wow! just wow. Butt clenching story right here, reminded me of my own troubles, but you might be on another level.
As others suggested, try the Wise Anderson protocol, it is what got me out of the nightmare. As I m not from the US so I don't know how expensive is the treatment , you have other ways , you can buy the book "A headache in the Pelvis" and see if that relates with you (which judging from the symptoms you wrote, it will), and also you can find techniques and info about Wise Anderson protocol online.
I really really hope you get better
Omg so many of us being given antibiotics. So wrong in so many instances. Why take antibiotics if there is no sign or trace of a pathogen in your blood test result? You have no fever, no blood in your stool, and no pus, right? Digital rectal exam and/or mri were fine, right? You most probably have CPPS. No antibiotics needed. A good urologist will confirm that.
Reduce stress levels as best you can. Stretch. Avoid sitting for long periods of time. High dose omega-3's daily. Apply warm-hot gel packs on your parts (I personally do not recommend cold). Start getting bi-weekly acupuncture.
This is another great book:
The book covers exercises as well as internal and external trigger point release.
Heal Pelvic Pain: The Proven Stretching, Strengthening, and Nutrition Program for Relieving Pain, Incontinence, I.B.S, and Other Symptoms Without Surgery https://www.amazon.co.uk/dp/B001FA0O96/ref=cm_sw_r_apan_WV31XN0S2CE6TZYQCAJN
This book actually took me years to find, as most material on the subject is written for the ladies. This has an actual chapter for men. It's gold dust in my estimations.
I take the same…the zinc it took me a second to realize it’s 50mg a week. So I usually just take my multi with 5mg and then break one in two, and take a half at on Sunday. Also what good is DHEA, which is for T levels which helps me a lot. And then another is this one at the bottom. It helps secretion in the prostate be more fluid. 2 tablespoons a day. Been on it a week now and had the best sleep ever, going into work today!
NOW Supplements, Sunflower... https://www.amazon.com/dp/B00J8ET8IO?ref=ppx_pop_mob_ap_share
While IC/BPS does happen in men, its more common in women for whatever reason. There is absolutely crossover in symptoms.
Often things that help IC - histamine blocking supplements or medications (mast cell degranulation is a major mechanism for IC/BPS). Including Buffered vitamin C (2g a day).
IC diet is also very helpful for many.
As well as things like marshmallow root and freeze dried aloe vera.
Sorry I should clarify. I'm not talking about the disposable ones. Every one I've bought for use throughout the day has been awful - just not warm enough and doesn't stick well. So sadly, while I was working, not much I could do.
But at home I used hot water bottles, which helped relieve the symptoms massively for a few hours, and I also bought a small electric heated pad/mat that I could sit on, because they also went up to a good temperature. Oh and I got a electric heated blanket for the car aswell that I could sit on.
(https://www.amazon.co.uk/Cosi-Home%C2%AE-Luxury-Electric-Heat/dp/B07SZ11CM9/ref=sr_1_20_sspa?keywords=Electric+Blankets&qid=1656234854&sr=8-20-spons&psc=1&spLa=ZW5jcnlwdGVkUXVhbGlmaWVyPUExRVo4UTQ3TDRPNjBOJmVuY3J5cHRlZElkPUEwODQ4NzY... Don't know if reddit will get rid of my amazon link, but that's the kind of thing I'm talking about)
Bought this one, no regrets 😉 Deal: Everlasting Comfort Office Chair Seat Cushion Pillow for Back, Coccyx, & Tailbone Pain Support Pad https://www.amazon.co.uk/dp/B01EBDV9BU/ref=cm_sw_r_cp_api_i_dl_V1G6PFK1ZPRVER2Q5F2Y?_encoding=UTF8&psc=1
I do know what you mean, yeah. Mine hasn't quite annoyed me the way yours has, but I've had a similar feeling from time to time.
You could also try splitting time between a "knee chair" and a standing desk, if you really wanted to go "all in." Standing desk and knee chairs have the same problem; you really can't do them all day long. But you could probably split time between them (I haven't tried that myself).
It's called trojan extended pleasure. Another condom that has worked is magnum ones, they are bigger and thicker. They are less tight than regular condoms. Here's a link to Amazon Trojan Extended Pleasure Condoms with Desensitizing Lubricant - 12 Count https://www.amazon.com/dp/B004WDRCTI/ref=cm_sw_r_awdo_6GFC3TYVH853E33A4DDD
Your post is a bit old, but I should like to point out the existence of kneeling chairs and standing desk converters.
Not tried it yet. Concerned it may make things worse.
Though the massager feels good.
I thinking a lot about the scar tissue model. That there is damaged tissue in the area of the perineum interfering with the pudendal nerve. Though scar tissue can't be removed. It can be soothed.
This is on my mind because years ago I had a dribbling issue which I cured by stopping cycling. So I figure my prostatitis is really a pudendal nerve issue.
But would a massage gun make things worse?
I'm taking a supplement with Saw Palmetto 280 mg + Nettle 250 mg + Pumpkin Seeds 300 mg + Willoherb 100 mg and I feel it's helping a lot with inflammation.
Look into IC/BPS treatment yet? Quercetin, Buffered Vitamin C, Pollen extract, Aloe Vera, marshmallow root? All good for symptoms.
Or try the IC diet?
You can also ask your doctor for a low dose amitriptyline script. Its a neuropathic pain reliever in low doses. Esp helpful with urinary symptoms.
Acute bacteria prostatitis = fever, chills, body aches and UTI symptoms - usually end up in the hospital - is this your experience?
Maybe you have an IBS issue? That and CPPS are common comorbid conditions. One causes or influences the other.
May be worth trying Quercetin, Buffered Vitamin C (2g a day), and pollen extract, along with going gluten free (some also try removing dairy). As well as other irritants like caffeine, alcohol, spicy foods, etc.
Well, step #1 would be getting a special pillow. I picked that one randomly, it's not a recommendation.
You could also consider a standing desk set up, if your situation for extended sitting is work related.
For muscle pain, non-bacterial Prostatitis, I take Soma (antispasmodic) via prescription, Advil, thermophore heat/moister pad
The chair is probably not as important as using a donut like this:
I use one on a super cheap office chair and it helps a lot. A cheap chair without much seat cushioning may be better with this actually because you'll feel more stable in the chair.
Just make sure you keep taking it. Water intake is very important so stay on top of that. Zinc I take the 50MG every 4 days. I will attach the link in case you want some. https://www.amazon.com/Natures-Bounty-Zinc-Caplets-100/dp/B000GCQ8X0/ref=sr\_1\_5?keywords=zinc&qid=1638560197&rdc=1&sr=8-5
This is a complex symptom to accurately diagnose over a few words/sentences through online messages. If your stool and urine look and smell normal, I would suggest starting with ingesting more water each day or taking stool softener. Then secondly look up some pelvic floor stretches and do them methodically before your daily movement and before bed. CPPS is a chronic issue, do not catastrophize your pain and discomfort, stress only clenches your pelvic muscles tighter, causing straining during bowel movements and other voiding discomfort because your internal/external lower abdominal area is like a vacuum seal storage bag stuffed full of delicate items - but it's had all the air sucked out very tightly and now everything is smushed and smashed against one another - and now try passing a stool through that lmao
STRETCH. UNWIND. BELLY BREATHE. avoid excessive caffiene and acidic foods and excessive alcohol.
use some of this cream up there, as someone who's healed and still healing drop CPPS and hemorrhoids and also used to do heavy power lifting, this cream will change your life.
I've used dozens and this one is King.
Doctor Butler's Advanced Hemorrhoid & Fissure Ointment - Lidocaine Hemorrhoid Treatment That Helps Protect Skin While Healing for Fast Acting Pain Relief, Itch Relief and Swelling* (1.5 oz. Tube)
I have CPPS all due to muscle spasms and sitting on this Thermophore Pad helps me survive the day while working at a desk.
It is unlikely you need to strengthen your pelvic floor, so don't do kegels, these could actually be detrimental if you are tightening up an already tight floor and I think are more for women with a loose pelvic floor after childbirth say. Look up reverse kegels. This is the act of relaxing and 'dropping' the pelvic floor. I found Amy Stein's book helpful which talks through how to drop your pelvic floor whilst doing deep breathing.
Yeah mate it is tough in the UK to find a PT. Where are you based? There is Gerard Greene near Birmingham if that is helpful. I've not seen him but he is recommended on the UCPPS forum. Otherwise if you are really struggling you could always look up womens pelvic floor physios and then check to see if they would also do mens.
Good point, I forgot to mention what type on TENS! I tried one like that (was expensive ~$150 and only had auto massage modes) at first for the leg and sacrum, but the physio said a basic one, with selectable frequencies was better. You want one that you can easily set the frequency and rate and adjust the intensity.
The TENS7000 is the same as the one I use, but I recommend getting one with built in rechargeable batteries as you will go through a few 9v batteries if not. When the batteries start to go flat, the feeling gets stingy and spikey. The ultima 5 or similar is what I would buy. The square 40x40mm pads are the size that I found best. Grab a bunch of extra pads while you're at it, as you'll go through a bunch if you're hairy down there. Also some electrode/TENS gel is helpful - poor skin contact can make the pads sting a little.
Which TENS machine do you have, and what kind of pads does it need for this treatment.
Would this one work?
It’s this one
I have no clue how a probiotic is supposed to affect urination, but it’s helping me.
Another thing that helps is sitting with a thermaphore heating pad thing, rolled and placed between your junk while sitting on it. As if you’re riding it.
I have to work sitting down so the thermapad thing helps a fuck ton to bring relief. I own two now. One for the bedroom and one for the office—I’m a lazy bastard.
I've been taking this ever since you recommended it to me a couple months back. https://www.amazon.com/gp/product/B088KV95Z3/ref=ppx_yo_dt_b_asin_title_o03_s00?ie=UTF8&psc=1 is the Glucosamine Sulfate not ideal either? GS seems to be relatively beneficial as well so I figured might as well. Tho, I can barely tell if its really helped with my inflammation/pain.
Hey webslave. Was wondering if you could give your thoughts on this source of palmitoylethanolamide? https://www.amazon.co.uk/Levagen%C2%AE-Palmitoylethanolamide-Love-Life-Supplements/dp/B07TKYJ96M/
It seems fine but wanted to make sure it was the right type of medication you're recommending!
So what you're trying to tell me is that an author, who is a *medical doctor*, who actually spent years and years of training, has a practice where he has helped sick people get well, has a best-selling book, and 4,482 reviews on Amazon with 4.7 out of 5 stars, is a quack? Am I correct?
Fiber Fueled: The Plant-Based Gut Health Program for Losing Weight, Restoring Your Health, and Optimizing Your Microbiome Kindle Edition
by Will Bulsiewicz MD (Author)
4.7 out of 5 stars 4,482 ratings
Seems likes they're both using electromagnetic field therapy. There's one review with a guy claiming it helped his prostate.
I just bit and it came to $272.31 after 15% discount and taxes were applied. Expected delivery tomorrow.
I got it today from amazon and took first dose
Palmitoylethanolamide (Pea) - Natural Pain Relief Pure Powder - Anti-Inflammatory Supplement 30 Gram - Harvest Naturals https://www.amazon.com/dp/B0812B4RX5/ref=cm_sw_r_cp_api_glt_fabc_6JDWJCJKF9P17GQJBS46?_encoding=UTF8&psc=1
Sorry, you asked for the link to NAC. Try this. It says unavailable, but they may be restocking soon. You can also check your local Whole Foods if you have one. There are other brands too.
I got this.
But apparently it needs to be used only sparesly and not more than 2 days in a row. Shame.
Yes. Along with many other conditions. IBD, Inflammatory Arthritis, skin disorders, back pain and mood disorders are a few off the top of my head. My opinion is that this is a widespread microbial disease that is likely linked directly to gut health that regulates everything from immunity to your mood.
Please take a look at the book - A headache in the pelvis https://www.amazon.com/Headache-Pelvis-New-Expanded-Understanding/dp/0972775552
I feel like there must be some kind of physical therapist that would work with you - have you called the offices in your area to directly ask them? If that doesn’t work, many men find benefits from pelvic floor relaxation-focused stretches and bodywork at home. Here are a few ideas:
I wanted to get this book for myself but haven’t yet, it’s a bit pricey:
Pelvic Floor Therapy textbook
Pelvic Floor Stretches
This is the wand recommended and I’ve used. Also get a large pump of some water based lube. You may find it someplace else for a few dollars less. This is the brand and model...pick your color.
the main ingredients in prostatan are saw palmetto, nettle, pumpkinseed oil etc.. what you find in a typical prostate supplement. There’s a better company that sells the same thing, you can get it on amazon. It doesn’t have the E171 coloring. These have worked for some people so it’s worth a try. Also these have graminex in them, which has been proven to shrink prostates. It’s a really small amount though, nowhere near the amount needed to show actual results.
Wash with non-scented soap every day, and moisturize with coconut oil or you can use terrasil balanitis ointment (Amazon) as well since the zinc oxide in it will help with skin inflammation. That product also has cocunut oil and other natural ingredients that will help in the healing process. If you can, try letting it breath by not wearing underwear as any friction will be bad. Eat well, stay hydrated, and get 8+ hours of sleep. Your body will take care of the rest. And also be gentle while washing it. Don't masturbate for a few weeks to a month. You will get through this. Here is the product I use. https://www.amazon.com/dp/B00M9BI6X6?ref=ppx_pop_mob_ap_share
Ended up ordering prostate pro on Amazon. Can't go wrong for 20 bucks, worth a shot.
Here's the link
Also used interfase plus It is a biofilm disruptor that supposedly breaks down the protective layer the bacteria hides in. Do not take that if you take blood thinners or insulin. And check with a doctor if you take any prescription meds
These 2 things do wonders for me:
Cialis daily prescription and use “good RX” to get a huge discount (Came out to 20-30 bucks a month for 30).
You actually tried palmitoylethanolamide? Also, I've had more luck with Source Naturals Swedish Flower Pollen Extract Supplement than bee pollen.
For me, this is manageable with supplements and diet but never goes away entirely. I have urethral burning but it's also paired with bladder pain.
I buy the NootropicsDepot one - here's a link to it on Amazon https://www.amazon.com/gp/product/B01HFN5Q3A - you can get it for a bit cheaper on the website https://nootropicsdepot.com/palmitoylethanolamide-pea-400mg-capsules/
Lots of studies for it in pain, seems to help in many cases.
Honestly dude I just use my finger. Urinate, cut your nails, wash your hands, lube up and get to work.
You should use gloves but I don't because I have a hard time feeling the tension and trigger points.
it is very effective. I recommend that you google pelvic floor physiotherapist and make an appointment. He/she will teach you how to use it.
I understand what you are going thru. You are not alone and I promise you, you will get thru it. watch this youtube video and start doing the stretches he laid out asap https://www.youtube.com/watch?v=J6tueuGlo1Q
Also do leg swings and side to side lunges. You will start to feel better in a couple of weeks
order q-urol asap https://www.amazon.com/Q-Urol-Prostate-Chronic-Prostatitis-Syndromes/dp/B000O6J74K take twice a day
from my personal experience the combination of those two supplements works (combined it gives you the same as Prosta PQ but much cheaper):
I am without symptoms 6 months now, after 5 years of 24/7 pain.
After 10 different doctors and tons of antibiotics i discovered the wise anderson protocol that changed everything for me.
I took anti depressants for a year and alpha blockers + quercetin.
Now i dont take anything and i am in a zero symptoms condition.
THIS helped me understand whats going
The Garlic for sure feels a lot better. There are suppositories for prostate function on amazon.
I am unsure about the probiotic yogurt I think the sugar might be a bad thing. Maybe something like Kefir/Kombucha..
I made my own cushion. I bought some of this.https://www.amazon.com/gp/product/B00AL2J3BO/ref=oh_aui_detailpage_o08_s00?ie=UTF8&psc=1
And used the cover from another seat cushion. I traced the pattern of my car seat then cut a hole in the center so that area has no cushion. https://images-na.ssl-images-amazon.com/images/I/51rDpRBlV%2BL.jpg Similar to this, but the opening is much bigger. It's helped a lot.
Majorly helped symptoms in my experience, and I started long after I'd stopped the antibiotics.
It's pretty tough to do effectively on yourself with using some tool. I use the Aneros Syn - http://www.amazon.com/dp/B005VJIESA. Whatever you do make sure you use plenty of water-based lube.
You would not be smearing fecal matter into the prostate. You aren't touching the prostate itself. Here's a good image of the anatomy involved: http://img.webmd.com/dtmcms/live/webmd/consumer_assets/site_images/articles/image_article_collections/anatomy_pages/prostategland2.jpg
Sorry for the delay in my reply... I don't check this account very often.
My blood pressure is always high at the doctor's office too. I think they call it "white coat hypertension".
Sorry about your diagnosis, but at least you have something to call it. I think I got the DRE probably every other visit. My uro always said "sorry about that" afterwards, which made it even more awkward :p... but it definitely became less painful after the first time, which was so bad I almost passed out. My prostate was extremely inflamed.
So if you're on the antibiotics, I'd highly recommend looking into getting the aneros prostate massager and using it fairly frequently while you are on them. I really wish I'd done that, as I think it would have helped much earlier.
I'm not sure what did the trick ultimately, but the only thing I changed was using the aneros and taking 3 of these a day: http://smile.amazon.com/PollenAid-Flower-Pollen-Extract-Graminex/dp/B0002DUEXS
Right now I'm ranging from 90-98% better! I never thought I'd improve this much.
Good luck, definitely hit me up if you have any more questions...
Sorry to hear about your insurance man.
These 2 books deal directly with the condition and go over some stretches and trigger point therapy:
A Headache in the Pelvis, a New, Revised, Expanded and Updated 6th Edition: A New Understanding and Treatment for Chronic Pelvic Pain Syndromes https://www.amazon.com/dp/0972775552/ref=cm_sw_r_cp_awd_p0zcxb0ZZHKJ6
Heal Pelvic Pain: The Proven Stretching, Strengthening, and Nutrition Program for Relieving Pain, Incontinence,& I.B.S, and Other Symptoms Without Surgery https://www.amazon.com/dp/0071546561/ref=cm_sw_r_cp_awd_z1zcxb98XDPQ1
Saw palmetto helps lots of people with that. I've some success with this (2 in the morning, 2 at night): http://www.amazon.com/gp/product/B0009TUKSO - which combines saw palmetto and a few other supplements thought to help.
This also helps me, but I notice the impact sort of wears out after a while... so now I take it for two weeks (2 in the morning, 2 at night) and then cycle off of it for two weeks. http://www.amazon.com/gp/product/B001F0R0DY
Yeah, I'm really surprised at the lack of frank and open discussion about this online given the supposed number of people who suffer with it. Seems like all of the existing forums have either been dead for years or are created primarily to hawk some product.
I'm also kind of amazed how little Urologists seem to know about the current state of knowledge on it.
The only people I've heard from in various forums that have had success in managing the symptoms down to almost zero eventually went the physical therapy route, often after being pumped full of antibiotics to no effect. That's why I'm holding out some hope for that being successful.
I was on doxy for many months with no real improvement. Also a few weeks of Ciproflaxin from my primary doc before I went to the urologist, but I started having some pain in my tendons and the Uro thought it was safer to avoid it. It was after two+ months of Bactrim that I finally gave up on antibiotics.
I'm pretty sure mine did start with an infection a little over a year ago now. My theory is that either the bacteria just does a lot of damage to the inside of the prostate that remains after the infection and causes pain/inflammation and/or the pelvic floor muscle issues described in A Headache in the Pelvis contribute to pressure and inflammation.
I have tried saw palmetto - I actually did notice a bit of an improvement in urinary symptoms taking this: http://www.amazon.com/Now-Foods-Clinical-Strength-180-Count/dp/B003P7YWDG/... I was doing massages at the time, and I noticed that when I was taking this my prostate felt "bloated" so it freaked me out a bit and I stopped... but maybe I should add that back in.
I haven't found anything that worked to great effect or consistently.
Usually when I tried something new I had a short-lived placebo effect.
Curcumin seemed to maybe help a tiny bit with inflammation and soreness, but it took several weeks before I noticed anything and the impact was subtle. I still take it periodically. This is the one I used: http://www.amazon.com/Turmeric-Curcumin-Complex-BioPerine-Bio-availability/dp/B00JA4TLTI
There's a NOW Foods prostate supplement that seemed to help a bit with frequency and that "pinched down" or restricted feeling when urinating... but I stopped taking it after a while. I noticed my prostate seemed noticeably more swollen during massages while I was taking it, and that spooked me a little. But this is it if you're interested in trying - http://www.amazon.com/Now-Foods-Clinical-Strength-180-Count/dp/B003P7YWDG