What are /r/covidlonghaulers' favorite Products & Services?

From 3.5 billion Reddit comments

This is more accurate than any surface scan which only tells you your skin temperature.

https://www.amazon.com/Vicks-SpeedRead-Digital-Thermometer-V912US/dp/B000GRXHIE/

They used to be like $5 but pandemic. Walmart also has them, maybe cheaper.

You might find beet juice a bit more tolerable with the same effects. Two hours later my spO2 is +2 points.

It's also healthy as heck with a ton of nutrients.

Problem is much more expensive, at least the quality organic kind like Lakewood, knudson, etc.

• https://www.amazon.com/Lakewood-Juice-Beet-Pure-Organic/dp/B00W8B6G84

• https://www.walmart.com/ip/R-W-Knudsen-Organic-Juice-Beet-32-Fl-Oz-Bottle/118096168

(you seem to be in an all too familiar stage of desperation, the experimentation is good when safe but please be careful)

It seems like it works for some people and not for others but get some full flush Niacin and try it if you haven't. I've only been taking it for 4-5 days now but my energy and brain fog absolutely improved.

https://www.amazon.com/gp/product/B004KWJORE/ref=ppx_yo_dt_b_asin_title_o06_s00?ie=UTF8&psc=1

I take two of these in the morning when I wake up. There's a period of time that you have to deal with the flushing reaction (red skin, feels like sunburn) but it should subside in less than an hour.

I understand others have said this hasn't worked for them but I am telling you it's worth a shot. It was like a light switch for me... not all of my symptoms are good but things feel so much better. I don't think I'm out of the woods but man do I feel like I'm in a better place.

I can relate to everything you said. I live alone and had no idea how bad my energy levels got and the brain fog because I was just in my own world and I disappeared too. It was terrifying but you will get through this. Some days I could walk 3 miles and feel okay, others I felt like I was going to pass out just getting outside my apartment building. I'm a software engineer and I was basically unable to think or remember any details of projects I was working on. It was terrible man...

You are not alone!

There’s actually mouth probiotics on Amazon that also help nose and throat. It’s a daily thing but i started on those and it really cleared up everything. I started to help deal with my new periodontal disease (due to COVID) but it really kind of did a good job of getting me back to a more normal state with my sinus congestion and its helped the severe dry mouth too. Here’s a link to the one I tried: NOW Supplements, OralBiotic, Developed for Adults & Children, Strain Verified, 60 Lozenges https://smile.amazon.com/dp/B003P7YVTQ/ref=cm_sw_r_cp_api_glt_fabc_EJBN24J9Z3ZMW948RQ4S?_encoding=UTF8&psc=1

This and a combination of eating very spicy food when I am clogged and I always have some NyQuil on hand.

I hear you loud and clear it is the worst! This has been a constant struggle for me. Here is what has helped so far:

Probiotics

Triphala 2 capsules in the morning and at night.

1 teaspoon Chia seeds/ 1 teaspoon crushed flax seed soaked in warm water overnight, drink on an empty stomach.

Ginger/fennel seed tea 1-2 inches of grated ginger 1 Tablespoon fennel seed 5-6 cups of water Bring to a boil and drink 30 mins before eating.

Hope this helps.

That is a great question. The doctors I talked to at Mayo Clinic, the NIH and elsewhere said while there is no "pill" right now, they are hoping there will be highly effective treatments and hopefully a cure within 12 to 18 months. They explain what is going on inside the body, and the research that has just begun into treatment/cures. Have you applied to be seen at a PASC clinic? There are now dozens of those in medical centers around the country. Also, there are a number of telehealth centers now emerging. Mount Sinai gave me a link that you can give your physical therapist and the Mount Sinai PASC therapists will train your therapist via telehealth. That link is in the book. In the book I lobby hard for the US government to spend $50 billion on research. They are spending $1.15 billion this year -- the first funds ever given to this issue. I'm hoping others will support my efforts to get Congress to fund it at a much higher and faster rate. Here is the link to the book. I hope it helps. https://www.amazon.com/BEATING-LONG-HAULERS-physicians-symptoms/dp/1737184605

I hit nine months last month and had the most normal period I’ve had since I got sick: didn’t bleed like a stuck pig, no seriously weird blood clots. I also didn’t feel like killing myself, which was nice. I’ve always had some emotional lability around my period, but post-Covid it was like I developed PMDD out of nowhere.

I started taking a supplement called Go With The Flow last month. I don’t know if that’s what helped or if it’s just time, but I felt so much better I’m going to keep taking it.

https://www.amazon.com/dp/B00EOBH8KG/ref=cm_sw_r_sms_api_glt_fabc_FH32CVM5GN4QM0MADPKV?_encoding=UTF8&psc=1

Just this from amazon. I haven’t done a ton of research on brands yet but now that I know it works for me I will stick with it. I take it 20-30mins before every meal.

i had extreme bloating till i started this fiber it really helped me

https://www.amazon.com/gp/product/B0002ON8DU/ref=ppx_yo_dt_b_asin_title_o06_s00?ie=UTF8&psc=1

My mom has had horrible constipation alternating with diarrhea. A naturopath put her on a European supplement called iberogast (a liquid), fiber supplements, probiotic, cut out all the gluten dairy and coffee, added fresh pears and apples every day, and 1 castor oil warm compress to abdomen every evening for 1 hour. Knock on wood she is doing so much better. Her gut has really normalized.

Alternately, I had straight constipation. Saw a Chinese herbalist who gave me a weird mix of twigs and herbs to boil and drink every day, and goddamn if it didn’t cure me. Without throwing me into diarrhea. My advice is, get a good naturopath or try some Chinese medicine

Edit to add: on bodypolitic someone did some research about which bacteria get depleted in the gut after covid (there was a paper published) and they concluded that this probiotic looked like a good option to replenish those specific microbes. He said he took it and did notice an improvement. That’s a sample size of 1 though so take it as an anecdote.

https://www.amazon.com/Ohhiras-Probiotics-Original-Capsules-Cultures/dp/B00141B7SS

My major neurological symptoms were resolved pretty much after a week of taking lion's mane & mixed mushrooms.

Maybe anxiety, but not necessarily. There are people with severe ME/CFS who get are getting relief from severe crashes using xanax, I think (a benzodiazepine, for sure). I don’t understand the connection, but I know it’s not to treat anxiety in their case. These are people who are sometimes so sick they cannot eat, cannot tolerate light or sound, cannot speak. Sorry I don’t know much more about it, but if you do a search, you’ll find a lot of anecdotes of people having this perhaps paradoxical response to benzodiazepines.

https://www.ecosia.org/search?q=ME%2FCFS+xanax

And yes, dependence can be an issue for people with ME/CFS too, so caution is warranted. Not everyone has trouble with it. I have taken xanax (sparingly) for years PRN for anxiety, and have never developed a craving for it so far.

If half a tablet worked well for you, you could try half that amount and see if that works, too. The smallest dose that works is best.

This app helped the Tinnitus go away.

It’s supposed to train your brain to tune it out, and then it stops.

I hope this helps.

https://apps.apple.com/us/app/starkey-relax/id966601084

https://play.google.com/store/apps/details?id=com.starkey.tinnitus&hl=en&gl=US

I suggest you to try Trioral, I’m the same boat as you with pots stuff, it help me a lot! (Taste like salty water but it’s really good for pots like symptoms)

Oral Rehydration Salts ORS (100, One Liter Packets/Box) World Health Organization (WHO) New Formula for Food Poisoning, Hangovers, Diarrhea, Electrolyte Replacement https://www.amazon.com/dp/B00OG8G9UM/ref=cm_sw_r_cp_api_glt_fabc_4QE66B27ADB4FX58HTCK

This has been such a challenge for me as well. What has helped me the most is Triphala/chia seeds in the morning and Triphala at night. I also drink a tea that helps relieve bloating and it has been a life saver.

1 teaspoon of Triphala powder

8oz. Of hot water let steep for 10 mins and drink before bed.

1 teaspoon of Triphala powder

1 teaspoon of chia seeds in 8 oz. Of water. Let soak overnight.

Drink first thing in the morning.

Tea

1-2 inches grated ginger

1 Tablespoon fennel seeds

4-5 cups water.

Add to water boil for 5 mins and cool to drink. Drink 30 mins before meals.

You can also take Triphala capsules

Thanks for the recommends :)

I usually avoid things like gummies because I’ve eliminated not just soda but most sugars as well (long before covid), but the pre-measured doses are definitely a selling point, so I’ll check those out.

It’s funny you mention Lavender. Lavender & Vanilla is one of my favorite scents. I was disappointed when they stopped selling my favorite dryer sheets with that scent.

I also completely forgot I have two aromatherapy / migraine sticks, one with Peppermint, Spearmint, and Lavender essential oils, and the other with Peppermint only. The one with Lavender and Spearmint is nice and soothing while the Peppermint-only one can be a little intense, so I try not to use that one if late in the day. I should be using them more often, so thanks for reminding me of them ;)

Where do you use the cold compresses? Face, neck, shoulders I’d guess..

I bet massages would help with circulation and reduce inflammation as well.

Feel free to message me any time, you’re fun to talk to. :)

Damn fine post.

Found lots of similarities between our experiences. Always trying to make progress even in the face of adversity, which makes the bad periods during this doubly-frustrating.

Had a question: haven’t tried cbd, but growing up in CA I went through a period of experimentation in my teen and young adult years. Always found that the stimulants worked better for my chemistry than the depressants did—maybe I tried the wrong kind, maybe it was an indica-vs-sativa thing? Or does cbd work differently?

I feel like there’s a need to rewire the brain so I’m open to trying this. Concerned about possible memory issues though which I experienced when using weed in the long-ago past.

Ps: you mentioned cumin powder, I assume you’re talking about turmeric/curcumin, which does help reduce inflammation. I recommend the Zhou brand Turmeric and Ginger with BioPerine on Amazon. Best to take in the am as the ginger can be stimulating (causing insomnia).

I took it in liquid form from a dropper. This is the product I used. They might all have similar effects, but this is the first and only one I’ve tried.

Hemp Oil Extract - 2 Pack - New Age 1000 - Grown & Made in USA - Natural Hemp Drops - Helps with Sleep, Skin & Hair https://www.amazon.com/dp/B07MTQ95ZY/ref=cm_sw_r_cp_api_glt_fabc_BDMWJ7XNS40BX48M5NHC?_encoding=UTF8&psc=1

This is the stuff that helped me. I really hope it can help you too!

Hemp Oil Extract - 2 Pack - New Age 1000 - Grown & Made in USA - Natural Hemp Drops - Helps with Sleep, Skin & Hair https://www.amazon.com/dp/B07MTQ95ZY/ref=cm_sw_r_cp_api_glt_fabc_BDMWJ7XNS40BX48M5NHC?_encoding=UTF8&psc=1

My doctor told me that taking Vitamin E for a prolonged duration might cause toxicity in the body, and may cause bleeding, stroke and other adverse side effects. However it is very safe for short term use.

I am sorry that you are suffering from the pain, I think you can give the Vitamin E a shot, it definitely helped me and one of my friends too who was having similar muscle pain.

I am not sure if it is available where you live, but I was prescribed Evion: https://www.amazon.com/Evion-Vitamin-100-Capsules-400mg/dp/B07C9MBJ6Y

Great post! As an endurance athlete ive used these for yrs. i do think proper nutrition is key to us feeing better..

FYI - Careful if you have cardiac issues, drinking it too concentrated, or too quickly can spike your blood pressure (if ya have cardiac issues take it slow).

Cheers!

Oral Rehydration Salts ORS (100, One Liter Packets/Box) World Health O... https://www.amazon.com/dp/B00OG8G9UM/ref=cm_sw_r_sms_api_glt_fabc_QRZ84SZZZW4A228XD9R8

The vaccine seems to have improved my health, but worsened my symptoms. Ivermectin was a formality but it makes me feel more at ease to have it on hand and keep taking it. Autophagy Renew and l-lysine together have brought me back from the Nowhere Place. The former took me from 10% to 50% after four doses. Buy it now. Here's the link: https://www.amazon.com/Life-Extension-Geroprotect-Autophagy-Renew/dp/B08MR2SPX1. Skip 1-3 days between doses after the first 3 days or autophagy may turn off.

I highly recommend getting Beating Long Haulers, a new book, which has a page of quotes from the top doctors in the world saying: "PASC (which is the NIH name for Long Covid and Long Haulers) is biologically based -- it is not psychosomatic." In other words, it is not a figment of the patient's imagination! These doctors are the top experts in the world, from Mayo Clinic, Mount Sinai, Johns Hopkins, the NIH, Stanford U Med Center, etc. Take that page and show it to your family, supervisors, and friends. It proves you are not lazy, you are not making it up and what you have is real. I also strongly urge the US government to spend $50 billion on research into cures and treatments because millions of people are suffering from these symptoms. Here is the link: https://www.amazon.com/BEATING-LONG-HAULERS-physicians-symptoms/dp/1737184605

Here is the link to Beating Long Haulers. My name is Michael Bowker. I hope you like the book....! Can I put this link in a post?

https://www.amazon.com/BEATING-LONG-HAULERS-physicians-symptoms/dp/1737184605

I use the Carlson 50mg brand and get it from Amazon. It was the only one I could find at a low dose. At first, I cut them in half and did 25mg 1x a day to get used to the flush. I take it after a full meal and with a full glass of water or I get overcome by the flush effect. I heard eating an apple with it also helps if you feel too funny from the flush. After a few days, I did 25mg morning and night. Then slowly worked up to 100mg a day total. Some people take a lot more, like 500mg a day, but I can’t tolerate more than 100.

Has she tried digestive enzymes supplements? Like this one: https://www.amazon.com/Enzymedica-Potency-Enzymes-Digestive-Capsules/dp/B00HLXQ0HG/ref=mp_s_a_1_8?dchild=1&keywords=digestive%2Benzymes&qid=1619162289&sprefix=diges&sr=8-8&th=1&psc=1

I used this with great success

https://www.amazon.com/gp/product/B0002ON8DU/ref=ppx_yo_dt_b_asin_title_o08_s00?ie=UTF8&psc=1

https://play.google.com/store/apps/details?id=com.kihdapps.brain_injury

There are a few on play store There was one that was really helpful, it played like an rbg game but helped with daily tasks, but I can't find it now

Thank you so much again!!! I found this one au natural that's kind of the same, I think I'll try both now.. Thank you Thank you

Dr. Clark sells a 25 mg Niacin supplement. That's the smallest dose I could find.

https://www.amazon.com/Clark-Niacin-Vitamin-Supplement-capsules/dp/B004SQM5D2/ref=sr_1_9?dchild=1&keywords=nicotinic+acid+20mg&qid=1609995214&sr=8-9

Has good reviews as well.

I’m using Turmeric in a form of “golden milk” to make lattes.

https://www.amazon.com/Gaia-Herbs-Golden-Milk-Powder/dp/B01EJ4WJIS

Tastes good and probably beneficial. But not a definite post viral symptoms cure.

Was thinking of trying it out even though people in the comments said the scientific paper was posted by a website that publishes iffy studies. Will try it out now though. Just want to know if they vitamins im picking are the correct ones.

For the Niacin I want to get this as for Quercetin I want to buy this one.

Im willing to change what I get based on recommendations on what are the correct supplements to take.

I agree. This is a mistake. The more I learn about CFS and the various other linked syndromes the more I am learning to manage my long haul COVID. I've found this book to be extremely on point about my experiences and helping me with interventions.

https://www.amazon.com/gp/product/0987509837/ref=ppx_yo_dt_b_asin_title_o05_s00?ie=UTF8&psc=1

This is how bureaucracies stifle growth by handing down mandates on naturally occurring activities. Let the users downvote the comments if they feel they are unhelpful, thats the point of the system. This isn't r/communism

Also, while I am sure that the syndrome activated in me is very much CFS (or rather ANSD, autonomic nervous system dysfunction), there is no reason to presume this is the only thing going on. We could all have persistent infections for all we know (hypothetically to make the point). This is not even uncommon in CFS, the syndrome may be activated by any number of things, including stress, physical trauma, or some kind of ongoing issue that is overwhelming the body's homeostasis. Since we don't have any available treatment, knowledge about CFS is at the minimum a chance to find ways to cope with this issue, and at best a possible way to resolve the issue and set the body back to homeostasis.

I’m sorry this is what she took

https://www.amazon.com/CKLS-Colon-Kidney-Spleen-vegicaps/dp/B005YH05GI

I haven’t tried it because she literally just told me last week and I never knew she dealt with vs

If you're able to, get a daylight lamp. I use one and it's such a lifesaver, living in a rainy northern-hemisphere city in the winter. At least half an hour in the morning, don't use it like 6hrs before you plan to go to bed (for the night, napping is fine). Easiest is to put it where you eat breakfast.

Note: make sure it's a sunlight lamp for treating seasonal depression, and at least 1000 lux. I used a "sunlight lamp" for years that was actually just a blue light lamp for waking up, and didn't treat depression at all....

I have this one, I like it because it's adjustable and I can use the "normal" setting as a desk lamp. Also the brand is what a clinic I went to used, so I figured it was good. https://www.amazon.ca/Carex-Day-Light-Bright-Light-Therapy/dp/B089DP3ML7/

Glad those are helping. These are the ones I take. https://www.amazon.com/Reset-Electrolyte-Electrolytes-Melatonin-L-Theanine/dp/B094RFF6RC/ref=sr_1_4?crid=35T0KMA8QTEUP&keywords=reset+calm&qid=1670613043&sprefix=Reset+calm%2Caps%2C127&sr=8-4

We have tried many brands but at last, we found Pryme Health UMF 5+ Certified 100% Pure Manuka Honey which according to me is the best in the Indian market and the only brand which sources honey directly from New Zealand. and there each Jar comes with a certificate to track the authenticity.

I will recommend everyone who is looking for pure and healthy honey to try out Pryme Health’s Manuka Honey.

https://www.amazon.in/dp/B09W5DFHNM?ref=myi_title_dp

Very well said. You can use this site below to check if the site is legit or not:
https://www.trustpilot.com/
All the Canadian based pharmacy websites I plugged into trust pilot came up with zero reviews which is unfortunate.
There are a few good legit sites that are based in India but Canada Customs is one of the very strict customs in the world. The way around this is the pharmacy you're ordering from has to label the item as "Dietary Supplements for Personal Use".
But even with that, there's no guarantees because Customs will open the package and check the items. Someone commented and said to double bubble wrap it so that the Customs agent is lazy to not go through the hassle of opening the double layer bubble wrap to see it's actually ivermectin.
At least with the Canadian based pharmacies, there won't be customs involved but like I said above, there's no reviews for all the Canadian based pharmacies that I looked up for.
It's also very fishy that the Canadian based pharmacies are only selling covid and sex drugs and no other drugs which makes me suspicious that it's not legit whereas the Indian pharmacies carry all sorts of other drugs.

They were not.

https://www.amazon.ca/Platinum-Nattokinase-Super-Bonus-Veggie/dp/B0881WTT4H?pd_rd_w=E2rNn&content-id=amzn1.sym.ccd66d6a-fd89-4716-b3af-012410ff4aa9&pf_rd_p=ccd66d6a-fd89-4716-b3af-012410ff4aa9&pf_rd_r=FNT2ZYNN836XA632EG5X&pd_rd_wg=...

I buy 12mg chewables and break them in half. I take only on work nights or if I have to sleep so I can get up at a set time.

Too much and I get crazy dreams, very vivid.

Garden of life probiotics it has kefir in it which I've read is very good for digestive health has both probiotics and fruit probiotic link

second this - a lot of folks are saying to eat fermented foods but if you are doing a low histamine diet / histamine sensitive this does not pan out. my doctor has me taking miralax once in a while and that helps get things moving. i do eat greek yogurt a few times a week and https://www.amazon.com/Probiotics-Billion-CFU-Prebiotics-Acidophilus/dp/B09GLGC9DG/ref=sr\_1\_3\_sspa?keywords=probiotics+for+women+kiwi&qid=1669068937&sr=8-3-spons&sp\_csd=d2lkZ2V0TmFtZT1zcF9hdGY&psc=1&smid=A1MMEZWXCBJG60

Have you tried magnesium for the palpitations? Mine were non stop and spacing magnesium out through the day has made them go away (they come back if I stop it, but they don't bother me if I take it.). The one I take is this: https://www.amazon.co.uk/gp/product/B07SVVP426/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1 It's less likely to cause diarrhea than other forms of magnesium.

probiotics link

superfood vitamins

Awww I feel you. I bought this machine to keep my muscles moving and blood flowing when I can’t do much else. I put it next to the wall so I can brace myself if I have to:

EILISON FitMax KM-818 3D XL Vibration Plate Exercise Machine - Whole Body Workout Vibration Fitness Platform w/Loop Bands - Home Training Equipment fo https://www.amazon.com/dp/B07YWGW62H/ref=cm_sw_r_cp_apip_NMEThFXc1QgmT

It’s the only reason I don’t completely look like the undead.

This gadget has given me some of the greatest head relief when I’ve pushed myself too far and I feel near dead:

Eye Massager with Heat and Vibration, Compression, Bluetooth Music, Remote Control, RENPHO Temple Eye Massage Mask Rechargeable for Relax Eye Strain, https://www.amazon.com/dp/B088BJ8B1G/ref=cm_sw_r_cp_apip_f1h9AX7Puzuvx

I get super light sensitive, so tired that my face is numb, ocular migraines, headaches, migraines, etc. this helps with that aspect!

Activate Your Vagus Nerve: Unleash Your Body's Natural Ability to Heal https://www.amazon.com/dp/1612438741/ref=cm_sw_r_cp_apip_SWdX56tMCqnth

This book was pretty crucial in the beginning of my research!

ugh i'm frustrated for you; I will say low Mg is associated with reactivated infections, wondering if you just didn't take it long enough or need high dose thiamine to absorb it better, or even like a transdermal oil.

I do have this theory on Mg that the level of Mg in the brain/CNS as a whole is independent from like body Mg, and that's why Mg threonate was so helpful.

https://www.semanticscholar.org/paper/Neurobehavioral-and-biochemical-effects-of-chloride-Sadir-Tabassum/cb8827ab4ffb72f3a53ee5b68e399249469f88b8

this is a study where they found Mg threonate worked the best to increase brain Mg levels. Not sure how it relates to forms like glycinate though, so just another angle to think about

honestly, shaved is shaved.

You just need a quality shaver https://www.amazon.ca/gp/product/B00U0YK4MK/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1

I just use my Braun once in awhile when I want an extra close shave.

You can get 99% of it just by feel. You do need an extra mirror so you can stand with your back to your main washroom mirror, and hold up a second mirror to check the back for mistakes. It's not hard

I even learned how to cut my wife's long hair in a very simple way. Take all the hair, and gather it together into a ponytail in the back, use two scrunchy's or elastics, put one in the middle and the other at the bottom of the ponytail, at the length she wants her hair to be cut. Cut below that bottom elastic in a straight line.

The flip all the hair to the front, do the same thing: gather it into a ponytail, and put two elastics, one in the middle, and one at the bottom. Cut it below the bottom elastic, at the length she wants.

Boom you're done

Red light significantly reduced and then eliminated my brain fog as well. I went to a chiropractor that had a high powered $5,000 unit. He used it on the top of my head in four places and then on my ear to stimulate the vagus nerve.

He recommended the product below which I bought. He said it’s supposed to be just as effective, it just takes 10-15 minutes a session as opposed to his unit that takes 5. I use it occasionally now for an extra boost of clarity. Some Planet Fitnesses have full body red light booths if you’re looking for a cheaper alternative than a sauna or Dr to test it out.

Hooga Red Light Therapy Device,... https://www.amazon.com/dp/B07T81R1DX?ref=ppx_pop_mob_ap_share

I use the Ancient Minerals gentle spray found here. I have sensitive skin so unless I get the gentle one, it can sting a little for 5 minutes. I get my husband the full strength one and it doesn’t bother him. They have several varieties.

It fixes the bulging veins for me when those episodes come on. Overall, I am still battling SOB, fatigue/PEM and brain fog. I am 2.5 years in. Working with a microbiome specialist fixed the GI issues but the other symptoms are persisting.

Here is a wedge pillow I bought off Amazon. It comes in two pieces, large and small, which can each be used separately or zipped together to make an even larger one.

You could try it and see if elevating your upper body and head helps with the issue.

https://www.amazon.com/dp/B08N42364Y?psc=1&ref=ppx_yo2ov_dt_b_product_details

Bed Wedge Pillow – 3 in 1 Support - Adjustable to 4.5, 7.5 & 12 Inches – Combination Zipper Technology | Memory Foam Bed Wedge Pillow for Sleeping, Acid Reflux, Anti Snore, Machine Washable

Sleep masks. Get the kind with the puffed out eye part though, so they don't bother the person's eyelid. Gamechanger

I bought like six pairs of these lol https://www.amazon.com/dp/B0832GKW4Q?psc=1&ref=ppx\_yo2ov\_dt\_b\_product\_details

(i am not affiliated with this company and make no money off you buying with this link, just showing what I mean)

I had to go antihistamine for a bit, give up alcohol and caffeine and take reclaiming my ability to REM sleep seriously before they went away. Granted the headaches went on for only 1-2 weeks after the onset so they might have cleared up on their own. Magtein was where I turned a corner on sleep. The diet is harder to sort out and takes some time to reduce circulating histamine, but you can take antihistamines too. Zyrtec worked for me.

Yes, you're correct,thank you. So I purchased this. If it leads to medical breakthrough I'll report back.

https://www.amazon.com/Naturevibe-Botanicals-Organic-Supports-Immunity/dp/B0846KFJX5

Interesting paper.

And if you don't have a centrifuge that can do 6,300 rpm (The suspension was then centrifuged at 6,300 rpm for 10 min at 4°C.) Pomegranate Pell Extract is available on Amazon.

https://www.amazon.com/Zazzee-Extra-Strength-Pomegranate-Antioxidant/dp/B09BM1TKC3/

I am not right now, although there are ginger and turmeric supplements you can take. I am avoiding most of my supplements for a few weeks to try and get accurate blood work

I like these two supplements for ginger and turmeric/curcumin (note that the curcumin is a nano extract, so was chosen for high bioavailability)

https://www.amazon.com/SUPERSMART-Gingerols-Vegetarian-Capsules-Sickness/dp/B07JZFJTNB/ref

https://www.amazon.com/CoreCumin-Micellized-Water-Soluble-Nano-Curcumin-Anti-Inflammatory/dp/B07FFKZG1R/

huh. I actually bought a cheap Chinesium knockoff of the Cephaly: a vagus nerve/brain stimulator tuned for migraineurs. and it works pretty well

https://www.amazon.ca/gp/product/B07H2B3XFD/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1

The difference with this one is that the battery isn't replaceable, but it's way cheaper than the Cephaly to try. I'm thinking about buying a second, and when the first one dies I'll cut it open and see if I can replace the battery myself, or at least reverse engineer it a little and see how it works.

It won't cure it but does help. Make sure it's the Magnesium mentioned in the post. There are different types. I take it daily. It works to help relax muscles. I have a stressful job on a good day and tend to carry that in my shoulders and back. Even after I recover this will stay a daily supplement for me. I have had a very noticeable change in carrying that tension. I usually catch myself so tight that I take a break and have to stretch my neck and back at least twice in a work day and I have stopped having to do that completely. I've been taking it for 7 months. I buy the one my PC told me to buy. https://www.amazon.com/dp/B011M06YFG?ref=ppx_pop_mob_ap_share

That sounds like dysautonomia to me and yes sometimes I do have that issue: Mind Power & Stress Relief - Supports Memory, Focus & Concentration - for Brain Fog

Interestingly my POTS like symptoms went away when I was reinfected. Never came back. I had other dysautonomia symptoms that started after my second infection, but that one never came back.

It's a weird journey, but hang in there. It gets better. Start sifting through this website for various info on dysautonomia, POTS, and thiamine. Thiamine and mitochondrial support is a game changer for many in regards to POTS. Dr. Lonsdale and Dr. Chandler Marrs wrote a fabulous book on this. You're early on and should hopefully have an easier time with thiamine repletion. Hope this helps you.

https://www.amazon.com/Infinite-Age-Antioxidant-Inflammation-Transparency/dp/B08268WLVX/ref=mp_s_a_1_6?crid=2RVFZT872WJBP&keywords=c60&qid=1663243690&sprefix=c60%2Caps%2C421&sr=8-6

I think this is the one I tried

Agree with the others. I wear compression socks, aggressively hydrate, and use these as electrolyte supplements to help with the POTS like symptoms. Really a game changer for me.

https://www.amazon.com/SaltStick-Electrolyte-Supplement-Electrolytes-Replenishment/dp/B0B7SFQSCJ/ref=mp_s_a_1_1_sspa?crid=14EN8NGI9EYBF&keywords=vitassium+electrolyte+capsules&qid=1663116948&sprefix=vitass%2Caps%2C172&sr=8-1-spons&...

I’m getting an oximeter to test my blood oxygenation during wim hof. I hear at 80% blood oxygenation you pass out. If I actually manage to get my blood oxygen down then I’l know wim hof breathing is working.

Ugh, I'm so sorry! I'm going through shortness of breath after my third long haul but it's not histamine related, interestingly, after 7 months I'm finding out it's related to what I believe is cervical neck problems. Go figure. I've been through every theory possible.

I saw someone else mention it awhile back and I thought, "Surely not. This is like glue is all over my lungs and I can't get a deep breath.". Well lo and behold I started doing them recently, plus just with time healing inflammation, but since the exercises it has accelerated healing. I googled C4 and C5 instability and holy heck it can paralyze lungs so you can't breath in deep. I firmly believe since covid can cross the blood brain barrier that it entered the CNS and has caused nerve inflammation. For what it's worth this has helped:

https://mail.google.com/mail/u/0/#inbox/FMfcgzGqPpcnrBsXlXtvgHpTrBDldzMS?projector=1

I think making sure you're getting REM sleep is very important to recovery of this symptom. Melatonin, 5-HTP and magnesium are helpful. For me taking specially formulated magnesium for the brain was the biggest change in this besides Hyperbaric oxygen which is way more intensive and expensive.

Try supplementing enzymes to help your stomach/GI take apart the food.

The first few months of long-covid I had super bad histamine/mast-cell reaction like many go though initially and while things like XYZAL took the edge off, this in particular seemed to really help with food:

https://www.amazon.com/gp/product/B00V4CSXMK

see the ingredients, there is an enzyme for protein, fat and carbs

https://m.media-amazon.com/images/I/81afdYWtcsL.jpg

expensive for daily use but if it works you can buy the enzymes by themselves until you don't need it anymore

Gaslighting is a form of psychological manipulation that calls the victim’s own reality into question.

Well there’s no need to be gaslighted (for want of a better word) anymore.

Self-monitoring is critical to supporting conversations with your doctor or other healthcare professionals. It’s sometimes difficult, in a short consultation with a doctor or nurse, to reflect how you have been, at home, since your last visit.

PeopleWith is available to download and use for FREE and will aid you with future conversations with your doctor.

You can record your daily symptoms, mood, medications taken and missed, supplements and life-style changes etc. Once you start recording, you can then print-out or email your ‘Health report’ direct from the app to your Health Care Practitioner.

This will leave a paper trail of your condition and your doctor will have no choice but to act upon it and will be able to make changes if needed to your treatment plan. All in a medically interpretable format for your doctor.

We want you to get the best advice and treatment for your health. PeopleWith will help you provide a clear picture to a healthcare professional quickly and accurately, but you have to take the first step.

I’ve added a link to download PeopleWith below…

Apple AppStore

Google Play

Hope this helps for those who feel they have not been heard!

Rob

my only worry with being enrolled in something like this is if they forbid using other treatments while on the drug

because I think their drug might help the brainfog but nothing else

the GI issues are from covid destroying gut microbiome and if you were on any antibiotics, I've tried a few probiotics, all useless EXCEPT this one:

https://www.amazon.com/Natures-Bounty-Probiotics-Supplement-Intestinal/dp/B00V4CSXMK

https://m.media-amazon.com/images/I/81afdYWtcsL.jpg

not just a megadose of lp299v strain but also the enzymes help digestion when the gut-microbiome is not present to process/absorb food

make sure you get full 100% RDA of magnesium

obviously none of that is a cure, just barely treatments, and sometimes to reduce fatigue a little try every form of Choline to see what might work for your body, if Alpha-GPC is legal in your country without prescription, try small amounts but not near when you have to sleep (but it might make brainfog -worse- )

hang in there, we're all on this terrible ride together

maybe the IV will work for you, who knows, it's a very advanced drug

Which magnesium did you try? I also tried some and it didn't do anything and then I bought this one and I only have like 5 a day now-sometimes none! I wasn't ever having 5000 in a day, but I was having chains of 5-10 in a row that was really freaky-despite my cardiologist dismissing them.

I know this is impossible to do, but also you need to reduce stress- that just makes them worse. I really love trees and feel calmed by plants, so I would put this on my tv and just sit and listen. Dedicate time to be calm and do focused breathing.

Also I stopped eating a bunch of foods that triggered them.If you're eating big carb heavy meals, you need to switch to salads. It might be boring, but it really helps. No pasta, bread, white flour foods.

If all else fails, usually a cold shower or bath will stop them. This is from vagus nerve stimulation which you can also do by humming and drinking ice cold water.

Don't freak out! You are not having a heart attack, and you will be ok! These will pass. Mine lasted like 7 months and then came back again but have been mostly gone since I added the magnesium supplement.

Good luck <3

https://www.amazon.com/LyteShow-Electrolyte-Concentrate-Rehydration-Additives/dp/B00EISFBYA/ref=sr_1_5?crid=29O41DKD5E3E3&amp;keywords=lyte+show+electrolyte&amp;qid=1660684838&amp;sprefix=lyte+show%2Caps%2C140&amp;sr=8-5

Electrolyte drops. I'm just familiar with this brand, other brands are probably fine too.

The chips and sports drinks aren't healthy choices.

I never had it before Covid either. I just used earplugs I got on Amazon! Sorry I can’t offer more help.

Vibes High-Fidelity Earplugs -... https://www.amazon.com/dp/B018WPOQSG?ref=ppx_pop_mob_ap_share

https://www.amazon.co.uk/Lactoferrin-magens%C3%A4ureresistent-nat%C3%BCrlicher-Aliness-Eisenlieferant/dp/B08X4MGMTH/ref=sr_1_8?crid=GNPD7DBZ33Q0&amp;keywords=lactoferrin&amp;qid=1660578879&amp;sprefix=lactoferrin%2Caps%2C142&amp;sr=8-8

&#x200B;

this may help iron absorption

This is great! Thank you so much! Congratulations on your recovery. I bet you will be back to normal in a few months. Our minds are so powerful, what we tell ourselves affects our bodies. These symptoms are for real but you can change how your brain functions by the way you think. I believe a lot of these neurocognitive symptoms are caused by poor blood perfusion to the brain and is stroke victims can regain physical function through brain training, LC patients can too. https://www.amazon.com/Brain-That-Changes-Itself-Frontiers/dp/0143113100/ref=sr_1_1?crid=33AF30YGFCRFE&amp;keywords=the+brain+that+changes+itself&amp;qid=1660488358&amp;sprefix=The+brain%2Caps%2C100&amp;sr=8-1

I'm not honestly sure, but it uses electrodes in the scale that need to be in contact with your bare feet so I'm assuming it sends an indetectable current and can measure that current, and fat, bone, muscle and water are somehow detectable. This is the one I picked up https://www.amazon.ca/gp/product/B07YFS6GXB/ref=ppx_yo_dt_b_asin_title_o04_s00?ie=UTF8&amp;th=1 It's probably even cheaper in the US

If you've stayed the same weight but your muscles are shrinking, you must either be gaining water or fat. The scale doesn't give you all of the exact information you might want but what it doesn't give you, you can calculate. The results are not perfectly accurate on a day to day basis, but they're plenty accurate for an average person who wants to understand trends over time. If you're losing muscle, the scale will tell you.

Generally speaking, the body is either in a catabolic or anabolic state at any given moment. It's either burning fat and muscle, or it's gaining fat and muscle.

Your description of staying the same weight, but losing muscle implies that you are gaining fat and losing muscle over time, but the thing is that fat takes up much more space than muscle. If you're staying the same weight, but losing muscle in the arms and legs it seems to me that you must also be seeing a bigger spare tire; fat takes up more space and obviously so.

Personally I find it impossible to tell if I've gained or lost weight by looking in the mirror, or how I feel. The scale is much more accurate than my impressions

I thought I had shared this too but I guess not—I got this pillow and it has been VERY GOOD

ZAMAT Neck and Shoulder Relaxer... https://www.amazon.com/dp/B08R3XY84L?ref=ppx_pop_mob_ap_share

Headaches are not gone but the change has been dramatic.

I realized that when I read this book that discusses caffeine addiction and how it’s the #1 reason for anxiety depression in our society. The doctors and researchers won’t accept it because they are all heavy caffeine drinkers themselves

https://www.amazon.com/Caffeine-Blues-Hidden-Dangers-Americas/dp/0446673919

There is a lovely book you might enjoy: The Sound of a Wild Snail Eating. It’s a biography of a very sick woman who spent a year in bed. A snail hitched its way in on a potted plant, and got really sick when she didn’t know how to feed it. It is the story of them traversing their mutual illnesses. I didn’t expect to like a book like this, but it is a treasure.

The Sound of a Wild Snail Eating https://www.amazon.com/dp/B00408A828/

Definitely cant take Lionsmane on an empty stomach; I get nauseous. I take two in the morning (1000mg x2) and one at night for more fertile dreams.

I have it from the brand RealMushrooms link

I've taken a week or so off of all supplements to detox, but I'm going back on because I miss that undercurrent of... something undefinable.

No worries hon. I know this shit is scary and weird and awful and getting a diagnosis is absolutely brutal for most peeps. I was in and out of the ER until I changed my primary doctor to someone who recognized what was happening to me and helped me get it under control. SO many people are developing dysautonomia post-covid.

Liquid IV is pretty good (contrary to popular belief, glucose helps with hydration at a cellular level). But for me, these suckers have been what got me back to normal. I also increased my potassium intake by drinking a lot of orange juice regularly. Finally, add some magnesium in-- your body can't hold on to potassium unless it has adequate mag stores.

And it goes without saying, but do all this under the supervision of your primary care doctor! :)

While it didn't do anything for me, some people benefit from both H1 (Zyrtec) and H2 (Pepcid) histamine blockers.

One of my long COVID doctors is also recommending Omne Diem Histamine Digest 15 minutes before meals

https://www.amazon.com/dp/B096SVYM3L

Vitamin C is also known to reduce histamine levels.

Your mileage may vary.

Apparently you can buy both from Amazon
https://www.amazon.com/gp/product/B08WG1CL5L

The study gives dosing:

Patients received four capsules of ImmunoSEB/placebo daily (two capsules in the morning and two in the evening) on an empty stomach (1 h before or 2 h after a meal) with 1–2 cups of warm or room temperature water. They also received 2 capsules of ProbioSEB CSC3/placebo daily, to be taken with lunch.

Yes. when I caught covid in march 2020 and dec 2021, it help me recover fast. I also suspect that I had covid in my gut in early 2021 and so I took more zeolite and my digestive issues were gone within 12-24 hrs.

Also look into Thymex suppliment. I didn't understand just how important the thymus glad was until just recently. Covid tends to attack the thymus and weaken it overtime. zeolite is still the main one to start with though. (imo).

https://www.amazon.co.uk/Carnitine-Capsules-Function-Support-Attention/dp/B07Z8BFNTK/ref=sr_1_7?crid=EXSM5KZFLTCT&amp;keywords=alcar+acetyl-l-carnitine&amp;qid=1657692254&amp;sprefix=alcar%2Caps%2C229&amp;sr=8-7

&#x200B;

start at 250mg

https://www.amazon.co.uk/Carnitine-Capsules-Function-Support-Attention/dp/B07Z8BFNTK/ref=sr_1_7?crid=EXSM5KZFLTCT&amp;keywords=alcar+acetyl-l-carnitine&amp;qid=1657692254&amp;sprefix=alcar%2Caps%2C229&amp;sr=8-7

&#x200B;

start at 250mg

zeolite powder

Cheaper version here

This stuff works really well against covid/long covid symptoms.

• zeolite powder

I had the same problem in late 2020 after getting covid and zeolite made it feel better within a few hrs. Was back to normal within 24 hrs.

A friend of mine had a nasty stomach virus and she had the runs real bad. She took zeolite and was considerably better after 24 hrs and back to 100% within day 2 or 3.

Which zeolite did you use if you don't mind me asking?

• Also you can try chlorella(only) tablets and NAC supplement for help your issues too. Its just not as powerful as zeolite powder though. NAC you can't find on amazon anymore but you can find it on ebay.

• Kidney Activator for your kidney issues.

• zeolite powder for general help with long covid issues and general detox. This stuff works. If you buy zeolite, make sure you buy the kidney support supplement too because zeolite will not help detox the kidneys. They have cheaper zeolite powders on amazon too. Avoid liquid zeolites. They don't work as well.

There's a device called a Cephaly that I believe is used to regulate the Vagus nerve through electrical stimulation similar to a tens unit. It's generally targeted to migraineurs.

I've tried this cheap Chinesium version, and it's actually very effective for migraines. I have not yet contract Covid.

https://www.amazon.ca/gp/product/B07H2B3XFD/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&amp;psc=1

It doesn't have a replaceable battery like the Cephaly but I'm thinking I'll try to cut it open and take a closer look when the battery dies.

Not a referral link or anything, just want to help people

https://www.amazon.com/Brewers-Yeast-Powder-Lactation-Breastfeeding/dp/B07DP55WK3/#quickPromoBucketContent

See the promotion where you get two pounds, one unflavored and one chocolate for $10 total shipped, that's a fantastic price.

And yes guys you can supplement this, it's not a girl thing in any way despite the labeling.

Lots of nutrition studies on it and it has beta-glucans which some studies show heighten the immune system so maybe will help you deal with future omicron.

It's not going to cure long-covid or make you feel better overnight but it may help things suck less in general.

This probiotic helped me with gut issues during my first bout of Covid (a doctor recommended it). It took a few weeks to kick in and I was on it for 1.5 years. It is much cheaper from other stores but the amazon reviews can tell you more about what people thought while taking it.

This fiber was one of the things my microbiome specialist recommended for my chronic diarrhea after my second bout of covid and I was on it for several months (I am phasing off of it now). She had me start small, just a 1/4 teaspoon and slowly work up to a scoop a day in the morning before breakfast. I would put it in a splash of OJ but if you put it in hot liquid it dissolves better. It really helped me.

She may want to look into working with a microbiome specialist since it is dangerous for diarrhea to persist. They can have her do a poop test that tests what her good and bad bacteria levels are and then suggest food tweaks and probiotic and prebiotic tweaks to get her levels healthy. It is a bit pricey but it made an enormous difference in my situation.

This is the brand, but it's not important, try to see if you can get a PEA 700mg/ LUTEOLINE 70 mg ratio, or combine the two making sure that you find the Micronized/ultramicronized form. https://www.amazon.de/-/en/GLIALIA-700MG-70MG-20BUST/dp/B00VXDQP1G

Yes, it should be safe, no side effects. They are both natural subtances. I'm not trying anything that needs prescriptions atm and trying to stick to natural products as much as I can.

At the same time, I'm fully aware that it won't be a miracle cure, but I have just had another confirmation that Luteoline is a Mast Cell Stabilizer. Have a look at this article, I think it's one of the most complete I have found:

https://hoffmancentre.com/natural-treatments-for-mcas/

This is the product I got.

https://www.amazon.de/-/en/GLIALIA-700MG-70MG-20BUST/dp/B00VXDQP1G

I'm sending a link from Amazon.de which could ship internationally ( not sure of the costs tho). The one I got I found it at my local pharmacy in Italy, didn't buy it online.
I don't know where you are based but know in the US there's a similar product called Mirica with a slightly different dosage. Hope this helps.

Yes, here you go -

&#x200B;

https://www.amazon.com/Backpod-Treatment-Smartphones-Computers-Costochondritis/dp/B01LYNZBV3/ref=sr\_1\_5?crid=2GU4SXD1LF3RT&amp;keywords=backpod&amp;qid=1657221460&amp;sprefix=backpod%2Caps%2C267&amp;sr=8-5

Zeolite Pure was the one I first bought back in 2018 but it was only $35 at the time.

I later switched to this version to save money. They also sell zeolite in smaller containers for a little less money and also carry two versions of the powder.

After having tried both zeolite pure and Heiltropfen brands, I honestly have not been able to tell the difference between any of them. They all worked the same for me. I would refer to the customer reviews to see what others have to say.

Just be sure to not use a metal spoon(wood or plastic spoons only). Use only filtered water. No tap.

For now I'm just using the standard process brand until I find something else(or feel the need to switch). I've heard that Grass Fed Thymus is really good, but all Ancestral brand supplements are pricey(and I have limited funds atm).

Trying to watch what I eat etc. I'm also attempting to address and maintain general organ health(liver, spleen, pancreas, kidneys etc.) by taking supplements for those specific organs.

You have health problems as serious as mine, you are going to have to learn to research and read a lot and definitely not take advice from youtube, facebook or even forums, doctors won't do any of this for you, they don't care.

This is an example of an "active" b-complex which you can search for on amazon. I'm not endorsing this brand, it's just an example so you can look at the ingredients and compare it to a cheap "nature made" supermarket garbage.

https://www.amazon.com/Swanson-Ultra-Activated-B-Complex-Bioavailability/dp/B01CZ5BWUO

https://m.media-amazon.com/images/I/51rqeKJJJPL._AC_.jpg

Normally you don't want megadoses with 10000% of RDA but with B-vitamins they are relatively safe and poorly absorbed anyway.

When in doubt "Jarrows" is always a well tested brand that never seems to lie but they are not as cheap as others. All depends what your budget is.

None of this stuff is going to cure you. However it may help life quality a little.

I bought this one : https://www.amazon.com/Berkley-Jensen-Controller-Strength-Famotidine/dp/B004Y0JUSU/ref=sr_1_3?crid=17CX38ZLSYH3G&amp;keywords=Famotidine&amp;qid=1656858128&amp;sprefix=famotidine%2Caps%2C142&amp;sr=8-3

From "Generic Giant" when clicking on the "See All Buying Options" button on the right.