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/r/diabetes_t1's
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From 3.5 billion Reddit comments
The most popular Products mentioned in /r/diabetes_t1:
![Skin-Tac Liquid Adhesive Barrier [Skin TAC ADH 4 OZ] (EA-1)](https://m.media-amazon.com/images/I/51nyE6q7X8L._SL500_.jpg)
The most popular Services mentioned in /r/diabetes_t1:
Cronometer
Mayo Clinic
Talk to a Doctor
SemanticScholar
FatSecret
Healthcare.gov
Airtable
Amazon Drive
Omni Calculator
Brilliant.org
The most popular Android Apps mentioned in /r/diabetes_t1:
Diabetes:M
LibreLink
Dexcom Follow
Event Logger
mySugr: the blood sugar tracker made just for you
The most popular reviews in /r/diabetes_t1:
They have insulin protective cases. They are the best thing ever. Insulin Vial Protective Case by VIAL SAFE - Fits All 10mL Brands (2-Pack) - Never Risk Breaking Your Insulin Vial (2 Short) https://www.amazon.com/dp/B07HGK7Q86/ref=cm_sw_r_cp_api_i_KOiRDbA4CW2CV
So this has nothing to do with the keto diet. That’s why it was so frustrating that all the advice I could find was about that. When you have diabetes and you get sick or have really high blood sugar, you get ketones in your urine. It’s basically your body doesn’t have the insulin to break down sugars so it turns into ketones and makes you sooo sick. The real danger is going into diabetic ketoacidosis or DKA which requires emergency care and can lead to a coma. Hope that’s helps! And be thankful that you haven’t experienced it. If you have type 1 diabetes you should always have ketone strips around just in case.
In my somewhat dark sense of humor, I love this sort of thing. It’s a Smug Wonka meme.
>You’re having trouble counting calories as an adult?
>Let me tell you about 9 year olds that can plot the effective half life of medication close enough to precisely neutralize a slice of pizzas carbs.
If you want to help them, introduce them to Fermi Estimates, it’s basically a way to use landmark things you remember to to do estimates.
I realized I do this for carbs CONSTANTLY a few years back. It’s surprisingly good so long as you have good landmarks/reference points.
Not everyone can guess “how sweet an orange is compared to a slice of bread” or figure out how to pull out other comparable points to go against.
Fun fact: Fermi was so good at doing this, he was able to estimate the force of the first nuclear blast within 40% of its end value... using paper... that he was tearing into pieces and watching fall to the ground.... as the blast went off. He straight up was using litter to guess at the force of THE FIRST nuclear blast and was within 40%. That means he had no good and clear frame of reference, he was effectively making it up off the numbers.
It’s insane
Frio bags are the normal go to thing. Super easy to use, just put in cold water for a bit, let them dry and put your pen inside. They don't drip water everywhere in use in case that's what you're wondering!
https://www.frioinsulincoolingcase.com/
You can go further with Dison cooler flasks but not normally necessary.
https://www.amazon.com/Insulin-Cooler-Portable-Refrigerated-Medicine/dp/B08DHV4PL7
One Second Later by William R. Forstchen. I have a T1 son and read it before his diagnosis. Reflecting on it post-diag makes it so much scarier. https://www.amazon.com/Second-After-John-Matherson-Novel-ebook/dp/B002LATV16
You may not have an option on which insurance to choose. If you're employer doesn't offer you insurance then you will have to get it from the insurance marketplace aka Obamacare (https://www.healthcare.gov). If you're in a state like Arizona there's only one provider so you don't get to choose and have to take one of their (crappy) plans.
We average about $30k/year for insurance premiums, deductibles, co insurance, office visits, etc for our t1d daughter.
Sounds like you need to get up to speed on your condition. When I was diagnosed I found Think Like a Pancreas immensely helpful to understand what my body was doing. I recommend it highly,
Think Like a Pancreas: A Practical Guide to Managing Diabetes with Insulin
https://www.amazon.com/dp/0738246689/ref=cm_sw_r_cp_api_i_7-dkFbF3574DW
Disclaimer: I’m not a diabetic. However, I just bought my fiancé this:
Apollo Walker Insulin Cooler Travel Case Diabetic Medication Cooler with 2 Ice Packs and Insulation Liner(Gray) https://www.amazon.com/dp/B07DHGP98X/ref=cm_sw_r_cp_api_glt_fabc_V76Q199BAP4JPTZXJ119?_encoding=UTF8&psc=1
We used it on a long road trip and he had no issues.
Skin-Tac works really well. So well, in fact, that you’ll need some Uni-Solve adhesive remover to get it off.
A quick look at the healthcare marketplace shows that all marketplace options are through Blue Cross Blue Shield of NC. Unless you can find another way to get health insurance (which is probably not the case in your situation, as an employer would generally be the way to get it), you will just apply and select the plan that is going to be the lowest overall cost for you.
You should consider the total cost (premiums, copayments/coinsurance, deductible and out of pocket max). In addition, you should make sure all of your prescriptions are covered (sometimes they will only cover certain brands, so they may not cover novolog, only humalog, etc.) Choose the plan that best fits your needs. It could cost over $10k a year, pretty easily.
When looking for a job, just try to get a good bearing on their medical plan and how much it costs. I don't really recommend seeking a job in specific field as you asked, but definitely ask about benefits before accepting a job. Even within the same field, it can vary a lot.
I've not found a solution that's 100% fool proof yet. But I've found these things have worked the best so far:
Freestyle Libre Sensor Covers-36... https://www.amazon.co.uk/dp/B091T98STC?ref=ppx_pop_mob_ap_share
My advice is just to tell whoever you're rolling with to try and be mindful of it, but your mileage may vary on rolling partners!
I do not have one of these and can't say how good it is. But, this would allow you to stay connected and have your pump in a waterproof case that allows the tube to come through.
It's worth considering.
https://aquapac.net/shop/waterproof-medical-bags/waterproof-insulin-pump-case/
Amazon has one by that brand with a belt strap that looks like it would be perfect. But, it is pricey. I think this would be if you do these sorts of water sports a lot. Your call.
Get patches to cover the infusion site. They don’t have a very large contact area and I always felt like they where going to rip out. These I found to work great- https://www.amazon.com/SIMPATCH-Universal-Adhesive-Patch-0-8-Inch/dp/B07BVYTNWS/ref=mp_s_a_1_3?dchild=1&keywords=simpatch%2Bfor%2Btandem&qid=1621873532&sprefix=simpatcg%2Bfor%2Btand&sr=8-3&th=1&psc=1
I don’t know where you sit now in regards to your understanding of diabetes management in general, so what I am going to say is not intended to mean you don’t already know A LOT. What I’ve noticed though is that myself and others seem to achieve much better control the more we learn about the small details of diabetes management and the more autonomous we become in our management. It lets us have more confidence in deciding what to eat, how to adjust our own dosages, etc. Because of that I’d recommend just starting wherever you are and learn more. Personally I also found this let me see myself as in control with my doctor more as a resource.. it helped with anxiety I felt around my endo visits too.
It sounds like people have recommended good resources to do this already but Think Like a Pancreas and this book about T1D and pregnancy could be a good place to start. I have no idea if you’ll ever want to even get pregnant and that’s obviously the main focus of the second book, but it was my favorite regardless because it gave very simple and straightforward instructions for how to understand impact of different things (choosing a low snack, what affects bgs, etc) as well as ways to determine dosage adjustments.. highly recommend.
Basically the more you understand the more you may be able to narrow down what will work for you. It could help you avoid possibly needlessly going super low carb, cutting meals, or extreme macro tracking because the same things aren’t necessary for everyone. Best of luck finding what works for you!
A phenomenal book that I highly recommend that addresses this is The Athlete's Guide to Diabetes by Sheri R. Colberg, PhD. She does a phenomenal job of explaining the entire process on how exercise works in Diabetes as well as how to correct for a huge number of specific activities. Really helps me. Good luck!
A pretty common remedy over at r/dexcom is putting a hydrocoloid bandage between the skin and the sensor adhesive.
I wipe my skin with Skin Tac, put on this hydrocoloid bandage (though any similar thin one will do), trim down the Dexcom's adhesive a bit, put on the sensor and transmitter, then put a Simpatch over the whole thing. Some people cut a hole in the hydrocoloid bandage for the sensor's filament to go through, but others don't. I didn't cut a hole in mine, and haven't had any problems.
Hope your burn heals quickly and isn't too painful in the meantime!
They have these cool comfy bike short things with pockets on amazon. I am including the link. I typically only wear dresses so I have like 10 of these lol
https://www.amazon.com/dp/B07Q4W4HVG/ref=cm_sw_r_cp_api_i_YkTvFb3HM5PKH
Well it sounds like you've had a great comeback and have made great progress. from 14 to 7, or even 9 to 7 is a big accomplishment!
So, congrats on that.
I've had pretty good control and generally have been around 6-7 most my life. However a few months ago I got a checkup after not having an appointment in about a year and found it was 8.2. I was disappointed in myself but I felt I could improve it.
I set a goal to get it to 7.2 on my next visit. I was happy to find that on my next visit I they measured 6.9! My goal for my next visit is 6.0.
You can always recover! If you haven't already, I'd start working with your doctor to pin point an easy place you can begin making improvements. For example, on my last visit, while my A1C was better, I still wanted a better average, and I decided to tackle one of the areas where I'm high more often than not and that is in the morning.
The dawn effect is a frustrating thing for me, because I'll often have a perfect blood sugar at night but wake up with a high. The doctor suggested increasing my long acting insulin by one unit. I tried it and my morning readings were lower than they had been, but they were still high readings. I read up on what else I could do to fight against the dawn phenomenon and tried one of the first things I read which is to not eat close to bed time. I do indeed have a bad habit of eating right before bed which is not good for your health in general (acid reflux). So I made sure to not eat at least 2 hours before bed and guess what... My morning readings have been good!
There's always some area we can improve. Focus on one area at a time whether its remembering to take insulin before a meal, taking long acting insulin at a regular time, etc. Best of luck to you!
This stuff is pretty decent and has very little impact to bs, at least in my case.
Catalina Crunch Cinnamon Toast Keto Cereal (9oz Bag) | Low Carb, Sugar Free, Gluten Free, Grain Free | Keto Snacks, Vegan, Plant Based Protein | Breakfast Cereals | Keto Friendly Food https://www.amazon.com/dp/B07SSD6DLP/ref=cm_sw_r_apan_glt_fabc_QADZ8SC5BWQT8VWYPXXX
I went rafting a few years ago. What I did was I got a waterproof bag made for a phone. I made some small cuts in the seal for the tubing to fit through. The bag wasn't 100% waterproof but I was good enough. There was one time I got out the the raft and my pump when underwater but only one drop entered the bag and it wasn't even near my pump. I would also recommend changing the battery cover on your pump. You can get replacements and that will also help.
Battery cover: https://www.amazon.com/dp/B00R1ZNL26/ref=cm_sw_r_cp_api_glt_fabc_V5KFKXKN64P68YGG6SD3
I use the Bolus Calculator from Diabetes:M.
I set up my carb ratio and insulin sensitivity in the app Settings and it`s really awesome.
I have the widget from the app on my main screen. Once I tap it it takes me straight to the Bolus calculator.
There I input my glycemia, for carb counting it has food databases(I use the USDA one). You can add to the list the food you don`t find in the data base.
After all this the Calculator shows me the amount of ui of insulin needed(it takes into account corrections to reach the ideal glucose value set by you and to cover the carbs for your meal).
PS: You don`t need the premium version. The free version does the job.
https://play.google.com/store/apps/details?id=com.mydiabetes&hl=en&gl=US
I would like to add that the medangel temperature sensor has saved me a few times already.
So no matter which of the suggested options you choose to store your insulin buy one of those medangel sensors and throw it in there. I'm sure it's not perfect but gives me enough peace of mind that I don't spend my day worrying about it.
I just bought and tried this vacuum flask thing and it did great. I managed to fit a Lantus pen, a disposable fiasp flex pen and a fiasp penfill cartridge. I even managed to fit the medangel temp sensor in as well.
My skin is highly allergic to the G6's adhesive so I use Uni-Solve and makeup removal wipes to saturate the adhesive until it almost falls off on my skin. And if there's any adhesive left on my skin I use the wipes to remove it.
As a CMAS III diver (with a total of 150 dives), I would say:
» Diver should provide you with a certificate telling there is no non-indication against this practice, diabetes should be said "stable" by their endocrinologist.
» T1 diver should check their blood sugar half an hour before diving, then as close as possible to immersion. My personal experience has shown my glycemia should preferably be >= 110mg/dl, 2h30 or more after last meal and be stable when diving without a suit in 29°C waters for a 50 minutes dive.
» Diver should carry sugary thing underwater. I usually carry chestnut puree within my stab as it does not contain air.
Once I had the chance to test my Abbot© FreeStyle-Libre™ sensor v.1 as I had to change it in 2 days anyways. I went underwater at 40m depth, 3 times with surface intervals as follows: 1rstDive | 4h | 2ndDive | 24h | 3rdDive, and have had no issue at all.
Hmm, I’ve heard of insulin sensitivity before but not carbohydrate sensitivity. I’m not sure how eating a carb-restricted diet would effect that, if anything studies have shown a low-carb diet to increase/improve insulin sensitivity making it EASIER to treat/dose.
Personally I have pretty mixed feelings about eating Keto, as I am a very carb-motivated individual. My intention with this post was certainly not to get into a discussion about Ketogenic diets and whether or not they are safe/healthy/whatever, but to celebrate my wife and her accomplishment. She is a LADA, going on 7 years diagnosed, and this is pretty huge for her.
With that being said, we are following The Ketogenic Diet for Type 1 Diabetes, and if you have any interest in the safety and efficacy of achieving ketosis as a T1D I recommend reading it. It is a well-written, science-based guide to a proper ketogenic diet from a nutritionist and a doctor who is also T1D.
Cheers!
I’d love to get one of the leg ones for dresses but I use one of these to sleep in: FlipBelt - USA Original Patent, USA Designed, USA Shipped, USA Warranty https://www.amazon.com/dp/B00JF9E2YM/ref=cm_sw_r_cp_api_glt_fabc_GH8WKK1KC2DQBDFPTP3B?_encoding=UTF8&psc=1
I use the Lexcam brand. A little bit of a pain to apply, but they've always held for the 10 days.
I posted the same thing as the other poster.
Corn relish. The one I buy is gluten free, has no added sugar, and no high fructose corn syrup. I can eat a half jar of it while not causing any major spikes.
I use a small pocket sized moleskin. 1 page for each day. I like the protective hard cover. I am sure a notepad would work just as well.
Previously I used their daily planner with 1 week per double page spread, it really helped to show trends. https://www.amazon.ca/Moleskine-2020-21-Weekly-Planner-Sapphire/dp/B07Y5XDTZX/ref=sr_1_1?dchild=1&gclid=Cj0KCQiAs5eCBhCBARIsAEhk4r5ztOVeCQeHtM5siFKqFVTKXYjYfq_hV7WvGUBIjBW0Dz_qOC63yS8aAseREALw_wcB&hvadid=208290872805&hvdev=c&hvlocphy=9001342&hvnetw=g&hvqmt=e&hvrand=16600115910150122941&hvtargid=kwd-364806548557&hydadcr=22458_9261637&keywords=moleskine+weekly+planner&qid=1615230758&sr=8-1
I keep my insulin in my fridge. When I visit family, I just keep it in my suitcase (indoors, room temp) since I worry I'll forget it in the fridge. But for long time periods I prefer the fridge.
If it works for your workplace, you might invest in a small cooler with some of those gel icepacks and keep your insulin (and lunch) in that. There are also diabetic specific coolers (like this), although I feel like a normal cooler that could be multi-functional would be perfectly good.
When I was having issues waking up to dexcom alarms I solved it by mounting an old iPad to the wall that constantly displays CGM data via my Nightscout app (Dexcom follow crashes too much, so nightscout is needed). It also has dexcom follow on it with alerts enabled. I then placed a Bluetooth speaker nearby with the volume cranked to 11. The iPad on the wall is great because it is always displaying blood sugar info and the Bluetooth speaker can wake the entire house if needed. Normally Bluetooth speakers disconnect if no sound is sent to them for a while, but they always stay on if you leave the charging cable in it. At least mine does anyway.
Edit: this is the speaker I use ($25):
https://www.amazon.com/gp/product/B010OYASRG/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1
I bought these (TRANSCEND 15g Glucose Gels - 12 Pouch Bulk Pack https://www.amazon.com/dp/B019O036HU/ref=cm_sw_r_cp_api_glc_fabc_lTF.FbT7GKVEC?_encoding=UTF8&psc=1). For the penne they are worth it in my mind. Taste good and work fast.
They even have 20 and 30 packs for less.
Way late to reply on this, but here's what I used: Shadowbox: https://www.amazon.com/gp/product/B07M84BPJM/ref=ppx_yo_dt_b_asin_title_o09_s00?ie=UTF8&psc=1 Letters: Just find any glass decal, get creative or just search the words Pins: Just regular gold pushpins to hold it up Chocolate Bar: Choose your favorite!
It's not perfect but the best thing I've found so far is using Tegaderm as a barrier between my skin and the sensor.
I always order these glucose pellets on Amazon: https://www.amazon.de/Active-Pit-Sport-Traubenzucker-Pack/dp/B003SG0VGQ
1 piece is 5 grams of glucose. Easy to dose, easy to take with you.
First off, no need to stress yourself out about the complications. They aren't things which kick in immediately but rather come from years of being out of control. So, relax a bit and give yourself time to learn how to manage things. This is definitely one of those "it's a marathon and not a sprint" situations.
I'd suggest you take a look Dr. Bernstein's book: https://www.amazon.com/Dr-Bernsteins-Diabetes-Solution-Achieving/dp/0316182699
It was basically the original "self-help" book for diabetics. Not without controversy, though, as much of the diabetic establishment used to be against it. Things have definitely changed!
"Sugar surfing" at https://www.sugarsurfing.com/ is a more modern take. Amazon has the Kindle version for $7 or so. Also a good read.
Both these books are written by authors who actually have type 1 and live with it as we do. So they know.
As for your own situation, I presume you are keeping a log of blood sugar tests. If not, that is the first step. It is also helpful for you to record what you ate when and what insulin you've taken. Charting it out will.definitely be a great aid for you to self-diagnose the issue.
I suspect you may be having a dawn phenomenon issue. Do some reading up and investigation on that as a place to start.
I would agree to drastically increase your water intake. You might also see about adding a bidet to your toilet and using that to keep yourself clean. The ones that don't need electricity are extremely simple to install and can be purchased on Amazon for around $35. https://smile.amazon.com/SlimEdge-Attachment-Electric-Install-Internal/dp/B07CGVBZGL/ref=sr_1_1?keywords=slimedge&qid=1560022764&s=gateway&sr=8-1
I keep all my diabetes stuff in a zipper pouch so I can easily transfer it to whatever bag I'm carrying that day (usually a large tote bag-style purse). Plus, it's a super cute novelty pouch that's got drawings of pasta on it 😃
I also got a couple of silicone sleeves for my insulin vials (Vial Safe). Keeps them protected both in my bag AND when dropped on the tile floor 🙃
My Tandem trainer told me not to bother with the extended bolus option. When I kept getting meal spikes up to 280 that stayed for hours I asked my endocrinologist and they told me to use extended bolus. It has no joke made a 100% difference and without any other changes keeps me almost flat.
Also, I've loved having this belt rather than the clip: https://www.amazon.com/gp/product/B01MD1DBTQ/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1
Anything with Dextrose with the first ingredient will be best for fast acting. Sprees or Sweettarts are nice for when you’re dropping a little slower and just need a bit of help. I keep a couple of these in my car/purse/nightstand for emergencies.
I’m learning that juice spikes me after a low and then I’m on the rollercoaster of hell for a while after. Recovery time has really thrown me so I’m trying to practice treating my lows based on the type of low I might be having. Did I over-bolus or have I been exerting to much energy or is it just a random Tuesday and my diabetes just wants to ruin my day? All are treated differently :)
I’m all about my fatty thigh!
Also, I buy these for my Dexcom g6, and I swear by them.
This is a bag I use. Fits everything in really easily(2 pens, lancet, sensor, 3 of the little test strip pops and at least 8 screw on needles.
This is the one you want then.
https://www.amazon.com/dp/B07JP7FX8S/ref=cm_sw_r_cp_apa_i_Oz2cFbQKAR6X5
I never had to use the Medtronic tape when I used these with the Guardian sensor. Worked great.
I was just diagnosed T2 about 10 days go - Just started the Freestyle Libre sensor 4 days ago. I'm hoping to go to the shore in about 2 weeks and swim in the ocean, so I found these on Amazon: https://smile.amazon.com/gp/product/B082VJ1V85/ref=ox_sc_act_title_2?smid=A2ZANA65P0LL3&psc=1
Looks like they'll protect the sensor well! I'll let you know how it goes! I already ordered them, they;'re good to have on hand for any situation where I might go swimming, but especially for swimming in the salt water of the ocean.
I use these Zoff adhesive remover wipes for my Libre sensor. These take them off like magic, no bruised skin. Link to Amazon
Keep some of these in your wallet. Never worry about this again!
For your boyfriend's case the pee strips are likely to be more acceptable and are adequate. Reading blood ketone levels and understanding them can be challenging. The doc will prescribe the pee strips; it's just a matter of asking. The reliable blood test is the Abbott Precision Xtra meter (which also does blood glucose, with different strips). The blood test strips are $1 each:
https://www.amazon.com/dp/B010MPEOOK
They're that cheap (in the US this is cheap) because people on keto diets also use them; someone on a keto diet will see ketone levels that will have most T1ds dialing 911.
It doesn't matter much, the first thing for us is to know our blood glucose levels, unless we know that we don't really know for sure what is going on (though most of us can give a good first guess). I panic when I don't have blood glucose test strips around; I have them everywhere.
It takes time, it's a big learning exercise. The best help is to understand that. I spent most of my life without the tools that are available now; no blood test strips, no pee test strips; I had to do a chemical reaction with dangerous reagents in a test tube. I didn't die but it didn't do me any good.
I'd suggest getting a copy of this book. Some of the info can be intimidating (things like "you should do xyz at least 3 months before you get pregnant"), but don't worry about that when you read it. I'm in the same place as you more or less and I found that just getting more info took a lot of my anxiety away because the challenges and goals went from being abstract (everything is bad!) to concrete. Just remember you don't have to do everything perfectly to have a healthy pregnancy. If you use Facebook, there's also a very active group called Type 1 Diabetes and Pregnancy.
This was my dog tags I bought(£9.99 now) but they’ve lasted since June/July 2019 so a good 3.5 years ish
The plastic piece goes around the sensor then the tape goes around the plastic piece. (It’s a soft plastic)
I work construction and in the summer a patch lasts about 7 days (I sweat and live in the humid south). But they are super easy to change and since it’s not over the actual sensor, it doesn’t mess with the sensor. In the fall/ winter I usually get a full 14 days out of the sensor cover. Ymmv but they are cheap enough.
For quite a few years now I don't bother with lancing device that comes with meter.
I'm thinking hers is broken but would be a hassle to get warranty replacement. I much prefer the Accu-Chek Fast Clix (and pay cash for lancets). Tend to use each lancet at least 5 times and there are 6 in each drum.
I highly recommend these:
https://www.amazon.com/gp/product/B07FRYY9XP
They're a buck a piece, which is actually fairly expensive when we buy online, but they do work and if you can get a Dexcom to run for 10 days it's just $36/year, less if you wait for the low prices.
There are lots of other ones on Amazon; I instantly found one at USD0.2 per patch, but for the Dexcom I want something that lasts 10 days reliably and I can't afford to experiment (given how much the Dexcom sensor costs).
For the pod I only use patches in the summer. I use the Lexcam patches for the pod too, but they don't work as well (the Dexcom patch has a better designed adhesive removal pair) Lexcams are about the same price but we need one every three days, so that is $120/year. Of course we do get somewhat more adhesive for the money and that is the thing that stays with us.
I use skin-tac. Put it on your skin, and let it dry before you apply the dexcom. Leave a spot with no adhesive where the canula will penetrate. It will not peel at all. Ever!
I have used it to glue down edges too....
I use half unit syringes. After my eye surgery (cataracts) before I had my reading glasses I used my iPad (camera to zoom in while it is propped up and I look through the lens to draw up insulin) or this newspaper magnifier to draw up my insulin. Perhaps that is an option?
I would never trust the included clip. As a matter of fact, I’ve never used the included clips of any of my pumps in 14 years. I’ve always used this.
GU Energy Gel Its just an energy gel that is great for working out and has ~20 carbs and some other stuff in it
I hear that. Glucose meters and strips can be bought over the counter, but you may not get insurance benefits if not prescribed by your doctor.
I use a contour next meter, and you can get strips in a lot of places (walgreens, amazon, other diabetes supply stores). As well as meters themselves.
Shop around for one that works for you in your price range.
Strips will typically be like 30-100 cents per strip, cheaper if you bug larger quantities.
Here is an amazon link to strips, it also has links to meters.
The whole thing may set you back 50 bucks, but is worth it in my opinion. I have bought strips myself without dr/insurance for years.
At one point my insurance wouldn’t cover my test meter, but i preferred the meter because it talked to my pump. Now i have a dexcom, and calibrate maybe twice a month so strips last a long time. So i do not bother going through insurance.
Sometimes manufacturers will give money back rebates for the cost of a meter, but you would need to read that on the box. The meter was often rebated because they wanted you to use their test strips.
I use Freestyle Libre and use this patch over it. I love it cause I don't have to worry about running into things and knocking off the sensor.
covers 100% of the sensor and some. works totally fine.
Not sure what you are using TBH but for syringes the needle can be clipped off using a small needle clipping device. I am not sure whether that would work for insulin pumps and similar devices.
Something similar to this but it is OOS on Amazon. They can be prescribed BTW.
This has never happened to me but I'd recommend using a jogging band they're skin tight and sit under your shirt, they have deep pockets to protect your tubing from getting caught on stuff and they keep your pump nice and safe. I keep an extra set of test strips and a small meter in there as well and have never had an issue with anything falling out. If you have your infusion site on your stomach the band will also help protect the infusion site since it sits direction top of it.
unless you'll be camping in like 80+ degree heat, the AC in your car will keep it cool enough. if you'll be stopping and potentially leaving your insulin in the car for a while risking the car getting stiflingly hot: https://www.amazon.com/Insulin-Cooling-Reusable-Evaporative-Medication/dp/B0002262DA
I use Smith & Nephew Skin Prep — https://www.amazon.com/dp/B00ASMUG86?psc=1&ref=ppx_yo2ov_dt_b_product_details — Amazon has them in stock, and $5 a box is a good price.
Sorry I’m saying shave the area, clean with alcohol, maybe put on SkinTac or similar, apply the sensor, clean around sensor with alcohol, and then put on something like this (which comes in a Libre cut).
On my second leg rotation (left first, now right) without issue here. It's higher up though than where yours seems to be. About where your thumb would be while standing up, arms to the side. Also used adhesive patches (https://www.amazon.ca/gp/product/B09KMMLNWJ/ref=ppx_yo_dt_b_asin_title_o03_s00?ie=UTF8&psc=1) because I was going to be spending a lot of time in the pool.
Honestly prefer it on my leg, not catching it on doorframes, car doors, backpacks, etc, anymore. Everyone's different though.
I have this exact bag which I got from Amazon. It works great, holds plenty, is tough enough for daily use, and doesn't look too much like a man purse.
This is actually a lengthy topic for me. I do downhill skiing, which is less strenuous. I have also camped (guided) in the Himalayas in winter at 11,500' elevation.
The first thing to note is that, in my personal experience and not from reading any official documents, just maintaining body warmth in cold weather counts as activity and reduces the amount of insulin you need.
Are you pumping insulin or taking injections?
Pumping will make it much easier for a lot of activities, including skiing. There are a couple of reasons for this.
First, the pump itself can be kept under most of your clothing to keep it from freezing. This will require digging to it to respond to any alarms or to take insulin, depending on the pump. Generally, you'd have 3 days worth of insulin in the pump. So, there would not be need to have additional insulin with you for day trips.
Second, insulin pumps mean that you'd be using only fast acting insulin. This means you can reduce the basal rate a half hour to an hour before starting any activity and not get a burst of insulin when you absolutely don't need it. Insulin absorption speed increases with activity which complicates use of long acting insulin as you would get more when you need it less.
For keeping insulin cool or for keeping insulin from freezing, I use this.
https://medicool.com/products/insulin-protector-cooler-case
It is specifically for vials, not pens. For pens, you could try something like this. I can't vouch for this because I've never used pens.
https://www.amazon.com/SHBC-Carrying-Portable-Diabetes-Protective/dp/B08JG3X3SB
Remember, any ice pack can be used to keep insulin cool or warm. If the ice pack is room temperature, it will keep the insulin warm rather than cold.
Let me know if you're considering cold weather camping. That brings up quite a few additional issues.
Speaking from my personal experience. If you can spare a place for a cooler, it would be very helpful. However, if not then as long as the pens are kept in a dark place they should be good. I have been using this travel case from years now, and it has been a good value for money for me.
I train judo (both standing and ground) with the G6 and the tslim pump. I keep the cgm on by doing the following:
- Put masking tape over the cgm
- Apply skin-tac to the skin around the cgm, let dry
- Take a strip of KT tape cut in half and apply over the cgm
By doing this I've only lost a cgm once or twice in almost 4 years of doing judo with t1.
seconding a battery pack! i have this one: https://www.amazon.com/Anker-Ultra-Compact-High-Speed-VoltageBoost-Technology/dp/B07QXV6N1B/ref=sr_1_3?crid=21Q0EEWYH2JSX&keywords=anker+battery&qid=1660060895&sprefix=anker+ba%2Caps%2C91&sr=8-3
it keeps a charge for a LONG time, and will charge your pump fairly quickly. should last for quite a few rounds of charging as charging your pump only takes like a percentage or two of a battery's power (i have some other power banks that show percentage)
I’m in the US, so my response may be of limited value.
I searched in google for “Skin Tac UK” and saw that skin tac wipes are available through Amazon and a few other companies.
https://www.amazon.co.uk/Torbot-Skin-Tac-H-Adhesive-Barrier-Wipes/dp/B000QF81M8/
https://www.diabeticsupply.co.uk/products/skin-tac-adhesive-barrier-wipes
I've always packed a lunch since elementary school, minus when I went to college briefly, but I still had groceries in my dorm with my meal plan. I would say start packing your own foods, weigh it out, get a food scale, etc. I found it helpful when I was dx at 16 to write the carbs for each item on an index card and drop it in my lunch box. With doing that frequently, pretty soon you'll get a handle on how many carbs foods are just by looking at it. You won't always be right, but it does get easier with time. I was also given this book at the hospital - between this and apps/food calculators online, I was able to test out different fast foods and see how they impact my sugar etc. If you plan on doing that, make sure you're going to be somewhere safe - home or with a friend - after in case you do drop or go really high. Again, this gets easier with practice. I think one of the things I wish I paid the most attention to was causation, though. I didn't always understand how exercise or foods that digest slower impact my blood sugar. I got a log book pretty early on and that really helped my endo see why I was dropping or staying high. Take the insulin you need even though it's scary. Complications or feeling like shit from a high blood sugar later sucks much more than taking insulin can in the moment. Test frequently as well. Again, with things I didn't know, I didn't realize how important it was to test more than once a day before I got a CGM. Prebolusing will also save you so much of a headache. Even if you only prebolus by like 15 minutes, it's huge. Go easy on yourself too. It's a very hard disease to manage, but you can do it. It never goes away, but it does usually get easier. And if you have a hard day, just remember you can try again tomorrow.
When I had a Libre I used Skin Grip Patches. Great product! I never noticed how many door jambs I rubbed on until I got a sensor🤪
BTW call the Freestyle support number and tell them what happened. They'll ship you a new one.
https://www.amazon.com/dp/B004X4J6EU?ref=nb_sb_ss_w_as-ypp-ro-model_ypp_ro_model_k0_1_25&crid=1BQTLTJEPP5EV&sprefix=frio+insulin+cooling+case I use these Frio wallets! I like them because all I really need is some cold water to refresh them rather than needing a fridge/ice pack, and they usually stay cool for 3-4 days. One drawback I have noticed is that they can get kind of mildew-y over time but I also could just not be taking care of them well
I got several pairs of these - inexpensive and with pockets!
Just put my pump in the pocket and sleep like a baby. :p
This book is about a diabetic living through an apocalypse. The writing isn’t fantastic but I think it accurately shows the struggle to extract insulin from pigs.
That's awesome! I love my CGM, it's been the biggest quality of life improvement I've had.
I recommend getting a couple of devices/apps for alarms, the ones dexcom provides are pretty limited and it's hard to tell if you're just starting to go out of range or if you're way out of range.
I use a smart watch, my pump and dexcom for alerts. There are lots of options in the about section of r/dexcom My watch goes off when I'm just barely out of range, it's quiet and lets me know that I need to be alert, then my pump starts beeping a little louder when I'm more out of range to let me know I should give myself a correction, then the dexcom app screams at me and wakes the dead when I'm really out of range to let me know something is very wrong and I need to fix it. This lets me sleep without too many interceptions and still allows me to stay in range.
It's an adjustment but I still consider it the best thing that's ever happened for my A1C. Also, waterproof patches help a lot. If your sensor falls off before the 10 days, don't be shy about contacting Dexcom, they'll send you a replacement for free if you contact them. It's really easy.
in my experience you'll be just fine lol but if you're really worried, they have these cooler packs that you can bring on planes that will act as a small fridge in the traveling time! I used to use these on super long journeys just in case you can't be in control of the temperature at all times https://www.amazon.com/SHBC-Upgraded-Carrying-Convenient-Injection/dp/B08MFBVLTZ/ref=sr\_1\_9?crid=3VI1LE6ARWZI5&keywords=medicine+cooler+for+travel&qid=1657901895&sprefix=medicine+cooler%2Caps%2C85&sr=8-9
Not sure if anyone’s been sharing over tape/patches, but I’ve tried several and this one is my favorite so far: 72 Pieces Shower Waterproof Patch... https://www.amazon.com/dp/B0936HG1VH?ref=ppx_pop_mob_ap_share
Sometimes they’re tricky to put on if you have to do it one-handed (Dexcom in your arm), but otherwise they haven’t come off. I think actually last time I pulled it off my stomach, it ripped out all the little hairs haha
and never have a problem with it lasting ten days
I'd recommend getting a different pump case right away, the one the tslim comes with kinda sucks. I got one from type 1 tactical a little over 2 years ago and it's still going strong, worth the higher price tag if you can afford it.
I also got one of these dexcom protectors . It goes over your dexcom and underneath a over patch. It is nice if you need to change the overpatch but don't need to change your sensor yet, it won't rip the dexcom off. So nice.
I prefer using the tslim mobile app over the dexcom app on my phone, mostly because the dexcom alerts are so loud and you can't silence them. You can turn off the alerts on the tslim app, plus the tslim app auto uploads all your data to your account and your doc/endo can get a loggin and see that stuff whenever they need. That way you don't have to send it in or have them download everything all at once at each appointment. Plus they are supposed to approve being able to bolus from the app later this year so thats exciting.
Love these pouches for the size to glucose ratio. I do a lot of running and bicycling and always have a few of these shoved in my pockets.
My mom uses a lanyard thing - sorta like this.
But also your phone doesn't have to be on you on you at all times, just near you.
Leaving it in your bag or purse is fine as long as you can hear the alarms.
I use a clip for mine, and I actually clip it to the seam of my pocket and my pants where they meet on the outer leg, with the pump inside my pocket and the clip facing out. I can’t even feel it on me compared to no clip in the pocket or clipping it to my waistband. Feels like how a backpack feels more comfortable with the chest strap clipped - like the weight is more distributed. I use the same spot with shorts at night - or honestly just get some comfy PJ bottoms. Just takes a bit getting used to not sleeping on it by rolling over on it. Also idk how tall you are, but a clip let’s me put the pump in my shirt pocket or clip it to my collar if I need to use the restroom. My tubing isn’t long enough from my abdomen to floor for the pump to stay clipped to my pocket
I only use the pump belt things rarely if I won’t have pockets or something. Tbh I use the more to keep glucose on me during activity compared to actually holding my pump. Using my existing pockets feels way less cumbersome to me but I don’t find the belts super comfortable.
For activity, get some compression shorts like this. Pump in the side sleeve and you never have to worry about it falling out or bouncing around. One of my best purchases ever
The process feels a bit goofy too I literally sit like a W and choose the “flabbiest” spot with the least amount of opportunities to grab on things or get covered. I will say with these placements I highly recommend using a real overlay patch not the dexcom ones, so there’s no issues with it getting pulled off. I use these ones but they have different colors
I have this squishy thing that looks like a pear, that is supposed to be something that you squeeze for stress. It is soft, but actually compressing it takes a fair bit of effort. I think something like that (low impact, scalable to your strength) would help you build back enough hand strength. The pear shape is nice because it fits in your hand better than a ball.
I got mine for free at some work health fair. If you want it I can mail it to you. Or I am sure you could order something similar online. This looks like it made from the same stuff:
https://www.amazon.com/Logest-Stress-Ball-Medium/dp/B09DJ3ZM7N/
I'm a big fan of these ones: Skin Grips
You just need to keep frio wet to make it last longer. Water evaporates faster in hot countries and other way in colder climate. But 2 days were fine in countries like Thailand.
You can also check out insulin thermos. https://www.amazon.com/KEKHEALTH-Diabetic-Portable-Important-Information/dp/B09JJKDXB3/ref=sr_1_4?crid=1CUPM0DT8HLY9&keywords=insulin+thermo&qid=1656304667&sprefix=insulin+thermo%2Caps%2C117&sr=8-4
It provides 2 ways to cool insulin. biogel in blue bottle or cold water in white bottle. biogel to freeze so you need access to freezer. If you don't have access, you can buy cold water from grocery store and add into white bottle to keep insulin cool.
I used biogel for my trip and maintained 4c temp for 2 days.
Not sure if someone has suggested this already, but buy some I.V. Prep wipes! $12.00 on Amazon. Helps the skin become wayyyy more tacky and my Dexcom stays on much longer
£9.80
MDI for me also. I use these pencil cases, they come in different sizes. Holds two insulin pens and wipes easily. I keep my needles in an empty glucose tab tube (washed).
Everything fits into my cross body bag.
I use the small one for just pens when I don’t need my meter. I use a large one when I carry my meter around.
I wear a running belt and it honestly made me ok with pumping. I can stash the extra line inside when awake and sometimes forget my pump is there now. Before I was hyper aware of it because I had to worry about it falling or whatever. This one has been my favorite so far. Adult Insulin Pump Belt No-Bounce... https://www.amazon.com/dp/B095YZ2SPK?ref=ppx_pop_mob_ap_share
For my little guy I use these. The hold up really well with his activity.
My wife gets some through the pharmacy for her that are made by Dexcom ( Called Dexcom overpatch I think). Those are a clear, barrier-film-like tape unlike the more fabric like ones I linked. These don't hold up as well but they are dirt cheap.
Fortunately, I haven't broken a bottle in a very, very long time, but several months ago, after seeing posts on here about people dropping and cracking vials, I ordered these vial protectors.
Hi. Welcome to our club!! We're all sorry you've joined us.
Get the book: Think Like a Pancreas. It will answer slews of questions, and help you understand it all.
Think Like a Pancreas: A Practical Guide to Managing Diabetes with Insulin https://www.amazon.com/dp/0738246689/ref=cm_sw_r_cp_apan_i_3W5HE0607417DESTQ1QE?_encoding=UTF8&psc=1
I'm just reading it now. This sub is excellent for shared, experiential information. For the great part, the sub is super supportive. All questions are good questions.
This is a marathon, not a sprint. It will take time to learn. Be easy on yourself. There are few "perfect" days.
You can eat whatever you like, just supported by the correct bolus -- also never perfectly achieved.
Again, welcome to the party. Sorry your invitation arrived.
I use a jogging belt to hold my pump and the tubing. It works really well when running and biking. Since it's skin tight I hardly notice it and haven't had my tubing catch on anything since I can safely tuck it in the pockets.
It's really easy to detach the pump, there is a built in point in the tubing that lets you disconnect the pump.
One thing I would recommend is using the Tru-Steel infusion sites, I had problems with the Autosoft sites bending when I would go running.
My pump has been a huge improvement, my A1C went from around 7.0 to 5.0 in 6 months. I hardly have to think about my blood sugar when I'm not eating which has been a real stress reliever.
I have legging shorts things that have pockets on the sides (like full length leggings). This makes it less awkward when I have to retrieve the pump to bolus.