people, and by and large, raw vegetables, save the occasional small salad, are not a part of my diet.
Because I met somebody who taught me about this (through his disgusting filthy habits lol), I'll post it here. If you are eating old, unwashed and improperly stored raw vegetables, and particularly if you are eating those prepped, bagged vegetables and salads, you are possibly giving yourself mild food poisoning from mold and bacteria. You need to wash that stuff, and, throw away old vegetables.
You are not wrong. I'm specifically referring to the cheap stuff. Driller's mud, which is pretty much bentonite along with a bunch of additives, is the cheap and nasty stuff, and the base clay can have all manner of extra stuff along with it, because its not worth refining out. To the point that over time the safety rules on it have become very strict. [link] https://www.webmd.com/skin-problems-and-treatments/news/20160129/fda-warns-of-lead-poisoning-risk-from-cosmetic-clay [/link] This was 3rd on the list on my fast search. So all I'm saying is not all bentonite is created equal, and care should be taken. To use your example, the right amount of sodium chloride will make your cells function, too much will kill them.
As to the claims on the best bentonite website.... I highly doubt that anyone who lived in the US from the mid 70s through until now (so maybe that author was born after 1990?) would have no lead in their system. Anyone who lived then would have been exposed to airborne lead from leaded gasoline. Now, maybe all that lead is in their bones, not free and causing little harm. And to be honest to most adults lead is really not that big of a deal, even free lead is pretty hard to incorporate into the body. But we are also talking in really broad strokes here, and I can see a well meaning person trying to help their sick kid. So unless I hear from a chemist that there is no risk, why would I accept unnecessary risk? Please don't take this as a critique of you, I'm sure you are a great and well meaning person. I will however only trust the unregulated seller of a product as far as I can throw them. And when they make unverifiable claims, I find it troubling.
Yeah. It's difficult but fresh fruit, vegetables, meat, eggs, and dairy is the way to go IMO.
I bake my own bread or make arepas with masa harina. You can just mix masa with water for tortillas, tamales, arepas, gorditas, sopes, and waffles... with egg you can make pancakes and crepes. Maseca masa harina is at Walmart and most supermarkets in the US and it is gluten-free.
Then there are alternatives like gimbap and musubi and Vietnamese fresh rolls. Potatoes are a very nutrional carb and you can top them with stuff like pizza fixings or General Tso.
I got this book online from the library https://www.amazon.com/Sandwiches-Without-Bread-Low-Carb-Gluten-Free-ebook/dp/B077Q3LRJC
Endoscopies don't reach very far into the small intestine, possibly just the duodenum, though I'm not sure about that. My doctor ended up ordering a capsule endoscopy after a regular endoscopy showed no damage but my TTG and EMA levels remained high. The capsule showed damage further into the small intestine than was visible during the endoscopy.
Sure there are tons of such recipes. Just eating a GF bread such as Udi's, Ener-G, or whichever will put you in reach of many whole grains, primarily brown rice.
But if you're worried about nutrition, I say, don't guess, use something like https://cronometer.com/ and calculate it.
Edit: Wanted to mention that what I did before going was create a "mymaps.google.com" after researching through findmegluten free, yelp, YouTube, and blogs -- I created a map of areas around my AirBnB and tourist destinations. In my Google Maps app I could then view the map and review plans or make adjustments, or find alternates if something went wrong (unexpected restaurant closure etc.)
I was there last summer, here's some of the places I ate:
- Beyond Bread, GF bakery in Fitzrovia - this was close to our AirBnB - it became a go-to for breakfast especially, and lunch sometimes too
- Niche, dedicated GF dining, Clerkenwell - Excellent, small place, I made a reservation before I arrived in London
- Leggero, Soho - Italian cuisine - really enjoyed, and found out that Peroni has a GF beer :) I made a reservation though it wasn't too busy at the time.
- Farmstand, Covent Garden -- was OK for breakfast
- Romeo's/Artisan Bakery, Islington - I had both of these marked on my map, I can't remember which I went to. This is OK for a coffee and something sweet, I didn't care for the savory choices as much.
- Dishoom - various locations, Indian cuisine, give it a go!
- Wagamama - chain noodle restaurant. This is a popular chain and they are good about GF prep, usually manager will assist - I though this went well. We ate at the location by Tower of London.
- Indigo at One Aldwych, this is a hotel restaurant, had a good breakfast here
- LEON -- this is fast service that has some GF options, however my son (who also has celiac) and I felt a bit weird after eating here, and I would skip next time.
Nando's was mentioned - we ate there while visiting friends in Leicester, and it went well
Aobosi induction Hob, Portable Induction Cooktop With 9 Power Levels and 10 Temperature Ranges With Black Crystal Glass Surface LCD Sensor Touch 3-Hour Timer 1800W Max https://www.amazon.com/dp/B09536DNBS/ref=cm_sw_r_cp_api_glt_fabc_6WXR9Y2VWVRPBZNWCQ6P?_encoding=UTF8&psc=1
It’s induction so I also had to buy a special pan.
How to Make Anything Gluten Free has the best carrot cake I've ever eaten, GF or not.
The author has a new cookbook coming in the autumn that is dedicated to baking.
I'm a veggie and celiac too! I roast a lot of veggies on Sunday and reheat them throughout the week. I don't mind plain steamed broccoli and cauliflower. I buy frozen bags and just put them in the microwave when I get home. Do you have a Mexican restaurant near you? The restaurants near me mostly use corn based products. I agree with other posters here. Amy's frozen dinners are a life saver and omelets for dinner are great. It's an adjustment but I learned to love cooking for myself. I found it to be really stressful ordering out and waiting to get sick. PM me if you want! I'm happy to talk about my experiences.
I found this book to be really helpful.
The Complete Vegetarian Cookbook: A Fresh Guide to Eating Well With 700 Foolproof Recipes
I love this book. It helped me navigate how to make really great breads and other treats with minimal fuss or new equipment. I did splurge on a pizza peel :)
https://www.amazon.com/Gluten-Free-Artisan-Bread-Five-Minutes/dp/1250018315
I also found this lunch box/bag. I am starting grad school in the fall and will have very long days and there are not gluten free options that work with my other allergies on my side if campus, so I am also really eager to find a good lunchbox lol https://www.amazon.com/dp/B08GPSQRRM/ref=cm_sw_r_cp_awdb_imm_3RK792E2R7ZQ1DCHT9PW?_encoding=UTF8&psc=1
https://www.amazon.com/BFree-Gluten-Stone-Baked-Bread-Ounce/dp/B07CMB5T45
I've seen these in grocery stores before. I forget how much they cost but I remember it being enough that I was only going to buy it once out of curiosity.
I use this tool to chop my vegetables, it really speeds up the process.
One strategy is buy a $20 Dash mini rice cooker. The instruction booklet has good recipes for some one-pot meals.
Easiest thing to do is throw some diced pre-cooked meat and some frozen vegetables in with the rice and water and add a soup cube and some sort of spice mix like Italian, Mexican, Thai, etc. You can also do things like that but add gf chicken nuggets or something and a bottled sauce like VH General Tso on the rice when it is done. All the same goes-for using wide Asian rice noodles instead of rice or even a smashed open microwave “baked” potato.
You might like this book for five minute deserts https://www.amazon.com/Gluten-Free-Five-Minutes-Recipes-Muffins-ebook/dp/B0053GPT9S
There are! I live in the US, and was able to order a small case of them from Amazon. I actually prefer them to regular.
ETA link - Oreo Double Stuf Gluten Free Sandwich Cookies 14.03, Chocolate, 12 Count https://www.amazon.com/dp/B08QC2G29V/ref=cm_sw_r_cp_api_glt_fabc_ZWNQJBF4DPV35JC72S6C?_encoding=UTF8&psc=1
This one is helpful:
The Gluten Free Scanner - Celiac healthy diet - Apps on Google Play
It's not perfect, and some products may not be on there but overall it's a good tool to use.
I saw someone post their pizza made with Caputos GF flour and it looked so good I had to try it. It’s the first actually good GF pizza crust I’ve tried. Bought on Amazon and I used the recipe from the bag.
Antimo Caputo Gluten Free Pizza Flour 2.2lb - All Natural Multi Purpose Flour & Starch Blend for Baking Pizza, Bread, & Pasta https://smile.amazon.com/dp/B00FXH8QFQ/ref=cm_sw_r_cp_api_glc_fabc_Cd7bGb5QG44X5?_encoding=UTF8&psc=1
I use King Arthur mesure for measure for all my GF flour needs: King Arthur Flour, Measure for Measure Flour, Certified Gluten-Free, Non-GMO Project Verified, Certified Kosher, 3 Pounds (Packaging May Vary) https://www.amazon.com/dp/B01JJ9H1Q8/ref=cm_sw_r_cp_api_glc_fabc_OjH.FbPZTC24P
We use this brand of flour for pizza dough.
https://www.amazon.com/dp/B00FXH8QFQ/ref=cm_sw_r_cp_apa_fabc_7A56FbCPKQ1BX?_encoding=UTF8&psc=1
As for recipe, we use
My husband purchased it on Amazon. I hope the link works... if not try “yings batter mix”
Ying's Light and Crispy Gluten-Free Batter Mix https://www.amazon.com/dp/B06XBJP57R/ref=cm_sw_r_cp_api_fabt1_BuVRFbBTN9STK
Omg, I have Celiac and react to bromelain too!! My mouth itches more than anything with that! I hate that it's in like EVERY commercial seasoning mix.
I will say, my husband's family loves Montgomery Inn Barbecue Sauce (the one in the link, the first result on Google has malt vinegar in it), and I have really started liking it too!
15 EUR here and you can get them from Amazon (pharmacies as well).
Florida crystals sugar is processed in a GF facility. I’ve not been able to find a certified GF sugar that isn’t giant crystals.
Essential Living Foods cacao powder is certified GF.
I'm Free Baking Powder is certified GF.
I’ve just been using arm and hammer baking soda for cleaning and making deodorant but can’t remember the last time I saw it called for in a recipe so I haven’t vetted it for food. I do buy it in a bag from the hardware store so it isn’t dusted with flour on the outside.
Sounds like you've never had real vegan cheese, just that modified food starch plus oil cheese product fake stuff.
Miyoko's is the shit. Btw, she wrote a whole book about making your own cheese with cashews and stuff.
https://www.amazon.com/Artisan-Vegan-Cheese-Miyoko-Schinner/dp/1570672830
You need to bone up my friend, sounds like you're doc is clueless.
There's a really good book out by Dr. Peter Green called.Celiac Disease: a Hidden Epidemic that would be useful. Easy to read and very clear.
There are several reviews at Amazon by people with celiac disease about ginger TummyDrops helping with gluten contamination symptoms. They were developed by a gastroenterologist. I'm trying them for chronic gastritis that hasn't responded to a GF diet since I was diagnosed with celiac disease 1-1/2 yrs ago.
http://www.amazon.com/Tummydrops-Ginger-individually-wrapped-drops/dp/B004BH15K2/
Non-mobile: http://www.amazon.com/dp/B004PUIIDW/ref=pd_aw_sim_hpc_4?refRID=1QT4DAHJ5DGXH4DRMZEW
^That's ^why ^I'm ^here, ^I ^don't ^judge ^you. ^PM ^/u/xl0 ^if ^I'm ^causing ^any ^trouble. ^WUT?
I found you a cookbook! The Complete Guide to Naturally Gluten-Free Foods: Your Starter Manual to Going G-Free the Easy, No-Fuss Way-Includes 100 Simply Delicious Recipes! by Olivia Dupin. I didn't see any flour mixes or pasta recipes!
I've found that I have to go searching for other non-American cuisines to find recipes that aren't in the "gluten free chocolate chip cappucino mufffins" genre. For instance, polenta dishes from Italy, millet and buckwheat dishes from the middle east, stews with potatoes (thickened with non-wheat flours, which I find I actually like better than wheat based gravies). For sweets, go to India for rice puddings (Kheer) and milk-based sweets. There are a lot of sweet cornbread recipes using no wheat flour (my favorite uses stiffly beaten egg whites to make a fluffy sweet corn cake, I can't find it online right now).
These? https://www.amazon.com/gp/product/B07QGLJDWW/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1
They are rice but very starchy (if that's the right word??). Definitely a different texture than your standard rice noodle.
I have a shared kitchen, and share all of those things you listed. The two things we don't share though is a pan (there's a dedicated "gluten pan" which I never touch) and I use toaster bags because the toaster is obviously just a nightmare for CC and not easily cleaned. None of my blood tests have shown any evidence I'm getting glutened.
I highly recommend reading these books to gain a firm understand of Celiac disease.
https://www.amazon.com/Gluten-Freedom-audiobook/dp/B07G3DDSL5/
https://www.amazon.com/Celiac-Disease-Updated-4th-Epidemic/dp/0063034859
Idk about freezing, but I’ve taken a full week to eat a loaf and it’s been fine. I do use bag clips (like these ) and am diligent about keeping out excess air.
In case you're interested, these are the ice cube trays I use. I found that at the local dollar store, for like 4.50... The thieves on amazon want 34 dollars.
The interior of the bread pan is usually coated in some sort of nonstick, so you can't really aggressively scrub it without ruining that coating. There's a drive shaft that sticks up through the bottom of the pan, and then the mixer paddle goes on that drive shaft, so there's some bits in there that are a bit hard to clean. Not saying it is impossible, but it isn't as straightforward as cleaning a pot/pan.
Just as a note, this is the bread machine that I've got.
Could be B12 deficiency, too. It's severely under-diagnosed because the test and range they use for normal both suck. Check out www.logicalneuro.com for what B12 problems can do.
If you can afford it, you should get this book, it's only $10 at B&N. http://www.barnesandnoble.com/p/could-it-be-b12-sally-m-pacholok/1100478314/2681665171304?st=PLA&sid=BNB_DRS_Marketplace+Shopping+Paperbackshopus_00000000&2sid=Google_&sourceId=PLGoP23118&k_clickid=3x23118
my dietician recommended gin gin candies! she said all her patients swear by them!
FYI... the Kirkland brand (I get it off Amazon) is gluten free. I was shocked by the Walmart one as well.
https://smile.amazon.com/gp/product/B000OTAJTO/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1
Sorry I missed your question until now. This is the fridge I have. https://www.amazon.com/Dometic-25-Liter-Portable-Refrigerator-Freezer/dp/B095KZSQWC/
It is a bit pricey. There are cheaper ones out there.
This was the one we got. It looks like it's on sale right now. It does everything I need it to, and works well. It's a little annoying to clean but I'm pretty sure they all are to some extent. Genuinely recommend it!
You can MAKE chicken tenders. Buy chicken breasts, cut them into tender shapes. Use cornstarch to coat, then egg, then GF panko bread crumbs (found here: https://www.amazon.com/Kikkoman-Panko-Slyte-Coating-Gluten/dp/B076146QWN/ref=sr_1_5?keywords=gluten+free+panko+bread+crumbs&qid=1666270128&qu=eyJxc2MiOiI0LjQzIiwicXNhIjoiNC4wNCIsInFzcCI6IjQuMTAifQ%3D%3D&sprefix=gluten+free+panko%2Caps%2C83&sr=8-5) then back in the egg, then a second coat of panko, instead of flour.
If you don't want to use the panko, just do the dredging with cornstarch/potato starch (3:1, so like, 3/4c cornstarch to 1/4 potato starch), coat in flour, into egg, back into flour, let sit for 15 minutes to help it all stick, and toss in the oil... fry at 350F, for about 7-10 minutes.
Remember to season your flour with salt, white pepper, onion powder, and paprika, at minimum. (You can add more seasoning if you like).
You can EAT FIVE GUYS... You can get the burger, and the fries, tell them no bun. Put it on a GF bun at your table.
People who sincerely suffer with celiac disease are people who haven't yet had the time to research and learn to cook for themselves.
There is literally nothing made with gluten I can't do a substitute for. And not just like, ''Oh this is good, for gluten free, I guess'', but just plain THIS IS AMAZING AND I CAN'T TELL THE DIFFERENCE.
Assi brand Gochugaru is labeled as gluten free. Hasn't seemed to set off celiacs in the family, but don't know a lot about the company. We get it at our local Asian market.
Here's what one looks like on amazon (I know they have different spiciness levels)
https://www.amazon.com/Hot-Pepper-Powder-16oz-Coarse/dp/B00RH8E72A
And in the UK - or at least they were recently.
Heinz doesn't have a regular baked bean product in the US, certainly nothing like those in the UK/CAN. Occasionally I'll see this product pop up:https://www.amazon.com/Heinz-Vegetarian-Beans-Cans-Pack/dp/B009K1PPKK
It's not the American usual. It is slightly less sweet than typical US baked beans, but still sweeter than the UK version. They are spiced in a traditional New England manner, which is to say, warm spices, borderline pumpkin spice, but not that strong.
The US vegetarian product must be made for some particular niche market, but I don't know what it is. I see it turn up occasionally in a store, then disappear.
Something I haven't been able to find in the US at all since covid is Heinz Curry Beanz. The import stores don't have them these days.
By the way, if you want full sized GF lasagna noodles, you can buy these: https://www.amazon.ca/Rizopia-Brown-Rice-Gluten-Lasagne/dp/B00I47OGCY
They're also actually really good. I linked you to Canadian amazon, because I'm in Canada, but I'm sure you could find them in the US as well.
Probably not anything to be super worried about.m, there’s crazy weird info about every food we eat. Did you know banana are high in radiation? I’m from a place that eats rice 3 meals a day with rice for snacks. We are aware that rice NATURALLY contains more arsenic than other grains as it grows in water and absorbs more. What we are recommended to do is wash the rice several times and soak over night before cooking. Also brown rice contains more arsenic than white as the hull is left on. http://www.consumerreports.org/cro/magazine/2015/01/how-much-arsenic-is-in-your-rice/index.htm
Yes, they will stop if you stay gluten free. I’ve been gluten free for about eight years now and can’t remember the last time I had a canker sore. I used to get them (multiple) monthly!
One thing that helped me a lot was to start taking L, Lysine supplements. You can find it in the vitamin section of the pharmacy and need to take them daily. You won’t see improvement for at least one month but , this helped in that the sores were fewer, smaller, and healed faster.
Also Kanka was a great product to use on the sores as it deadened the pain and helped to heal them (be warmed it stings like a bitch when you first put it on). Some of the products out there will help with the pain but, actual make it take longer to heal.
I think some folks here are confusing canker sores and cold sores. Cold sores are caused by the Herpes virus. Canker sores can have multiple different causes one of which is celiac. (Source mayoclinic.org)
I got this book for my son and tbh it was very lack luster and we barely made it through but it was still cool to see celiac being represented.
Here’s another children’s book I found that represents celiac.
Amazon link for those of us in the USA. I'm sorry in advance about the price
If your church doesn't have any, you can buy gluten-free individually wrapped communion wafers on Amazon here (and ask the priest or pastor if they'll bless it): https://www.amazon.com/Gluten-Free-Communion-Wafer-Box/dp/B01LZW2W81
although it has a disclaimer that not for use in the catholic church? Not sure what that's about. Best of luck to you!
I use liquid Benadryl when I need something quick to relieve my hives when pills take too long. I found this liquid Benadryl on Amazon that is gluten free and I’ve never had an issue when taking it. Also, I do know the pill form of Kirkland’s Benadryl is gluten free so they may have a children’s chewable.
I have made microwave GF mac & cheese in a big mug by microwaving equal parts pasta and water then adding "KD Shaker" which is the GF orange powder from boxed mac & cheese sold in a jar on Amazon and some coffee creamer.
https://www.amazon.ca/Original-KD-Shaker-Sali%C3%A8re-Fromage/dp/B07H1PM3Q5
You can make a mason jar lunch with Asian rice vermicelli or glass noodles, GF soup powder, dehydrated vegetables, TVP or jerky, and seasoning like ground ginger and pepper. For a creamy Asian soup add some powdered coconut milk or coffee whitener powder. That is for just add hot water but you can use a wider Thai rice noodle if you can boil it in the microwave for six minutes.
Also bringing phō in a soup thermos is an option.
ugh that sucks dude. I've taken to just cooking everywhere I go at least once a day at the hotel (dinner usually, and then I make a lunch portion for the next day at the same time.) , I bring this https://www.amazon.com/GAU-80305-Electric-Single-Burner-1100-Watts/dp/B005T0SN0K/ref=sr_1_4?keywords=burners+for+cooking&qid=1661275618&sprefix=burner%2Caps%2C255&sr=8-4 , a pot and a pan, a spatula/turner, a spice kit, thin cutting board, utensils and paper plates. I hit up grocery stores and pick up proteins and salad stuff or rice. Sausages that come pre cooked like Adele's you can also just microwave, I've taken to having some on hand in a cooler bag for lunches when I'm traveling. It ends up taking about a carry-on bag's worth of space depending on the pot/pan (you can get real small ones if it's just you), and perhaps 30 minutes of my time cooking but it's worth it imo. I may upgrade my burner to something that heats up faster in the near future but so far this has been working for me. If you arent doing hotels there are car adapters for burners, I've used them in the past and they were good. It's not as easy as your pre celiac existence but it's easier than having symptoms and resultant medical issues.
I have been in complete remission since late 2016, thanks to Iberogast. My list of other comorbidities is way too long to list.
You can do this! There is so much other good food, plus gluten-free versions of most things. There's plenty of gluten-free beers (avoid gluten-reduced) and I also drink hard cider and wine. Glutenberg beers are good. Gluten-free cauliflower crust pizzas are all over the place. There's one in my freezer. You can get boxed GF mac and cheese.
I also love naturally gluten-free foods like most Mexican food, Indian curries and rice, even steak and a baked potato are gluten-free. Pamela's brownie mix is really good and easy to make.
Gluten free artisan bread in 5 minutes a day is amazing if you bake. I've made the basic bread recipe for friends who eat normally and they love it. You could totally make it into garlic bread.
>I’m curious to here from other parents of kids with CD. Did your child improve on growth, health and all around mood after they started a GF diet.
This book by Dr. Rodney Ford is packed with stories from parents about how their kids improved after starting a GF diet. Don't be put off by the quirky title and cover — the contents are excellent!
Cutting out dairy (not just lactose) 100% was a wonderful decision for me. I lost about 5 pounds of water weight in about a week and my energy and mood improved immensely. Anecdotally, it seems that this is case for others as well. The Gluten Free RN, Nadine Grzeskowiak, describes needing to go dairy-free in her memoir Dough Nation. Jennifer Esposito shares a similar experience in her memoir Jennifer's Way: My Journey with Celiac Disease.
I’m so sorry about how getting your diagnosis was managed by the GI doctor, I don’t blame you for being scared and confused! I had a similar diagnosis story (24, bad nausea, GP referred to GI, super high antibodies, super unexpected diagnosis). Dieticians can be great, but also proceed with caution. I want to one my first week and it made me feel so overwhelmed and scared, and like I’d have to live under a rock for the rest of my life. If you can, find someone who specializes in celiac or other autoimmune diseases — the second one I saw has celiac and was a much better experience! What helped me a ton was reading the book “Celiac: A Hidden Epidemic”, and joining this sub. You’re going to be ok, but it’s a huge adjustment. Let yourself mourn and ask for support!
Frozen fries are really dangerous for CC but my air fryer makes great french fries from fresh or even canned potatoes.
I have a slicer so it is just as fast as using frozen fries. https://www.amazon.ca/Starfrit-092123-006-0000-Fries-Cutter-Green/dp/B07235TP5M
Sometimes I bring a collapsible travel kettle like this one:
https://www.amazon.com/Foldable-Electric-Collapsible-Silicone-Voltage(600ml/dp/B07YRT7WJ9
It’s great for cooking noodles and other dehydrated meals, especially when I don’t have access to a fridge or microwave. Plus I can make my own coffee or tea.
I was using Body Fortress which in hindsight is probably garbage. I probably saw it at the store once and then kept purchasing due it being available everywhere (and cheap!). I ended up ordering the smaller size of this one to try. Looks like it's pretty clean and unadulterated, and apparently undenatured. Should be here today so I'll report back my initial thoughts. I'll probably try a few of the other recommendations posted, but was kind of surprised at the myriad of ingredients in a lot of these products. Thanks for the recommendations!
I'm not a doctor but I really don't like that megadose method of supplementing Vitamin D. I'd also be curious why you've been prescribed D2 instead of D3.
I take Vitamin D3 daily and have demonstrated via repeated blood test that it's effective. I like this brand but I'm sure there are many others that also work great. You might want to talk to your doctor about spreading that 50,000 IU dose over a week using over-the-counter supplements. I wonder if it might reduce the side effects you appear to be experiencing.
I get all the calcium I need from fortified almond milk — I can’t have dairy. Are you able to drinks significant amounts? Most nondairy milks are fortified with more than what dairy milk has.
It seems like the only liquid iron i see online has wheat germ in it. Does it have to be liquid? Or can you get an infusion?
So, I have no idea if this prevents damage, but I use two of their other products for fiber/fat/lactose digestion, and I just found this: https://www.amazon.com/Enzymedica-GlutenEase-Strength-Complete-Digestive/dp/B00HLXPV30
It does help with getting glutened. I would def not on purpose eat gluten and then take this. I wanted to put it here since it helps me a bit!
I’m not sure if you can order from the US Amazon site, but if you can, they have a donut sampler: https://www.amazon.com/Katz-Gluten-Free-Powdered-Cinnamon/dp/B00NZIDK56/ref=mp_s_a_1_5?crid=1K2ZADYNZGP3C&keywords=katz+gluten+free+products&qid=1654688459&sprefix=katz%2Caps%2C87&sr=8-5
I am looking at this one but there are a ton of them on Amazon DASH Wonderful Mini Waffles Recipe Book with Gluten, Vegan, Paleo, Dairy + Nut Free Options, Over 80+ Easy to Follow Guides, Cookbook https://www.amazon.com/dp/B07Z9Z9BVX/ref=cm_sw_r_apan_i_ZM1C73JPSPTCA9WH00YV
Theres a good book called Bagels buddy and me. I used it to explain to my son what celiac was and how daddy is sometimes sick.
https://www.amazon.com/Bagels-gluten-intolerance-Celiac-Disease/dp/0979770300
Theres a good book called Bagels buddy and me. I used it to explain to my son what celiac was and how daddy is sometimes sick.
https://www.amazon.com/Bagels-gluten-intolerance-Celiac-Disease/dp/0979770300
+1 on the camping cookware. I have used this MSR set, which is easily scrubbed out (pack a sponge) and packs small.
I've also thought about buying one of these Dash mini makers. I have seen other posts on this subreddit about them.
I would definitely check out Instant Pot recipes. For example, you could make beef stew with carrots and potatoes (and gluten-free beef broth). Super fast and easy and freezes great. I would also look at some paleo cookbooks, especially ones for or by athletes. The Well-Fed series comes to mind (here is the first one).
Posted above but will repost. https://www.amazon.com/Pacific-Foods-Organic-Mushroom-Condensed/dp/B08BKRKSBY/ref=sr_1_2?crid=1H8AG4L1G6HIZ&keywords=pacific+foods+mushroom+bisque&qid=1653984155&rdc=1&sprefix=%2Caps%2C81&sr=8-2
Also available at Stop and Shop/Giant.
I wonder if this stuff is legit https://www.amazon.com/dp/B00IWQKDU6/ref=redir_mobile_desktop?_encoding=UTF8&dpID=51Wq6ctWfXL&dpPl=1&keywords=gf+harvest&qid=1549299792&ref=plSrch&ref_=mp_s_a_1_5_a_it&sr=8-5&th=1
It's 3.52 a pound, but I'm leery of buying from Amazon because it's common for fake products to be sold there.
if buying a new toaster is out of the question, i recommend buying some toaster pouches (not totally sure what to call them lol). her gluten free bread can go in the pouches to avoid contact with gluten. i’d still be weary to clean the toaster and the surrounding area from crumbs often, but in a pinch, these have worked for me.
Non-Stick Heat Resistant Toaster Bags,Three Different Size Gluten Free Toaster Bags for Pizza Slices Chicken Nuggets Fish Vegetables Panini & Garlic Toast https://www.amazon.ca/dp/B08R1FYJ36/ref=cm_sw_r_cp_api_i_AERV1DVK9DHKHY74GFCP?_encoding=UTF8&psc=1
A number of people have mentioned RA here -- OP, I saw that you mentioned you've tested negative. On the chance that you somehow do have it, you might find the book The Keystone Approach interesting. Coincidentally, the author, Rebecca Fett, is also Australian. The book is heavily footnoted and references a giant stack of studies published in peer-reviewed scientific journals.
i was worried about this too but it has not been an issue!
i feel like framing it as an exciting thing to try new brands, kinds of grains, restaurants recipes, etc. has helped
i also love to cook and bake and that's really helpful because i'm used to making my own food, which means you'll get safer + better quality than in a store or restaurant.
having a totally gf kitchen reduced stress because i don't have to read labels or think about it if i want to grab a snack—it's all okay. initially i had to replace my wooden spoons, rolling pins, and scratched nonsticks. that was the sad part but now i have new stuff and it's fine. honestly i stopped spending much time reading labels at the grocery store after a few weeks. i buy whole foods like produce, milk, yogurt, eggs, etc or things which are obviously marked "gluten-free".
How Can It Be Gluten-Free, Vitacost, Find Me Gluten Free, Jovial, GF Oreos, and Glutino pretzels have been really clutch
if you buy this flour and make this recipe, you will have a delicious bread that truly tastes + feels like regular gluten bread.
Nutella or peanut butter on a spoon at home. Out of the house: AFAIK most glucotabs and gels are GF but juice is still an option and most canned liquid meal replacements are GF. Many celiacs eat GF granola bars (I make my own) and you can also buy or make oat-free GF bars. Snicker’s candy bars and several others (3 Musketeers, CrispyCrunch, Hershey’s, M&Ms) are generally considered to be safe and most plain chocolate milk in cartons. You can carry a cheat sheet for GF candies based on a list like this https://celiac.org/gluten-free-living/gluten-free-foods/gluten-free-candy-list/ to present to a store clerk if you are having cognitive issues. I have found clerks will give you candy or juice first and settle up payment after if you say what’s going on… esp. if you wear a MedAlert bracelet. Most sesame crisps are labeled GF and I bulk order those https://www.amazon.ca/Nutro-Gusto-Original-Sesame-24-pack/dp/B01809UNMC My partner of many years had T1D and was GF so as not to cross-contaminate me.
I got the phone call and immediately went gluten-free. I knew I was getting tested and it was a real possibility, so I had been preparing.
If you only eat processed wheat stuff, you'll be fine. It will cost a lot more, but you can eat that way gluten-free. As other people said, cooking some stuff for yourself is best, both for safety and cost! Frozen gf waffles are easily found and honestly all the gf pasta I've had (except Banza) has been great. Look for the corn, rice, or quinoa kinds—lentil gets mushy.
It depends how bad the damage was for you to start feeling effects. I noticed some changes within the first few weeks but my bowel movements didn't get normal for months.
Get rid of all the gluten-food you have around, so it's not even an option. It's not something to "cheat" on; there are all kinds of irreversibly bad things that happen to your body if you don't go strictly gluten-free.
If you like to cook or bake at all, I recommend How Can It Be Gluten-Free.
Don’t know about Adelaide but https://www.usatoday.com/story/money/2019/04/18/gluten-found-in-restaurant-food-labeled-gluten-free-study/3451134002/
Good, make ahead and bring with lunches are Spam or tofu musubi and uncut gimbap roll.
These tools make them easy https://www.amazon.com.au/Sushi-Non-Stick-Musubi-Making-Triangle/dp/B09KLSX1YJ and
Little Northern Bakehouse is the BEST. Actually tastes like bread. Everything I try of theirs is amazing, I ate a whole package of their everything bagels this weekend. Hamburger buns and white side slice (think regular sized bread slices instead of the usual small gluten free loaves).
Also Nature’s Bakery makes great gluten free breakfast bars, similar to Nutrigrain bars but better.
And over Easter, I found incredible dinner rolls on Amazon because I was just too exhausted to bake anything more. I ended up ordering more because they were so good and I didn’t realize how much I missed the small pleasure of a good dinner roll. Here’s the link:
New Grains Gluten Free Dinner Rolls
Feel free to message me too, I feel like we’ve been on a crusade the last year and a half to find the best gluten free stuff out there since finding out my daughter (now 4) is Celiac. I’m always happy to share good finds!!
Good luck to you!!
This book has some of the best bread recipes so far. https://www.amazon.com/gp/product/1558327967/ My go-to is their basic sandwich bread and I use a 1 for 1 gf flour and everything turns out fine.
I also splurged and went for a Zojirushi machine but that shouldn't make much of a difference.
If this is someone you'll have over again, maybe buy a set of those thin plastic cutting surfaces (like these) and make one of the dedicated GF.
Also, you are such a kind and thoughtful friend!
I also found this one on Amazon. It also has a gluten free setting