I had a single mastectomy 5 years ago (and getting the other side done now in a few weeks). I used one of those foam wedge pillows since I didn't have a recliner either. It worked well enough until I was comfortable and healed enough to sleep flat on the bed.
The entire nipple is detaching? Or just a layer of skin on the surface peeling?
Call your doctor with your concerns, especially if it is the former.
The good news - about 7 days is approximately the worst of the radiation damage. I had a small area of moist desquamation, and it got better. Lots of peeling skin, also got better. My radiated and non-radiated breasts are approximately the same. All of the unpleasant/painful skin issues should be gone in a few weeks.
Some pictures of normal-ish radiation aftereffects.
https://www.nature.com/articles/s41598-018-30710-4/figures/1
NSFW
And fig. 3 in this paper:
Nsfw
My wife tried a lot of skin creams, but said this was far and away the best one.
It was suggested to her by her doctor.
TriDerma Radia-Soothe Skin Relief Cream, Non-Greasy, Soothing and Comforting Skin Care, 4 Ounce Tube https://www.amazon.com/dp/B00BHZQ2EK/ref=cm_sw_r_cp_api_glt_fabc_EJMXG3WNMJ3V4XN2T9NS
I switched to an electric razor due to numbness and lymphedema. I thought I’d be able to keep using a regular razor but it’s really hard to judge how much pressure to use. My armpit hair is pretty sparse compared to what it was before chemo though, so that helps.
Here’s the one I got which has worked fine: https://smile.amazon.com/dp/B0018A32XS/ref=cm_sw_r_cp_api_glt_fabc_DPSZRY5TJ08N2ZM49S2N?_encoding=UTF8&psc=1
I got some wigs from lush wigs - I really like that you can see their wigs on real people with hashtags on Instagram…
They’re synthetic but amazing for their price point! I love mine! (Happy to send a few pics if you wanna see too!)
Also I started chemo 2 weeks ago today and I haven’t lost any hair yet xx
Big headbands super help wirh making the wig sit nice and look real though
You can get ones like this pretty much anywhere and they def help keep in place and make it look more real!
I ordered a bunch of bangs off Amazon for super cheap and wear them under a cute beret. I get a silly amount of compliments on my "hair".
I don't know how much it will help, but you could try installing a webpage blocker like focusme or simillar (here's a list of them for easy comparison) I haven't used any in years, i used cold turkey when i was in college so i don't know anything about their paid options. basically they let you block web pages completely so even if you try to go to them they won't connect, and depending on which one you use, they will let you disable those sites within a time frame or for a certain number of hours, or it will be a simple on-off switch.
From babysitting experience, this is followed by whining for a few days, but once they understand that they really can't get to those sites, they settle down. (i used to let the kids use my laptop for homework while the other was on the family computer)
You might also try some ADHD tricks, even if he doesn't have it, kids that age are fidgety and need to move. i had a friend whose teacher put a giant rubber band across the front legs of her chair so she could mess with that, but i've always needed to move my hands. i take notes in staff meetings so i don't pick up my crochet or a fidget toy and look like i'm not paying attention, but you could talk to his teacher(s) about letting him play with a fidgety thing during class to help him focus
I'm not a mom, and I haven't babysat in years, but those are the first things i would think to do, but you know your kid best and you'll know what will help
I bought a variety of bangs off Amazon for $12. They stayed put under my hats, I usually wore a beret with earrings and got a ridiculous amount of compliments on my "new hairstyle". They are shiny & silky and no one thought I was wearing a wig. Even my oncologist looked at me confused as to why I hadn't lost my hair yet.
For the ultimate comfort in bed, get a bunch of pillows. The only specialty one is a wedge pillow so she doesn't have to get up from a horizontal position. From there, another pillow or two for behind her head during the day; one pillow to go under each arm to elevate them away from her sides; and one more for under her legs.
The other pillow to consider is a mastectomy pillow (check Etsy) that keeps arms away from sides and seatbelt away from chest while in a car.
There are a few options for drain management for you and her to explore. No one method is inherently superior to the others.
Other useful things:
Tumbler with straw
Claw grabber
Breakfast tray (useful for laptops too!)
An extra long ice pack that wraps over the chest and sides (like https://www.amazon.com/dp/B07CHLS3B3)
Just want to make sure you're also staying out of the sun! You really must as you'll burn really easily. Also try wearing 100% cotton camisoles to reduce any rubbing you might have if you are wearing a bra. I wore these and found them a lot more comfy than a bra.
Will she being doing chemo infusions? Some chemo really throw your taste out of whack. The most useful item I received is a Devico plastic water bottle with markers in ounces to help me keep track. It's advised to drink at least three liters of water a day. I personally like it as well because it seems to lessen any weird aftertaste that happens when I was using my steel Hydro Flask. I normally prefer steel over plastic, but I just couldn't get much water down with the aftertaste.
This is the one I got as a gift. There's also a small strainer at the top where you can put lemons, or berries, or cucumbers if you like.
https://www.amazon.com/dp/B088BZPS35/ref=cm_sw_r_cp_apa_glc_fabc_FQ1A6BCRGJ2YDH7CG5XF
Sorry you find yourself here. I opted for hats over wigs, it was just easier for me. These sleeping hats were my favorite, I wore them all the time. So comfy! https://smile.amazon.com/dp/B01JYB4PSS/ref=cm_sw_r_cp_api_glt_fabc_0RB2FV9EZ0RYZ11M3793?_encoding=UTF8&psc=1
A co-worker sent this blanket in a box of goodies. She could have left everything else out! This went to every chemo infusion with me. To my bedroom, the living room. Wherever I am this blanket still goes. Chemo broke my internal thermostat so I am cold most of the time. This and my ipad and a snack were all I found I needed. Oh - and that giant bottle of alkaline water.
This mastectomy pillow has been super helpful to me!
https://www.amazon.com/dp/B00EE84F50/ref=cm_sw_r_cp_apa_fabc_KCESFbGZYV4MA?_encoding=UTF8&psc=1
I got a lateral mastectomy (left side) on October 19th and a chemo port implanted on Nov. 10th. The pillow really, REALLY helps keep me comfortable during travel. I live in Maryland/D.C. and the roads are AWFUL. The pillow keeps the seat belt off of sensitive areas. (The pic looks red, but the pillow is HOT pink, FYI and there are other colors.)
Hey, it's so great you're doing all this for her. I'm so sorry about the loss of your father. Indeed, her outlook is probably very good, and I'm glad you're there to see to her comfort. Personally, I didn't lose my hair due to radiotherapy. Mostly, I just kept my hair neat and tidy pulled back in a pony tail. But I did get a good haircut before I started.
However, if she has or is prone to alopecia, then she needs to let her doctors know.
The first thing I did was get rid of my bras, rather I put them in the drawer and didn't wear them as much. Instead, I bought some camisoles without spandex. 100% cotton. The other thing that helped were oversized cotton shirts with buttons up the front. Loose and baggy is the key. Also a large brimmed hat, because she really must stay out of the sun. She should wear socks with her sandals, or a pair of nice slip on shoes, as I found that my feet got sunburned just walking around outside for a little bit.
As far as food, make sure she stays hydrated. You can get her a few water bottles that she can refill. And if it's hot where you live, you can make water flavored with fruits -lemons, oranges, limes, and then freeze them half way full. When she's thirsty, she can just grab one, finish filling the water bottle.
Are they providing the ice or are they asking you to bring the icing gloves? My infusion center provided them but once COVID hit I had to bring my own. Here’s what I brought in a cooler: https://www.amazon.com/dp/B018IZ3TJW/ref=cm_sw_r_cp_awdb_imm_t1_Gvi-FbPQ4S3AQ?_encoding=UTF8&psc=1
I wore thin socks and used just paper towels to place between my hands and the gloves so they weren’t directly on it.
Claritin did help me, but so did a couple of other things that I did nightly to help ease the pain:
1- Soak in a bath tub with epsom salts in really warm water
After the bath, I would have Zepol rubbed on my back, and chest (https://www.amazon.com/gp/product/B01LK43YCA/ref=ask_ql_qh_dp_hza). This helped soothe aches and pains I was feeling. It also helped me go to sleep
I invested in a massage gun and gently kneaded at the pain points when I could tolerate it
I also changed all of my bed stuff to make it feel like a cloud. I bought a memory foam mattress topper, a goose down comforter, silk pillow sheets, goose down pillows, and soft blankets to help make it as comfortable as possible
Don't be afraid to ask your onc if there's anything else you can be given, or take to help ease the pain. Sleep is so important for healing during this time, and helping keep up your strength. Your doctor wouldn't want you to not be sleeping. An extra infusion of fluids, or even a steroid may help if it's very unbearable. CBD, as some have mentioned, can help relax your muscles from aches and pains
Wishing you all the best. I hope the pain subsides soon.
I used Resolve gel and bands... found them in the local pharmacy.. In theory, they preserve moisture and prevent further irritation. https://www.amazon.co.uk/Transparent-Silicone-Scars-Resolve-Gel15/dp/B00I970SFS
You will be probably be in more pain than someone with less well developed chest muscles. I was on IV painkillers immediately post-surgery, and I didn't feel relief until they added a muscle relaxer on top of that.
For the reading pillow I got this one from Amazon reading pillow. I also got a half moon pillow to put under my knees since I was spending so much time in bed. This is the one I got.
I built myself a pillow castle on my bed to keep my comfy during recovery, so definitely stock up.
Talk to your surgeon about setting you up with a physical therapist. The PT has been absolutely essential for me, she has been great in improving my range of motion post-surgery and loosening up my chest muscles.
These were great for me. I still sleep in them after my exchange to keep the implants from flipping. They are stretchy and can work with you through the fills.
This was all that I used https://www.amazon.com/Fruit-Earth-Aloe-Vera-100/dp/B0009VNI40 - 100% Aloe Vera gel. It's a bit sticky but it works well. Put it on straight after radiation and several times during the day. I had no issues with burning.
Lol definitely not just you! My first appointment was a multidisciplinary team appt and it was soooo much information overload. I bought this one and it works so well. I keep it in my purse during appts.
If you are a sewer, you know what people need more than hats and blankets? Port shirts.
They have them on Amazon but they are like $35ish each and are probably made by sweatshop slaves. My port shirts were like thick raglan t-shirts with a zipper on each side (so it does not matter what side the port is on) and then a little bit of facing so the zippers so they don’t scratch. These are long sleeved but I had chemo in the summer and got short sleeved. But maybe people don’t want to spend $70 on two shirts. I disliked doing it.
Do you happen to remember the name of the drain belt on Amazon or could you send me a link? Was it this one?
Stupid me bought an expensive cancer planner thing that I used once. If you invest in anything, I would say a simple binder and inexpensive 3 ring hole puncher. To be fair to what I bought, if I had actually used it, I think it would have been valuable. This is it cancer planner. Some would love it but I wish I had that $46 back.
I bought this one
Some states require two-party consent so I kept mine in my purse for all visits 🙊
I had a reduction at the same time as my lumpectomy so I’m assuming it’s near close to the same thing.
I had glue instead of stitches and it was great. I could shower the next day. Because I had a sentinel node biopsy I had a drain under that breast for a week. That was the worst part. If they don’t give you a drain bag, buy one. I showered with it on because the drain was such a pain.
I bought these bras so it wouldn’t push on the stitches and they were amazing. No seams. I wore them for about s month. I still wear them actually. They’re great lounge bras.
https://smile.amazon.com/gp/aw/d/B07Q2WZ3X1?psc=1&ref=ppx_pop_mob_b_asin_title&th=1
I had a horrible reaction to radiation. I’m a year and a couple months out of radiation and I have lymphedema in that breast. And it also shrunk. A lot. But apparently none of that is super common.
Your nipples will look so high right after surgery! They settle. As do your breasts. They were so round for about two weeks. The scars are also shocking. But they’ve faded and I can barely notice them.
I wish you luck!
I will recommend the book surviving survival https://www.amazon.com/Surviving-Survival-Art-Science-Resilience/dp/0393346633 it uses breast cancer specifically as one of the examples, the who you are after this experience(even calling yourself a lucky one), is a different you than you were before the experience. Its normal to feel this way, you need to work on finding what the new you is. Be patient, find the new you. I say this as I support my wife, stage 4, on the brink of possibly a failure of her second line of treatment. even after the first time and they declared here no evidence of disease, after going through it here stamina was not what it was. We were hikers and campers before. We have adjusted, you will get to do what you love, hell, we took a month long road trip this summer visiting 11 national parks. we even did a few 5 mile hikes. Was it easy for her, no, but she did it, and we did rest the remainder of the day, but she could still enjoy those things.
It was a three quarter length top basically. This isn't the exact one, but it's similar. I also wore a cotton bralette under bc the part in the front where it fastens was kinda Itchy.
Yes, I slept in my bed. Got a wedge pillow to stay on my back, and got one of those “bed ladder” things that helped me climb out of the sleeping position using my arms. (Though a physical therapist did discourage me from using that after weeks of recovery.) Here’s an example of that bed tool.
For surgery- 1. A bed rail that has a pocket; I don’t know how I would have gotten out of bed without it (had a single mastectomy). Still using it sometimes at 3 weeks out of surgery. https://www.amazon.com/Assist-Without-Seniors-Storage-Support/dp/B0B1JSVBJL 2. A drain belt that has pockets that I could use with all my pajamas. 3. I got one of those hospital bedside tables. Maybe not necessary but it helped a lot. 4. Mastectomy pillow was gifted to me from a charity group, but also I used travel neck pillows for under my arms! They worked great! 5. Seatbelt pillow
I also bought a few of these bras and I wore them for a few months. I bought a drain belt from Amazon that came with a shower lanyard.
I always recommend a mastectomy pillow. It really helped me be comfortable after surgery and once my drains were removed it helped me sleep on my side. Here’s the one I had https://smile.amazon.com/Mastectomy-Surgery-Pillow-Breast-Cancer/dp/B08K88SCQQ/ref=mp_s_a_1_5?crid=GA2GKOBWYN1R&keywords=mastectomy+pillow&qid=1664889834&qu=eyJxc2MiOiI1LjU5IiwicXNhIjoiNS40OSIsInFzcCI6IjUuMDQifQ%3D%3D&sprefix=maste...
Just help her out and keep her fed and hydrated is the best way to help. Also help with her drains which are the worst part of the process.
These are the mitts I'm using: https://www.amazon.de/dp/B08DRPK3YB
And these are the socks: https://www.amazon.de/dp/B08ZSTPG97
Bought 2 pairs of each, and the nurses keep one pair in their freezer to swap them every time I find they're not cold enough anymore.
Hi! I’m about 7 weeks out from my BMX w/expanders (no nipples as well).
This is the bra I feel most comfortable in right now:
Fruit of the Loom womens Front... https://www.amazon.com/dp/B076J42M4H?ref=ppx_pop_mob_ap_share
I’ve always liked wirefree bras, so I could wear my old bra’s, but of course they don’t fit yet.
I like the Hanes sport bras because of the front closure. They are especially handy for all of the on and off at dr appt’s. They keep things in place, but not too snug. The filling part of the expander process can start to get uncomfortable as they get bigger (I’m starting to get a little saggy until my exchange surgery, so the sports bra aspect helps).
My dr said I can wear whatever at this point, but I’m getting close to my max fill for my expanders, so comfort is key.
HTH-good luck with your process and message me if you have any questions.
Biotin. A friend of mine recommended this growth oil. She said it made a huge difference in her boyfriends hair growth, and was able to show me before and after photos. She did warn me that it made his hair very oily though. And I've always found that Mane and Tail shampoo/conditioner makes my hair grow really fast. So I always recommend that to anyone trying to grow their hair out. When I started using it I basically had peach fuzz, and three-ish weeks later I have about an inch of growth. And my hair usually grows very slow. It took me two months to grow an inch of hair without using it. Otherwise, it will just take time.
I asked for Silvadene cream for my weepy underarm area and it worked really well. I kept a gauze sponge under my arm sort of held in place by a more fitted tank because bras were definitely out of the question for me. I did this before and after I got the Silvadene, but once the gooeyness went away, I no longer needed them.
https://www.amazon.com/gp/product/B00LITWW0S/ref=ppx\_yo\_dt\_b\_search\_asin\_title?ie=UTF8&psc=1
My long Italian dark hair was falling out in actual piles between the first and second treatment. By the second, I was bald.
I have a few packs of these. So soft and comfy. I forget I have them on and realize it when I walk past a mirror at home. Ooops. Then I take it off in the house. I wear them all the time though when I walk outside of my house. https://smile.amazon.com/Pieces-Pre-Tied-Turban-Beanie-Headwear/dp/B092SLHDSS?pd_rd_w=qkCo2&content-id=amzn1.sym.deffa092-2e99-4e9f-b814-0d71c40b24af&pf_rd_p=deffa092-2e99-4e9f-b814-0d71c40b24af&pf_rd_r=T896H1CD57EF084B79YE&pd_rd_w...
This is my favorite chemo cap - it's cotton, breathable, and you can pop it in the washing machine and it doesn't wrinkle. And it comes in lots of colors.
https://www.amazon.com/gp/product/B08CVRH3ZB/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1
I used a mastectomy pillow as I’m a side sleeper. I found I could move it around to get comfortable without having lots of pain. I’ve recommended it for everyone I know whose had this surgery. https://smile.amazon.com/Mastectomy-Surgery-Pillow-Breast-Cancer/dp/B08K88SCQQ/ref=sr_1_6?crid=17UE3BGXO2YOB&keywords=mastectomy+pillow&qid=1662300385&sprefix=Mastec%2Caps%2C138&sr=8-6
Gel ice packs like these from Amazon are absolute life savers. You can slap them wherever you get the hottest (it’s my neck and scalp for me) and they’ll help regulate out temperature. Also excellent for taking into bed with you so you can cool off enough to get to sleep. I haven’t gotten this exact pack but I’ve ordered many, I have over a dozen of these in my freezer (they don’t take up much space at all). Also great for fevers and when you’re feeling nauseated!
I lived is this shirt for two weeks because it has snaps, pockets for the drains and was comfortable. Another option that I did a few times was wear a bathrobe inside out so the pockets were on the inside. https://www.amazon.com/dp/B00EE847GM?psc=1&ref=ppx_yo2ov_dt_b_product_details Also, I really liked this mesh lanyard for showers. https://www.amazon.com/dp/B08316Y79H?psc=1&ref=ppx_yo2ov_dt_b_product_details The first couple days are hard (take the pain meds!) but it gets easier. Best of luck to you!
Yes, I got my gloves and gel packs from Amazon: - gloves: Healthy Hands Hand Ice Pack Wrap... https://www.amazon.com/dp/B086VP9PQX?ref=ppx_pop_mob_ap_share - socks: NatraCure Cold Therapy Socks -... https://www.amazon.com/dp/B003L4WOKG?ref=ppx_pop_mob_ap_share
Hope that helps ❤️
It was pretty swollen! I iced a lot and stretched and it resolved itself in a few days. Also a friend got me this from amazon and it has been a lifesaver.
I bought them on Amazon. The brand is Newgo. I got the slippers and the mittens with wrap around strap.
https://www.amazon.com/NEWGO-Slippers-Neuropathy-Chemotherapy-Diabetes/dp/B09NY1BLTN
https://www.amazon.com/NEWGO%C2%AEIce-Arthritis-Injuries-Microwavable-Freezable/dp/B086TT46FM
I hated most all head covering options. And I *really* hated the photos of women in head coverings to advertise the goods- they all look so unrealistically happy. :) I found the newsboy cap style to be the best for my head- this one.
This what I bought, (it's like having 2 in 1 because you can choose whether or not to use the scarf that comes with it) : https://www.amazon.ca/Alnorm-Scarf-Women-Newsboy-Black/dp/B07M95PCTV/ref=lp_10292661011_1_5?th=1
I found the bamboo lining to be nice on my bald scalp & also be cool during the summer & warm in the winter, (bamboo is fun that way).
I’m with you. I do not like the frilly hats. The one I wore 98% of the time is this one: https://www.amazon.com/CHARM-Casualbox-Womens-Beanie-Slouchy/dp/B01DP8N3U2. It was really comfortable. My mom asked when I was going to get a “cute” hat eye roll, but I loved it. Also, a friend gave me colorful set of pre-tied turbans or head wraps. She said no one has time to tie scarves every day. I’m not sure if I could pull those off, but got them after chemo when my hair was growing back and didn’t have much of a chance to wear them.
I'm pasting an answer I gave a bit ago about this:
1)start using lotion now.
2)After someone on this board mentioned it, I picked up some silicone anti-chafe spray that athletes use (This stuff)Once radiation started, I used it morning and evening First I'd slather up with lotion. Then spray this stuff on boob, underboob, armpit. It's kind of like Pam cooking spray, so I'd brush my teeth while it dried a bit, then just dressed normally. It never stained anything (but I'm more t-shirt than silk, so I never really tested it on delicate fabrics) My radiation oncologist said it's inert and would not harm anything. By the end of nearly 7 weeks, he was recommending it to his other patients.
3) if you are having your lymph nodes radiated as well, DON'T FORGET TO PUT LOTION ON THE BACK OF YOUR SHOULDER ON THAT SIDE. I had ZERO breakdown under the boob or in the armpit. But it never occurred to me that radiation would go through the top of the shoulder and to the back. That was the place that blistered and itched like mad.
Ok - I have given this rec before but I didn’t know this existed. Fractionated coconut oil! It’s what my rad onc told me to use on my skin as a light moisturizer (before the heavy ones were needed) and you can put it in your hair to soften it too. I plan on always having it now for dry skin, hair, etc. Fractionated coconut oil
1)start using lotion now.
2)After someone on this board mentioned it, I picked up some silicone anti-chafe spray that athletes use (This stuff)Once radiation started, I used it morning and evening First I'd slather up with lotion. Then spray this stuff on boob, underboob, armpit. It's kind of like Pam cooking spray, so I'd brush my teeth while it dried a bit, then just dressed normally. It never stained anything (but I'm more t-shirt than silk, so I never really tested it on delicate fabrics) My radiation oncologist said it's inert and would not harm anything. By the end of nearly 7 weeks, he was recommending it to his other patients.
3) if you are having your lymph nodes radiated as well, DON'T FORGET TO PUT LOTION ON THE BACK OF YOUR SHOULDER ON THAT SIDE. I had ZERO breakdown under the boob or in the armpit. But it never occurred to me that radiation would go through the top of the shoulder and to the back. That was the place that blistered and itched like mad.
1)start using lotion now.
2)After someone on this board mentioned it, I picked up some silicone anti-chafe spray that athletes use (This stuff) Once radiation started, I used it morning and evening First I'd slather up with lotion. Then spray this stuff on boob, underboob, armpit. It's kind of like Pam cooking spray, so I'd brush my teeth while it dried a bit, then just dressed normally. It never stained anything (but I'm more t-shirt than silk, so I never really tested it on delicate fabrics)
3) if you are having your lymph nodes radiated as well, DON'T FORGET TO PUT LOTION ON THE BACK OF YOUR SHOULDER ON THAT SIDE. I had ZERO breakdown under the boob or in the armpit. But it never occurred to me that radiation would go through the top of the shoulder and to the back. That was the place that blistered and itched like mad.
I was able to wipe myself right away, thankfully!
You can find a tool on Amazon made especially for this.
Laroche Posay anything
Udderly Smooth Cream - Oncologist basically demanded my wife use this. It is sold everywhere, including Wal-Mart.
Glaxal Base Cream - For radiation. Same as Udderly, radiation oncologist recommends that this must be used multiple times a day on chest and neck. Costco sells it in big containers.
Yes! Daily nosebleeds and nose running like a faucet. I ordered this saline Nasogel from Amazon. Nasogel
My rad onc had me use fractionated coconut oil on my skin during the first part of rads. I bought it from Amazon. Fractionated Coconut oil My rad nurse said that many patients also rub it into their hair if it gets coarse. Just an idea.
I bought this cooling blanket and have found it to be reasonably helpful.
Bamboo sheets for me don’t help. But everyone is different.
I use my regular sheets and the cooling blanket allows me to stay reasonable comfy during hot flashes as I am one to kick all blankets off - then be freezing the next min.
Homue Cooling Blanket King... https://www.amazon.com/dp/B08TTGSXL4?ref=ppx_pop_mob_ap_share
I found wigs to be too hot so I bought bangs to go under sun hats & scarves:
https://www.amazon.ca/dp/B074J5B68W/ref=twister_B06XDRVP4L?_encoding=UTF8&psc=1
Just had 6 1/2 weeks of radiation. In the very first meeting, my radiation oncologist said people really *really* do better if they get at least a half hour of exercise a day through radiation.
I have a working breed dog and so I kind of have to be out at least walking every day and then throwing something for him to chase ~45 minutes a day. And while I did get tired in the afternoons, I didn't have particularly debilitating fatigue through treatment (which ended on June 14th)
And I did really notice - especially the last few weeks - if for some reason I did NOT do any exercise (the two days his paw was hurt, or the rare occasion my husband walked him instead), those afternoons were my worst fatigue.
And there were several days when I was tired but I *had* to do some strenuous activity (particularly physical day at work, or the only clear day in the forecast to wrestle our ancient push power for an hour). I always expected to be absolutely wiped out afterword, but those afternoons were the ones I felt the best.
YMMV, but paradoxically the more active I was, the better I felt. On days I didn't move much, I was exhausted. So if you are already active and keep it up, you may get through this with less fatigue than you think.
One last hint - someone on this sub mentioned using an anti-chafing spray over the lotion in any place skin could rub in the radiation field. My radiation oncologist said there was no harm and it might help. Towards the end of my treatment, he said my skin did amazingly well and started recommending it to others. This is what I used:
I waffled back and forth for mine but I felt very strongly that I didnt want the implant and just went in. It was my first surgery ever, and it was a big one. I had mine in January. I'm pretty happy with it - having a revision in July.
Straight out the gate: do not look at DIEP as a "tummy tuck" - the scar is similar but it will not necessarily live up to your expectations if that's what you want. My incision is still a little lumpy and will need revision. A lot of DIEP feedback online will agree with me (as would probably your doctor) - it is NOT a tummy tuck sorry :/
The worst part for me was the sleep deprivation during my 3 day hospital stay. They wake you up every hour for the 24-48 hours to make sure the blood flow to your flap is strong. The sleep debt was REAL.
My must haves for recovery:
- wedge pillow to sleep on your back and pillow under your knees at night. (I bought this one)
- this pillow from etsy was worth every penny
- drain pouches - I had 6 drains taken out over 5 weeks. One of my hip drains did not want to stop, but better the fluid out than staying in. I didnt need any special drain holder bra, but some little pockets to put them in was nice (BEWARE CATCHING YOUR TUBES ON DOORKNOBS OMG ITS THE WORST)
- I purchased muumuus from amazon that zipped or button down the front. You will not be able to raise your arms above your head for a bit.
Good luck and feel free to PM me if you have questions :) Happy to share.
Lavilin worked as a deodorant pretty well for me and my *ahem* manly ex, although it's not really an antiperspirant per se
The compression bra the hospital put on me was itchy, ill fitting and uncomfortable. When I got home I swapped it out for two soft cotton sports bras that clasp open in the front.
Then i bought these gel ice packs - which have been a godsend.https://www.amazon.com/IceWraps-Reusable-Packs-Cloth-Backing/dp/B00XM1JI48/ref=mp_s_a_1_2_sspa?crid=23UY4NB8H62I0&keywords=breast+ice+packs&qid=1654665634&sprefix=breast+ice+%2Caps%2C148&sr=8-2-spons&psc=1&spLa=ZW5jcnlwdGVkUXVhbGlmaWVyPUFZWFZQQTlERUlGS0UmZW5jcnlwdGVkSWQ9QTA3MDE0MzUxVFpZUDNJOFkwVjJNJmVuY3J5cHRlZEFkSWQ9QTA3MzI0MDMyQTVEQVZMVjJEUDVZJndpZGdldE5hbWU9c3BfcGhvbmVfc2VhcmNoX2F0ZiZhY3Rpb249Y2xpY2tSZWRpcmVjdCZkb05vdExvZ0NsaWNrPXRydWU=
I got a baby wash from Aquaphor and it was so great. Aquaphor Baby Wash and Shampoo - Mild, Tear-free 2-in-1 Solution for Baby’s Sensitive Skin - 16.9 fl. oz. Pump https://smile.amazon.com/dp/B01EAH644Y/ref=cm_sw_r_cp_api_i_RJ5H12ZNA58FJR018KSA?_encoding=UTF8&psc=1
I bought several of these to recover after mastectomy and reconstruction surgeries, and again after lymph node removal 2 years later. It’s super comfortable, and opens in the front so it’s easy to get in and out of.
Annette Women's Post Surgical-Leisure-Sleep Bra https://www.amazon.com/dp/B0197G6H86/ref=cm_sw_r_sms_api_i_H5ZNV7EDQZV29216WBFP?_encoding=UTF8&psc=1
I like these ones - Fruit of the Loom Women's Comfort Front Close Sport Bra With Mesh Straps https://www.amazon.com/dp/B072QN1DXX/ref=cm_sw_r_cp_api_i_C1THVFJ99J55N27SX6EC
I'm 3 months out and still wearing them
Yes mine did the same and I just babied them until they grew out long enough to cut. I finished HP on 3/31 and I still have issues with brittle nails.
For gardening, I got these gloves. Garden Gloves with Claws - 4 Pairs Waterproof and Breathable Garden Gloves for Digging, Planting, Weeding, Seeding, Protect Nails and Fingers, Best Gardening Gifts for Friends https://smile.amazon.com/dp/B08Z86PYMF/ref=cm_sw_r_apan_i_4QWEA87PMWX7NZAWZBY6
It actually isn’t to bad of a surgery. The lumpectomy part is pretty easy ( I’ve had a lumpectomy and a re-excision and then a breast reduction). The worst from all 3 was the sentinel node biopsy. It felt like a Brillo pad was rubbed under my arm. I just finished radiation and that’s the place that still feels tender and I had my nodes removed in July 2021.
For the lumpectomy all I bought was two of these bra’s :
Hello! The best, most helpful item after surgery was this pregnancy pillow - allowed me to sleep in my own bed comfortably without fear I would roll over and hurt myself during the night.
QUEEN ROSE Pregnancy Pillows, U Shaped Full Body Pillow for Sleeping Support, 55 Inch Maternity Pillow for Pregnant Women with Removable Velvet Cover, Grey https://smile.amazon.com/dp/B01N44MTLJ/ref=cm_sw_r_cp_api_i_XXAE47HWBJRVQ7YXCXP8
Also they have a special pillow for riding in the car someone mentioned above. It’s very helpful, and I actually have one I would love to send to you if you would like it.
My natural hair color is brown and this is black with blue but if I had to lose my hair I wanted something fun. I cannot tell you how many compliments I got on my “hair”. I bought many wigs on Amazon, I worked from home but was on Zoom a lot so I found one close to my natural color and former cut. But this was by far my favorite:
AISI HAIR Short Bob Wavy Wigs... https://www.amazon.com/dp/B08KZ9WN45?ref=ppx_pop_mob_ap_share
Neuropathy Nerve Therapy & Relief Cream - Maximum Strength Relief Cream for Foot, Hands, Legs, Toes Includes Arnica, Vitamin B6, Aloe Vera, MSM - Scientifically Developed for Effective Relief 2oz https://www.amazon.com/dp/B082T4Y3MR/ref=cm_sw_r_cp_api_i_H8FKQT3PFM45MZYG4467?_encoding=UTF8&psc=1
I wore clip in bangs from Amazon under a beret. I even had an oncologist ask me why my hair hadn't fallen out yet when I went to the cancer clinic so I'd say they looked pretty realistic.
Medihoney patches Were recommended to me and worked well. I had a nasty burn on my neck..
Definitely! My mom gets the pain in her upper back and shoulders, there's a great one that's made just for that area. It's a little pricier than standard heating pads, but worth the investment if you get you pain there.
First off, I'm sorry that you're going through this. It's incredibly difficult and I hope you know that you're not alone in this.
I was diagnosed with S3 brain cancer the summer of 2020 and this past jan was told I also have S3 breast cancer. This is the shirt I got for my treatments. Expensive, but I bought in black so it wasn't noticeable I wear it everytime.
​
Good luck, friend. *hugs*
Omg yes. I am 35 & have been on an AI (Letrozole & monthly Lupron shots) since January 2021, zero sex drive, drier than the Sahara with crepe thin walls, & the first time I attempted PIV after a few months of the pill/shot it was excruciating & I was SO sore. My oncologist referred me to a women's health Dr who said that because we are starving the body of estrogen (my cancer monster is hormone fed) there's nothing to produce your natural moisture. She gave me a pamphlet with various creams/vibraters/dilators & recommended a moisturizer to use daily to soften the tissue & then a lube to use for sex. The lube has been crucial, something I have recently tried that was a huge success was giving my partner a latex glove & the lube bottle, I had them liberally apply the lube to the area & use their gloves finger/s to gently slowly get the lube moving around the vagina & slowly stretching it at the same time, if there was an area that hurt we added more lube & went back again, after I was feeling soft & comfortable we did the PIV & honestly the pre-game routine made a HUGE difference from our previous attempts so I highly highly recommend it.
My hair started coming out the second week of chemo. Never got fully bald, wispy hair remained throughout 12 Taxol and 4 AC. During the first couple weeks of thinning, the back of my head became very greasy and sweaty and sensitive. I never shaved but my hair was short to begin with (1 to 2 inches long), I just let the hair fall out naturally. I washed body and scalp with Dove moisturizing body wash, and used Aspercreme with Lidocaine roll-on after showering to soothe the itchiness. Moisturized the rest of my body with Vaseline Intensive Care lotion. The Aspercreme is available at Amazon here, or at any pharmacy. BTW this is also good for itchy insect bites!
Someone on here recommend using a round Squishmallow as an underarm pillow. I lived with that thing for the first week, including walking and sleeping with it so my arm wouldn’t rub against my chest. Here’s the one I bought: Cartoon Bubble Tea Plush... https://www.amazon.com/dp/B08PNVKJXG?ref=ppx_pop_mob_ap_share
I ordered some but then when it arrived and I read more about it it said that when you stop using it hair can shed badly… so I didn’t end up using it.
I’ve been using some stuff off Amazon I ordered..
Life & Pursuits Organic Hair Growth Oil (200 ml) With Bhringraj, Amla, Onion, Almond, Sesame, Coconut & Castor Oil For Ayurvedic dry Scalp Therapy, Strong & Healthy Hair https://www.amazon.com.au/dp/B075F2RVT8/ref=cm_sw_r_cp_api_glt_i_12W4HSFHY4W64TVR310P?_encoding=UTF8&psc=1
And some rosemary and something else natural growth stimulating shampoo
My hairs coming in SUPER thick!
Nerve pain was irritating. I bought into compression ankle socks to wear at night because that’s when the feet really got to me.
Plantar Fascitis Socks... https://www.amazon.com/dp/B07B79WX8Q?ref=ppx_pop_mob_ap_share
My doctor didn’t believe in the hands/feet icing - but I saw others doing it and they swore by it.
Eat ice chips during your treatment - especially when chemo drugs are going. It’ll make a HUGE difference in your mouth and prevent the formation of mouth sores which suck.
Absolutely! I used these gloves and these slippers (I believe we also ordered some extra gel packs for both). Some ice in a cooler was sufficient to keep a frozen set of gel packs, and I could rotate them when the set I was using warmed up too much. Of course it's super important to avoid frostbite, so I took some breaks during my infusions, and would also allow the packs to warm up a bit before switching them out (not to room temperature, but also not keeping a frozen-solid set on all the time). If my hands or feet felt like they were getting that sort of stiffness from cold, I'd also take a short break. As you might know, the theory behind this is that cold constricts the blood vessels, meaning less of the chemo drugs circulate through whatever's being iced during infusion, when the drugs are in the highest concentration in the patient's body, and that results in less damage to those areas. I also read about people chewing ice chips during infusions to avoid mouth changes, and once I started doing that, I had none of the mouth issues I'd had beforehand - all I had was a lingering weird taste for a few days shortly after each infusion.
I hope your mom doesn't need chemo, but that if she does it goes well! If you have any other questions, please ask!
I find dresses with bulk/ruffles at the chest balances everything out: https://www.amazon.ca/Anna-Kaci-Womens-Peasant-Ruffle-Stretchy/dp/B01LEXINUK/ref=sr\_1\_54?crid=18ZG1TGM2VC9&keywords=white+dress&qid=1645488052&sprefix=white+dress+frill%2Caps%2C405&sr=8-54
These are in my Amazon cart, but I can’t vouch for them personally:
Moisture Proof Pill Sorter Pill Organizer Pill Box Large Pill Dispenser Home Supplement Holder Portable Vitamin Jumbo Size 8 Compartment Airtight Travel Pill Container Daily Medicine https://www.amazon.com/dp/B07Q4V1MGP/ref=cm_sw_r_cp_api_glt_i_PT8C21SJTNDYJXNRWECN?_encoding=UTF8&psc=1
FYY Daily Pill Organizer,7 Compartments Portable Pill Case Travel Pill Organizer,[Folding Design] Pill Box for Purse Pocket to Hold Vitamins,Cod Liver Oil,Supplements and Medication-DarkGreen https://www.amazon.com/dp/B09J2G6G4L/ref=cm_sw_r_cp_api_glt_i_VJD93CZYYX5V6J47369M?_encoding=UTF8&psc=1
This is what I ordered from Amazon. Gel nasal spray
I'm sorry for your mom's diagnosis! Wishing her the best as she begins treatment. I loved these head scarves:
https://smile.amazon.com/gp/product/B07BFX7ZS3/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1
To hold my drains, I ordered these from Amazon. The blue mesh bag is for showering, and the pink pouch is for everyday use.
As others have stated, wig caps are not necessary. I personally wore a silk head covering at night and these during the day, I bought several packs. https://www.amazon.com/dp/B07GWY46V8/ref=cm_sw_r_cp_api_glt_i_48QYG78AW6Q2C8630493?_encoding=UTF8&psc=1
Amazon has a wide range of reasonably priced hats, wraps & beanies. I got some baker boy styled hats which coved my head nicely & actually looked nice too. Here's the one I got, (the bamboo lining really maked a difference with my bald head, very soft & it came with a nice scarf): https://www.amazon.ca/gp/product/B07M95PCTV/ref=ppx_yo_dt_b_asin_title_o03_s01?ie=UTF8&psc=1
I know a few survivors who have this suit: https://smile.amazon.com/dp/B0746C5RGK/ref=cm_sw_r_cp_api_glt_i_Z593RMJ9AZS9SN3RZGTH?psc=1
Or this 2-piece version: https://smile.amazon.com/dp/B09DSCFWKJ/ref=cm_sw_r_cp_api_glt_i_2PD5306RMMMSWFT7ERD1?psc=1
Basically a ruffly top, particularly one with a pattern on it, will camouflage things a bit. Good luck!
You can do testing on your own, here's one on Amazon people do for $250 https://www.amazon.com/Color-Genetic-Health-Genes-Unavailable/dp/B01N9VH79S Color has even cheaper ones available - there's tests out there for $49 and $99 - you don't have to wait is my point.
And FUCK cancer entirely!!!!
I loooooove Nuud deodorant. I've used it 3 years now and I'll never go back to regular deodorant.
You can get sturdy plastic "crystalware" utensils, but honestly I'd suggest wooden chopsticks. Not the cheap kind you get with delivery, go to an Asian market and get some decent wooden ones. They'll also have ceramic/porcelain soup spoons.
If you can't use chopsticks, you might not feel like learning now. In that case look for bamboo cutlery like this.
Walking is the oldest and maybe best? exercise if you can do it.
I'm almost 3 months post chemo and 6 weeks from surgery and I was on my ass for practically all of it.
I'm feeling like I'm getting back to normal but I'm just starting radiation and I was told to expect more fatigue. 😭
I recently bought a vibration plate and it has been so awesome. I've been stiff and sedentary so long but this loosens up my joints and muscles and has made it easier for me to start being active again.
At first I just stood on it and worked up to 10 min a day. Now I do mild squats or muscle flexes while I'm on it.
Definitely recommend one!
I have no room for any additional furniture in my home. I got this https://www.amazon.com/Lunix-Orthopedic-Comfortable-Adjustable-Sleeping/dp/B07ZP6SJDQ
My brother purchased it for me and had it sent to my house.
I'm about 4 months post-op. I still use parts of it every once in a while. It also came in handy when my teenage daughter was sick. Her coughing was worse when she was completely horizontal so this set-up helped her get a more restful sleep.
These are the gloves I ordered, but there are other versions available on Amazon. Healthy Hands Hand Ice Pack Wrap – Cold Therapy for Hands - Ice Gloves for Chemo, Neuropathy, Arthritis, Injuries and Working Hands – Includes 2 Mittens and 4 Reusable and Flexible Gel Ice Packs S/M https://www.amazon.com/dp/B086VP3N2J/ref=cm_sw_r_apan_glt_fabc_9BEA36JGAA7D6PRWQG8Z?_encoding=UTF8&psc=1