That's ok, I saw it. Have you thought of maybe trying this (since it's just your foot).

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https://www.amazon.com/Edomi-Buckwheat-Sleeping-Adjustable-Cervical/dp/B0872L6WVQ/ref=sr_1_7?dchild=1&keywords=husk+filled+small+pillow&qid=1632091378&sr=8-7

It's a buckwheat filled pillow, which has some weight to it

I have something like this. Mine is just like the kind that you see at a grocery store where checkers are standing on. I put a soft cloth rug on top of mine in front of the kitchen and bathroom sink so its not cold too. But they are usually just solid colors.

https://www.amazon.com/ComfiLife-Anti-Fatigue-Floor-Mat/dp/B0797Q5HL7/ref=sr_1_3_mod_primary_lightning_deal?dchild=1&keywords=soft+floor+mats&qid=1614139864&sbo=Tc8eqSFhUl4VwMzbE4fw%2Fw%3D%3D&smid=A2UOOCM96M7E3P&sr=8-3

Glad you’re feeling better! I have this one and love it: WiseLife Kitchen Mat Cushioned Anti-Fatigue Kitchen Rug,17.3"x 28",Non Slip Waterproof Kitchen Mats and Rugs Heavy Duty PVC Ergonomic Comfort Mat for Kitchen, Floor Home, Office, Sink, Laundry, Green https://www.amazon.com/dp/B08KY3JX9H/ref=cm_sw_r_cp_api_glt_fabc_SV41FVCDDADQ1K0V96VZ

You are so right! We have to find alternative ways to work with what we've got. For some it's more involved than others. I thought you might be interested in these.

That poor lady. I have felt that.

These have helped me around the house: https://www.amazon.com/dp/B00OUFX0YY I have put one in each bathroom and one in the kitchen. These have become necessary for me to get around my partially hardwooded apartment.

For her legs, Epsom salt baths if she can tolerate them will help with the irritation. The lidocaine I mentioned above will absolutely help with her in a flare or out of one. It should at least take the edge off. Her mileage may vary of course. My pain doc and my podiatrist both prescribe a higher dose of lidocaine (mixed with other things) to give her a hint of what's to come.).

Get a paint brush if she doesn't have one to apply the lidocaine with?

Linen pants/shorts. Or pants made from stretchy breathable (not cotton!!! Not scratchy!!!) fabric. Or better yet a gift certificate to a clothing store because it sounds like that may be in order soon!!

She needs a good vacuum if she doesn't have one now. If her feet get sensitive then a vacuum would be worth its weight in gold.

If I may, to her: Commitment is key. Movement is key. Commitment to movement is key. And that sucks. Because this goddamnned disease makes you not want to get up in the morning. We get it. And you're not alone. You are not experiencing this in a vacuum. There are dozens of us- bakers dozens! (Ha!) and we are working on the tough work of educating our doctors or finding doctors already versed in the disease and then wend a path with them. Where it leads... No one knows.. Get up and help us please though. We need as much data as we can on this monster to track it down so it doesn't happen to the next person. Let's be part of the statistic and not a victim of it.

New treatments are coming out all the time. Maybe one day something that works for us?

Please keep reaching out if I can help!

This might sound dumb, but have you ever used something like this to clean and descale the washing machine? The first time I lived in an area that had super hard well water (taking about the kind that's safe to drink but tastes nasty and can even look cloudy) my structural/maintenance engineer dad had me use something like this. He'd have me run a self clean cycle with washing machine cleaner regularly as scale and buildup can affect how clean your clothes get, any lingering smells, and preserving the material. I was struggling with the rough material after washing there, and couldn't use any fabric softener in the wash or dryer back then because of the chemical/fragrance sensitivities. It did help some, and made the clothes more tolerable.

I've seen a lot of adds for professional washing machine cleaning and descaling in my current area, too. This route would definitely be more expensive.

Sorry for all the random back and forth about this.

Hi, my name is John Chau. I am a surgical neurophysiologist who published a book called Neuro Alchemy detailing all of the science and stories behind new neurostimulation modalities that are shown by science to help heal the brain and improve functioning. I hope you can all enjoy this read and find it stimulating! https://www.amazon.com/dp/B08CWD65TV

No worry, that's not a stupid question! There are apps that let you use an image you saved and scan it directly via your phone! So

1. Save the image of the code first in your phone (you can ever take a screenshot of it).

2. Download and open an QR code scanner app.

3. Check the different options. There should be one to scan with your camera and one to scan an image you already have in your phone.

Here I use that one - its free: https://play.google.com/store/apps/details?id=com.gamma.scan

4. Accept to join the server 🧡😁🌷

I've used a transport chair, and 2 off the shelf manuals before getting a custom fitted. All 3 non-custom chairs had this kind of adjustable angle leg. They're great for when you need to shift the pressure or angle throughout the day, but they do end up needing to be replaced about every 1-2 years on average depending on different factors. What's nice is that replacements are readily and easily available.

If you do intend on using a chair every day, it's worthwhile to start the process for a fitted or custom chair just to prevent any further issues down the line even if you get an off the shelf one for now.

I got health mates on Amazon, only $30 which is cheap but they last only about a year for me because I used it primarily for back issues & would catch the leads on stuff, being careless & doing rougher work stuff, also dropping it🤷. They have small pads, multiple settings, auto shut off & availability for 2 or 4 leads depending on area you're covering & battery operated. If you want wireless, I can't help. Just letting you know what I ended up doing.

HealthmateForever YK15AB TENS unit EMS Muscle Stimulator 4 outputs 15 modes Handheld Electrotherapy device | Electronic Pulse Massager for Electrotherapy Pain Management Pain Relief Therapy: Chosen by Sufferers of Tennis Elbow, Carpal Tunnel Syndrome, Arthritis, Bursitis, Tendonitis, Plantar Fasciitis, Sciatica, Neck Back Pain, Shin Splints, Hamstrings and other Inflammation Ailments Patent No. USD723178S https://www.amazon.com/dp/B00O7CM12W/ref=cm_sw_r_awdo_QX9PN57T606463C291NQ

There are these types that go on top of your mattress and below sheets amazon but the technology is identical to the ones made forpets (which are cheaper). They work to absorb your body heat and dispense it into the gel. It’s bloody great. Like lying on the cool side of the pillow

I’ve spent a fortune on shoes based on doctor recommendations. I always, always, wind up back in my Reef flip-flops, no matter the weather. If I’m forced to cover my feet in decent “real” shoes II wear these (from Amazon)

I also have an adhesive allergy. There are ways that most people with adhesive allergy can use a few types of patches. Butrans has no adhesive where the medicine is. With the adhesive limited to the edges, you can prep the skin first with prep wipes. These aren’t just alcohol swabs- they put a layer of protective film on your skin. This both helps them last longer and is a barrier between the skin and the adhesive. (You can’t swab under the medicated portion, though. So I mark out a square on my arm with 4 tiny dots of sharpie, then swab around the outside of that square. I place the patch so the meds go over the unswabbed part. It works fabulously.)

The problem with patches is way more pronounced with things like fentanyl patches. They’re plastic and the medicine is mixed into a goopy, rubbery adhesive, which can cause serious reactions.

Using a cane was starting to irritate my back, regardless of how I adjusted the cane, so I order trekking poles, which work great and allow me to stand up straight. The added bonus as you are not seen as "different" as they are simply trekking poles. Here is the ones I got from amazon which are wonderful! https://www.amazon.com/TrailBuddy-Trekking-Poles-Lightweight-Accessories/dp/B01MRQCENJ/ref=sr_1_1_sspa?dchild=1&keywords=trekking%2Bpoles&qid=1635887097&sr=8-1-spons&spLa=ZW5jcnlwdGVkUXVhbGlmaWVyPUEzU0Q4UUdHM1JDUlUwJmVuY3J5cHRlZElkPUEwMjgxODE0M1VVUTdFOEwzU1FGWCZlbmNyeXB0ZWRBZElkPUEwMDU3NDg3MjU2S0YyMzVRTlRORCZ3aWRnZXROYW1lPXNwX2F0ZiZhY3Rpb249Y2xpY2tSZWRpcmVjdCZkb05vdExvZ0NsaWNrPXRydWU&th=1

Hey! I reverted back to what I did in high school (carrying fewer things as well) and it's helped more than anything I could think of. I've found that a messenger-like bag like this one!! (https://www.amazon.com/Mygreen-Canvas-Backpack-Crossbody-Daypacks/dp/B01M4PGDUL/ref=sr_1_29_sspa?dchild=1&keywords=one+strap+backpack+small&qid=1632081303&sr=8-29-spons&psc=1&spLa=ZW5jcnlwdGVkUXVhbGlmaWVyPUEyRTRRWFNVN1pTRkJHJmVuY3J5cHRlZElkPUEwMjQ1Nzc1MUJJSlJYNkVURFNaQSZlbmNyeXB0ZWRBZElkPUEwMzYyMDc0VUFSUVFNREFERUgxJndpZGdldE5hbWU9c3BfbXRmJmFjdGlvbj1jbGlja1JlZGlyZWN0JmRvTm90TG9nQ2xpY2s9dHJ1ZQ== works best, since the majority weight is on my back and good shoulder. The extra support helps. Research a one strap backpack and make sure that you pick a size that can fit a laptop :) I put my water bottle inside the bag as well

I hope I could help

Check out Freedom from pain by Peter A. Levine Amazon link. There are techniques for dealing with exactly this. It can also be found on libgen.rs ;)

I realize that you said “anything other than meds,” but I’m wondering if your MD ever suggested that you try Dextromethorphan? Like Ketamine, it is an NMDA receptor antagonist, only without the psychoactive effects. Because the Ketamine helps somewhat, you might try it. The literature suggests using 60mg twice a day, but I would try half that amount, 30 mg twice a day to make sure you tolerate it ok before increasing the dose. You can get it Over The Counter without a prescription as “Delsym” cough syrup, which has 30 mg Dextromethorphan per 5 ml. I would be interested to know if other people suffering with CRPS have tried Dextromethorphan.

Delsym Cough Suppressant Alcohol Free Orange Flavored Liquid- 2 Pack, 5 ounces Bottle https://www.amazon.com/dp/B001N0LP0A/ref=cm_sw_r_cp_api_glt_fabc_CHT2FV0H5QRW2ZJWG8VY

I use a very lightweight folding stool like this one in the link below. It folds up, has a shoulder strap and only weighs about 2 pounds. It isn’t something you would want to sit on for several hours at a time, but for a walk down to the lake for an hour or so of sitting, and just to get off of my feet for a little while, it works great.

DEERFAMY Camping Stool 3 Legged Hold up to 225lbs Portable Tripod Seat with Shoulder Strap Compact Tri-Leg Chair for Backpacking Kayaking Canoeing Hiking Hunting Fishing Outdoor https://www.amazon.com/dp/B08PBN2YF7/ref=cm_sw_r_cp_api_glt_fabc_23WQN9YDN3K0NWHQQFYD

I found capsules on Amazon, but I think you should be able to find cheaper ones: https://www.amazon.com/Organic-Mushroom-Capsules-Real-Mushrooms/dp/B078T4JSD5/ref=sr_1_5?dchild=1&keywords=chaga+mushroom+capsules&qid=1617714354&sr=8-5

<3 Do some research and see what you think! Let me know if you start, I'm quite interested in meeting others who have success with it :) I hope you're having a good day so far with tolerable pain levels! <3

the same is happening to me, but my CRPS is in my right hand and spreading to my left. my right hand is my dominant so that definitely sucks, but i’ve found some helpful things. i got this arm rest for my receptionist job which helps a bit: https://www.amazon.com/Ergonomic-Rotating-Computer-rotatable-Adjustable/dp/B07P8CVKV2/ref=mp_s_a_1_9?dchild=1&amp;keywords=adjustable+arm+rest+for+desk&amp;qid=1617556003&amp;sprefix=adjustable+arm+rest+&amp;sr=8-9. i also love knitting and arts in general, the biggest tip i have for maintaining fine motor skills is stretching very often during activity and being honest about when you need rest. acupuncture has also helped me sooo much if your body can tolerate it. also, just curious—does it feel normal most of the time but it sometimes hurts or mimics your other hand? i didn’t believe my spread for months because it seemed so much less intense than in my other hand.

So glad to hear you're in a better headspace.

I don't have any recommendations for a mat/rug.

However, if your slippers are too clunky and too hot, but you need arch support, I have found that these slip-on arch supports are great and affordable. They can go on your bare foot or over a sock, and you can wear them with or without shoes or slippers. They've got wide elastic that goes over the top of the foot and a nice squishy bottom.

They're particularly helpful if your connective tissue in your feet is degrading, causing your foot to flatten or be overly flexible.

If you have the burning pain in your feet, these might be too intense, but if its other kinds of pain and arch support, these are fantastic, imo.

Also some Birkenstocks or other cork-based shoes which molds specifically to your feet might be helpful, whether you want sandals, boots, or low-tops. They can be pricey, so you might want to check out the very gently used options. Be careful about the cork inside though, you don't want it if its already well-conformed to someone else's foot shape.

If you don't have compression socks or snug, soft leggings, these can also help reduce edema a bit and therefore reduce the skin-level hypersensitivity it causes.

So, not at all what you asked for, but hopefully there's something in there that helps a bit.

i did that as part of physiotherapy just in a diary type journal. it was helpful in some ways for me to find out what caused flare ups, but i found writing it out every day made me think about the pain more and put too much focus on it so i stopped and it made it easier on me. again, that was my personal experience with writing everything down but i would see how things go for yourself! you could make your own charts in a bullet journal like this that i use as a planner https://www.amazon.ca/dp/1441323716/ref=cm_sw_r_cp_api_fabc_Pg2-FbSJN386D

I got this one Miko Shiatsu Foot Massager With Deep-Kneading, Multi-Level Settings, And Switchable Heat Charcoal Grey https://www.amazon.com/dp/B01H5QZ5X8/ref=cm_sw_r_cp_api_glc_fabc_Uo70FbRHC7Y6H

$140 seemed reasonable enough to give it a go. It’s helping actually. Last night the first two mins were awful but then it improved

It by no means solves or erases pain, but Amazon sells steel rollers you keep in the freezer that feel amazing on awful days like these.

Link here: Recoup Fitness Cryosphere Cold Massage Roller - 6 Hours Cold Relief - Ice Cup - Myofascial Release- Great for Recovery - Free Rolling Removable Ball - Deep Tissue Massage - Pain Relief - Ice Pack https://www.amazon.com/dp/B01EKMN9LA/ref=cm_sw_r_cp_apa_i_JNwfDbHV9ENT9

Showers and baths are the worst! Painful during, exhausting, and I just want to cry afterwards. This is my life?!? Looking for geriatric products to help I found these wonderful bathing cloths, no rinsing required, No Rinse Aqua Wash Gloves Sensitive- Medical Grade Pre-Moistened Wash Glove

What do you do about wash your hair?

Ketamine Infusions have been the only thing to help reduce my pain from CRPS. I was terrified of getting them but am so glad I finally tried them. They don’t get rid of the pain completely but reduced it the most of any medications I have tried. This is a really good book for those getting started with Ketamine Infusions, https://www.amazon.com/Ketamine-Infusions-Patients-Everything-infusions-ebook/dp/B07X148Z94/ref=sr_1_1?keywords=Ketamine+Infusions&amp;qid=1567526759&amp;s=gateway&amp;sr=8-1

Hot Socks, these are the exact ones I got: https://www.amazon.com/dp/B07HHMBPH7/ref=cm_sw_r_cp_apa_Dcz7Bb8AZKN8P

It looks like they're not too well stocked right now, but there are some similar products suggested on the site. I've seen battery operated heated socks/gloves/jackets too. I got them last winter. They're nice for when we're hanging out in the living room and my throw blanket isn't quite cutting it. Then I have my heating pad set up in the bed.